I live about 300 miles away from my mother. She's 82 and has Parkinson's. My brother, who has never worked much, lives with her and has done a much better job than expected with cooking, running errands, and lawn care. He makes sure she takes her medicine and encourages her to eat more.
Unfortunately, he also helps himself to her money via her ATM card. He often helps her pay for things so he knows the PIN number. And then he frequently pockets the card and uses it as he pleases. She either doesn't want to get it back or forgets to get it back. He also treats her car as if it's his and spends more time out of the house than I'd like.
I became aware of the ATM withdrawals only recently, when I began monitoring her account online. (I have POA.)
Talking with my brother has little effect--I've always suspected he's a sociopath (no conscience) but that's not a conversation I've ever had with him. He continues to treat the ATM as if it's his personal account.
If I were to simply have him arrested, then my mom will immediately need to be placed in nursing home--which she's completely opposed to. It's possible she would come live with me and my husband. We have the room and would be happy to have her...but we do both work full time. (She'd spend about as much time alone as she spends alone now except that we'd feel bad about it. My brother is often out and about.)
While she's healthy enough to remain in her home, I'd love for her to be able to stay there.
Are there any options here that I don't know about? Friends have suggested opening a new account, but he'd easily take the card for the new account and continue using her money.
Thanks!
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Ask the local Elder Services to come and do an evaluation on mom so you know what her needs are. Ask brother what of those needs he can take responsibility for and how much time they would take. Then figure out what it would cost to have an agency cover those needs. An agency will not cover her house upkeep or yard work including snow removal so brother would need to be compensated for those chore services. Factor in that he is also “on-call” overnight and that should cover the compensation for his room. He needs to be there just in case she needs him, if you had to pay for an overnight Aide it would be far more that what “rent” he isn’t paying. In the contract lay out what is expected, when is he expected to be with her as opposed to time for him to do whatever.
Pay him for his time, you it means that there will be an employee/employer relationship and taxes that will need to be paid but it will be an accounting for monies given to him. Don’t dwell on what has happened in the past, just from now forward.
Does he help her with her medications? In our area medications must be handled by a Skilled Nurse (RN). Just to sort medication into the pill box is $90.00 a visit. If they administer the medication on a regular basis it is $56.00 a visit.
Now as for the car. How would she get to appointments without it? Does he take her with him when shopping is done? What would it cost to have her transported by a local Cabulance, would you need to have an Aide accompany her to her appointments? What would be your expense to take time off, travel to mother and attend her appointment with her? I have a cousin who has let her caregiver take her car and use it for the last couple of years. Caregiver does not live with cousin and does not assist cousin daily. She does either does the shopping or takes cousin to the store and assists with shopping, takes her to all medical and therapy appointments. While cousin can still drive and has a valid license she chooses not to so the arrangement works for them. It should be part of the contract that while brother has use of the car he is responsible for any tickets he gets or they will deducted from his earnings as a line item.
You have to determine what is going to work best for you on the bank account/ATM issue. Right now I am working to help our son catch up and pay off his student loans. He has is paycheck direct deposited into an account with both our names on it. He has determined how much $ he needs for a week and I withdraw that amount in cash (he hates banks). The rest goes into a savings account and payment for his loan is taken from there. I track any additional expenses all week and on Wednesday (payday) make a transfer from his savings to cover those with notes as to what was paid.
No one is going to want an older unemployed man.
I hope he's not drinking alcohol. That would put your mom in serious danger.
YOU CAN install cameras in her home so you can check on her remotely. I have cameras all over my house. When I took care of mom I had to go grocery shopping but I never left her alone any more than 20 minutes. Pick up groceries and straight back home. I kept my eyes on her with my cameras -- but I still was tethered to her since I was her life support.
Then I would get another prepaid card for your Brother as caregiver to your Mom. That way you have control of what he spends.
You start off saying he has done a good job caring for her and around the house. Also, that he never did work much. So, is he working at all right now to make some spending money?? If not, how much do you think your mom would be paying for all the time he DOES spend at home and handle the tasks that you mentioned. I mean, unless he is taking substantial amounts that exceed what he does for her, do you expect him to stay there without any cash in his pocket? Perhaps, you two could come up with an amount that would be agreeable for the tasks he takes care of - plus all of the hours in a day he spends in the house with her (including the nights).
People need a break. Maybe it would be possible to pay someone to come in for a few hours a day or so per week to let him get out, visit friends, go somewhere. Clearly she doesn't want to move and for now her care seems to be pretty much handled. Would you toss him out on his ear if you took her to your house after what he's handled thus far?
People living at a distance often fail to realize what it really is to live with someone and can be a little more critical when they aren't actively involved 24/7. I hope there is a way for you to make a deal with the brother so that mom can stay in her own home as long as possible. If you think he should be out earning his own money, his limits on care would be the same as your own - she would still be home alone for certain periods of time. You might also invest in a emergency response button and have her get in the habit of using it now. If he was out of the house (or even if living w/you) she could have access to emergency response.
"...to let him get out..."??? OP stated that he isn't even home as much as she would prefer and even went so far as to say if mom came to live with her, because she and hub work, mom would be alone, but really no more than she is NOW! Doesn't sound like he has an issue getting "respite" and going out with his pals...
I do agree that some family who are distant and don't see the day to day don't get it, but in this case bro isn't exactly busting his butt caring for mom 24/7...
Emergency alert would be a good idea. If she can ambulate, the phone would be her way to get help most likely, but if she has trouble getting around OR falls, that alert can certainly pay for itself!
I really think you need a combination of medical, legal and perhaps financial assistance to get this all set to avoid issues in the future! The sooner the better! What I want to cover will likely take multiple posts, so bear with me. The repercussions for not addressing any of these topics can/will be negative for her future. There's no way to predict how long she might live or what her future needs will be, so it will be very important for you to address all of these issues. Rather than make multiple individual posts, I will post each "topic" as a reply to this message.
To be covered, at a minimum:
Medical
Social Security
Legal/Compensation/IRS rules
Medicaid
Debit vs ATM
(the order may not match up to importance, so try to find/read/digest the Medical one first!)
Before making plans for changes, the first thing you would want to have in hand is a valid Dx (preferably more than one doctor!) from appropriate doctors that considers her cognitively impaired, enough so that she wouldn't be considered "competent." If you don't have this yet, you should get it before doing anything else! She doesn't have to be totally "out of it", just enough that she doesn't really understand what is going on. Sure, she says she wants to take care of him, but she has no clue what he's doing!
Our mother was in early stage dementia and we needed to revisit the EC atty to make some revisions. He took her aside and asked questions, enough that he determined she was capable of signing documents. We had worked with him previously, so we knew he was honest and legit. There are those who for a buck would allow someone like your brother to bamboozle everyone!
Others here have brought up how they had a relative who took the LO and got all the changes done, new POA, sign over house and assets, etc. IF you get valid documentation for a Dx of dementia, specific enough to withstand query, then even if he did try to end run this, it could be invalidated by the courts.
When you get to the legal section, make sure you discuss this with the attorney, to be sure the Dx is sufficient to stand up in court.
Then, figure out how much it cost in groceries and get her a gift card for that much and that is it.
The same goes for the car. Figure out how much money it costs for gas for a month and then get that much in a gift card.
If you can find a police officer or lawyer to sit down and talk with your brother ( make sure it is filmed for evidence )and explain to him that what he is doing is a crime and if there is any more of it he will be officially investigated.
That straightened out my family real quick.
They kept on promising to come down and do work if mom gave them money. Then they would find excuses for not doing the work. Finally she got fed up with it and informed them that I ( her primary care giver- live in care giver ) would be contacting the police if it continued. It promptly stopped.
If he decides to move out talk with your local health agency and Parkinson's Disease representatives in your area and they can arrange someone to do those jobs for your mom and well as have cognitive visits with volunteers.
Currently, all of her bills are being auto-paid. I think. It's possible there's a bill I missed...but phone, cable, water, heat, and electricity are covered.
I love the gift card idea--would be easy to handle. I checked and can even get her one for the local AFB commissary AND the PX, which is terrific.
He's not going to move out. (Our best hope was that she'd die suddenly--without requiring nursing home care--and he'd get the house while I got everything else. That's not gonna happen now.) It's in his best interest to contribute to her care to the best of his ability. Once she needs to move into a nursing home, he won't have a job or a place to live. If he did move out, I'd move her here in a heartbeat.
There is a certain comfort zone for her to see her things everywhere she expect them to be. I have heard that when they are in their own home it slows the debilitation.
The problem with dementia is a certain restlessness of always wanting to go home. The time will come when she will get her purse and say “I got to go home now”, she will repeat over and over and over and over. If that time comes while she is in your home, you and your family will have no peace.
I know of a person placed in a nursing home was given, with authorization, sedation because of her determination to go home.
I have this exact concern. She does an amazing job puttering about in her kitchen and the rest of the house. I can't imagine her adjusting to a new location now. (I've noticed that her long-term knowledge is just dandy but short-term is seriously compromised.) She confuses the TV remote and the phone but the newspaper ends up in the recycling each day and her bed is made and her laundry is done. Over the summer we did a lot of work cleaning the basement, and she really knew her way around her stuff. She would be somewhat lost in a new location.
Some of her attachment to her home relates to trauma she suffered as a young girl during WWII when her family's home was lost. I really don't want to mess with her need to be at home unless I absolutely have to.
unfortunately that can slowly become worse.
You are 300 miles away and your brother is there every day. He does deserve some monetary compensation and car use , especially if he’s not getting paid for his services.
NJ will pay people to care for someone. I don’t know about your state.
Dont forget its your moms money and it should all be going for her care and we’ll being.
That said
Best to all of you
Some of her current issues stem from the shutdown. She had been attending a Parkinson's-specific exercise class twice a week before the virus hit. I wish my brother would continue to work out with her--take her for a walk around the block or ask her to teach him what they do in her class--but that's a little beyond him. Exercise is extremely beneficial.
She has an insured car with him as the primary driver. She surrendered her license after having a series of what she called 'mishaps' but which I called 'accidents.' Through some bizarre twist of fate, the local courthouse wiped my brother's DUI record clean at no charge and allowed him to get a driver's license.
Mom has allowed him to live with her and has turned a blind eye to his, ah, financial habits, for many years. She does indeed think she's taking care of him.
Do you have monthly visits of several days' duration with your mom? That might help you better understand the situation and stay connected. Having your mom move in with you down the line might be much more challenging and time-consuming than you expect. You want the best for her, of course.
Where is the money coming from? Is there a high balance in the account, or is this coming in monthly for retirement? Are there minimum IRA distributions?
Rather than closing your mom's account or canceling the debit cards, you can open a new interest-bearing savings account with yourself and mom. You can then move funds over to cover future care, taxes, medical bills, and so forth. The expenses will go up, so start setting aside funds now.
Leave a generous monthly amount in the account to cover both your mom and your brother's expenses including extra discretionary funds. Get your brother's input on what is needed for the two of them. He will explain it, and he may come up with a relatively low amount.
Make sure he understands that the budget must cover the utilities (on auto-pay), property taxes and so forth as you determine. Then add a generous amount to that, and then let him continue to manage it and use the debit card. You should be able to monitor this by viewing the account, and by receiving notifications of withdrawls. Most debit cards will not work if there is no cash in the account. You can also choose to pay larger amounts like property tax out of the savings account.
This way your brother continues to manage and spend, but the budget is built in, and he will hopefully not feel micromanaged. You will also hopefully prevent a situation that screams distrust of your brother, which canceling the debit card would do. Keep the trust. You have a long road ahead.
Also--who is going to look after your brother when your mom is gone? Perhaps some planning should be done in that area too.
Best of luck with getting a smooth road in place.
Praise is very effective with my brother--I am trying hard to be as positive and respectful as I can be because I do truly appreciate what he does.
My mom hopes that I'll care for my brother after she's gone. She thinks I'm going to let him live with me.
My brother was upset that I was being paid. Having a third party handling the finances is a good way to protect yourself and give your brother accountability. I have POA, so I was the one that had put all of this in place, but it has proven to be worth the extra expense.
What is your brother using the money for? Is he getting cash or buying groceries and supplies for your mom, or going out and using the money on himself?
I had instituted an envelope/ receipt system when I moved in with my mom full time and have one envelope for receipts for things directly related to mom’s care, one for mom’s personal use (hair dresser, take out, treats) and one of what my husband and I spend towards the up keep of the house and things we buy for mom. This system worked beautifully when I was being investigated bc I was able to produce all the receipts and my brothers and the investigator both were surprised where the “misused monies” actually went. It also helps a lot when it comes to tax time bc there were things that could be deducted we were unaware of for mom.
I would highly recommend doing a caregiver agreement with your brother which states how much he is supposed to stay with your mom a day.
Also, set up a salary for his services. I make $700 every two weeks, an amount I chose, and I am a 24/7 caregiver.
Also, work out a way to have someone come in for four or eight hours a week to stay with your mom to give your brother a designated time off.
This will make him feel both more accountable to your mother and reinforce that you appreciate what he is doing. Psychologically, this is a big deal to the caregiver.
No matter how you feel about your brother and his mental health there is a big impact and a major commitment on his part to follow your mother’s wishes. You are both part of team Mom, but it does sound like there are mechanisms that can be put into place to make it an even stronger team.
She may have said to your brother he can use it to cover his expenses since he's caring for her or she may not care that he uses it because he's her son.
You need to have a conversation with your mom while your brother is out and about.You'll have clarity and be able to proceed accordingly if warranted.
You might want to consider purchasing gift cards for the places most frequented. And if you don't mind my saying so, you ought to consider yourself very lucky to have your brother not "work much" so he can be so accessible and available for your mother. Do you have any idea of how much hiring a caregiver is? Figure $20/hr minimum. I wouldn't fault him for going out once in a while either. And to have meals prepared and lawn care too? Tally it up and it may not come up to whatever he is taking. Is he on disability? He may potentially be eligible or for other sources of support as well. And you might want to educate yourself on the adult child exception when it comes to Medicaid if one needs to be in a nursing home.
You are lucky to have him. Hiring privately or through an agency, or taking on caregiving yourself is no picnic and has stress and hassles you can't even imagine.
I'll do some reading about the adult-child exception.
If anyone should be arrested it may be you for taking financial advantage of him! I think you should agree on an hourly rate for him.
1) The OP said the brother takes in the range of $300 to $800 a week. If his mother is living on SS or little more than that, then this amount is serious. However, if the mother receives, let's say, $10K per month (or has a substantial portfolio), then this amount isn't as serious in the scheme of things. We need to know a bit more to put this into perspective. If his mother is well-off financially, then the bigger issue is whether the brother would be tempted to do something that would "steal the goose" instead of just taking a few "golden eggs"--this, of course, could make his mother go from never needing to consider Medicaid to ending up needing it but unable to get it due to what would be interpreted as "gifting".
2) It was mentioned that the brother had been in jail a few times. Were any of these incarcerations due to acts of dishonesty? Did he have any issues with addictions such as drugs, alcohol or gambling, or was he ever convicted for selling drugs? If he were put out and made to support himself, it may be that his record effectively makes him unemployable, or at least unable to obtain a job by which he could afford to support himself on his own income.
I agree that there need to be some serious discussions regarding the situation so everyone knows what's permitted and what isn't, how much money he should be given and for what reasons (such as a caregiving contract if it is decided he should continue in this role), and making certain, as I've mentioned above, that the "golden goose" is off-limits to him and out of his reach. However, he probably realizes that it is in his own best interests to keep his mother as healthy as possible for as long as possible. By the way, how old is the brother? (I would assume somewhere in his 50s.)
1. Yes, mom lives on SS, a small annuity, and little else. Her estate is not large. He's imagining both the goose and the golden eggs.
2. He's unable to support himself. I believe he's a small-time dealer, but my evidence is thin. If he is a dealer, he's not very good at it.
3. He's 55.
Since mom probably should not be driving, it is time to either sell her car or have it signed over to your brother as part of his inheritance. He should pay for gas and maintenance. If he is not the type to pay for insurance, then take care of this as part of his "repayment" for driving mom around.
Talk with him about what would be considered acceptable "time off" from caring for mom. Ask close family, friends, folks from community of faith, or paid help to watch mom on specified days so he can get out to socialize with his friends. Ask a trusted friend(s) to "pop by unannounced" with a treat or to socialize with mom who are willing to report back to you that mom how is being cared for.
Your other option is to move mom to your place and give your brother notice that her place will be sold to cover her expenses - like adult day care or companion/home health aide. Since it appears that he does not provide enough care for your mom - he abandons her to go out - this may have to happen. Give him 30 days notice and tell him he needs to move out so you can get the place ready to sell. Please change the locks on the date you agree on and make sure his stuff is out of her house. If he creates problems, you may need to place a restraining order on him and/or have the police arrest him. There are companies that will buy the house without any improvements for a slightly lesser amount than the value and will "flip it". They give you an offer on the spot and a check if you agree.
She is no longer driving, and depends on my brother to drive her to appointments. You mentioned that if she signs the car over to him, she can do it as part of his inheritance. That's helpful to know--I was reluctant to give him such a major 'gift.' He already treats it as if it's his but of course mom pays for his tickets and gas and insurance.
As we work out an agreement for her care, I hope he'll end up actually making money. Right now what he offers--meals, lawn care, driving--are worth far less than his lifetime of room and board.
Few friends/relatives are willing to pop in--they're livid about his lifelong mooching.
The house is in fantastic shape right now but probably won't be when it's time to sell it.
When mom died, I really felt lost and abandoned, but considering her mind was gone eaten up with Alzheimer's and kept alive with a feeding tube (ironially she died of OTHER natural causes unrelated to Alzheimer's so she would have died just the same even if she were a normal person). Mom's skin was in perfect condition, and she died age 90. I was her life support for YEARS. My ENTIRE LIFE from the moment I woke up until it was time to put her to bed was centered on MOM. Not think I endured YEARS and YEARS and YEARS of this, 24 hours a day, 7 days a week--and not a single break. Ever.
The feeding tube was a LOT of work to keep clean and infection-free. I never had a problem with it. I knew how to take care of it. It spared mom from dying of dehydration, which is a barbaric process that can take weeks. Because of the feeding tube, mom was very comfortable to the end, and was the most peaceful death one could ever hope for. She was surrounded by love and I devoted every second to her. I cannot emphasize she was VERY HARD and stressful work. Alzheimer's is horrible, and she had it for 15 years.
When mom died I had to resume my life. That means finding work, resuming my education. I managed, but it was extremely difficult. Your brother REALLY will be better off NOT taking care of your mom. He is going to destroy his life, and from the sound of it may even incur legal charges by your hand--a record which will follow your brother for the rest of his life which his potential employers will see. So he will not be able to get a job and end up homeless. The charge will be elder abuse, and no employer will want him after that.
I hope your brother sees this and he better run away from this toxic arrangement and get his life together before it is too late! He seriously needs to get out of there. Since you are contemplating legal action against him--he needs to get out of this as fast as possible.
My husband's uncle had Alzheimer's and was cared for by his wife, who had been a nurse. It was incredibly stressful and exhausting for her--I cannot imagine what you went through. What a blessing for your mom that you were available and able to care for her.
I wish he could 'see' into the future, but his chronic unemployment suggest otherwise. If he *could* leave, my decisions would be much simpler.
There are no good answers here. One thing that's become clear to me is that while it was OK for my mom to choose feed, clothe, and house him when it was her decision to do so, it's really not OK for me to do it--having POA means I'm not supposed to allow someone to fleece her.
We haven't been paying him and will need to set that up. His withdrawals are about $300 to $800 per week--or were. I do think setting up a separate account would work--one that doesn't give him access to her savings. (He doesn't realize he could be transferring money himself.)
The car is her second-largest asset and right now would pay for 2 months of nursing home care. It's hard for me to think of it as 'just a car.'
If your brother is not getting paid but lives there and helps and it keeps you from having to travel to help or trouble shoot then some usage of her funds for him is not unreasonable. If you have access to the account online I would open another account in your mother’s name not connected to the card and only keep household expenses + some fun money for him in the first account. The expenses will tell you how much she needs a month to live and how much he uses for himself. Then hold the difference aside for when your mom needs it for unexpected costs. That way he can’t spend everything down or take more than you allow. Just because a child is taking care of a parent does not mean it should be done for free.
I wish I could describe my brother as a good person. Someone with a job and a home that he could offer to our mom, someone I could trust with decision-making and money. You're very fortunate.
My mom's estate is quite small and will likely be exhausted by her needs as time goes by. The Parkinson's, the dementia and the falls all suggest she will need nursing home care in the near future.