Some nice staff but often hear concerns about call buttons unanswered. Dad had to go to SNF Rehab after a bad fall breaking his wrist in 3 places and cardiac stint. Reading reviews and ratings always seem the same, websites make the place look clean and nice. But when he got there it was dated, old furniture, a "gym" with old rehab equipment. And, they crammed at least 2 beds in a room designed for one bed. The nurses were too busy at their med carts and the aides were often disrespectful and uncaring.
The threat to call the proper authorities may or may not be effective. You should check what state agency surveys the facility in your state. It will be the agency that issues the facility's license, which is posted in the lobby. (If you can't find it, ask.) This is the agency to call if you experience a problem, and you would be entirely justified to call them NOW. They can determine if this happened too long in the past for them to investigate. What you experienced was entirely wrong. What will happen when you call is they will take all relevant information and ask for your name and contact info so that they can call you back with their findings. They will send a surveyor out to the facility to investigate, within 48 hrs in many states, and issue citations if the complaint is substantiated. This is not what the administrative staff at any facility wants to go through, and if a family member does mention the possibility of calling "the state", I'm sure they would be more attentive and take your concern more seriously. But I hope that this new nursing home is willing to listen to you and will communicate changes in your mother's condition without you having to find them on your own. I have always considered families and staff as a "partnership" and most facilities do a much better job than you would gather from reading the responses above. We will never be as good as home, but many do have a mostly compassionate, if imperfect, staff.
May god bless you.
I agree that the above scenario is totally unacceptable. I would document it and have a meeting with the DON and the director of the facility. And ask them why my next call shouldn't be to the Joint Commission. I said those words once, very quietly, in a care meeting. My mother has been getting phenomenal care ever since. It may be a coincidence. thanks to Pam S. for teaching them to me.
So, the next morning I showed up bright and early at 8 AM to see if my mother was feeling any better and, again, as I was going into the facility, I passed by the windows of the dining hall. There she was AGAIN sitting alone in a wheelchair with NO food in front of her, head hanging down, practically unconscious. I put my things away and went down to the dining hall and asked the kitchen "staff" -- even lowly-er than the aides -- for her food because I felt her forehead and she was burning up. And they REFUSED to give me her food because family members are "not allowed" in the dining room with the residents. I was totally pissed at this point and demanded her food and took her out of the dining room to the common lounge area to try to get something in her as she hadn't eaten since lunch the day before! I managed to get some oatmeal into her but she was again barely responsive. The day LPN and Nursing Unit Supervisor appear along with the PT/OT people and I practically go commando on them! Do you not see what is happening with this frail old lady, for God's sake? I ask them to take her temp and it's now 102.6! Good God!!! At this point I DEMAND an ambulance to be called and transport her to the hospital (which they were happy to do because I was making all sorts of noise at this point).
After spending this past weekend in the EXCELLENT care of our local hospital, it was diagnosed that my Mom has an upper respiratory viral infection (that's apparently going around now). She spend the whole weekend getting phenomenal care in a hospital setting except now she has returned to the SAME rehab center to "continue" rehab.
Christine73 is correct. You can't just "move" them to another facility. They (these nursing home/rehab facilities) are able to refuse you for any such reason they deem. Oops, no, we don't have a bed right now. Well, they couldn't say that for my Mom because she was already "accepted" by them. Because my mother is very frail and has a broken leg and does not have a lot of financial resources, she is on the extreme end of rehab needs and most "decent" facilities don't want to touch her with a ten foot pole. My husband had connections and they agreed to take her. I shudder to think of the poor elderly who have no one to advocate for them. We are not wealthy and cannot just "take her home" and give home care. She has extreme needs at this point, needing a hoyer lift to get her in and out of bed, is totally incontinent (bladder and bowels), cannot have any weight bearing on her leg for at LEAST 2 more months, is mildly cognitively impaired and when lucid, is a ROYAL narcissistic demanding pain in the butt. There is no way I could take her home and "nurse" her back to health (bad that it started as). After the first 2 weeks of her being in this facility, I was going crazy with seeing all the things that weren't happening that should have been happening with regards to the care of patients. I was ready to throw my sofa out on the front lawn and get a hospital bed in my living room with a hoyer lift and spend the rest of my mother's life in servitude to her. Fortunately, my loving husband brought me back to reality before I made any such crazy moves. I am now calming down and basically going to the facility DAILY to check on her.
That's my advice for ANYONE CONSIDERING PUTTING SOMEONE IN REHAB OR A NURSING HOME: Show up DAILY and at different times (shifts) and keep the staff on their toes. Make them know you are watching them and hold them to the "glossy full color brochure" standards they give to the public when advertising these places. I sometimes think I'm demanding too much from people (aides, LPN, RNs), but come on, these are human beings, for God's sake! We treat our pets better. There for the grace of God go I. I hope these young kids who are crappy aides get the same treatment they're giving our elders someday when it's their turn to be in a nursing home.
Furthermore, if you'll allow me this rant, I'm really tired of hearing people say, "you should move her." Guess what? You CAN'T just find this wonderful nursing home and "enroll" your parent. They have to be ACCEPTED! And if you have dementia and walk, or if you have a small social security check, no one wants you! And they will lie and say there are no openings so they don't have to take you. Those are the facts. So options are limited. Oh, and guess what? If you "complain" or try to report them, they trump up charges to get rid of your loved one, or they threaten to put your loved one in the nuthouse and falsify medical records to do so, or they just stop feeding and changing your parent until they're at death's door. I've experienced it myself and seen it happen to others.
Oh, and guess what else? You can't take your parent home because it's Alzheimer's and caring for them will kill you quicker than the disease kills them. So you just cry yourself to sleep and wish that one of you would die just to get some relief, and THOSE ARE THE FACTS. Welcome to my world. Thanks for listening.
The move from the hospital is horrendous. Especially as you describe it. Most people don't know this. Meds are seldom there when the patient arrives.
I went through many of the things you mentioned with my mother when she was sent from the hospital to a NH for rehab after a terrible fall. I lived within walking distance of the most prominent senior home in a major city which I erroneously thought would be the best place for my mother to rehab. It was awful. I was able to be there daily and for most of the day and it took constant vigilance to protect her from the system. An unexpected visit from myself one night found my mother screaming in her room for help. She was wet and could not get her call button to work. I saw her CNA giggling in a darkened dining room as I came in. She was on her cell phone. The next day my mother was back in the ER with a congestive heart failure episode. This time I insisted on her going to the SNF in the hospital. They accepted her and she went home after a month or so. The nursing home has your mom there with Medicare paying for rehab. That's why she is seeing the therapist. That's how they get paid the most. Some of the staff are caring. Some are not. Like anyplace. The good with the bad. I took Clorox wipes and cleaned my mothers room every day at the first place. I checked her meds each time they were distributed because they were wrong more than once. Never on time. Years ago a person would have stayed in the hospital if they were as ill as your mom. Get hospice in as soon as you can. Take her home if you can. My mother came through her ordeal but she didn't have dementia. A fractured back and CHF. Demand the bed sore be seen by the dr immediately. Find out his instructions so you can make sure it's followed. Hugs to you and your mom. You can't change the system but you can insist it be followed correctly. I see advertisements for the posh senior home on tv and I shudder in horror at the thought of winding up there. Oh yes. They had a top rating also.
The best advice I can give is to remind family members of a nursing home resident that they are the best advocates for their loved one, as some commenters have come to realize. The staff should be responsive to your observations and realistic expectations. (Note that not all expectations are realistic, e.g. not every bed sore can be prevented; staff cannot provide one -on-one care to ensure 100% that the resident won't try to get out of bed on his own and fall.) If you find that your loved one is in a facility that has a staff who do not value your input, you need to find another home that will. My final note is that the Five Star rating found on nursinghomecompare.gov is only marginally helpful. It has no statistical relationship to how caring the staff is.
Sadly, where we live matters, as well. In my community, most of the facilities are very good. I agree that most non-profit facilities tend to hire better and simply are more likely to be run with residents in mind. Faith based homes are often some of the best and your loved one needn't be of the faith that supports the home.
We have one local nursing home that was owned by a Lutheran based company, then a secular non-profit and then a Catholic foundation. It remained excellent the whole time, though the Catholic sisters that bought it seemed to do the best. Part of that may be that there is more general knowledge about good nursing home culture now, but part of it is their mission.
Over the 15 years that I was directly involved, I found the home excellent. Not perfect. Mistakes were made. Not every aide was an angel. However, in general, the staff was remarkable and in some cases they fall into my "prayers for life" category. I'll never forget them.
I feel terrible for the people who have little choice but to place their loved one in a poor facility. Caregivers must pressure members of congress and others for better senior care and that means better nursing homes for all.
My main point is that we can't paint them all with the same brush. Also - the age of the furniture matters far less than the caring of the staff. Ideally, a nice facility with good rooms and a wonderful staff - well, that's nearly perfect. However, I'll go for great staff first every time.
Take care,
Carol
What else can we do, though? Without a lot of individual $$$$$, I think our only way to make change is to band together into big groups to have some influence.
As far as the call buttons being answered, I believe in NJ three minutes is the time allowed to answer. However, if we were in a room performing care we would not know about the call light . If we came out of the room to get something and saw the light, we went to the room, found out what they needed. We would let them know that care was being given to another resident and we would be back as soon as resident was completed. I know I gave my 110% every shift and then some,because for some residents, we were all they had.
As far as putting more time in my education to become a nurse, at 47 years old that wasn't going to happen. A few of the younger CNA's were going to school for nursing, our facility paid for it. Good for them I had no desire to be a nurse, ever.
My mother moved into Assisted a Living in July. It's a great place, it's not fancy. Mom didn't like the fancy places. She loves it there! The entire staff is very friendly. One gentleman who lives there, lived in the Independent Living for 20 years with his wife. His wife had passed away, and moved the Assisted Living. I know we made the right choice. My mom will stay in her apartment for as long she can even if her needs change. They will not move her unless it's absolutely necessary for her safety.
The aides at my Dad's brief stay at a rehab facility were kind (from what I could see) but over-whelmed, particularly after meals when everyone had to 'Go' at the same time.
I know things are overwhelming for caregivers, but please, try to get politically active. Goose your politicians, join big groups. If you can't do it now, when your journey is over don't forget what you've been through. As if you ever could forget, right?
I think care for patients with severe dementia is not considered by the investors of companies that offer it and is particularly demanding and pestering for carers and family respectively.
That said really good care home managers can make such a difference IF THE BOARD OF DIRECTORS allow it. In one care home I visited the Care Manager was given 3 years to turn it round, during which time she got a lower wage and ratios weren't harshly considered - She made full use of that period and now runs a care home that is effective, caring, the dross has been weeded out, there are voice monitors in all the rooms and she would like to put in cameras too but isn't allowed to in all areas. She tapped into those monitors a lot in the formative months and that is how she weeded out the bad apples. There is no second chance with her at all. You abuse once you are out with no reference worth having. She meant business but her home doesn't smell at all. There is no fixed time for cleaning commodes, yes some homes only clean them once a day and use deeper commode pots to accommodate the quantity. All her staff undergo at least 30 hours of training every year and if they don't they are out...it is in their contract.
She now has an activities room and a light room for calming, an aromatic garden that is just wonderful in the summer but more importantly they now have a driving business with happy residents and a lot more income. She cannot accommodate all the people wanting to come there. Yes it is more expensive but not exceptionally so but that woman did good and I am proud of her, although I wouldn't like to think how many hours a week she puts into that role
help2day: My heart goes out to you. I know exactly what you've been through because I've seen it with my father (me being his advocate) and with other patients whose family had no clue what was going on until they did finally show up and had that "deer in the headlights/OMG" look on their face. It's just so awful, so dreadful what goes on in these larger SNFs (again, this is my experience). You're so NOT a bad daughter. You're just caught in a very difficult position. My recommendation is to see if you can get a hospice evaluation. The larger hospices, like the ones in our area, offer PT, OT, Speech services through their palliative care program. And she'll be in a much smaller environment with more one-on-care. As with all services, it all depends on what's available in her area. My elderly mother is not near the dire situation that your mother is in and, instead is a very slow decline from vascular dementia. I go to bed every night hoping she'll die in her sleep because her future is not a good one - and I don't feel guilty for wanting her die quickly and painlessly as possible.
I have done my due diligence in researching nursing home/rehab places and I am convinced from talking to my husband's numerous colleagues/contacts in the health care/long term care field that you will get adequate or subpar care from these type of facilities. It just is what it is. For people who have commented that their loved one is in a wonderful nursing home with excellent care, I applaud them for find such a facility.
My 86-year old frail, hard of hearing (2 hearing aids), incontinent mother fell and broke her leg in her home the day after Christmas. She had to have emergency surgery on Sunday (Dec 27) to put a plate and screws in her femur. On the next Saturday (Jan 2) -- 6 days after surgery and on a holiday weekend which is a nightmare of understaffing in nursing/rehab homes -- she was transferred at 6 PM to the rehab/nursing home. I was appalled that they could release a frail old lady so quickly after surgery but the surgeon and attending physician at the hospital deemed her "ready for discharge".
Before being discharged, nursing home/rehab centers make you fill out their application/questionnaire relative to the patient's finances and what type of assets they have, because that's what determines if they want to accept you and how soon they will have to rely on Medicaid to support her. My mother has a small pension annuity from my deceased Dad, owns a small tri-level home, and very limited assets. The rehab place we chose did not want to accept her until my husband contacted the CEO/owner of the place and basically begged him to take her.
She has now been there 2 weeks in this "5 star" facility (according to Medicare.gov) and she's already developed a nasty bedsore. I agree wholeheartedly with Careisgiving's comments above. While I have found a "few" aides that give a damn, the majority seem uncaring and just going through the motions. My Mom is completely vulnerable -- she has a brace on her broken leg for support and due to her confusion and mild cognitive degeneration, she cannot use the call button to call for assistance. She is totally incontinent. She's unable to "know" when she's soiled herself. Her care plan states she must be changed and repositioned EVERY 2 hours but that is not happening. I've brought this to the attention of the Unit Nurse Supervisor and the Director of Nursing of the whole facility but nothing changes. I feel I have to be at the facility10 hours a day to make sure someone is responding to her needs.
She is a 2-person assist patient -- meaning they need a hoyer lift to lift her out of bed or a wheelchair to put her into bed, roll her over, change her diaper, then lift her back to the wheelchair. However, many times after they change her, they just leave her in bed laying on the same bedsore that she's developed because they don't put supports (they use pillows and not foam wedges) under her.
To take her home is not an option as she requires skilled nursing care 24/7. She (and we) have no money for private duty nurses/aides. To change facilities is also not realistic, as again, I have checked out all of them and they are either the same (short staffed with underpaid, undereducated aides) or worse. I had to complain vigorously to the Director of Nursing because while I was there, an aloof CNA (aide) was making my mother scream in pain just changing her diaper. The aide says to me, "Well it's gonna hurt" when she pulls the diaper out from underneath my Mom. Are you kidding me???? WTF???? Needless to say, this aide was written up and no longer assigned to my mother. However, I won't know if she ever gets reassigned to her because I can't be there 24/7 and the aides are "floaters" who go from facility to facility in this nursing home chain.
The care for the frail, vulnerable elderly in this country is atrocious. Careisgiving is correct: "some don't care and are lazy but are too stupid to want to better their skillset to get a higher paying job, so they're content with the low pay grade because unless they commit negligence they're guaranteed a job." I've heard horror stories from friends and family with loved ones in our local nursing homes from lack of responsiveness, bedsores, laying in urine/feces, being dropped in the shower room, lack of attention, etc. My observations from just a short 2 weeks is that RN's occupy the nurse's station to "supervise" the LPNs who are at the med cart in the hallway basically taking vitals and passing out pills. The bulk of the patient "care" is performed by the aides, many of which "call off" because they want a day off or miss the bus to the facility or whatever excuse, so whatever aides are left are frustrated and resentful that they now have double the patients to take care of. The turnover in aides is tremendous. My mother is reliant on them to change her soiled diaper every 2 hours but because she is so needy (needing 2 aides and a hoyer lift), she is the last one to be checked on. The aides to patient ratio is probably 1 aide for every 10-15 patients, so when my mother needs 2 aides, yikes! And again, she can't even push the call button to ask for help. I am beside myself. I don't think my Mom has any realistic chance for any meaningful "recovery" so her days will end here suffering at the hands of non-responsive staff. However, PT and OT will continue to do "rehab" per the surgeon's orders.
Again, Careisgiving is correct: "it's just that they want all beds filled - all the time - for business - so if there's an opportunity to keep a patient there due to development of another health condition or the patient's health condition declines, they'll keep running up the insurance." My mother is non-weight bearing on her leg for 3 months, THEN she's supposed to have more "rehab" to try to get her on her feet. This will put her into the Medicaid "status" at that point (when Medicare and her private insurance no longer will pay) and I'm sure they will determine at that point that no more rehab will help her and they will want to move her to the back of the nursing home for long term care. She's 86, frail, declined cognitively, has severe osteoporosis, osteoarthritis is both knees (bone on bone).
I feel so guilty that I can't do anything to make my mother's last days on this earth pleasant. I dread the thought of my Mom (or any elder person) having to die like this. I almost pray to God that she will die. I feel like a horrible daughter.
When my mom was alive, she was in and out quite a bit. I helped with caring for her, my Dad kept her at home with our help until she passed away.
After she passed away, I felt lost. I felt like my purpose for existing was gone. After counseling, I decided to become a CNA (Certified Nursing Assistant) then also got my TMA (Trained Medication Aide). I love working in a Skilled Nursing Facility and Rehab. I love my residents. They are like my family also.
That being said, most facilities as I have learned are understaffed, not because they want to be but because there is a shortage of CNA's. I would do just about anything for my residents within reason. However, I am human. While I do my best, there are times I can't keep up with all the lights. I have done my best to take time with each resident when I am with them. I don't want them to feel rushed or that I don't care because I do. I answer the call lights as quickly as I can with that in mind. I answer them as I see them come on.
The problem being, each resident thinks they should be first, even if their light wasn't on first. I am only one person. I am not lazy and I do care. While they don't see this, I don't take breaks that I should even though they are taken out of my checks, because I put my residents needs before my wants. That is however, how burn out happens. I just feel that my residents are important. I love them. I know there are some who may not care and are only there for the paycheck. They give the rest of us a bad name. I am not one of those. I don't like being grouped in that. I can only do what I can do.
Just keep in mind, there is those of us that can't help being understaffed but love the people they care for.
No, we don't want to make your family permanent residents as much as it may seem that way. I have residents that have gotten better and went into a assisted living facility. I am happy for them, but make no mistake I do miss them. They become like family. That being said, I have seen some that left and shouldn't have because they weren't ready. My mom being one of those who signed herself out because she "thought" she was ready and wasn't, then ended up having to find another facility because they have waiting lists and filled her place when she checked herself out.
The point is, we don't want our beds to be full for the purpose of just being full. We are happy for residents that get to leave when they are ready. Sometimes people think they should be able to be on their own when truthfully, they just can't.
Important things to check on when looking into facilities is:
-Are they a "for profit" or "non-profit" facility?
-Are they a Christian facility? May not seem important, but trust me it is, Christian facilities are supported better and tend to hire as such).
-What is their Aide to resident quota?
Something else to think about is most full time aides are working 12 hour shifts, and with few breaks. Please give them the benefit of the doubt if you aren't sure.
Just my 2 cents. Sorry for rambling.
the staff may be smarter than they look . my aunt was often left un alarmed in her bed or chair because unofficially the rehab team wanted her to use her muscles as much as possible even tho she was a fall risk . they werent far away and were listening intently . i cant say enough good about them .