Mom underwent AML leukemia treatment. Complications and side effects kept her in hospital not walking for 8 weeks. No rehab at the hospital level to get her strength. We though subacute rehab would get her walking then get her home but she hates it so much (tired of being in hospital environment) she is not responding. Can we take her out and get rehab at home?
Over a period of close to 20 years and experience with multiple facilities and home health care, I've just rediscovered the value of Catholic facilities and care. My father got the best hospital care when he was in a Catholic hospital in a city with a teaching hospital.
The best rehab, at that time, was in a commercial facility in the same city. Now I've just rediscovered an excellent rehab facility, owned and operated by some Dominican sisters. The staff is so much more professional but also compassionate. The Social Worker is very knowledgeable and helpful, unlike those of other facilities whose primary function seems to be to hand out brochures for home health care (seriously).
If you can, try to find out what your mother specifically doesn't like about the rehab facility, besides the hospital environment. Is there music therapy, pet therapy, a piano at which guests and visitors can play? These 3 functions make a world of difference.
Check out some other rehab facilities, but don't tell anyone who provides you with a tour that you're dissatisfied with the current place, or your guide will segue into a sales pitch. Make a checklist of what you want, be sure to ask about staff to patient ratio. The current one I'm using has a daytime s:p ratio of 1:8. One I interviewed had a ratio of 1:14.
Ratios are critical; if there aren't enough staff, patients sometimes won't get even the basic attention they need.
You can switch rehab facilities by asking the doctor who scripted for rehab to write a new script, explaining to him/her that the facility has proven to be not up to your standards.
Alternately, you can meet with the staff at the current rehab, review all your mother's issues of concern (perhaps uncaring PT/OT staff, lousy food, no interesting activities, and/or just laying in bed all day long w/o any diversion. If they can change the situation, they might....or they might not.
Good luck.
I am sorry for what your mother has been going through recently.
Unless your mother has been declared incompetent, she is an adult who can accept or refuse care. If she is not competent then her Health Care Power of Attorney has the right to accept or refuse care on her behalf.
So, either way she can leave when she wants, and if someone trys to pressure her or you to have her stay, that is a bluff and they cannot legally keep her.
If your question is about how to get the care she needs at home, that is a separate issue.
Help for that can be gotten by requesting a palliative care or hospice consult. Palliative care is available for anyone with a serious life limiting illness (you do not have to have a prognosis of death in the next 6-12 months for palliative care, and she can continue any treatments she is prescribed for her AML). This will connect you with services and resources. Hospice care is a wonderful option also, because it too will make many services available. But that also means that she will forgo any further curative treatments. I encourage you to go on the website for your hospital and see if they have a Palliative Care/ Hospice department, if not contact their Home Health Dept. and let them know you need services. They should be motivated to help you. And they can help arrange for physical therapy and equipment (bedside commode, etc) that may be needed.
Best of Luck to you
Margaret
Your Mom was in 8 weeks. For every day in a hospital it takes 3days of rehab. Thats 168 days well passed Medicare paying. Medicare pays 100% for 20days, 50% 21 to 100. After that its private pay unless she qualifies for Medicaid. I know they come to you and say they r sending Mom to rehab but she can refuse. My Dad did.
Rehab will keep Mom for as long as they can. Talk to her doctor. Tell him she isn't doing well and can he help get her discharged and set her up with home therapy. You can work with her between homecare visits.
If you are going to depend on home care PT those visits are 2-3x weekly with visits usually 45 minutes to an hour. That’s it.
Rehab has equipment to support her in re-learning to walk, etc. There won’t be any of those machines to support her at home.
It can take weeks to get her muscle groups in shape as she was immobile for 8 weeks while undergoing chemotherapy.
I know she will tell you she wants to go home. What if you take her and she gets home and does nothing or refuses therapy? She will continue to decline.
Try to explain that the harder she works at rehab to become stronger will in the end help her a lot when she goes home
Good luck!
What does her doctor say about this idea? Do the nurses have any feedback for you about what they think is going on?
I can certainly understand your mom not wanting to be in the hospital anymore.
After a stroke, she was in acute rehab for about 10 days (all therapies 2xday) and was then discharged to subacute for an additional 2 weeks. None of this lined up with how much Medicare she had or her funds (she could have private paid for a long time) .
She was evaluated by a local AL and deemed a good fit. She qualified for continued PT at the AL but unfortunately fell and broke her hip after being there a brief time. Surgery and anesthesia advanced both her dementia and frailty and she was discharged to a NH rehab, where they were able to get her walking again.
She lived contentedly there as a private pay patient for nearly 4 years.
This is all assuming she is well enough that the plan is she is going home. The way I read your question, her stamina is just low because she was bedridden for 8 weeks but her health is now good to go home this stop at acute rehab was simply to get her up and moving more to re-build her stamina than re-learn or heal anything. Some of the other responses seem to understand the situation differently so I am second guessing myself a bit.