Hi. My mom is end stage. This is profoundly worse than I ever thought it would or could be when I took her care on 100% 3 years ago. We miss the IHSS monthly income threshold by $114/mo. Translation: I get ABSOLUTELY ZERO HELP. All of you know, this is NOT a one girl job. No joke, the FRUSTRATION is too much and I find myself in dark places and endings. I am in Orange County California, and I am appealing to you to advise me in any way. Thank you. You are probably saving lives. The extreme fearfulness will fill my nightmares forever. Please help.
Do you have Hospice services?
There are other options besides hospice, such as home health.
hospicepatients.org
You will get help a few times a week with a CNA that will come in and help bathe and dress. Some do LIGHT cleaning and maybe help fix a meal.
You will also get the services of a Social Worker that may help with other ideas.
Most Hospice organizations have volunteers that will come and sit with your Mom while you run out and do some errands. They can not do any "hands on care" No changing, dressing or feeding.
You will also get supplies and equipment if it is needed.
They will also provide medications (related to the "life limiting condition) and they, at least in my case, were delivered to the door the day they were ordered.
Through Hospice I got a Broda Chair, wheelchair, Hospital bed with airflow mattress. When we had to go to a Sit to Stand I got that then later we had to go with a Hoyer lift.
Also check with Senior centers in your area or if you are a member of a church or other religious affiliation many have volunteer groups that will help out.
You might also want to look into Salvation Army or Meals on Wheels to help defer food costs.
won't accept it. Tell me more and hopefully I can share my experiences with my sister.