Hi all - we won't know diagnosis and needs until mom sees the hearing doctor(s) but right now she is nearly deaf in one ear and major major hearing loss in the other.
We are financially savings poor. I have a list of charitable organizations to call. Her insurance will pay $500. Mom is nearly 89. Her income is always just too high for Medicaid but I can check if they would pay for something. Also possibly VA as a last resort.
My question is, after reading so much here about $6000 hearing aids getting lost or ultimately rejected, broken, replaced, what is a reasonable price point for this first purchase? We cant afford to throw the money away.
Also, do you consider an online subscription to consumer reports worth it to get comparisons and ratings on hearing aids? I tried researching online today and consumer reports would not release their data without a membership fee.
Thank you!!
PS: the shouting for social distancing is causing me bronchitis and triggering tinnitis. I'm an asthmatic, recovering still Covid positive, and reaching my limit. I may be going deaf myself at 57 from the shouting..
My mom has had $8k ones from a direct seller and more recently I bought her a new "Bluetooth" and higher-tech set that cost $4k from Costco. After being with her through the entire process and even seeing the pro adjust her frequency bands, I could tell that this industry really could do much better for those in need.
I've considered hacking it to see if I can create a comparable or better software using existing hardware but am preoccupied as an unpaid round-the-clock caregiver, and when I have any free time, I'm maintaining the house which is falling apart. — I don't know how I'll end up in the future, seeing as how my career has been automated away and I'm losing time from building up savings for myself to retire on later in life.
In answer to your question, I would urge you to answer some other questions. Does your mother want to hear better or do YOU want her to hear better? Is your mother willing to work at re-learning some skills she has lost? If she is nearly deaf her brain has lost the ability to tune out background noise and focus on the person she is trying to hear. This will take months to re-learn and it will be frustrating for her. Unless she really wants to hear you clearly, it will not be worth the bother to her.
If you are considering low-cost amplifiers understand that they are not hearing aids. They cannot be tuned to amplify the frequencies that your mother most needs. They amplify everything equally. She will hear your voice, but she will also hear competing sounds: creaking doors, noisy birds, the air moving through the HVAC system.
For younger people who are really interested in getting back in touch with the world around them and who are ready to work at learning to hear again, I would definitely try for aids. In the case of an older person with severe loss like your mom I might incline toward first getting one of the amplifiers you can get online for a hundred dollars and see if she will use it. If she uses it, then consider real hearing aids.
Look at the websites of the manufacturers. They will give you lots of information on what their aids do best. No aid can reproduce the hearing of a healthy 20 year old, but all aids offer a particular focus. Find an aid whose focus matches what your mother will find most appealing. Most have reviews or forums where users describe their own experiences. Perhaps your Mom would do well on an aid that I would find inadequate.
Bear in mind that many audiologists will refit used hearing aids for new patients who have financial constraints. I am considering getting new aids this summer. If I do I will donate my current aids to such a person. The outer shield that contacts the moist portion of the ear is replaced and the aids are re-tuned for the needs of the new patient. In this way someone in your position will get a gently used pair of $5K aids for the cost of cleaning and tuning and a couple of appointments.
I wish you luck. I do know what it is like to have a parent who does not hear. It was really frustrating to all of us when Mom gradually stopped using her aids because they were a bother to her. She does not seem to understand that her not being able to hear is a bother to everyone else.
By the way, shouting is not always necessary. We have found that if we can make her focus on our faces when we talk and if we speak very clearly and slowly, enunciating things a little overmuch, she will understand most of what we have to say. We began this when she was cutting back on the use of her aids. She can understand the slightly exaggerated pronunciations with, perhaps a bit of lip-reading that she doesn't know she can do.
My father got the expensive hearing aids (they were $4000 at the time) and they were programmed to his specific needs with the option to re-tune. But you have to make choices. Even though we kept trying to turn down background noise, he always complained I was crashing around with plates when I emptied the dishwasher. He also thought I was suddenly loud. His hearing aids supposedly had a switch to tune out noise except for the minister at church (the church had a special T-wire system for sound) but he never noticed any difference. He also never realized when the battery was dead, but I knew immediately because the TV was turned up too loud. (One of the benefits of hearing loss was not hearing the chirping of the smoke alarm system when the battery went out.)
For myself, I have noticed a tendency to turn up the volume on some TV shows but am trying to keep it down to force myself to listen more. My sister purchased an amplifier hearing aid for one ear in which she has hearing loss from an ear infection and she is quite happy with them.
https://www.hearingtracker.com/over-the-counter-hearing-aids
I've read articles that it's expected that other companies, such as BOSE (they produce high quality stereo speakers for example), may get into the business thus increasing options and updating technology. And ultimately the competition may help to reduce prices.
In the meantime, for low cost alternatives to prescription hearing aids, it might be worth checking into over-the-counter hearing assistance devices, especially if money is an issue. While these may not be sufficient for extreme hearing loss, the cost/benefit may be worth it if it helps somewhat and there's a concern about hearing aids being constantly lost or misplaced.
It is one way to get on Medicaid and Medicaid will pay for some pretty darned good hearing aids. My mom lost hers four different times and each time they replaced them. Both she and my uncle really depend on those hearing aids even though they are not perfect, Meaning they sometimes increase some ambient sounds that they do not want to listen to.My mom had dementia and she still put them in every day. I noticed that without them they became more disoriented and we all felt that they were worth the effort. Good luck.
I ask because we went through the process to get hearing aids. It was my idea. Mom went along with it because I knew she needed them. I did not shop around. We went to one doctor and wound up with the $6,000 pair.
Long story shorter, she did not like them, wouldn't use them. We took them back within the 30-day full money-back guarantee period and received a very nasty, cold and icy tone from the doctor, total 180-degree turn from the friendly sales attitude at the beginning. But Mom did get her money back.
No mention of dementia, but perhaps a timed/locked dispenser would help her with the pill issues? I know some of those child safety locks on bottles can be difficult. The nice thing about the dispenser is only that day/time medication is available for taking. There are audio and visual alarms to remind the person. In her case, if she doesn't have dementia, you could skip the lock. Depending on how many meds and different times of day, you can set it up for a week up to 4 weeks at a time. For instance, if all medications are taken at one time, it can be set up for the month!
Even without dementia, this is a good method and a time saver. It would also allow you to monitor and know if she misses any doses Once the time period is over and it moves to the next scheduled dose, that slot is no longer accessible.
Additional note on hearing loss. Some are better suited to hearing aids, others are not. My mother had otosclerosis (I dubbed it Florence Henderson hearing loss as I had seen her talk about her own journey with this!) Basically the little "bones" in the ear start to calcify. Eventually they no longer "vibrate", effectively making the hearing loss total. The one GOOD thing about this condition is there is a medical treatment - replacement of the bones. They do one ear at a time, just in case anything goes wrong, as it can affect balance. HOWEVER, this, like any surgery has a risk, and this is it, so the doctor had to say it. It is likely rare, but once mom heard that, nope! She was probably in her 50s when this started and she could have prevented most of her hearing loss, but she went with hearing aids instead. They helped, but they don't stop the process.
My point in that last paragraph is to ensure you ask LOTS of questions after her hearing is tested. What is the cause? What can hearing aids do for her? Is there a money back guarantee, even if it just comes down to she won't wear them? Are there options besides in the ear hearing aids? I would also talk with her and get her take on hearing aids. I mentioned it in my other post - some people just refuse to wear them! I recall reading someone's post that said the mother wouldn't wear them because they make her look old!!
I'll also repeat the suggestion of the LCD Boogie Board. Until you get the hearing tested and perhaps have hearing aids in place, this LCD display is VERY helpful and will help eliminate your shouting and distressing your throat! If there are no affordable hearing aids or she refuses to use them, this is a great way to allow you to "talk" to her without having to yell.
My late fiance needed hearing aids too, but he refused to get them despite having no hearing at all in one ear and limited hearing in the other. As a result countless hours of our last few years together were spent in useless back and forth because he couldn't hear me or else misheard me and reacted accordingly. Meanwhile, I couldn't understand why he was reacting so unexpectedly, based on what I had actually said!
Hearing is one of the main ways that loved ones can stay connected. If there's any way to get them, please do try.
Also, this discussion was so helpful, I printed it out. Thanks everyone!
You will learn more once you see the audiologist. Don't let them "sell" you.
Some are more about the money than others.
I think the behind the ear works best for major hearing loss.
One that is simple to use, some are very complicated with several programs on them that make them hard to use.
I used to work for an ENT office that sold hearing aids and got one for my right ear.
My problem is understanding the words. The hearing aid amplies and makes the
noises louder (which is annoying at first) but no matter how loud I still can't
understand conversation! Frustrating. The digital kind can be programmed for
specific hearing loss and you can go back for adjusting, up or down.
Most hearing aid retailers will offer you a 30 day trial period.
Best of luck!
They both have audiologists and much less expensive hearing aids.
"Hearing aids
Medicare doesn't cover hearing aids or exams for fitting hearing aids.
Your costs in Original Medicare
You pay 100% for hearing aids and exams.
Things to know
Note
Some Medicare Advantage Plans (Part C) offer extra benefits that Original Medicare doesn’t cover - like vision, hearing, or dental. Contact the plan for more information."
My mother's non-Medicare plan did have coverage for hearing aids and every 3 years she was eligible. My current advantage plan also covers hearing aids. Medicare does not (source of the above quote was https://www.medicare.gov/coverage/hearing-aids
Hope this might be of help. I primarily just help those struggling on the phone with our federally funded caption phone. Wish I could be of more help but blessed to at least help with the telephone portion. Good luck!
lyric - they rent them $300.00 per month they are implants close to ear canal and are replaced every 4 weeks, never come out, unless she forgets what they are and picks at them, but then we just go back to dr and he puts a new one in
It was the best option