Me and my sister have been taking care of my father for 1 year and 6 months. And I'm getting sick of the caretakers JOB!!! I've never been close to my father. He was always too busy at work for us kids. Just never developed a good relationship with him. He's kind of like a stranger to me. He has a trach due to cancer. Don't know if he is cured or not. Drs. don't want to tell you S#*T!!!! or give him a pet scan. But I stay all day and into the early night with him and my sister stays at night with him. I have a husband and a little boy under the age of 5 and my sister has a husband. I feel like I have missed out on so much of my childs life. Things I want to do with him while he is little... I have so much anger built up inside of me just because of this. I feel like it has changed me, my relationship with my siblings. Because there is so much resentment there. And I hate that it has come down to feeling like this. We have another sibling but we do not get much help there. I won't even get started on that one. I wish we could find someone to come sit with him during the day and at night some. But who does that. That has trach experience. But my sister doesn't want any outsiders to come in to help us!!! I'm about at my breaking point!!! And I just want to quit! I'm so stressed out I don't know what to do. I get so depressed sometimes it's scary... If anyone has any info. as to who we could contact for help with a trach patient to sit with him please please please let me know!!!! Thank you!!!!
This forum has a lot of information on types of care and where to get them locally (that's why they ask for your zipcode). Look at what's out there, see what your Dad's insurance or Medicare will cover and get some relief!
Take care,
Carol