i really don't know what I need or why I am exactly writing this but I am feeling so lost I need to do something. The last five years has been really rough with my mom. She has continually struggled with health and has had a steady decline over the last year or so. Five years ago my mom had a surgery that about took her from us...i will never forget the ICU code call and the sternal rub that she didn't respond to. since then my mom has become a shell of herself, she has moderate dementia, can only take care of her own ADL's with assist most often then not, falls continually (multiple falls a day sometimes, and at least two or more a week). we've been to the ER three or four times this year for various infections, and found out she has TIA's in march, and she had another surgery in July to clear her sinus cavity of the impaction that we found out after the fact was actually a staph infection. since the diagnosis of her TIA's we have come to realize that she probably has them a lot more often then we think, and has had them for a long time. She ended up in a rehab for 20 days in September, but since coming home has only went down hill more. Since coming home in October the doctors have said that there is nothing else they can do for the TIA's, they can't figure out where the clots come from or what causes them. They don't know why her health is failing in general, why she is falling, or anything else other then to say that her body is starting to fail her in general.
We've had the discussions as a family to plan for next steps, and to talk about what to do if mom were to have a serious stroke. I struggle with all of these discussions, and though overall i agree with the decisions I really struggle with losing my mom. I have lost parts of her so long ago i feel foolish missing what we had, but I miss her. I don't know what I need but I need to feel better, or learn to cope with all this without going crazy. I work in a high stress job and have two high schoolers and stay incredibly busy keeping up with them. Most of the time I feel like I am just one slip from losing my mind and everything in life. Is this normal? does it get better? any ideas how to cope and live with this all!?
I did start back on an antidepressant (I love my wellbutrin) in September. I have been contemplating a phone call to get it raised, but I guess I need to. I can't leave my job because honestly it's my light in a very dark world (I am a mental health therapist with children/adolescents/teenagers). Though it is very stressful it's a different kind of stress then dealing with a loss of my mother, I have always been the go to person with my mom, she has Bipolar DIsorder and I have been the one she will listen to, make changes, do what she needs to so that she can stay healthy. I have been able to do all this from where I live, with often trips home, phone calls etc. But now i can't do anything, or so it feels that way. I can't fix her falling, I can't figure out why she is getting so weak so fast, there is no fix and that is driving me crazy...Gotta love the therapist brain that just knows there has to be a fix here if I can just find it...but I can't!
I am working on handing off some of the commitments for my kids to others where I can. Luckily we have a blended a family where everyone gets along and works together (though a long time ago I took over all aspects of their day to day care/planning etc because their mom couldn't), so their biological mother is stepping up some and helping out when she can which is more then what i am use too, their dad is amazing and really my rock, but it's so hard when you have kids that are so reliant on you to be there, to be involved even as a senior in high school and you have to bow out. I have band/guard kids so that is even harder. I never miss competition and have only missed one game in three years of his being involved. But I just feel like I am barely holding on. I need the roller coaster to stop. My sister thinks mom has started the dying process which is why she is growing so weak, falling, increased confusion, etc. I don't know if I just can't accept that or what but I am struggling and just need a pause, but it doesn't look like that is coming. Sis is talking with the neurologist today about everything so I hope we have answers then...sorry it's another long winded reply but I need a sounding board to put this out of my head.
Thanks again for sharing.