I am the main caregiver for dad (mom is in a NH) and as he sees me continually (my family lives here with him) he confuses me for mom and vents incredible amounts of anger and bile toward me.
My elder sister, who he defies, thinks this is funny. Yeah. Real funny. It's hurtful and he is gleeful when he sees me cry. So I do my best to keep a stone face and not let him know he's hurt me.
THe only way I have of dealing with this is walking away from him when the foul language starts. Does anyone else have this problem?
2. Join a local support group (they can advise re respite care for you)
3. Seriously, look at getting your dad into a Nursing Home.
Not sure what stage he is at, but make an appt with his GP.
Sounds weird but get your other half to video your dad having one of his rants at you if you can on a camera phone and show his GP exactly what he is like. It is very useful for GP to see it in practice (bet dad is always on best behaviour for visitors and doctors?)
I had to do this with my mum as GP refused to do home visit and was taking my dad's word for it that mum 'wasn't so bad', when in reality she needed hospitalisation.
You need to step away from this situation and build up some self protection/ coping tools. It is clear this is damaging you, and that is not fair.
Your sister has her way of coping with it. Don't hate her for it, it is just her way of dealing with it.
Suspect if you two sat down away from it all with a mediator you would both learn something about the other that you did not know.
Take her to support group too. Having someone in the middle of you two could really help sort out your relationship.
Took me 48 years and my mum's illness to get close to my sister. Totally surprised me we could ever be this close as we have had a really strained relationship our entire lives. (She suffers with manic depression, I suffer from over confidence... You can imagine!)
Your sister is trying to help, trying to 'toughen you up' like she is, but you need to calmly explain to her that you two are differnt, you have different natures, and much as you would love to be able to laugh it off, what your dad says is really stripping you raw.
Please go get yourself help and support locally.
If you don't find a solution, I would just suggest that you make your own well-being the priority, and walk away from the whole situation if you need to for your own health. I wish you the best.
Your live-in situation makes it harder to get a break. I just hired my mom's past caregiver and her husband to come in, along with hospice, to visit with my dad and make sure that he's safe and sound. It's only for the lunch and dinner hours, but with other people in the house, it keeps him safe and more courteous and gracious because they're "company". It helps relieve some of the stress from the haranguing and helps me have a father-daughter relationship instead of a husband-wife one. Sending you xxxooo's....
Don't know if this is your situation, but MIL would become furious at FIL for being sick and in the hospital. She wanted him to come home NOW. He couldn't. She would accuse him of abandoning his family for this new group of professionals. That would often end our visits at that point before she became a patient as well.
We got to the point one night after she threw us out of the house, keeping us from caring for her, that we had to call 911. She most likely will not return to her home at this point as we are working toward a permanent NH solution of some sort.
Thank you for taking the difficult road to caring for your dad, despite all you have had to put up with from your dad and family. You can hold your head high, knowing that you did your best and continue to do it day after day. It is much easier to sit back and criticize then actually do the hard work of caregiving.
The advice you're receiving to move on to the next stage of a NH is the best policy, I think. We had both of my wife's parents in the same rehab, which meant that they were together but supervised so that if MIL began to lose it on FIL, the staff would step in and separate. But emotionally, that worked the best for our situation for them and for us. You might have a totally different scenario in which maybe it's better for your parents to remain separated.
None of this is easy. But by honoring your parents by caring for them in the right way, you've done the right and best thing. Thanks for being that kind of example to your kids and the rest of your family.
For you to feel hurt. My mom has Alzheimer's and when she starts ranting I don't react and
Try and change the subject or go for a walk.
But to take care of myself, I starting talking to
A therapist to deal with the hurt feelings that
My head tells me that I should accept as the
Disease, but my heart is still hurt. Your sister
Needs to be reminded how hurt you are.
And for everyone who uses this forum, I too
Remind us that flippant, unhelpful, "tough love"
Or deal with it comments don't help
myself that in her eyes she was really talking to him, not me. The hard part for me was witnessing a side of Mom that was relatively unfamiliar to me. My Dad (he died almost 40 years ago) was calm and easy-going. I do remember times when Mom was actually verbally abusive to him so maybe there was more to this part of her than I knew. I can't offer much in terms of dealing with your sister as I have no siblings. I can only offer that you need to do what's best for YOU and YOUR FAMILY...and that will probably be what's best for your Dad also. My heart goes out to you.
I agree with two solutions offered here - 1, notice the triggers, and make it a project to either prevent them or deal with them quickly, and no other conversation other than, I'm sorry, I know you'd like some water now. Get it, and leave, always trying to say, "I'll be back in ......"
Many elders are triggered when you show some tiny bit of resentment in your approach, maybe even of martyrdom - important to make your own rest a priority, even if it means changing your schedule to allow naps in the afternoon. Find books you want to read, tasks you want to do, and leave them nearby, and when you get a chance to step away, whether it's because of his words, or you are pacing your own energy - always say you'll be back, but do your best to take the breaks - helping yourself, can help you feel less dominated by others.
When you smile, do it because you are just trying to help, or because you see something good or amusing in him - not to rebuild a relationship. I think the way to rebuild, especially with men - is through actions rather than conversations of any kind. I feel that many women idealize nice conversations - and sure enough, some families have them, and they may solve some things. But this expectation makes some men angry, they feel an expectation to speak in ways they find false or foreign. Notice the times your father passes you his tray, or moves so you can give him care, and say "thanks." Respond to positive actions.
When it comes to the words, I like the person's advice here, of saying, "I will listen to you when you're being nice. When you're not, I don't have to listen." And leave. Try to always explain yourself just like that, before you leave, and say, "I'll be back in 15 minutes - or whatever time he can handle without being checked.
It's not an instant process - it's one of gradual improvement and I hope you notice the small changes, and celebrate them yourself - and don't take any setback as back to zero - just as a temporary setback, in a gradually improving process of learning to cope with a very hurtful and physically challenging situation.
Teepa Snow has excellent video seminars on YouTube. Senior Helpers National channel.
Behavior modification in the elderly is really difficult. Can you talk to his doc and quietly get him on paxil or sertraline possibly under the guise of something else? I got to the point where I would pass notes to mom's doc without saying anything & it worked for us. I hope you find a remedy & some peace in your family.
Conversing with a LO who has Alzheimers is often like talking with your cat. Acknowledge, respond, be affectionate, develop boundless patience. Forget about rational responses. Show respect, your therapeutic fictional reponses are allowed {they may not work}. Try to accept the mind is damaqed by Alzheimer's Disease. Forget about rational responses. We can run ourselve ragged trying to rationalize the irrational behaviors Easy to say, impossible to live with.
~DLMifm
try to accept the mind is damaged by Alzheimer's Disease. Forget about rational responses. we can run ourselves ragged trying to rationalize the irrational behaviors
Easy to say, impossible to live with .."Take a BREAK often | You get to start over"