My mom has had dementia for three years she is now bedridden and is semi conscious she has to be fed and cared for in every way. Hospice thinks she's dying now the doctors has ordered to stop feeding her even though she eats without a feeding tube is this legal?
In hind sight, it looks like the doctor made a good call. I am sorry that you didn't have sufficient information to understand the doctor's decision. The hospice staff should be able to provide that explanation.
Losing your mother would have been painful under any circumstances. I am sorry that you had the additional stress of the feeding issue.
But, before you can act you have to find out the root of this doctor's decision. Don't settle for what you're told. Your mother and/or her family is in charge here. Ask questions and demand answers!!!
If YOU had dementia, would you want to be kept alive in a vegetative state? Not me. No feeding tube or life extending meds for me if, God forbid, I couldn't be healed. Think about it. Corinne
I'm soooo sorry that you are now feeling like you have killed him. (That too have entered my mind when debating about hospice.) I am soooo sorry. I wish I could give you some advice about God forgiving you. This will be only between you and Him. What's done is done. If you want forgiveness, maybe approach your priest or pastor and tell them what happened. Tell them how you're feeling now. I'm sure, if these are true Christians, that they will help you to seek forgiveness to yourself. Because Jesus did not die for our sins for nothing. HUGS!!! to you.
ma God frgive because i feel that ikilled hm
I was told by several posters that mom was close to the end. Although a part of me denied it, I called family members on island to come and verify if mom is really bad off. I figured I was too close to the situation to be objective of mom's health. sure enough, sil took one look at mom and her body, and told me that mom would not last the end of the week.
The thing is, we had difficulty after that getting hospice service because the doctor needed to see mom in order to get hospice. We, the family took one look at mom and decided she's too weak to take on the ambulance roundtrip. We did our best to get around this requirement - And Failed. So, I had to Google on dying processes, etc... We siblings were "winging" it on our own. (I am soooo angry with both hospice and the doctor. My doctor of a different insurance said that if mom was his patient he would make an exception to do housecalls. It's the quality of life of mom that was important. Hospice could have sent a nurse over to evaluate mom and then speak to mom's doc. Both hospice and doc refused to compromise. We even went to adult protective service for help in this. Mom died while going thru the red tape.)
Since we were winging it, we siblings decided to continue to feed mom. But we only fed her as long as the nutrient went down the tube. When it stopped moving, we stopped feeding her. And yes, the 1/2 can got down to 1/3 only. We continued to feed her, and she did continue to poop liquidy. Until she finally died in her sleep. And yes, even with the 1/3 can, mom continued to quickly get skinnier as the days go by.
In the end, I think it would not have mattered if mom had her nutrient drink or not. But, for us, to NOT feed her was like starving her. We fed what she can take in. In the end, with mom passing away, not one of us siblings were left with any guilt that we had "starved" her. But mom is different from your mom. My mom could not talk or tell us that she wants to eat. We just fed her 3x a day and only what her stomach would allow.
I think, as long as your mom can eat and still swallows the food, then feed her. I've read enough posts here that when their loved ones reaches this state, they still eat but less food. Eventually, they will refuse to open their mouth for the food. Then it's time for liquid. When she starts choking also on the liquid, and she has a DNR, then your only options are to ignore the DNR and insert the stomach tube or respect her wishes, and let her be. Her body will continue to shut down either way. Stomach tube will prolong her suffering (body slowing down). Or she can die naturally. Sigh.... HUGS!!! to you. Sincerely, Book
I hate how many in the medical community treat the elderly with such little respect. It's as if the elderly are no longer important to society and seem to have out lived their purpose. Don't these so called caring professionals realize that one day their own parents and themselves might end up in the same position?
You need to ask her caregivers to sit you down and explain why things are being done/not done, and listen to their compassion. Try really hard to separate out your emotional attachment and really listen. It's hard, but they really are trying to make this a better experience than it could be.