My mother has a colostomy bag that she can not change herself, so I change it for her whenever it may need to be changed or emptied. I also prepare all her meals, clean, bathe, and take her to her doctor appointments. I know that I am suppose to do that and I do not mind but it is a 24/7 job and I have needs and responsibilities to take care of. So I need to get a job. Therefore I was wondering if I could get paid to take care of her because I know that a lot of people will not take care of your parent like you will take care of your own parent. I hope I can get some answers here. Thank you in advance.
No one is going to pay you and the money that might be available is not enough to live on.Can your mother afford to make a contract with you to pay you? If so, then why can't she use such money to pay for others to care for her? That would free you up to work.
How do you know you are supposed to do this? Religious or psychological via fear-obligation-guilt or because of a promise made in the past?
Why do you think that as one person that you can do 24/7 work? Are you super woman?
Sorry to ask such penetrating questions, but they need to be asked.
If you are asking whether some agency will pay you, they might. If Mother is eligible for Medicaid, if they approve her for a certain amount of in-home care, and if your state operates as my state does, then they can tell you which agency to sign up with, and tell the agency that you are to be assigned to your mother. You'd have the same training the agency provides to anyone, and they'd handle employment taxes, etc.
The rates for caregivers are not fantastic, but at least you are compensated for some of your effort, and you do keep building your own SS base.
My sister was paid for taking care of our mother for 14 months. Then Mom needed more care than could be provided in a private home by one person, and she moved into a Nursing Home. Give some thought to the level of care your mother needs now and how that can potentially change.
I don't know who says you "should" take care of your mother. You can be a wonderful daughter by arranging appropriate care, without providing it all yourself. But if you are going to provide some of it hands-on, then I wish you luck in getting compensated. None of us live on air and a little mist.
If Mom has never had a case worker, get her one. Call her county's Social Services department and ask for a needs assessment appointment. (There may a big wait for this, but the sooner you start, the sooner it will happen.) Be sure you are present when that interview takes place. This person should have all kinds of information on what is available in her area. He or she can help you determine what to apply for and how to go about it.
This is how we went about it for our mother. At first she got the weekly vitals check. They added housekeeping (and my disabled brother got paid for cleaning her little apartment and doing her laundry). Signed her up for Meals on Wheels. They tried lots of methods to help her with her med taking. Mom eventually got to the point where she couldn't live alone even with that support. We were going to place her in Assisted Living when my newly-retired sister offered to take her in. This involved a switch in counties, but the new county just took over from the first one. My brother continued to clean her area of the house. My mother paid for her room and board out of her small SS. And my sister got paid for a certain number of caregiving hours per week (Not 24 a day!) This was great for Mom and cost the county a WHOLE LOT LESS than paying for a care center. The time finally came when she needed a care center. The case worker help with the administrative end of that transition.
My state was among the first (and for a long time only) states that recognized the common-sense approach of seeking the most cost-effective ways to provide care. Often that means paying family members!
I don't know how it is in your state. I think the way to begin the search to find out is to contact any case worker that has been involved or to start the tedious but beneficial process of getting Mom a case worker.
Another source of information of what is available should be your state's council on aging. I started with the Social Services department, but others here may be able to share their experiences with that route.
I'm on your side! If you are going to care for your mother, you should be entitled to the same compensation that would be paid to in-home help. Keeping Mom out of a care center as long as possible is most cost-effective for the county and state, too. Win-win, as far as I can see. But then I live in a state where that is public policy and has been for some time.
marisareid08, have you ever heard the expression "When all you have is a hammer, every problem looks like a nail"? cmagnum has been a long-time contributor to his site, and has offered many helpful and insightful responses. His particular "hammer" is dysfunction families and persons who are emotionally blackmailed into unhealthy relationships. I think your "I am supposed to do that" phrase lead him to wonder if that might be the case here.
My experiences are very different. I respect cmagnum's contributions, but sometimes my responses are in a different direction.
This site is most helpful if you don't expect any one answer to be absolutely right for you but read them all and see what you can get out of the whole batch. Try not to be judgmental of the responses you get. We are all caregivers, and we all do our best. Taking time out to try to help another caregiver, even if we are not always right or don't always understand the situation, should be appreciated.
If you live in the States, see If your parent qualifies for Medicaid, the State might allow a trained Caregiver come in to help for a couple hours. Also check to see if your State is one of those States that has a “Cash and Counseling” program to help you out, it‘s worth looking into. Note that each State has their own rules, regulations, and programs.
Also if your mother is a senior contact your county agency on aging for programs such as Meals on Wheels, Adult Day Care, etc... go to the website link https://www.agingcare.com/local/Area-Agency-on-Aging
What are your mother's disabilities.... sounds like she has mobility issues. Who was carrying for her prior to you willing to do the full-time caregiving? Or have you been her caregiver for quite some time? Or was this all sudden?
Why cmagnum asked if you were super-woman is because most of us on this forum are older and have been doing caregiving, being hands-on or logistical, know it can age you quickly and harm your health. Especially since you have two young children who also need your attention. Please note that 40% of caregivers die leaving behind the love one they were carrying.
Medicaid might, depending on the State and what programs are available at this point in time, and if the patient is eligible. Note that grown child caregiver might feel that they are doing 12 hours of care of their loved one, and Medicaid might see it as only 4 hours of care. Like I said, it depends on the State rules and regulations.
I hope this helps and answers some of your questions...best of luck!!!
Medicaid's 'Cash and Counseling' Allows Pay for Family Caregivers
Cash and Counseling, also referred to as Consumer Direction Care Programs, allow people, that are Medicaid eligible, to hire whomever they want to provide their care and decide for themselves if they would rather hire a home care agency, or pay a friend or relative to do it. The services paid for by the state are part of the elder's authorized Medicaid care plan. This means that relatives, adult children, in-laws, or grandchildren could be hired and paid for the care they provide – spouses are excluded. In other words, family members could become paid caregivers.
The money can also be used to purchase items related to their activities of daily living; a cleaning service, meal preparation, laundry service and transportation for medical appointments are also acceptable services.
There are 4 different types of Cash and Counseling Programs, available in 49 states as of June 2015.
Eligibility Requirements for Consumer Direction Care Programs:
You must qualify for Medicaid and apply for a Medicaid waiver.
In most cases participants are required to be 65 or disabled and a resident of the state that offers the program.
If the senior has a life insurance policy the eligibility requirements may differ, but they can still be eligible.
Applying for Consumer Direction Care Programs:
Interviews are conducted with the senior, caregiver and physician to determine the senior's care needs.
Based on the interviews the hours of care needed per month are determined.
A budget is determined based on hours and care and the cost of care in that state. The budget can change as the senior's needs change.
Some programs are subject to payroll taxes if payroll taxes are due the family member has to register with their state as a licensed care provider and be subjected to a background check.
There is no cost to apply for Medicaid or a Medicaid waiver. It could take 2 to 4 months for processing.
For a list of programs per state visit https://nrcpds.bc.edu/insights-publications.php on the National Resource Center for Participant-Directed Services website. Or, contact your local Medicaid, human services, or social services office.