My mother has been living with us for the past 4 months, as her Alzheimer's Disease and dementia has gotten worse, and it is not safe for her to live alone any longer. She is on Namenda and Exelon Patch. She has a continuing anxiety problem and we have tried various small doses of medication, Trazodone, Klonopin, and now her new geriatric psychiatrist wants to replace those with Mirtazapine.
Nothing seems to have any impact on her anxiety issues, and she talks almost non-stop. Has anyone else run into this when caring for a loved one with Alzheimer's Disease?
I am grateful for what we do have, her life, our moments of joy, and we make the best of things. I wish she didn't get so anxious over any little thing, and I try to calm and reassure her.
My father can barely get out two words. So I have to talk to myself and answer my questions so that he has something to listen to.... he understands everything.
In my case, it's my dad who talks all the time. He doesn't have any form of dementia; he's just always been that way. It's hard for my mom to understand or remember what he says, because anything important was surrounded by a couple of hundred other words. We've tried to remind him to keep it short and sweet when talking with my mom, but were not going to change his personality now!
I personally have a hard time concentrating when it is noisy around me and have a low tolerance for noise levels. I work with students who have autism and we use the headphones you can buy at sporting good stores in the shooting section to cut down on the noise for them. Sometimes I use them too. Just thinking you might want to give them a try if the non-stop talking is getting on your nerves. You could still hear your mom if anything important is going on and it might give you more patience for the times you are directly interacting with your mom. Peace and good wishes!
My mom is starting to talk to herself now as well and is imagining other people here. I now am giving her homeopathic anti anxiety lozenges that I can safely give her several times a day. They seem to work well for her and then in the evening a about a half hour before she usually goes to bed I give her a sleep aid that is working well. It has melatonin in it and some Valerian leaf. She gets up to go to the bath in the middle of the night. She is not drugged out at all and wakes up refreshed. Mind you she can't remember anything you talk about or person she sees or anything that she does do past a couple minutes. What I do know that she can remember and will carry with her all day is any emotional feelings of any situation. I made the mistake of telling her that her husband had died years ago when she insisted he was here, then she changed it to she knew she had a man friend here and she wanted to know3 where he was. She went through the house opening doors looking for him. I tried to turn it into humor and said she must be hiding him in her closet somewhere because I hadn't seen him around. It made her mad and she walked up to my hubby and in a very agitated voice. said " What the he.. is going on around here" He calming told her that it was just he and I and her living here and she looked at him like she though he was lying as well, but she won't try to argue much with him. She had been at her adult day center for 4 hours and so coming back home to her home here with us does usually cause her some anxiety. I gave her a couple of the anti-anxiety lozenges and she was fine in about 15 minutes.
It is hard to walk on egg shells around her for sure, agree with her assumptions of things that are pretty crazy. I am trying to learn, not to correct, but to accept the person she is now. So far we are surviving it all. I do know that as confused as she is here, I know she would be so scared and angry in a strange place away from family and her things. Here she does get to see me. her only daughter my
wonderful sweet and patient hubby, and lots of grandchildren and great grandchildren that live near and are always stopping in. Yes I do have a brother and she has one too still living but, my brother never offers to see her or call her or anything. Her brother has come to visit about 3 times this past year. I used to take her to their homes but she is ready to leave in about 5 minutes and go home so that won't work either. Good luck everyone.
We are using in an absolute empirical way ,and this is only an anedoctal report.
In an empirical way we are giving:
1) L-CARNOSINE : 60 miligrams three times a day.( it is CARNOSINE and it is NOT L-carnitine).(only these small doses).
2) L-GLUCURONOLACTONE : 300 miligrams 2 to 4 times a day.
3) GLUCOSAMINE SULPHATE : 200 miligrams 3 to 4 times a day. I know GLUCOSAMINE it is a supplement for joints. But when she started to use GLUCOSAMINE for her joints we saw an amazing calmness and control of agressiviness and agitation.
We can find in the medical site PubMed SCIENTIFIC ARTICLES that shows that glucosamine stabilizes tau in the microtubules in the neurons, and works as an alternative fuel to the neurons too .
4) ACETYL L CARNITINE (ALCAR) - 30 to 60 miligrams three times a day.(it is NOT l-carnitine , but is ACETYL L-CARNITINE)( only these small doses).
5) EXTRA VIRGIN COCONUT OIL - One tea spoon by mouth three times a day
But if the patient have diarrhea even with these small doses , the caregivers makes massages with the oil in the thin skin of the arms with the tea spoon of the oil ,once the coconut oil has a comproved fast trans cutaneous absortion (according articles in PubMed)
A lot of friends of mine , after my report , are giving to their relatives with different types of dementia ,with the same amazing effects to enhances cognition,mood and to control the odd behaviors.But this is only an anedoctal report , without none scientific foundation, based in empiric observation only.O
Only the doctor of the patient can gives permissions, and knows the right supplements and the right doses of each supplement.
Talk to the doctor of the patient before gives any supplement or medicine drug.
The (NPI) test is one of the most reliables neuropsychiatric test for patient AD in any stages of Alzheimer disease dementia type , and can be used with others dementia types, once it is specific to mood and behavior disorders, while the so called Minicog or Minimental test is specific for test the cognition in the firsts stages of AD dementia type and others dementias types.In an empirical way , me and friends of mine are using the NPI-Q TEST, as one of the parameters to comprove the effectiviness of the food supplements that I pasted in the comments in this post.
Using the NPI test (that can be applyed and analysed by the physician of the patient) , still in an empirical way , it is very intersting once we can really mensure the improves in mood and behavior of our relatives with dementia that are taking that food supplements. We makes the tests before to starts the supplements and each month and it comproves great enhancings in cognition, mood and behavior.
To find the NPI scale , we have only to search in google pasting the words : Neuropsychiatric Inventory Neurotherapeutics and Drug Development in the Neurological Institute
I got some breathing exercises from a chiropractor that helped the situation, plus I watched some videos and did some reading on the subject of anxiety, so now have a better measure of recognition and control of the issue. I have a bedridden husband that has makings and issues with dementia, but I do not let him have drugs for it, and he is not anxious, for that is not his personality. He was always laid back, with attitude, "if you can do something about something, do it! If not don't worry about it. " Unless you can smooth things out for her by removing the possible aggravation of drugs, maybe my husband's old time solution will work for you. " Just enjoy the sound of her voice, be glad you can give her support through her anxious moments, and "don't worry about it." What do you think? Take care, and here is a hug for you. joylee