My 77 year old mother has Dementia. Diagnosed in November 2012. She is on Aricept since January 2013. Tonight she called the police because her drivers license expired in October when she was in the hospital of an accuse UTI, a TMA and signs of altered mental status. She says we are preventing her from driving. Her Doctors have all recommend she can no longer drive due to her Dementia. She refuses to try to understand that she is sick. She is also a fall risk due to her bad knees and requires 24 hours care. She refuse any outside help. I had to move back home after being gone (living over 1000 miles away)for 30 years to be her primary care giver. My brother lives in the same city (but has his own apartment) as my mother, but had been in denial about her mental decline until asked by her neurologist in December. I am 47 years old. Single. No kids.
The police came and said it was a civil manor. They understood she's sick but there was nothing they could do. She of course will refuse a power of attorney and is asking us to move out of her house. HELP!
It doesn't seem right that you are there arguing with her about basic things, including respect.
This could be your chance to leave it all to your brother. think about it.
I go through these things with my mother's medicines. She isn't competent to take them correctly, so I had to take charge of them. After going through WWIII two or three times, I was able to find a kinder way of taking charge of them. However, you can't do the same with an automobile. If you aren't using a car, you may want to find a way to temporarily disable it -- disconnecting the electric harness or something similar. The only problem with this is that a car has to be driven occasionally to keep it healthy. Perhaps someone can take it "to the shop to be fixed" and it just never comes back. I don't know if it would work with her. Older people, even those with dementia, are hard to fool.
If my mother is an example, this should blow over in a couple of days. I would say just hunker down until it does and avoid being around her. Again, I would try to keep her out of my room and purse and watch out for angry fists and flying objects. I hope it will be passed soon. All we can do is take these things as they come and make the decisions we have to make.
I am frustrated that my mother's neurologist told my brother clearly your mother doesn't have a good relationship with your sister...so you have to accept that along with her having dementia. He was in denial for years. Everytime I called home, I would say to my broth over the past 2 years "something is not right with mom" and he would say "she's fine". Mother's and their sons...boy oh boy and he's the oldest too...can do no wrong.
Thank you for your response. I tried to show the police her hospital papers documenting her Dementia and her letter about not driving from her Dr, but they did not want to see it. They told me to go to another room because I was only agitating the situation, when I though I was providing with them with medical facts.
They told me it was a civil matter. My mother said she would call her lawyer (she doesn't have one).
She continued to rant and rave for hours after they left and said she was going to find new doctors. She also continued to verbally abuse me and say I was a liar, while treating my older brother with "kid gloves".
She refuse outside help and says she doesn't need help and can take care of herself.
This morning, my brother said he was going to get her a key made for her car and take her driving in an empty parking lot. I immediately called her doctor and he said absolutely not. I asked him to speak to my brother and he did. My brother had him talk to my mother, he told my mother "you cannot drive, you have Dementia" she told him she was calling her lawyer...he said feel free...he's been her doctor for over 20 years. She called her sister and told her I got her doctor (a licensed medical professional to side with me and tell her not to drive). Talk about insanity!!!
My brother finally got the message and gave up on her driving.
Mom is not going to change (except for the dementia symptoms to increase). The changes have to come in how you and your brother handle things.
Even though Mom is not responsible for her attacks on you -- again, she is not in her right mind -- no one has to put up with abuse, regardless of its cause. Make sure her doctors know about this behavior. Protect yourself. Work with your brother on this ... for heaven sake he should not stand around and let abuse occur!
My heart goes out to all three of you. Please continue to inform us of how this is progressing for you.
How did your mother respond to the police? Would it make sense to ask your local police/medic people to speak with your Mom? Sometimes a person of authority can get through the denial. (maybe not).
And I actually had to laugh at her deciding she is changing doctors!!! She sure wants her own way!
If she still have a car there, can you get rid of it? If you are using it, could you trade it on for a different car? Seeing HER car may increase her desire to drive it but if it isn't around or if a different car is there, she may not have as much insistence on driving. Maybe even get one with a stick shift if she is accustomed to automatic transmission. Just an idea!
You probably need some breaks yourself. You didn't mention what work/career field you were in before taking over the care of your mom. Could you get a job in this "new" town? Maybe having some outside funds coming in and making some new friends will help you get a better balance in your own life. Maybe find out about "adult care centers" or even the Senior Community Center for some extra activities for her. Even if she got into an exercise program/class she'd start to accept that she needs your help.
I feel so sorry for you. Why do nice people turn out to be so mean and angry?
Bonnie
Excellent responses from the Best on this site.
Please tell brother to forget about enabling her. He needs to get on same page with you guys, bless his heart. Always someone holding out for hope in the family. Got to get real and in the present to deal with Mom:) xo
As long as DMV, Dr. and your family are in sync, just agree to take a proactive approach for the well-being of everyone, especially Mom. It's an opportunity to make some peace and progress in your family. All the Best to you. Help and/or venting is always awaiting you here, Dear One. Take care, xo
Thanks again for your response.
I am in the same situation: If I were to leave, there would be no option for her except a nursing facility, which she doesn't want.
I've been detaching and avoiding her, while still paying bills, cleaning up her bathroom, doing laundry, cooking and taking care of the house. I just don't say anything to her.
The hurting part is, that she calls her sister that also has Dementia and tells her I am crazy. I am protecting myself and sanity as a caregiver. The battle is only going to get worse.
I thought the Seraquil would help last night, but she woke up with the same rant with her keys. My brother was about to give in and go get her a car key made and take her driving in an empty lot, then take to her to the DMV to get another license. But I called her Doctor and he answered (Thank God). He told my brother to absolutely not let my mother drive, under no circumstances. Then my brother asked if he would speak to my mother. He told my mother she could not longer drive and that she had Dementia and it's a risk and a safety hazard. She went off on him.
Now she's telling her sister I've gotten her medical doctor to side with me. Is that insanity or what? She doesn't want to believe she has Dementia because she says she feels fine. She choked me this morning and called me a liar and said I was stealing from her.
My brother did nothing to help. I guess he was frustrated after the police visit last nite. At least he listened to her Doctor and is not going to let her drive or give her a key.
Now my mother says she's going to switch doctors. The writing is on the wall and it's all in her hospital and medical records.
Keeping to myself and will call the 24/7 Altz hotline when I feel like Im going to break down or will try to post on this site.
In my mother's case, it always blows over and she apologizes. Some part of her realizes that she needs me more than I need her. If I were to leave, there would be no option for her except a nursing facility, which she doesn't want.
You are doing the best thing, IMO, in avoiding her. Your brother's idea of driving around the parking lot is a terrible one, IMO. She needs to put the ideas of driving behind her. If she drives around the parking lot okay, she may continue to think she is competent to drive.
I hope it blows over. You sound like you are doing a good job. Elders losing control can turn very abusive. In this case, your mother felt powerless to get you to let her drive, so she called in the big guns. It sure feels like bullying to me and is so unpleasant. I'm glad your brother is there with you. Between the two of you, I think you can cover whatever lies ahead.
My older brother spends almost every night at her house with us.
We do have something from the doctors in writing, regarding her not driving, but it's just on his letter head.
I am hoping he will be willing to put in writing that due to dementia she does not have the judgment to make her own financial and/or health decisions.
I cook, clean after her, pay the bills, get her meds, etc. but she is abusive to me and calls me a liar.
My brother is the "golden one".
I am hoping she took a Seraqiil that I out in her bill box tonight (only to be then as needed) and that tomorrow will be a new day.
p.s. my brother is considering taking her to drive in an empty lot. I told hi me was crazy and all of her Dr's and neurologist are against it.
Thank god we have the car keys and have dead bolt locks installed on all doors if and she that time comes.
Bottom line she is a retired school teacher of 50 yeas and is having a hard lime depending on us and loosing her independence.
I have detached and keep to myself and don't intact with her to keep my sanity.
Her driving license expired? Great! Let's hope she doesn't figure out what she could do to renew it, and can't find anyone willing to help her. Now she at least knows that the police can't do anything for her in that regard.
Now she wants you to move out of her house. (Who is the "us" she wants out? Who else is living with her?) If it is her house and if she has not been declared incompetent, she probably has the right to insist that you leave. Certainly that would not be in her best interests, but competent adults are allowed to make their own decisions, even very bad decisions.Do you have anything from the doctors in writing, regarding not driving? Would they be willing to put in writing that due to dementia she does not have the judgment to make her own financial and/or health decisions, in their opinion?
You feel that she cannot safely live on her own. You felt so strongly about that, in fact, that you moved 1000 miles to come help her. But she does not have to accept your help, or any help, unless she is declared incompetent.
This must feel really frustrating to you! You are only trying to help, and she is resisting you. And it is probably not much consolation that this is an extremely common situation! Often all that can done is to wait for some crisis, such as a fall that puts her in the hospital, to change the status quo. Sad.
Is there a chance that this will all blow over if you patiently just wait long enough? That she'll forget about wanting you to leave? "I'm looking for an apartment, Mom. What do you want me to fix for dinner tonight?" What about staying at your brother's apartment for a few days. Do you think that actually being on her own might convince her that she likes having a little help? (Maybe not ... she is not in her right mind ... but might it be worth a try?)
If you do have to leave, I THINK I would talk to Adult Protection Services. (I have not done that. I hope others who have first-hand experience with APS will weigh in on this.) You would state that you consider your mother a vulnerable adult, explain her medical conditions (including dementia), and that you very much do not want her left to fend for herself. You are not abandoning her voluntarily but she is insisting on you leaving. Is there anything they can do to ensure her safety?
My heart goes out to you. You are in a very difficult situation. If you can possibly let this blow over or help Mom to change her mind, that would be the easiest solution.
Keep us informed.