I am ready to move back to my home. I have no life! Getting depressed. I moved in with my mom 7 months ago. She had a bad UTI infection that altered her memory and early signs of dementia. I hate to say this but I am burnt out. I live and work 30 miles away and drive to and from work daily. She is now 90% better. She is back to her old self.
She has a caregiver M-F from 7-3 and my cousin stays with her until I get home. I find myself rushing to get home daily to relieve my cousin because she is burnt out to. She was coming 5 days a week, but has dropped to 3 days, which I don't blame her because she is just volunteering her time. My daughter lives 30 miles away also, and relieves me on Thursdays so that I can stay at my house at least 1 night. I have a brother that has a developmental disability, therefore, he cannot help me.
Yesterday I told my mom that I miss my home and am ready to go back. She stated that I am to take care of her until she dies; I'm just throwing her away, maybe she should die so I won't have anything to complain about. I tried to explain to her that I have given up everything for her. I want to hang out with my friends, go to church, or just be alone in my home and not have to wait on anyone. I feel bad for feeling this way. I have been crying a lot lately because I feel so isolated. What do I do?
Sounds like you need a break. AND it IS very important to not let go of valuable friendships and a relationship with your own daughter. Do not feel guilty....your mother is pushing your buttons and she knows it, dementia or not. Explore your options and keep your own sanity.
Dementia is progressive. It will not improve. You, her, your brother, or someone will eventually need to decide where she will receive care. You say your brother has a developmental disability. He may not be able to provide the care and decision making duties your mom will need down the road.
Planning for the future is difficult, but will eliminate a lot of unexpected emergencies and crisis, if plans are made in advance. Later, your mom won't be able to make any decisions or look after herself. Maybe your brother can look after her for a few hours per day, but at some point, she will need around the clock care and assistance with bathing, toilet, financial, bill payments, etc.
I would make sure she has selected her Durable Power of Attorney and Healthcare POA and signed all of the paperwork. It's important to get this done while your mom is still competent.
If someone that you're taking care of becomes demanding by ordering you around as you describe, what you need to do is put your foot down there. My elderly friend got upset one time when I was trying to help him with a package of pork rinds. He's notorious for making a mess when opening packages, So one time I thought I would start opening his packages for him so that his food would not fly everywhere. One night he got upset about it and through the bag of pork rinds across the room. There laid the mess he made, then he looked at me and asked me if I was going to clean it up because he expected me to. I looked back at him and the mess on the floor and said, "nope." Explained that I did not make the mess and that I sure wasn't going to clean up after him. I made it very well known that I'm not his slave or his maid, and that I'm not cleaning up a mess that he made. When he finally agreed agreed to clean it up, he did ask me if I would at least bring him the broom, and that I agreed to. There were other areas where I could've made my friend's life better, but I learned from experience that you just can't help someone who just doesn't want it. I also learned that there are times when you must let go and step back, which is exactly what I had to end up doing. Sometimes you must watch someone fail miserably in some cases before they realize they really do need help. Sometimes you must wait for them to ask for help before offering it. In the case where someone is living in their own home, you must realize that it is their home and their rules. If someone's living in your home, it's your rules and your way of doing things. What you do if someone's living in your home is just keep doing things the way you always did them before the person moved in, and just set your foot down and keep doing what you always did. You just can't let anyone control you no matter how hard they try. You just have to dig in your heels and just firmly stand your ground. I did, and the person finally backed off. The person lives in his own home but he has a habit of trying to control others. The sad thing is that he lives alone and he really needs to be in a facility, but he refuses to even consider it. What he does instead is he finds excuses to always have someone come in to him for some odd reason or another, he always makes up something. You often don't realize it until it's too late and some time has passed. By the time you start realizing it, you start wondering how to get out of what you got sucked into. This is something you just have to work out once you get it figured out or a situation happens that helps you along in your plan.