My mom resided in a different state and had a stroke back in July. I moved out of the state 2 years ago. I recently moved her to the state that I live in. She currently resides in an assisted living facility. She had a rough transition. She broke her hip about 2 weeks ago. She has been released from rehab and is now back in the assisted living place. My mom is difficult to handle. I do not have a close relationship with her (we were never close to begin with but our relationship became worse after my dad passed away nearly a decade ago). She thinks the medicine that is given to her is for dogs and often refuses to eat (unless I give her the food). She has also refused showers, to be touched, and numerous other things. She is in an assisted living place but idk if it’s a good fit. When she broke her hip, there was some talk about dementia and I can definitely see some of the symptoms. I have requested psych evaluations due to her mental health. However, most doctors have dismissed this stating that this is from her stroke (I don’t believe it is). She has a diagnosis of depression. However, I suspect there is something more than depression (and more than dementia). I can’t bring her home to live with me. I believe this would cause trouble in my marriage with my husband (due to my relationship with my mom and my mom refusing to do things at times). She has her good days and bad days. But it takes a toll on me. Other family members have stated to take her home with me and to watch her all day but this is not possible. I have a job and not to be rude, but I am in my early 30s and would like to enjoy life. I really don’t want to have a relationship with my mom. The only reason I’ve done so much lately for her (making her home made food, being on the phone when she refuses meds and/or therapy, refusing showers, etc) is because of my husband who believes I have a “moral obligation” towards my mom. I guess my question is, should I be doing more? I feel like I do a lot already. I’ve had to take a lot of time out for work and answering phone calls throughout the day. I barely have time for myself and for my health. I don’t want to be selfish but at the same time I can’t help it. I’m overwhelmed and just frustrated with everything. I am also an only child and my family has proved to be not helpful at all with any of this. They have not called me or visited her since all of this has happened. My other concern is when I have children. I won’t be able to put this time and effort in as I am now. I apologize for the long post but I would appreciate some advice. Thanks
Now you are going through this and wanting to possibly having a baby soon..
I VOTE FOR BABY !!!! And baby will give happiness to mom for a 5 minute visit.
sorry... I'm going nowI will write later...
It is okay....
Sorry mom, I need to go... See you in a few days...
You are an only child... Do not think anyone is going to rescue you from this scenario.
Get hubby, get started on what steps you need to have a child. Yes that biological clock is real... REALLY. Been there Done That... after a few treatments, TWO miscarriages, and almost a mental breakdown..i kept my third pregnancy.
Start trying now.. I realized from my MIL that the first couple pregnancies may be caused from your body getting used to being pregnant.... who knows...it was very hard. So start taking prenatal vitamins, talk to HUBBY, doctors, nurses,
this time is for you n hubby. baby :) healthy baby :)
You Will Be Okay !! It Is a Fun Adventure !! Hard at times, but it is worth it.
Make it a happy visit.. if she can't handle happy too long, leave.
Your hubby is right... Yes, it is hard to believe... DO NOT FELL GUILTY... AT ALL.
when things go down.,,,, do not feel guilty.... DO NOT FEEL GUILTY...
So now, you are in your 30's.. married and not pregnant..start watching your diet, alcohol. vitamins... If you are in your late 30's and want kids, start doing your research, and talk to fertility doctors.. NOW !! People don't talk about it much, but you need to talk and research.... You said so much. Get both yo and hubby healthy and on track if you two are in agreement about BABY !!!!
This maybe healthy for your ma too that she may be a grandma. :) happy hands :)
Lots to think about.... If you are over 33, it is time for you to concentrate on you... Seriously... you, hubby baby....It gets harder later... I know, been there, done that.
God/nature, will intervene....TRUST......
TRUST TRUST TRUST Things happen for a REASON....
I am typing this during the first Trimester of the Holildays... Or second trimester.. Halloween is over...
I am going to type slowly... means nothing to your.... since yo cannot see how slowly I type.
I am your mother (not really) close to her age. My daughter just told me how slow I am to process things in a store...what to buy what to ignore and what to do about it, etc..... you now know why she said that.
YOUR WORDS:
is because of my husband who believes I have a “moral obligation” towards my mom. I guess my question is, should I be doing more? I is because of my husband who believes I have a “moral obligation” towards my mom. I guess my question is, should I be doing more? I ENERGY..... ENERGY... Do you have energy to be superwoman? Yo can try, BUT DO NOT FEEL GUILTY IF YOU FAIL....
All of us are here on earth are here for a certain amount of time, which we were not given at time of birth.... I just found out the jerk up the street died... and his son who seemed to be a jerk too died before he did. Who am I to judge? I AM NOT.. and yet sometimes I think...THIS EARTH IS GETTNG SMALLER. WE NEED TO GET ALONG. Somethings are not in our control..
you do need a relationship with mom, as much as it seems awkward or strange, you need to. My mom and I had a great bond, my daughter and I don't have a great bond, a good bond at times... but to get to the next challenge, you and mom need to bond. YOU NEED TO BOND WITH MOM. My opinion sorry... others will pipe in, as you know and need... FOR THIS TO GO WELL YOU NEED TO BOND W/ MOM.
You say you are an only chiild.... what family do you expect to call you? Just wondering,,, my kid is the only kid I have, and IT IS ALL ON HER WHEN I HAVE ISSUES.. AND I TOLD HER WHATEVER SHE DECIDES is OK.... I lived my life, whatever happens now... is ok.... BUT DO NOT LEAVE ME SUFFERING! :)
I dont mean to sound harsh... but I had 2 brothers. one died before mom, and the other... well, he has his own issues...by barely made it down here to say goodbye to our mom..........so,,, suffice it to say: This Too Shall Pass, and you will be ok. and your family...
When you see mom, :: happy fun stomping; music, treats, dance, and be , merry... and play that radio or dvd loud and bring everyone to dance and laugh. HAppy happy happy... AND BRING EXTRA MILKSHAKES... And I ask for extra cups when I order, so I can split the shakes and share. Add ENSURE INTO THE SHAKES SO THEY CAN DANCE A LIL LONGER.. 111
MAKE IT FUN, PLAY MUSICE, TOSS A BALL/BALLOON, drink shakes LAUGH LAUGH, TELL STORIES, MEMORIES... MEMORIES, AND GET EVERYONE IN THE FACILITY TO ENJOY AND HAVE FUN... Bring in more balloons, treats for everybody.... once a WEEK, TWICE A WEEK....
Get everyone in the common area when you visit,,, if mom is off a bit, pay more attention to the others... this will kick her out of the attitude.. TELL HER IT IS OKAY... JOAN WILL PLAY... ask someone else to dance...
DO BRING YOUR CD PLAYER BOOM BOX... PLAY THEIR MUSIC... MAKE YOUR STAY FUN AND HAPPY... ONCE IT STARTS GOING SOUTH, PACK UP...SAY I LOVE YOU. AND LEAVE.
Pass, Yes it did... :(
She is the only one left... I love her dearly.... I certainly do not want her worrying about me if and when she has a family....
The times and years I have missed
Good luck!
Reading the many posts in this forum over the last couple of years, I see a lot of the elderly not only want their children to sacrifice for them, they want the grandchildren to do the same too.
I really hope the elderly I read about on AC do not represent the elderly population as a whole.
There was a great flood in a valley, and a tree with a nest of baby birds was going to be swept away. The mama bird came in and picked up the first of three baby birds to carry it to safety. While in flight, the baby bird said, Mama, I'm so thankful to you for saving me! I promise when I grow up, I'll take care of you forever!
Mama bird dropped that baby into the rushing water and picked up the second baby.
This baby bird looked up at mama bird and said, I thank you for your sacrifice and I promise I will sacrifice everything to take care of you!
Mama bird dropped that baby into the rushing water as well, and turned to pick up her last baby in the nest.
The last baby bird looked up at Mama bird and said, I am so thankful that you are taking such great care of me that you would rescue me. To honor you, I promise I will take care of my babies as well as you have taken care of me!
Mama bird set him down safely in a tree top, far above the rushing waters.
It's not our job to take care of the past, it's our job to take care of the future. I'd talk to Adult Protective Services and tell them your mother needs to have the state take over her guardianship since she can't take care of herself and no one in the family can either. The Bible says to honor your parents and that means finding the right people to tend to their needs. You are not trained or equipped to do so. Be at peace.
These are your years to plan for your future with your husband. Keep reminding yourself of that. Best wishes to you and your family.
Anyway, it sounds like your mother has dementia going on, maybe from the stroke, maybe from anesthesia, maybe from both. Regardless of where it came from, she may be too much for the Assisted Living Facility to handle, and she'll have to be moved to either Memory Care or Skilled Nursing sometime soon. After breaking a hip, it can be hard for an elder to recover, and they can start on a downhill roll from there. This is something you'll need to discuss with her doctor to get his/her feedback about how to proceed. The good thing about Memory Cares and SNFs is that there is less of your time required......there is a lot more care provided for the elder in these establishments, which is helpful. When I had to transfer my mother from AL to Memory Care this past June, my life actually got easier. They have a lot more care givers to tend to her there, which frees ME up.
So, we still care for our mother's while they are in ALs or MCs or SNFs, it's just not 24/7 or inside of our homes. It's enough, trust me.
I wish you all the luck in the world dealing with this stressful situation. Sending you a hug.
Mom had heart surgery last year, age 91. She went completely bonkers refusing to take her meds, telling a dr she didn’t like his face, told a nurse she had a bad attitude! It was a bit funny, the hospital even did a psych evaluation and determined it was a combination of the meds and disorientation being in the hospital. Normally she is very quiet and respectful of medical personnel.
Ask if the hospital has a case manager you can talk to about this. Even a UTI in an elderly person can cause mental problems
You have already shown that you are looking out for the best interest of your MOM by seeking a placement to keep her safe and healthy. It’s not an easy decision, nor is it a selfish one... it’s the ONLY one. I’m in the process of transitioning dad from hospital to rehab, to a “placement” based on his ever-growing list of needs. I’m sure he wishes to be home, but I cannot physically care for him any more, and he is not safe to be living alone with only my assistance for a few hours after work. This was a hard decision but it is necessary for both of us.
And you’re right in understanding that when you have children, you will not be able to do everything by yourself.
Best wishes!
Dont give up your life! Don’t move her in. Don’t feel bad. You’re young and YOU DO WANT TO LIVE your life. She got to live hers and you weren’t born to give up your living and loving years when it makes no difference to her now or ever!
You should remind your husband it takes 3 shifts of fully trained staff in multiple medical, psychiatric, and nutritional fields to care for elderly and you’re not capable nor qualified to provide that for her! If that’s not the best reason, I don’t know what is. You’d in essence be taking her best level of care away by bringing her home.
This is a responsibility that will not go away. As an only child, you need to know what support system your Mom has right now. Is long term care insurance in place? What financial resources does she have? Is she on SS or SS disability? Will she need Medicaid? These are all things that must be discussed preferably with a professional. Make certain your advisor is really interested in helping you and not just in it for a fee.
Once you are armed with info and an action plan, have a family meeting and proceed from there. You might be surprised with the results.
I am looking into an elder law attorney for this.
I would definitely recommend talking with a therapist and if she/he suggests it, bring your husband to a session so he can have his eyes open. The therapist will support your decision, believe me. Also they will give you options on being around your mother.
Now for her...when she was in rehab, she would have had an appointment with a speech therapist. The ST would have done a cognitive evaluation. I'm wondering if you can get the results of that cognitive test. I would think that you had a care conference upon her discharge with all the people involved with her care in rehab. Do you have HIPPA rights with your mom. Are you her medical POA? If you are then your obligation is to look after her medical needs and to be sure she is treated and diagnosed properly. You have a say in her treatment. If you don't have it then you should get it soon.
It's quite possible she may need care in a LTC facility. Not sure though as that depends on if she has medical needs that qualify.
One thing is you can not make your mom take showers, eat etc. So realize these are battles that are beyond your control and let those go.
I always recommend a book that is fantastic in these situations written by a psychologist, Paul Chafetz. It's on Amazon and is a quick read packed with tips. It's called Loving Hard to Love Parents; A Handbook for children of Difficult Older Parents.
Please know that we care and understand.
Moral obligation... well, yeah, and/but so where does that leave you?
You don't want your mother (or any other lady, I expect) to be lonely, neglected and uncared for, of course you don't. But it's a HECK of a jump from that to the frankly daft suggestion that you should scoop her up, take her home, and nurse her 'til the end of her days.
Just to help us understand the background a bit better: what prompted you to move her to your state after her stroke in July? Were there no options local to where she was living, or was that part of feeling that you needed her closer because you "should" be taking charge of her care?
When you mention the family, who are they and where do they live (roughly)?
It will only get worse. Try taking care of a bedridden person (mom was only bedridden for 2 months prior to her passing because I kept her going as long as I could!) -- turning and changing diapers and tube feedings. And inducing bowel movements. I had my mom on a tues, thurs and sunday bowel schedule. All I did was pour a cup of prune juice and a cup of coffee down her peg tube she would poo in 2 or 3 hours! So her bowels were easy for me to manage--STILL it was an all day affair! When it was bowel day I kept her in a diaper (I became an expert changer..I could change mom's diaper in a few minutes by myself!). That was because if I did not diaper her she would put her hands in her poo and smear it all over the place. I'm very sorry for being explicit but THAT IS THE WAY IT IS!
My entire life was MOM only. I was home bound because of mom. She could not help it. Try cleaning her vaginal area because poop got in there. If you don't she will get infection. Buying tons of ointments for her bottom to prevent breakdown. That urine will eat up skin fast. By the way--diapers are NOT cheap. Mom went through 4 or 5 a day. She urinated a lot..then again I kept her hydrated and well fed with tube feedings (that has 60% water so that needed supplementing with free water flushes). One single diaper is about 50 cents a piece so that's about $2 a day!!!! Medicare will NOT pay for diapers (Medicaid does, but she was just on medicare). Ointments..oh and gloves. 100 gloves was $10. So that's 50 pairs. I'd go through a box of gloves fast so I can clean her. Cost of WIPES. Kaaching! HOYER LIFTS to move her from bedrrom to living room so she can enjoy television. I did that daily! Sitting up helps with lungs. She died with clear lungs and no infections and no utis. She was a full-time unpaid job..but I love her dearly and everyday I thanked God I still had her!
I say put her in a nursing home. Seriously. If she's not on Medicaid see an eldercare attorney and get her Medicaid ready.
BUT for myself I do NOT regret taking care of mom. Despite how hard she was to care for I love her dearly and I would give my soul to the devil if I could have her back. However, people do die, and I feel considerable comfort I gave my mom quality years and even at the end she died without any pain or discomfort. She truly had a very peaceful life because my motivation to care for her was pure love. I really love mom and she knew it. I miss her...but I have to live with the aftermath of being a caregiver. That's fine. I can deal.
MY POINT IS THIS: DO NOT CARE FOR HER BECAUSE YOU FEEL OBLIGATED. You will get into serious trouble, because it's hard unpaid work. Further, I spent THOUSANDS OF DOLLARS of my own money for her care. FAMILY WILL DO NOTHING TO HELP YOU! DO NOT EVEN EXPECT ANYTHING!
Do it because you are motivated with pure love and you WANT to do it for her.
I think you you are truly an angel and I know your mom knows that from heaven. I wish I could have done the same for my mom, but it just all broke down when I had my developmentally disabled daughter with just me and my sister as my husband was gone on business, but when it became 1 am and Mom was just not understanding how late it was and although she had fallen that evening but we amazingly helped her get up, all she needed to do was just go to bed. She was clean, had pjs on, and caused huge problem as didn’t want to just put diaper on for the first time since she really could not walk or get up without tremendous amount of help. My daughter recovered from her own mental issue a while back but showed me sign she was going to act up as she was tired at 1 am and had never even spent the night there in over 27 years. So I lost it and just told Mom she needed to put the diaper on and go to bed as my daughter and I really needed to go home so my daughter could just go to sleep. With good sleep she is fine. My sister commonly stayed up all night with Mom but could not lift her anymore without assistance. I wish I would never had said “Just put the diaper on!” as mom worsened from that time on and visit to hospital a couple days later after her birthday only worsened situation. I think she acted up at hospital and really got injured moved to another room there. I was afraid to visit day after move to other room. It is a terribly bad memory for me with lots of quilt. My sister did take mom home next day to very changed setting with hospital bed in living room with just like my dad had 12 plus years earlier. Mom passed maybe three days later, a day I worked so I was not even there. I feel terribly still about all this and it has been almost a month and a half since mom went to heaven. I am so glad you have happy memory of helping your mom no matter what. I cannot go back in time to make that happen unfortunately. I can only thank my sister for taking good care of Mom at the expense of her own health. I feel badly about that too as I am the older sister. My sister has melanoma in situ that doc could not remove to clear borders. We learned that the day everything went downhill more here. So there has been lots of stress here and still is.
Thanks for for listening to all this. Getting old is not something I look forward to but it will happen to me too. I just hope to remain positive knowing I need to take care of myself by doing what is healthy for my body and soul. I hope I can always do that. Thank heavens I have my daughter who loves to exercise and has two classes at our local junior college currently, one is fitness class. Like my mom knows, there is nobody to take care of me unless husband stays well but he is older that I so I cannot count on it and I do not expect anyone to care for me as I am the caregiver in our family although I was not a good one for my mom. My sister was, but she is single.stay positive no matter what!🙏♥️
Dementia can be cause by strokes as well as Parkinson's disease and Alzheimer's disease. Frontal lobe strokes can cause all kinds of unreasonable behavior that can be difficult to live with or manage. It seems mom is being cared for the best she will allow and that you are showing her love and support the best way you can. When other criticize, ask them to visit mom and give them a task to do to help her. Either those folks will step up or they will stop being critical.
If Mom has a phone and your the only person she calls, lose it. (make sure staff knows u took it) If she calls ur landline, let it go to the answering machine. Then u can pick when ur ready to call her back. If its a cell put urs on "do not disturb" so calls go to VM.
Speak to the AL Administrator. Explain that u feel Mom needs to depend on someone other than yourself. She depends on you too much and is not adjusting well because of it, u feel. Calls to u from the AL should be emergency based or to set up a care meeting. Tell him you are going to do what you can at your end to block Moms constant calls to you because it disrupts ur job. You would appreciate if staff not call or let Mom call because she is not eating, not taking her meds, not bathing, she has a complaint...ask that they find ways to get around this. You would really appreciate it. You realize there are laws in place but you are sure they can do a better job than u in getting her to do what they want, (my daughter, RN, says there are ways to get residents to do what you need them to do without going against laws) (ex: Mrs. S wouldn't it be nice to have a shower and fell fresh and clean.) I find aides tend to "ask". And by asking the answer is no. I think they can be more direct. M"Mrs. S, time to get a showerer".
Doing the "moral thing" does not mean your at Moms beck and call. Does not mean you cook her meals because she won't eat what is served at the AL. (usually ALs have a couple of choices) She will eat when she is hungry. What is moral is making sure she is cared for, fed, kept clean and warm. Not to give ur life up for her. She is young but the AL is what she needs. And thats where we r, what she needs not what she wants. She has to realize this is her life. That its up to her how she does. You can't do it for her.
Yes, sounds like she is manipulating you and is, for whatever reason, making you jump through hoops. Well, not making you but guilting you into doing too much for her. She is somewhere safe and they can take care of her basic needs.
I'm trying to learn about setting boundaries and having a hard time of it, but that's what I suggest for you too. What are you willing and able to do, without feeling all used up and resentful? Err on the side of YOU and you husband and future children. You deserve to have to time and energy to take care of yourself.
Do NOT bring her into your home. It will ruin what is left of your relationship and potentially damage your marriage.
My mom lives with us and my husband is a freakin saint. How he puts up with it all is just amazing. Other people are not so lucky and I don't know how much I could take if the shoe were on the other foot. It's too much to expect of our spouses, really. Unless they are 110% in and even then the reality of the situation is not usually what we think it's going to be.
I would consider that she may need a higher level of care. The nonsense of not eating or showering, anything to get you dancing to please her needs to be shut down. The AL is supposed to be trained in caring for humans in her situation, if not, I would research other facilities. If they can't do their jobs, then find one that can. But you really need to set boundaries with her, like no phone calls that interrupt your work, no meals delivered except as a special treat on (insert day).
Honestly she is manipulating you and you are the only one that can put a stop to it.
Your husband needs to realize that you can only give your mom so much and to try and guilt you into giving in to her manipulation is not helpful. Why would he do that to you?
My mom and I don't and never have had a good relationship and I believe that it was always her intent to not have a mother daughter relationship. It is truly on a parent to create that loving bond as they are raising their children. If they are to selfish or whatever to do that, well they created the situation and you can only do so much. I would never move my mom into my home, I would lose my mind dealing with her and her nonsense, she made it abundantly clear that I was a burden that she never wanted, now she needs me and wants things different. Sorry, not gonna happen, I will make sure she is in a facility that meets her needs, her wants are not even part of my thought process, I will make sure that she is treated as well as possible and that is all I can give her.
Set your boundaries and tell your husband to stop making this harder on you. She created the relationship and this is what it looks like. Professional care and it is more than she should honestly expect.
Never bring her into your home, you will regret it.
Hugs and strength! You can do it!
She is getting better care there than you could give her in your home.
Note that the people who tell you that you should bring her to your home and watch her 24/7 aren't stepping up for the job themselves. Until they're willing to do the same, they need to shut it.