I started caring for my 77 yr old father about 9 months ago and he is now living with me. Due to his health and some minor cognitive issues he can't live alone, drive, attend doctors appointments etc. I'm 37 and I'm finding it difficult when I have to tell him no or when I have to intervene in some of his decisions. Most of the time it is due to him being impulsive, not great at budgeting his money, being stubborn, and other times he is just unable to think clearly. It's like a mix of his normal behavior and his decline in health adding to his inability to make rational decisions. He is constantly trying to do things he is physically unable to do. He has a limited income, no savings, and was blowing through his social security check in a few days. He had always been very independent and a bit stubborn. I know this has been a difficult adjustment for him. I find myself having to constantly tell him no and he even says he feels like I'm acting like his mother. He will be passive aggressive at times and it makes me feel guilty. I never talk down to him or treat him like a child. I really try hard to make him feel included and informed on all decisions.
This is my first time posting so it's a bit of a rant and a request for any advice.
I would strongly encourage you to write down his savings/assets, income and expenses, on a piece of poster board and have it laminated, so he can refer to it. That was the only thing that kept my FIL from his blowing through his money. He was living $1000 or more beyond his means doing things like eating out daily even though his AL provided meals. We had to put it on paper-show him his income, his bills, and what he had left in savings. He was shocked. He had lost the ability to deny gratification and to understand the bigger picture. We gave the managing the finances job to my BIL who lives in another state, as he can easily pay bills electronically and he has POA also. That also helped us to get them to sign the rest of the paperwork “B needs you to sign this to protect him so he can help you.”
It's difficult and a fine line to tread when dealing with these issues. We DO need to become like a parent to our parent(s), but there may be ways to make it seem less like you calling all the shots! I do like some suggestions made in several responses.
While finding ways to allow him to "make" decisions and contribute so he feels somewhat in charge and/or productive, there're going to be times when what he wants to do is the wrong thing to do (blowing through the SS in a few days, or something he cannot safely manage physically.) Our perceptions of self might not reflect who we are/what we can do! Many of us are no longer that young and able ourselves! I know my mother's self-image is warped. However, if you can find other ways to turn him down without saying the word No, it might help. Defer whatever it is (okay dad, but can we do that later when I can help out or learn from you?) Sometimes just deferring it can work if they forget about whatever it was in the meantime! When mom asked me to drop her off at her mother's on my way home, I looked at my watch, said Gee it's a little late in the day and not exactly on my way home, maybe tomorrow? She bought that (lucky for me!) and didn't bring it up until much later (mom is almost 96, her mother gone ~40 yrs!) Give an alternate choice if possible. Suggest he take time to think about whatever it is he wants to buy/do before committing (do you really NEED to buy/do that right now, or might you need that money later for something you *really* want or need and/or can we do whatever in a while?) It is, unfortunately, like dealing with a child - children also tend to be impulsive, not think in the moment and have little concern about if/when the money is gone (we all have a money tree growing in the yard, right?!?!?!)
Some said seek to become rep payee for SS. One brother and I had DPOA and I used that to manage her main account. I had to move the SS deposit from another account to close it and make it easier to manage everything in one account - we were also listed on that main account, so that worked for a while. After moving her to MC, it was 1.5 hr each way to pick up her mail (regular mail can be forwarded - not gov't mail) and I wasn't allowed, despite DPOA, to "manage" anything with the Feds. When prepping to sell the place, I had to become rep payee for SS and a Federal pension so paperwork could be sent to me and I could make needed changes. SS was easy to do and approved fairly quickly. Call the local office, not the main SS#. You apply in person and move from there (he will get notice by mail, which gives him the opportunity to nix the plan, but you can snag that before he sees it.) When approved, you'll have to open a special account that only you can access, keep track of how his money is spent and report it (can be done online) yearly, but it is worth it!
I would save as much SS money as you can so that if hired help is needed later there will be funds to cover it! Use his money for his needs and allow him a small separate account to use as he pleases (if debit card, insist on no overdraft protection at the bank!!!) Hopefully you can explain to him some needs to be saved for a time he might need extra funds, medical, etc, but that he has X amount that he can spend as he chooses - just be sure he understands when it is gone for the month, he'll have to wait until next month!
Learn to ignore the pouting and if he becomes verbally/physically combative, walk away. Do not engage in the "discussion." You really can't argue with cognitive declines (or stubbornness), so it is best to just put your shields up and put space between you both. Don't allow him to guilt you!! I'm sure he didn't put up with it from you when you were a child!!
It causes resentment on our parents part, and that’s hard but stay strong and continue doing what your doing.
When I’m down or frustrated I come to this site and it reminds me I’m not alone and have a safe zone to express myself. Good Luck in your journey
All you can do is make him feel included in decision making, keep him on routines, allow him to assist in hands-on chores, and make sure his favorite clothes stay clean (he's going to want to wear the same things over and over).. Keep doing what you're doing, it all works out with patience and time. Let him win some battles :-)
Take care
I know how hurt I felt when helping my elder friend and he said to me "you talk to me like a care giver (or social worker)." The key is understanding how the situation feels from THEIR POINT OF VIEW. And learning, one day to the next, how to handle these responses to protect yourself emotionally/psychologically. It is not easy. It is a reversal in roles. Get the support you need; get in a local caregivers group or create one (through Church or Next Door, or post signs). I am sure there are many people in your area who feel like you and in the same shoes.
When you were a child and being told what to do, when to do it and even how to do it - how did it make you feel? I used this logic with my father and instead of taking over, I talked over his options with him and allowed him to choose his own path. I only asked him to allow me to help him if things didn't work out the way he thought.
It worked great for the 7.5 years I assisted him.
Bring your dad to a neurologist for testing, also a cardiovascular doctor to make sure there are no circulatory issues that may cause cognitive decline.
If there are any other family members to assist, ask them to . If either of your parents are veterans, apply for VA aid and assistance.
Good luck.
Hisservant
Hisservent
Your father may be resistant to signing the previously suggested DPOAs, but you might want to consider making your getting those as part of your informal contract with him. That said, it may be premature for you to completely take away his independence, even if you get a DPOA that might be interpreted to allow such. Everyone should be allowed as much independence and self-direction as they can reasonably maintain for themselves. While it's often easier and less time-consuming for adult children to usurp their ailing parent's free-will before it's really necessary, doing so could worsen a parent's physical and mental well-being and it sounds like you already recognize this.
Assuming you don't already have a formal, written contract with your father for you to provide his board, room and assistance, I suggest that you do that. (Even though I had a rental contract with my dad, I didn't actually collect rent, but would have if his resources were being recklessly squandered. I didn't have a personal care contract with him, but probably should have -- live and learn.) Anyway, in the long run, putting ground rules in place sooner rather than later will help you help him.
Watching the decline of our parents is hard and it's even harder to figure out how to best assist them and then make more changes as they continue to decline. But, there are lots of good resources to help become better educated and contacting your state's office on aging could be a good start. Best wishes in your endeavors to help your father.
You are in a tough spot. Can you work out a reasonable budget including what he needs to contribute to your household expenses!
Do you know what he is spending the money on? Does he keep receipts? Can you show him what he is spending it on? Let him see it. Is he asking you for money? Is he in debt or a bind financially? Work on a plan to help him budget or delegate this to a financial advisor for him.
It's nice that you are trying so hard to keep him involved and not hurt his feelings. That's admirable and may work okay, but, to me, expecting a person with dementia to be capable of processing all of that isn't reasonable. Most develop confusion and are not really able to be involved with the details of their finances. Often allowing the person with dementia to stay in charge, doesn't work and more pronounced intervention must be taken.
Sometimes, it's just not possible to explain and have the LO process, understand and cooperate with you. I'd just have a plan in place. Resistance to help can be a phase that he will move out of. And, keep in mind that as a DPOA, you are supposed to ensure that his funds are spent appropriately and if he's squandering his check, he needs more care. Sometimes, it's a rocky road protecting a parent who has dementia. I'd feel guilty, if I did nothing and let him squander his money.