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Responses to these medications can very widely and wildly. Where it may help some it can go the opposite director for others. I am assuming you have reported this reaction? Do look up the side effects also. Some medications have opposite effect on some people. For instance, while nyquil puts some to sleep, for me, it causes restless leg syndrome as does almost anything with diphenhydramine. So it is a shooting match with this stuff whether it hits the target or goes wildly astray. Be certain to let MD and those in charge know about this reaction.
That is one strong med, I am surprised that it is being prescribed to an elderly person. Obviously, he is having a reaction to this med. I am very sensitive to meds, so when prescribed I only take 1/2 the dose to see how I will react...we are all different. I would call the doctor and discuss this with him/her.
My mom with Alzheimer's was prescribed Seroquel to treat behaviors associated with sundowning. Her doc started her on 12.5 mg once a day about 4:30 p m. It worked well for mom, helped with behaviors and helped her to sleep better without turning her into a zombie.
Gradually, over the course of three years the dosage was increased to 75 mg still once a day at about 4:30 pm.
While Seroquel worked great for my mom, sometimes other people have the completely opposite effect. My mom could not take ativan, it had the completely opposite effect as was intended. Sometimes it is trial and error to find a med with the desired effect.
Older adults may be more sensitive to the side effects, especially drowsiness, dizziness and lightheadedness which obviously can increase the risk of fall. Call his doctor promptly and report this incident. Do not stop any antipsychotic medication until his doctor is notified because of potential serious side effects.
Thanks, glad! I hadn’t heard of FTD and maybe it comprises the vascular dementia she does have, but the article didn’t make it obvious. The pills are so tiny, not sure how you managed to cut in half! It is her palliative doc who prescribed it. Have almost done the neuropsych route a few times, but getting her to appts. is pretty hard now - not impossible. She seems to be adjusting to the seroquel okay, just praying it does something for her. Glad to hear it worked for your mom! No other drugs have been discussed yet.
Hi, Zdarov. My almost 85 yo mom had a few episodes 2 months ago. She was having either vivid dreams or hallucinations, or both, (not certain if she was awake or asleep each time) that her deceased husband appeared and said he was "coming soon to get you, babe". The first instance put her in the hospital overnight for excessively high blood pressure and chest issues. A couple of days later, same dream/hallucination and another call to the EMTs, only this time she refused to go to the hospital. A visit to her MD and neurologist followed and she was put on Seroquel. She was back to her normal self (for a person with dementia/ALZ) in just a couple of days. During her 2 month neurology check up last week, he took her off it, upped her anxiety medication and added Rivastigmine (Exelon). She has only been on the new meds for a few days. I'm obviously concerned about the change (she's in 3rd stage kidney disease, though improving), so we shall see. Please do make certain to stay aware of any changes and let the MD/specialists know what's going on. (For example, I'll be calling both the MD and the kidney specialist today to let them know my mom's on Exelon now.)
Thanks, kirah! I haven’t taken Mom to a neuropsych it seemed pointless and it’s a really long wait. I feel like s/he’d prescribe something Mom wouldn’t take anyway. She drinks very little water, I think dehydration is her #1 problem both mental and physical! Can’t make her do it. I hope this new mix will be great for your mom! I’m scared to get on the ‘try one drug, stop that one’ thing but maybe that’s just what I should do.
Zdarov, I can only speak about my experience, but I recommend seeing a neurologist. My family already had a history with ours since he's also my daughter's specialist. Ours is only in the local office once a week, but we usually don't have any issues getting in to see him within a week. Your mom's MD should be able to suggest one. And your mom sounds like me - I hate water. LOL. Fortunately, my mom downs a 32oz bottle of flavored water (no salt/sugar) a day.
Thanks to both of you! She had a pronounced TIA in April (has surely had others, based in the vascular dementia we saw in scans). In May/June she got wicked pain in thigh/low groin area and had nonstop constipation issues. Couldn’t move freely for two months (more mobile now, not in pain, yay). Saw a lesion on kidney during the scans.
Our health network has a combined office for hospice and palliative. The hospice came out but it wasn’t a fit, the palliative came and felt much better.
Just left a msg. for the palliative nurse and asked her to help me schedule an appt. with the neuropsych. I can see now that this could potentially help us nail down a better drug, so we’ll give it a try! Found out last night that the morning visitor yesterday let her miss what would’ve been fourth day of seroquel :( have to go myself this morning now. Having an awful struggle finding and keeping caregivers in rotation. Hope you both have a great day!
‘Morning - no, just Tylenol would cut the pain for her which was nice! This seroquel is the first time any kind of heavy drug has hit her system. I think the constipation was mostly due to the sudden decline in movement. She gets a probiotic in her pills. I try to keep her fiber high, but drinking too little water is still our #1 hurdle! She’s had pericolace in her a.m. pills for a couple months now and it seems to do well for her. Combo of softening and stimulation, highly recommended. :) She’s five days in on the seroquel and it’s hard to see her so knocked out! When she’s awake she still screams back at commercials, lol, no great effects yet. Btw, I simply had to give it in the a.m., no one’s there with her overnight. Discussed it with the doc.
glad, thanks for your concern. She is in a senior apartment. Safety is utmost of course, she has visitors there every day and every evening for a few hours just no one sleeping overnight. I am in my 50s and not new. :) Have been on the AgingCare site daily for six years or more. She has lots of docs, I spend my days making phonecalls and checking 100 things.
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
My mom with Alzheimer's was prescribed Seroquel to treat behaviors associated with sundowning. Her doc started her on 12.5 mg once a day about 4:30 p m. It worked well for mom, helped with behaviors and helped her to sleep better without turning her into a zombie.
Gradually, over the course of three years the dosage was increased to 75 mg still once a day at about 4:30 pm.
While Seroquel worked great for my mom, sometimes other people have the completely opposite effect. My mom could not take ativan, it had the completely opposite effect as was intended. Sometimes it is trial and error to find a med with the desired effect.
I would not give her 25mg during the day. She will sleep all day then be awake all night.
Mid stage FTD she needs 24/7 monitoring.
My mom was started n 12.5 mg and that made her sleep. Yes I had to cut the 25 mg tablet in half.
Is this a geriatric doc mom is seeing?
Seroquel has terrible effects for some. My mom, it worked great but could not give her ativan.
https://www.mayoclinic.org/diseases-conditions/frontotemporal-dementia/diagnosis-treatment/drc-20354741
I hope this new mix will be great for your mom! I’m scared to get on the ‘try one drug, stop that one’ thing but maybe that’s just what I should do.
Our health network has a combined office for hospice and palliative. The hospice came out but it wasn’t a fit, the palliative came and felt much better.
Just left a msg. for the palliative nurse and asked her to help me schedule an appt. with the neuropsych. I can see now that this could potentially help us nail down a better drug, so we’ll give it a try! Found out last night that the morning visitor yesterday let her miss what would’ve been fourth day of seroquel :( have to go myself this morning now. Having an awful struggle finding and keeping caregivers in rotation. Hope you both have a great day!
And good for you asking for a neuropsych exam!
She gets a probiotic in her pills. I try to keep her fiber high, but drinking too little water is still our #1 hurdle! She’s had pericolace in her a.m. pills for a couple months now and it seems to do well for her. Combo of softening and stimulation, highly recommended. :)
She’s five days in on the seroquel and it’s hard to see her so knocked out! When she’s awake she still screams back at commercials, lol, no great effects yet. Btw, I simply had to give it in the a.m., no one’s there with her overnight. Discussed it with the doc.
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