She has always been a control freak. As an adult, she could put on her fake happy face but now that part of her has disappeared. She resented my close relationship with my father when he was alive. Now, he has recently passed & she is pleading for my attention. She still wants to argue about everything she doesn't understand. My brother says that my desire to be truthful just makes matters worse. Am I to treat her like a child now? Or lie about things that will only confuse her? My Dad just past in June & now she cocoons herself in bed, pleading to die so she can be with him. She is home with 24/7 caretakers. When we visit her she depresses us into crying as well. What should be our strategy for handling this? After we visit, some days she will call me up to 25 times. Every phone call upsets me. I have a lot of serious paperwork to do for their estate & his death. At times I don't answer because she throws off my concentration. I hate to admit this, but sometimes we wonder how much of this is fake, due to her normal personality. Now that Dad is gone, we don't know if she is being deviant about her emotions just to get attention. It's been very hard to show compassion to a mother who has never been loving to us. I have asked her visiting physician if there are any medications to give her to help her from screaming & yelling. Does anyone have suggestions?
Please read old threads on this sites from some excellent experienced caregivers.
My simple advice is to keep an open mind and explore your options. If your own sanity and health goes to pot, who will remain to be a caregiver. You need to do enough care for yourself to stay strong because it sounds like you have your hands full.
Sounds like you have an emotional vampire. Has she always been a narcissist? Read up on it on this site....borderline personalities with the "up & down", show timing, crazy making abilities added to dementia are hard to handle. Hugs to you!
With regard to "lying" to mom, think about not telling her the whole story as therapeutic fibbing. We no longer tell my mother anything that doesn't have a happy ending. No" I'm going to the bank today to find out..." or" Cousin Bea is going to the oncologist today, we'll know more tomorrow ". We prefigest information into small, happy bites. No cliff hangers, no opportunities for mom to think "what if".
Yes, the initial reaction is to try to straighten them out, to somehow explain to them how they should be thinking, realizing and viewing their lives. But, Alzheimer's makes that impossible for them. And the mere act of trying to straighten them out with explantions only makes them angry and frustrated both of which increase the difficult behaviors.
Your father, her life partner just died in June, that was a very short time ago. Of course she is going to be upset and still greiving. The day will come that she will not remember that he has passed away and she will be upset when she cannot find him. She will be likely to think he is out carousing with other women or has left her entirely.
Yes, you need to learn that treating her like a child will be the most effective with this disease. But, that requires much skill and patience to continue to treat her with dignity. I would suggest that you call the Alzheimer's Association to ask about classes about caring for those with this wretched disease. It will be helpful for you to understand and learn about the crazy, unmanageable behaviors that go along with this disease and how to manage them. For now, you can check online, there are many online free learning resources. Check out Teepa Snow for her website and she has many videos available on YouTube as well.
It also sounds as if your mom should see a gerontologist and a neurologist. Has mom been officially diagnosed? What medications is she taking? There are some that will help to control the behaviors, but there is not a medication that will halt the progression of the disease, some claim they will slow the progression. Who really knows for sure?
Was your father her 24/7 caregiver? About 40% of caregivers die before those that they are caring for. The stress of caregiving takes a huge toll on caregiver health. And now your mom is with strangers 24 hours a day when it used to be your dad most of the time. She is missing him terribly as she should and is nomal. Unfortunately it then becomes the children that end up taking much of the burden when she is naturally upset.
I also understand that you have details associated with your dad's death that need to be done. Try to take it easy on yourself and deal with your mom with more patience and compassion. Anger and frustration are normal reactions when new to the caregiving role even if you are not the 24/7 care provider. Remember that your mom is in mourning and try to be patient with her, I know that is very difficult but if you can do it, you and your mom will be less stressed for it.
Also start checking into day programs so your mom can get out to socialize or even an assisted living/memory care continuum of care facility. Your Mom needs redirecting with activities to make her feel valued and needed, to say nothing of the socialization.
Just a few more words, BREATHE, we are all only human and can only do so much. Good luck and best wishes to you as you begin this caregiving journey. Take care of yourself first or you will be of no value to your mom.
Multiple phone calls can be so concerning. She probably doesn't know she's doing it. My loved one did that and each call was like the first one that day. Sometimes, I could console her, but other times, I couldn't. Even if I did, she would forget in 5 minutes. The emotions are all over the place. I doubt it's her being mean. It's just the brain not working right. I would try to look at that way. If you try to look at it with the goal of fixing it, it's not likely to help.
There are ways to redirect and take her focus to other things, but that has to be repeated over and over. Are her caregivers doing that? They should know how to work with dementia patients so that she isn't calling so much. Instead of calling over and over they should be redirecting her. One suggestion I read is to give her a number for a certain phone line. That phone is never answered, but a message comes up that says, "Hello mom. We can't talk right now, but we are so pleased to hear from you. We are thinking of you and love you. Please take care.? So, she gets the comfort from your voice, without actually disrupting your work day.
I don't know there is any way to really change her. The disease will progress to different stages and sometimes the agitated, constantly talking phase may leave., especially, if she gets medication to help her. Medication has done wonders for my loved one who was in that stage last year.
I would read a lot about dementia, so you will understand that the condition is causing this and it's not her trying to cause you pain.
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