Just found out through my daughter (not my sisters) that my sisters are making arrangements to move Dad from his personal care home here to a nursing home where my daughter lives --- they plan to move him over Memorial weekend.
I used to be on this site on an almost daily basis making comments or asking for advice I moved back to my hometown in 2008 to help care for my parents. My sisters wanted to move my folks to a facility at that time but relented because I let them know I would take care of them at home. It was something that could be done safely and I guess they didn't realize that.
In October 2012, my Mom passed away peacefully in her own home. Two months later my sisters moved Dad to a nursing home. It was a shock to me and I knew he did not want to leave his home but I didn't want to make things worse by fighting with my sisters about it. Dad deserved a united caregiver front.
Since February 2013, my Dad has been moved four times because he did not like where he was living so my sisters shuttled him off to another facility. He lives close by so I can take him out kinda' keep an eye on what's going on and what he needs. Even though he doesn't need me to be around as much, as everyone knows, we still need to take care of parents who are in a personal care home or other facility.
Of course, it feels like a punch to the gut getting this news and especially not hearing it from my own sisters. I found out something was up when I visited Dad earlier this evening and was told that he was moving in with my daughter. Well, that's not the case. He will be moved to another facility 8 hours away from the town he's lived in for 40 years.
Can anyone relate and if so, how did your process through this kind of thing with your parent's best interest in mind?
I take it that he will be 8 hours away from you ... is that right? What is reasoning behind this decision?
I can't imagine why your sisters are not upfront with you. This must be so hurtful!
Yes, one of my sisters has POA and the other is what I call a "Yes Man" because she always agrees that our youngest sister makes such wise decisions.
From what I can figure, they seem to think Dad does not like living at this latest facility. They heard from one of my Dad's friends that the place has a bad reputation. Yes, it used to but it has changed hands recently and it seems well run as far as I can tell.
Since they've run out of places to move him, a move out of town was the next thing as they vowed he will never live at home again. I see their logic in moving him to the town my daughter lives in ... it's 3 hours away from where they live and hopefully that means they will visit him more frequently.
My daughter had no idea that any caregiving would be involved once he's living in a home there. I explained how I pick up things he needs on a pretty regular basis from clothes to Depends and the last big thing was taking his wheelchair in for repair. The last time she came to town for a week, she and her husband took Dad out every day for dinner and a drive around town. I wonder if Dad is under the impression that he will be taken out every day if he lives around the corner from her.
Yes, it hurts ... although I am getting better at accepting that we just don't agree on things that involve taking care of our folks. It's probably why neither one took it upon themselves to let me know. They knew it would upset me and that I would raise objections. I still think it was underhanded and wish they didn't put my daughter in the middle like this.
I guess one of the things I'm concerned about is that they may be dumping their caregiving responsibilities onto my daughter. She has two small children and works 2 jobs so cannot be expected to be there every time he wants or needs something. It's been a few hours since our phone call and I've decided to work through the emotion before contacting them.
I don't hold the expectation that either one will be open to another perspective but at least I will know I said something. He's lost a lot this last year and a half ... his wife and his home. With this move, he will lose everything else familiar to him ... including friends and a counselor that's visited him on a weekly basis for years. I guess he thinks if he tells my sister he's unhappy that she will let him move back home. Every time he was moved before it was because he was unhappy wherre he was at and wanted to move back home.
Thanks for hearing me vent and I know there's not much I can do but when I take him out for dinner tomorrow, I will talk with him more about the move. Thought I might want to ask if I can sit in on a future counseling session, too.
Of course, they should have contacted her and asked these things. But now is the time for her to raise these points. Everyone is going to be even more miserable starting from wrong assumptions.
Dad was actually in a nursing home facility last year as one of his placements. One morning my POA sister got a call from the Director to let her know that it was time for Dad to "move on". It was determined by the staff that he was capable of a lot more than he was actually willing to do. Sister was informed that Dad did not need the level of care a nursing home provides. That's why she moved him to a personal care home about 6 months ago.
Here's some background information that may clarify the location they decided on --- at least that's what I can figure after thinking about the situation the last day or so. My daughter lives in my Dad's childhood home so the town is a place he grew up in. Also, my POA sister was POA for Dad's sister before she passed away in 2011. My Aunt had dementia and couldn't live at home any longer so my sister had her admitted to the nursing home in their hometown. As an aside, the facility may have different levels of care and I need to do some research to find out more about the place.
I lived around the corner from my parents when they were living at home. For several years I took care of my folks at home with the help of private caregivers. I took care of my folks in the evenings and would stay the night without a break. After Mom died, I was willing to continue taking care of Dad either in his home or mine. For a number of reasons, my sister felt Dad would get a higher quality of care in a facility.
I have had time to think the situation over and yes, I can see that it may turn out to be the best thing for everyone. Like you've said, there's got to be some communication going on here. My daughter is visiting this week and I will have the opportunity to discuss what's involved --- she didn't seem to have a grasp on what this move would entail. I have a feeling that her idea of taking care of Grandpa means taking him out to dinner once a week. I have had to pay for what my Dad needs every month out of pocket and mail receipts to my sister to be reimbursed.
It could be that my sisters are somehow under the impression that my daughter is willing to take on caregiver responsibilities. At this point, I just don't know what's been discussed and agreed upon. You're right --- my daughter needs to let her Aunts know what she is capable of doing and not doing. As a mother, I want to protect my daughter from being dumped on --- it's time for my sisters to step up to the plate rather than coaching from the sidelines.
Ok, it may seem like all I've done is a bunch of rambling but I now understand better what I need to do - in a constructive manner -- rather than reacting out of my emotions.
Thank you --- hopefully caregiver duties will end up being shared between my sisters and I. If not, it may be time for my sisters to move Dad to the town they live in so they can take over --- their turn. It would be nice not to always feel guilty like I could be doing more for Dad and that heavy feeling of obligation day in and day out.
Four placements in just over a year? And no one is picking up the message that Dad isn't going to be happy (or admit being happy) in any kind of center?
What does the staff where he is now have to say about his level of discontent and the level of care he seems to need?
Being in his old home town won't mean a lot unless his old buddies are still around and come visit him, is it? Or will he be able to visit old haunts (do they still exist?) and have coffee at the geezer hang-out? I'm just trying to visualize why moving him hours away from his nearest daughter is a benefit.
I'm sorry, but this is just waaaay confusing! I hope after you and your daughter discuss this you will also be able to open communication with your sisters, and the three of you can put your heads together and decide what is truly best for Dad.
Conflict is inevitable, all are emotionally charged when dealing with these situations especially when end-of-life approaches. As long as everyone realizes that all have the same goal(s) in mind - that is that mom/dad are in the best/safest situation possible given the circumstances. We all have the same goal so let's work together. Parents will manipulate (or try) and continue to do so as long as it is allowed. Problems occur when one child has information that is kept from their siblings, whether it is medical or financial information. ALL information must be shared in order to keep the sibling relationship going after mom/dad pass on AND in order to make the best decision for mom/dad.
For those who don't agree with the safest consensus for mom/dad, an alternative needs to be offered. If there is not an alternative then the safest decision for mom/dad may be the only decision.
Sometimes a family may have the benefit of a sibling with medical/financial expertise. This may present difficultly for others so continue to work together to use optimize this gift!
Having been through this with my parents, my husband and I are now going through it with my in-laws. Whole different situation with in-laws, constantly keeping "my place" in check!
I appreciate you have been through this with your parents and are now facing it your in laws so do also have experience. However I can hear a collective howl comming from our friends here. "She does not know MY sisters" I have not faced this on a personal basis so can't describe personal experience and would not dream of contradicting an expert but am driven by common sense. i won't say anything else because it is not my place to antagonize someone who is giving very good advice. Emjo, Glad, Margareu (Sorry M I never can spell your name unless it is in front of me) Capt? Any of you guys awake yet?. Help me get my size 10s out of my mouth
Hold you in "Healing Light"....