My parents are mid-to-late 70s. Both have been on Benzos (primarily Lorazepam) since the 1980s for anxiety and sleep. They are having issues with memory, balance, weakness, depression, and more. When I read over the long-term effects of taking Benzos it describes my parents to a "T". Anyone have experience with someone taking these meds long-term?
A more pertinent question might be whether anyone has any experience of withdrawing benzodiazepines after such a long period. I.e. is there anything to be done about it now? - though I'm sure you're right that they will be having their effects on your parents.
Have you talked this over with them or their doctor?
Doc's used to hand them out like candy years ago but I am amazed that somewhere along the way they weren't weaned off the. Before my father died he was prescribed them for anxiety related to his angina. He was certain that he needed them because when he didn't take them he thought he was having a heart attack, he was undoubtedly addicted and this was a symptom of withdrawal. My mom once said getting off valium was one of the hardest things she ever had to do, much more difficult than the opiates she took for pain. Don't stop them without the advice and guidance of a physician!
I was on Klonopin for 2 years. I had no clue about side effects, I just needed relief from debilitating anxiety at the time, and my doc never mentioned the words "habit forming" or "addictive" even though I specifically asked about that. Withdrawal was horrible but doable. I had a couple of ER visits for chest pains due to panic attacks.
Yes, I think your parents' symptoms are at least in part related to the long term benzo use, but what's going to change at this stage of their lives? You might as well allow them to live the rest of their lives on the benzos at this point, I would think. This is a tough one. They've been on them so long... they would have to want to regain their sharpness that the meds dull, and they would have to want that bad enough to endure withdrawal symptoms.
If you're interested, look up GABA and what it does in the human body. It's a very interesting chemical, and benzos put more of it in the body. GABA slows down everything in the body at the cellular level... that's my understanding of what it does. That's why people on benzos will talk slower and not realize they're talking slowly, because they also hear slowly. Everything is slowed. Sensation is subdued, reflexes are slowed, everything is slower than it otherwise would be. They're great if you need relief from acute anxiety. Benzos shouldn't be used as a long term medication, imho.
My MIL was a lovely person. By the time she died, she was an empty shell of a woman who was bound to a wheelchair, couldn't talk, had no control over her bodily functions, and was kept alive by chemistry. It was heartbreaking.
Back in the 80s doctors prescribed pills and got rewarded by the pharmaceutical companies with free golf outings, expensive dinners, cruises, ski vacations, and more. Doctors never questioned the drug reps because the drugs they peddled passed the FDA. Few read the drug studies themselves. They did not want the gravy train to end. Fast forward a few decades, and their patients have more problems than they started with. And its us "kids" who get to deal with the messes they made using their prescription pads.
At this point it's impossible to separate how much the Benzos caused and how much would have happened anyway even if all your parents took was baby aspirin.
If your parents have the money, perhaps you can encourage them to take a vacation at a health and wellness resort/retreat. If they are in denial, I agree that their doctor isn't going to help ween them now. Whatever happens, please make sure they both have their POA paperwork in order.
Best of luck to you. I get why you're shocked at what you're seeing and learning about benzos. They're great medication for soothing the human stress response... maybe they're a little too great, similar to alcohol or heroin: there is a payoff somewhere in your body's system. Your body has now stopped doing it's own stress/sleep management and is relying on the extra GABA.
...just some thoughts... :)
Oh! And to directly address what you're trying to sort out: how could you know what is related to long term benzo use and what is related to aging? You can't know, at this point. I can tell you from personal experience (I'm 41) that my mind became numb during my 2 years on Klonopin. I couldn't remember simple spellings of words. My short term memory was terrible. I couldn't do things like drive 4-5 hours at a time, and I had been able to do that just a year before, but now it seemed like far too much of a mental chore to exhaust myself with a lengthy drive. There were a lot of little things I experienced, and it was only 2 years for me of a relatively minimal/accepted therapeutic dosage. If mom and dad are counting and hoarding pills, sounds like they are in a more progressed stage of addiction than I was. That's tough and you have my sympathy.
They are not very old in their seventies but that does not mean they don't have dementia.
It is going to be difficult to change anything at this time because they don't see a problem or maybe they do if they have changed from active seniors into virtual zombies.
Definitely try and get them to an eldercare Lawyer with any excuse you can manage and get the paperwork in order. They might agree to that. Do you know if they are paying their bills, keeping the house and themselves clean and tidy. Would they agree to housecleaning, gardening etc.?
As far as hoarding pills is concerned that is a difficult one because it is often difficult to get timely refils or the pharmacy runs out or you want to go on vacation and know you will need a refill while you are away. Personally I try snd keep an extra 2 weeks supply on hand for that very reason. I am not hoarding! I also fill a pill box once a week so I am sure I am taking everything and it saves time and makes it easier. If I have something for pain for example after surgery I do keep the bottle beside me but I also have pen and paper so I can note the time and dose. Would the parents agree to you filling pill boxes for them each week? If you are there every day put out the pills daily and only provide the number of benzos they are allowed to take in 24 hours. I am sure they will continue to steal from each other and make accusations but you can only do so much.
As a separate issue they could be experiencing side effects from other medications which are causing the same symptoms. They may need these to continue functioning at all.
It would seem to be time that they need more help and supervision, whether this can continue in their own home or AL. A lot depends on other medical conditions, so be aware they may not be sharing information with you. if they will agree to medical POA that will give you access to their Dr and medical records.
This will take a long while to unravel and is clearly a bigger problem than taking benzos for 30 years so you have a hard road ahead of you.
I was able to cut my mother back to 2 a day. Her doctor wants to cut her to only one, but I don't think we'll be able to pull it off. My mother is 90 and in poor health with dementia, so I think we're beyond the point of worrying about addiction.
My mother granted a bit of magic to her little pills. They could cure physical and mental problems. They were the answer to all her worries. It is like they had fairy dust on them in her way of thinking. A sad thing is that these medications have been abused so much that doctors are reluctant to prescribe them when they are really needed. For example, Xanax is the best medication to handle panic disorder, along with an antidepressant. Many doctors won't prescribe it anymore, so people have a harder time recovering from panic disorder. The medical world can be crazy because of the fear of being reprimanded.
Mom had trouble sleeping so she was prescribed generic ambien. Then sleeping soundly she would wake up having anxiety. The doc prescribed generic xanax. She took these for about 7 years until total knee replacement surgery. They were not disclosed by either she nor her prim doc to the orthopedic surgeon prior to surgery. Thank God she was given a block and conscious sedation because if she had general anesthesia she might have never woken up to get off the vent!
The anesthesiologist came to speak to me to tell me mom had moderate to severe sleep apnea. Then after rehab for the knee she came home with me a two hour drive. By the time we got to my house she was slurring and out of it. I helped her undress and found pills hidden in her bra. I got a pharmacist to identify them.
It angered me that a prim care doc would not question an elderly patient as to snoring at night nor send someone to have a sleep study done before giving pills that make them sleep deeper and more soundly.
Fast forward to now mom has two kinds of apnea, obstructive and central (brain stops her breathing due to a stroke from the other apnea) and she now has moderate vascular dementia from the 7 years of benzos/sleeping pills. She doesn't always wear her mask and continues with TIA's.
Please have parents (or selves) tested for apnea if they have sleep issues. Apnea patients notoriously have high blood pressure at night which could result in stroke especially in patients with daytime low blood pressure. BP creeps up to daytime and sometimes found at a routine doc visit.
I truly believe if mom had not started these nasty pills she would not be dealing with as severe vascular dementia and she would still be living independently rather than about to enter a memory care facility because it has gotten past the point where I can care for her due to safety issues and aggression which are worsening.
I can see no point to taking them away now....it's not like it is going to ruin her career.
She would not sleep without them. Why put an elderly person through that h*ll?
I understand the risks and down side. But, geez..she is 90!
The former visiting dr took that script away and refused to give her a refill after her taking them for decades.
She didn't sleep for 2 days, I didn't sleep for 2 days. She was drooping over in her wheelchair from lack of sleep. I kept calling the dr but all I would get was the voicemail. After not getting through to talk to the actual Doctor for 2 days I sorta sorted out the issue. Good thing I did because it took 3 weeks for a different dr from the same company to write a script. You can't just cut a 90 year old off cold turkey. Bad company. Never liked them. Just this week they suddenly closed shop. I suspect fraud.
Glad they are out of business.
The only reason we didn't switch companies was that her previous visiting dr company was much worse.
They took her Cognac away too. A whole new you..? She didn't live very long in the NH, and I'm tempted to add "fortunately."