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How are they managing their medications?
Does their living environment pose any safety concerns?
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Are they experiencing any memory loss?
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By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington. Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services. APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid. We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour. APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment. You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints. Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights. APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.I agree that: A.I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information"). B.APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink. C.APFM may send all communications to me electronically via e-mail or by access to an APFM web site. D.If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records. E.This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year. F.You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
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Mostly Independent
Your loved one may not require home care or assisted living services at this time. However, continue to monitor their condition for changes and consider occasional in-home care services for help as needed.
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i love my parent, but i dont know how to be a mom to my mom. im weary after only 3 mos. and she loves guilt to get her way. i wanted to help her so she moved in with me and now its 24 hr care. and her home helper isnt much help
Dead Survivor, I just read your post. You must save yourself. If for any reason she has to go to the ER, you must tell them that you cannot care for her at home. I don't know if she has any assets, but if she does, it looks like you've already accepted there will be non left. They will take what she has to put her in an assisted living, and Medicaid should take over after that. There is no reason on earth that you are responsible more for her than for yourself. It sounds like you've already given too much of yourself...don't let the fact that she needs so much care ruin the rest of your life. You deserve better, and I hope you find a way to get it. Hugs to you.
First thing to do is to replace the helper who doesn't help much. My mother has a great caregiver who lives with us. She is "on 3 - 4 days - 10 - 12 hour shifts) and off the balance of the week. We share the responsibilities of Mother's laundry & bed changing, but she takes on the lions share. I do most of the cooking and keep the refrigerator stocked for their meals.I run 2 businesses and feel overwhelmed myself often times, but Mother's caregiver makes my life bearable.
Whatever you chose is your decision and I fully understand that extremely hard decision. This is coming from someone who was fortunate to be able to keep their parent at home. I just had another thought. Getting a consult for OT and PT was more helpful for me then mom. They showed me the easiest ways to get mom showered and dressed, doing transfers from bed to wheelchair, what durable medical equipment would be best, etc. these were little things that made it much easier on me. Having had 2 back surgeries in the past, I would burn out very easily. There were some battles i chose to fight and others i let go. I was constantly explaining that we needed to do things that worked for me and my schedule because my kids were wittle little when I first started caregiving for my mom. Good luck and be at peace with whatever you decide, there is no wrong or right answer. Just what is right for you. Merry Christmas
I had a caregiver come into the home from 10 to 3. This time of day was the easiest of the caregiving part so I had her do the wash and make the beds which gave me more free time when I was there. Some days I would just nap upstairs while she was there if it was a bad night. Not having to do wash, changing sheets and making beds was very helpful for me.
I try to get as much help as I can. If you have a research hospital nearby, look on their website and see if there are any studies on caregiving that you might participate in. The one I am in looks at the impact of having a care coordinator - someone to assess needs and provide referrals where those needs can be met. I was lucky and was chosen as part of the group that is assigned a coordinator. My mom and I even get paid a small stipend each visit.
I also schedule a call at the same time every week with a friend to talk for an hour. We take turns listening and coaching one another. She is not a caregiver, but has other problems that I can help with. If I did not have her, I would do my best to find an affordable life coach (look for those who are in training and seeking someone to practice on) or free counseling service to use.
I go to lunch once a month with a friend who is also a caregiver. If we can't go out to lunch we go to each others house.
I recently hired help 3 days a week and this has been wonderful. I hired someone who does not have nursing skills...as neither do I. Just found someone caring and who has common sense and saved a lot of money. I pay her $15 an hour and she cleans the house, makes dinner for us, stimulates my mom mentally and provides company for her. Finding someone even for a few hours a week would be a real boon for you. I used care.com and then did a background check.
I agree with ensuring you get enough rest, make your own medical appointments and eat properly.
I have contemplated using the grocery delivery services at my local food store...but for now my sister helps every other week.
If you have some close friends, invite them over to brainstorm ways to make this easier for you.
One month I was struggling with preparing meals and I hired someone to prepare 5 different frozen meals to last a month. I separated them out into individual servings and kept them in the freezer. This helped at a time I was overwhelmed with many other things like getting together the POAs, will, and my mom's health issues. Although I found someone that does this professionally...I would bet that if you went onto a site like care.com you could ask for this service and get many people interested in bidding for the job.
I wish you the best. The short answer is have caring people around you to talk to and support you in whatever way you can think of to have this happen.
I understand what you're going through, helpless 72, but I don't know if there's any sure fire way of avoiding burnout. I've been caring for my mom (who has dementia) and my dad (mobility problems) since 2010, and there have been times I've felt like just throwing in the towel; at other times I find myself wishing I had never left my home and quit my job to do this. But the love keeps me centered, and, although my mom frequently forgets who I am, I can still feel her love. What has saved me is finding hobbies I can enjoy at home and trying to get out as much as I can. The latter is very hard to do, but even just having lunch with a friend can help a lot.
Helpless-you hit the nail on the head. I didn't know looking after my mom in my home was going to be so hard. Also it's extremely difficult to watch your loved one slowly die. It consumes me completely. Lawyers, VA benefits, home health aides, none of these resources can alleviate the day to day pressures we face in our situations. You'll hire and fire many of them. It will exhaust you. You look to family, you look to the outside world, but no one rescues us. Here's some things I do that might benefit you too: 1. Sleep – 8 hours minimum per night, more on weekends 2. Diet – nourishing whole grains, limited lean meats, sneak veggies into your meals, fruits for snacks 3. Exercise – 60 minutes of walking daily 4. Healing Movement – yoga, or weight lifting 3 times per week 5. Boundaries – keep interactions as brief as possible with people, places and things that do not impact me in a positive manner
Economically it sounds like you may benefit from charging your mom for services, getting paid to provide her care. It is legal, and some of the other bloggers here might have more info on how to do that.
In my opinion, there is no way to prevent burnout because of the emotional investment you are making as a caregiver. If it were just a job, it would be difficult enough. But add on the emotional connection, and it makes everything much more intense. That said, you can learn coping mechanisms that will help you get through this very tough time.
Why does she need 24-hour care? What I'm asking is does she need it or just guilt you into providing it?
First and most importantly, start the process of getting durable power of attorney. Otherwise you may find yourself unable to get anything done in the future. You have to be able to get stuff done for her even if she ends up living somewhere else.
Put a stop to the guilt. Do not stand there and listen to the guilt. As soon as she starts with the guilt, say "I cannot do that, mom" and walk away. Learn to say "this is what I can do, mom" because you set the terms. She moved into your home so set a schedule for her and stick to it. Set a schedule that includes time for yourself and honor it.
Assess what her real needs are (not her desires) and prioritize them. Fix the important things first - everything else can wait.
Avail yourself of all the help you can get. For example, if she needs help getting to the doctor's office is there a senior shuttle that will take her? Can she socialize at a senior center? Does she have friends or family nearby? There's a lot of great advice on this forum and I urge you to use the search bar at the top and read other threads under forum topics.
Your loved one should have a thorough geriatric assessment to evaluate her physical and mental status. A geriatrician, or a doctor or nurse practitioner with geriatric training, would be ideal, but such specialists can be challenging to find in some areas. Your mom primary care physician is another option; phone ahead for reassurance that she can do a thorough assessment. The most important element will be your loved one's degree of ability to conduct "activities of daily living"—sufficient upper-body strength to get out of a chair unassisted, adequate dexterity to bring fork to mouth, and enough range of motion to pull on pants or a sweater, for example. Balance will be checked to assess the risk of falls. Memory deficits, signs of depression or anxiety, and indications of dementia and Alzheimer's will be evaluated. Simply identifying all the issues can take a big weight off a worried family's shoulders.
Take care of yourself first. So many times, the caregiver's health is what suffers most. Have you considered assisted living or, at least, an adult day program?
Then you have to make a decision. Either you can stick it out, or move her to a facility where they can care for her. Not everyone is cut out to be a nurse. (As a retired professional nurse, even I have my burn-out times as it happens to everyone). Merry Christmas!
I have a difficult time thinking of myself as my mother's helper. I, too, have been caregiver to my mother with severe dementia for 3 months. She does not know that I am her daughter and never remembers my name. Many times I have thought about throwing in the towel. I have a new agency that will come in 3 days a week and that will help me cope. My mother is a veteran and I have applied for and received Aid and Attendance benefits for her. That helps pay for all of her in-home care or care in a facility. If your mother was a veteran or the widow of a veteran please check into this. It can be a lifesaver for you.
It's good that you're reaching out, Helpless72. You'll find all kinds of support on this site. It probably won't help much, but I was a mess after 3 months, and then after 6 months it all got a bit more manageable. What really helped was a shift in attitude on my part: I started thinking about caregiving as a profession, and when I approached my day as a "professional caregiver", it felt less emotional and the guilt was easier to slough off. After all, it is a job for many people. Don't think of yourself as your mother's mother, think of yourself as her helper. Might work!
"If" you can get out of the house from time to time, that would probably be the only way to keep your sanity.
I am in the same situation. My mother has COPD. When she learned she had COPD, she refused to lift a finger with the exception of using the bathroom. Currently, I am unemployed with a vehicle that is in dire need of repairs but with the 24/7 home care she expects from me, those things will never be done and I'll be left with $0.00 when she passes away. I love my mother more than anything but this has driven me into serious depression. I feel more like a slave than a nurse.
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
Merry Christmas
I also schedule a call at the same time every week with a friend to talk for an hour. We take turns listening and coaching one another. She is not a caregiver, but has other problems that I can help with. If I did not have her, I would do my best to find an affordable life coach (look for those who are in training and seeking someone to practice on) or free counseling service to use.
I go to lunch once a month with a friend who is also a caregiver. If we can't go out to lunch we go to each others house.
I recently hired help 3 days a week and this has been wonderful. I hired someone who does not have nursing skills...as neither do I. Just found someone caring and who has common sense and saved a lot of money. I pay her $15 an hour and she cleans the house, makes dinner for us, stimulates my mom mentally and provides company for her. Finding someone even for a few hours a week would be a real boon for you. I used care.com and then did a background check.
I agree with ensuring you get enough rest, make your own medical appointments and eat properly.
I have contemplated using the grocery delivery services at my local food store...but for now my sister helps every other week.
If you have some close friends, invite them over to brainstorm ways to make this easier for you.
One month I was struggling with preparing meals and I hired someone to prepare 5 different frozen meals to last a month. I separated them out into individual servings and kept them in the freezer. This helped at a time I was overwhelmed with many other things like getting together the POAs, will, and my mom's health issues. Although I found someone that does this professionally...I would bet that if you went onto a site like care.com you could ask for this service and get many people interested in bidding for the job.
I wish you the best. The short answer is have caring people around you to talk to and support you in whatever way you can think of to have this happen.
1. Sleep – 8 hours minimum per night, more on weekends
2. Diet – nourishing whole grains, limited lean meats, sneak veggies into your meals, fruits for snacks
3. Exercise – 60 minutes of walking daily
4. Healing Movement – yoga, or weight lifting 3 times per week
5. Boundaries – keep interactions as brief as possible with people, places and things that do not impact me in a positive manner
Economically it sounds like you may benefit from charging your mom for services, getting paid to provide her care. It is legal, and some of the other bloggers here might have more info on how to do that.
Why does she need 24-hour care? What I'm asking is does she need it or just guilt you into providing it?
First and most importantly, start the process of getting durable power of attorney. Otherwise you may find yourself unable to get anything done in the future. You have to be able to get stuff done for her even if she ends up living somewhere else.
Put a stop to the guilt. Do not stand there and listen to the guilt. As soon as she starts with the guilt, say "I cannot do that, mom" and walk away. Learn to say "this is what I can do, mom" because you set the terms. She moved into your home so set a schedule for her and stick to it. Set a schedule that includes time for yourself and honor it.
Assess what her real needs are (not her desires) and prioritize them. Fix the important things first - everything else can wait.
Avail yourself of all the help you can get. For example, if she needs help getting to the doctor's office is there a senior shuttle that will take her? Can she socialize at a senior center? Does she have friends or family nearby? There's a lot of great advice on this forum and I urge you to use the search bar at the top and read other threads under forum topics.
Have you considered assisted living or, at least, an adult day program?
I am in the same situation. My mother has COPD. When she learned she had COPD, she refused to lift a finger with the exception of using the bathroom. Currently, I am unemployed with a vehicle that is in dire need of repairs but with the 24/7 home care she expects from me, those things will never be done and I'll be left with $0.00 when she passes away. I love my mother more than anything but this has driven me into serious depression. I feel more like a slave than a nurse.