So...after two years of being my sister's only (vascular dementia/Alz.) caregiver, I accepted this arrangement is not sustainable over the long term. I got a very short list of available local MC facilities, and went for a tour today.
It was awful. The director looked unkempt, sloppy and barely 30 years old. The place smelled overwhelmingly of cigarette smoke and excrement. The only room available went for $5200. a month - an 8 x 7 ft room with its own sink and toilet.
It was discouraging to imagine how burned out and desparate I'd have to get before I could ever bring myself to put my sister in a place like that.
One of the other MC places contacted me to give more info. They told me upfront that private pay ($7000/mo.) for 2 full years was required before she could even "possibly" be considered for medicaid, (no guarantees, of course.)
I am feeling more trapped than ever.
I hope my venting has not offended anyone here. This my first post on any kind of support forum.
I hope my venting has not offended anyone here. This my first post on any kind of support forum."
tiredsister, I've been in your shoes, so I completely understand how you feel: trapped, overwhelmed, burn out, hopeless, resentful, angry, etc.
Vent away! Don't worry about offending anyone here. Most people on this forum understand.
Don't give up on your search. I agree with Natasana, look for smaller residential homes instead where there are about 4-6 residents in each home. You can also widen your search for places further away. If they are further but good, then they are worth the drive.
Good luck. Meanwhile, vent away...
Best of luck to you in your search.
I'm going to call today to make an appointment to meet with one of the senior care counselors at my county Aging Resource Center. I hope they can guide me step by step through this process. I am very overwhelmed right now, making it harder to see alternatives and choices clearly.
Thanks, again, to people here for responding in my moment of need.
In regard to other places on your list, one thing I have noticed is never judge a book by its cover. In my area, there is a wonderful senior facility but one might just drive by because the building looks more like an one story beige brick grade school built in the 1970's. Inside might not be updated, but the Staff was very caring and the place was spotless. My Dad had rehab at this facility and he really liked the place.
So make sure you visit all the senior facilities that offer Memory Care. You will know by your gut feeling if this is the right place or not. And make sure the Memory Care will take Medicaid after using private pay, so you wouldn't need to move your love one again.
Also look at Long-term care facilities too. Yes they cost more but when HER money runs out, she can go on Medicaid. There is no 2 year thing with LTC only Assisted Living and Memory care. My Moms LTC had a big visiting area. Fireplace, big couches and chairs. The combined dining and activities room was big too. Activities of some kind going all afternoon. The people seemed happy and clean. At Moms AL they would not allow bibs because of dignity. Moms tops always had food on them. And there was many a time I would visit and had to tell the aides Mom needed a change. At the LTC not once did I have to tell them Mom needed a change and they alliwed bibs so tops always clean. The building did not smell. My daughter, RN, said maybe we should have placed Mom there first.
You do realize that being POA does not mean you need to care physically for a person don't you? Its a tool to help with finances and help carry out wishes when it comes to medical. You could have placed her 2 yrs ago. You do not use your own money. When hers runs out, then u apply for Medicaid.
I toured 3 local LTC facilities and the last one I said "this is the one".
Fyi my mom is in a small MC that is attached to a larger retirement village with varying degrees of living care options. They prioritize admitting people who already lived in other parts of the compound, but leave space for others as able. They don’t advertise the MC and there are a couple rooms available. They are also WONDERFUL people. For this reason it might be worth checking out other MCs that are imbedded in other facilities. They can be hidden gems.
Also worth asking how long the director has been there and staff turnover rate. If you find a place with low turnover you’ve most likely founds something good! Mom’s place doesn’t have all the bells and whistles but the staff and director have been absolutely planted there and their kindness is golden.
Blessings and good luck to you!
For those without funds and having only their Social Security funds to go to care there is the "nursing home" and they alone are hard to find. While they ARE regulated more than MC and ALF, they are less well staffed, more overwhelmed with care, and have patients who are more total care, more incontinent, less able in any self care.
I am sorry for what you found on your initial exploration, and I hope against hope this is not the norm in your area. It has to be a dreadful shock which has left you feeling hopeless and helpless. I can only advise that you keep looking. Remember to "google" Board and Care. They are often in home, 6 or so patients, often family run, with better food and more homelike atmosphere.
I can't tell you how it saddens me to read your post, to imagine your fear. I hope you will continue to look. I hope you will report your findings to regulatory agencies in your state. I hope you will find something and update us. I welcome you to Forum and am so sad it is under these shocking circumstances.
Thanks for the info and support from all who responded. I will update on my sister's choices once I better understand them.
Yes, it was kind of shocking and disheartening to tour what I'm hoping is the absolute worst MC facility here.
And - YES, I did report what I experienced at that miserable place.
Thanks again, and my best wishes to everyone here.