I feel that I've exhausted all options, coming up with nothing else that I can afford....My mother is 80 and has been living with me since May 2021. My house was never intended to house us both. I live in a 3 BR condo, shared living space and kitchen. I am 51, 2 grown daughters that I am close to, and engaged. She has complicated that situation more than it already was, and now that is probably done, because he is just as needy as she is. My step father died in 2015 and finally on a whim, she decided she was ready to sell her home in Mar 2021. It sold in 48 hours. She then moved in with me. I work full-time, have no alone time, and I do everything for everyone...organize moving, help sell and buy houses, clean constantly, watch dogs, walk dogs, grocery shop, drive Mom anywhere she needs to go. She doesn't drive. There is no money for assisted living and she only has Medicare, doesn't qualify for Medicaid. I can't find any affordable living options for her and can't afford to buy a large enough house where I would feel like I have my own space. I'm going insane. She has no friends, doesn't like the world since it is no longer 1950's and is critical of everything and everyone. Nothing makes her happy. She watches news all day and complains about how s***** the world is.....I'm still trying to have a life here. Help!!!!
What happened to the money your mom got for her house?
Why doesn't she qualify for Medicaid?
What low income senior housing options exist near you?
Has she been seen by a geriatric psychiatrist for her depression?
Not marrying the needy guy...been there done that (more than once)
Proceeds from home not much, joint acct with me, but enough that it disqualifies her from Medicaid
No options locally that I'm aware of....I've placed a couple of calls and need to look into that further. All AL facilites here are over $5k per month.
She will not see a psychiatrist, just refuses. I do belive there is some depression...working on establising with a family doctor who we can hopefully have that conversation with.
Which “at need” is keeping her from being eligible for LTC Medicaid?
So if she just sold her home last year the amount it sold for is in the states database, so that $ less any mortgage, will have to be used as a legit spend down till she’s impoverished. Why isn’t house sale $ being used to private pay for AL or NH or MC?
or is the ineligibility about issues she did with house sale $? Did she gift any house sale $? Not sold at FMV?
Now if it’s a medical “at need” eligibility issue, she either is going to have to get a very very through medical work up done to see if she legitimately can be viewed with documentation as to “at need” for skilled care if your state does not have a waiver program to have Medicaid $ be used for AL.
All states have some sort of low income housing for seniors, have you looked into those even if not nearby?
AL-assisted living is a joke without 5k per month. She had a modest home with a mortgage, so not enough for a NH-new home. It was sold at slightly above value, no gift, saving for later helath related expenses, assuming that time will come. We are joint on that account and it sin't much, but enough to disqualify for Medicaid.
I have not looked into low income housing that isn't close, because that wouldn't be helpful. She would be all alone and I don't have the time to travel and help her, and there is no one else.
I need to investigate further Sr. living low income close by, but as of yet, nothing that is in a safe area for her.
If you need to help Mom with paying her expenses out of her money then you can be her POA and write out checks in her name/with her name, followed by your own name as POA.
I would see an Elder Law attorney to do the POA papers, and to more adequately understand how yours and Mom's funds should be in your own names; things get messy in melded accounts.
Wishing you good luck.
Mom having her own banking becomes mucho importante should she need to ever file for Medicaid either for LTC Medicaid (residential in a facility) or community based Medicaid (like PACE or living w you) but also for SSA aka social security administration as commingled accounts once discovered will likely have SSA require mom to make account under representative payee status. Means paperwork that you will have to do as you become her rep payee. Really you don’t want to go there if you can help it.
NH by that I meant Nursing Home, not new home…. That just didn’t occur 2 me. I’m still laughing. But I digress, ok so mom sold home above FMV but had mortgage (horrors that 80 yr old had mortgage) so proceeds from the sale were not enough to have mom set to private pay for care for possibly decade + as moms only 80. I’m guessing that if 80 yr old mom is ok for AL aka assisted living that she is no where near being eligible to show “at need” for skilled care in a NH? By & large Medicaid only pays for long term residential care in a NH so if moms good for AL & not a NH there is no LTC placement that Medicaid can pay for. Now some states do waivers to have some dedicated LTC Medicaid funding shifted or “waived” to go to other Medicaid programs like for paying for AL or MC (Memory care). If your state does this, mom can apply to be on a Medicaid waiver at an AL. BUT be aware that most states do not do this, AL is totally private pay. If they do there will be a long waiting list & list will have residents currently living at the AL that are private paying for 1,2,3 yrs ahead of mom on that Medicaid waiver waiting list.
Imo choices r stark:
- mom continues to live w you & then w new hubs in condo BUT mom meets w elder law atty to do personal caregiver contract to essentially pay you (not future hubs) a set amt ea mo as either rent or to caregive a set # of hours. A good atty will know which seems to make sense for the situation…. But do realize will be IRS filing required whatever path is taken. You & mom have to keep all this very documented & legit cause eventually mom will need a higher level of care & eligible for LTC Medicaid and Medicaid requires a 5 yr look back on her financials. You set aside $ mom pays you - if you can - to be $ that you can use to help her private pay if need be; I’d keep it totally separate account, not accessible to new hubs… maybe have a daughter as signatory with clear understanding to be used for grandma.
- mom goes into senior housing that is income & need based. Her SS$ will go to this and she probably will become a “dual”. That is she stays on Medicare but also goes onto a community based Medicaid program that covers what Medicare does not. M&M = dual. Tends to be a handful of health insurance companies that do “duals”. Molina Healthcare is the big player & they run on a MCO aka Managed care Organization system
- you get mom into a day program. If your state does PACE, that is a Medicaid paid program at a community center that they go to 2-4 days a week with transportation provided and then all their health care done via PACE
- mom goes into board & care home. Way less than NH & somewhat less than AL. Mom uses SS$ & house $ proceeds to pay
AND
you regularly have her see a gerontologist so she is building a solid health history to eventually show “at need” for skilled nursing care & she can go into NH and apply for LTC Medicaid to cover it.
good luck!
Unmingle your funds, for a start. Her money should be in her account. If you're concerned about being able to pay bills for her in the future, ask her to create a springing DPOA.
Where does she want to live? Did she move in with you to give her time to decide, or did she look on your house as her forever home?
She needs some assistance and has part time caregivers most of the week with my sister and I taking a day each week.
All supplies, food, meds are delivered. I set up her pill boxes. Sister pays her bills. Mom lives off SS, a pension from my dad, now deceased, & aid/attendance from VA.
Mom has a visiting physician that comes to her apartment.
With Covid she has no desire to go out and is wheelchair bound by her choice. She can use a walker & is able to transfer herself. After many cycles of PT she still prefers the wheelchair.
This arrangement has worked well for us so far.
i'll try!! :)
What happens when you’re married? More doing for hubby?Hubby has no assets and moves in your condo? Hubby wants a bride and her MIL?
Stop. Delegate. Maximize efficiency.
Talk to an elder lawyer. My understanding is that once mom legitimately has no assets, she gets Medicaid assistance— but her money can’t just be given to relatives.
An elder lawyer might suggest mom pays her share of expenses to burn through her assets (while you build yours). Have her pay bills directly to the company - not to you - for clear documentation. Get her a credit card in her name only to buy groceries, pay bills, etc. Every $10 she spends is $10 you put into your savings account. Once poor, she gets Medicaid and assistance. You have savings to help with what isn’t covered.
Btw, someone suggested St Johns Wort tea. Pot’s a legal option in my state. Just saying ….
Give yourself a temp break while you are thinking through things. I'm currently at the Hyatt Regency for local discount of $109 per night. I'm doing a three night break. I was exhausted. I don't live local but Mom's lawyer said I could pay for a motel while I'm in the area. Normally I stay at the house but I could no longer take it any longer.
Calling local hotels will get you better pricing than online rates.
Are you the one engaged or your daughter? Can you move in with your fiance? At least short term? For respite?
Hire a once every two weeks house cleaner. Through a service it should run you around $70. Or hire a once a month house cleaner.
Have the grocery stores pull your grocery orders. This is free and you simply drive up.
I, too, thought that I'd be spending the rest of my life as her caregiver, due to finances, etc., but this turn of events has opened my eyes to other possibilities. I'm a widow, and have had no life. Everything I wanted to do for myself was dependent upon the availability of others, and then came with time constraints, so I always felt rushed and like I was running a marathon to get everything done in my "free time." Now that my time is mine again, I almost feel lost (but giddy at the same time). I'm slowly making changes in my life; I know that with mom slowly losing her motor skills, the chances of her coming home to live are extremely slim, but I still feel a bit guilty for starting to live my life again. It's hard, but refreshing. Like you and exhaustedinnc, I felt trapped and locked into a hopeless situation. I'm a firm believer that things happen for a reason, and mom's fall was God's way of telling me I've reached my limit and that it was time to do something different, to go in a different direction. Now I can go and sit with my mom as her daughter and friend, instead of as her ever watchful caregiver--something I am extremely grateful for. Hang in there and don't give up on your life. Sending hugs...