My mother lives with me. She has mild memory loss. She wakes up disoriented and gets confused about meals. I would like to go away for a few days, but I need someone to be with her in the morning when she gets up and to feed her. Other than that, she is currently fine on her own.
We don't live near anyone that could help out. We don't belong to a church or other groups that might have people we could ask.
I'm not quite sure what to do. I started looking into respite care centers. So far, they all seem to require a minimum two-week stay. That would be too expensive for us and too long. Mom gets disoriented when she stays away from home, too, so two weeks away would be really confusing for her, I think.
I was thinking of finding someone who could possibly just come and stay a couple days. Does anyone have advice on how to find someone reliable?
I would have the person meet mom and see what she thinks, too. It would obviously have to be someone who she is sympatico with or she wouldn't agree to it. In fact, I know she won't like it - regardless what it's called, she's going to call it "baby sitting" and insist that she's not a baby. But, that's a different hurdle and I'll just have to sit down with her and discuss it.
I was also wondering if anyone knows of programs for respite care that are reduced-cost. I keep meaning to call the VA to ask but it's on my "to do" list (that continues to get longer faster than I get to it :-) ).
One or more responses mentioned checking with places like assisted living. I will mention that there is a Senior Living Week here in Ann Arbor around March/April, I believe. My mom had only just moved in with me for this last one, so I didn't go, but we are planning to attend the next one.
Our goal had been to pick a place for mom in case I die. I want to make sure that if anything happens to me that someone will come and get her and take her someplace that is a good fit for her and that all the details are taken care of (financials, medicaid, whatever). But I realize I could use those visits to ask about places for her to stay during my trips. And, honestly, I don't think I'll try to go anywhere until next Spring/Summer, so I can start looking into some of these other programs that take some time to get the paperwork for, as well.
And, yes, my deceased dad was a war veteran, as well as being retired from the US Army. So, my mom is eligible for surviving spouse benefits.
Many assisted living facilities will have specific areas for respite care where mom could go for a couple of days. This way her meds will be given, she will get three hot meals/day, activities, etc. Depending on her income you may find a facility where the costs are lower based on income or who takes those residents whom are on Medicaid. However, the time to get this processed may not be worth the savings.
In home non-medical care can sometimes be subsidized by the county you live in depending also on income. Check with your local department on aging to see what resources are available to mom.
The decision to have her stay at home versus going somewhere else is a tough one. In a way, it would be easier to take her somewhere else for care when I'm gone, but she just gets so disoriented when she stays away from home for a few days that it does mean that I'll be the one helping her get reoriented when she returns home. So, it's probably a six-of-one-half-dozen-of-another situation. I suspect whichever is cheaper will sway me.
And, yes, I do care about finding good care but we have limited means and that's the bottom line to it. I wouldn't leave her with someone we weren't comfortable with just for us to save money, of course. If that was the case, I would end up not being able to go away, quite honestly. So, I really appreciate all the tips on places to find money to put toward these things.
At least she can be in her own home..but, respite care offered at local AL is more economical and meals, activities are included. My FIL goes a couple times a yr for long weekends or extended stays at $150/day.
I would use money for regular care however, just knowing you are not "on" 24/7 for extended periods of time will make her care much better.
I hired a place called affordable caregivers. It was $12/hr with a 4 hour min and a very small fee to the agency
The girl was a godsend and really helped me out tremendously
Carol
You might also realize that getting a little help now is a gateway to lining up more assistance / respite in the future to continue taking care of yourself.
I'd suggest Home Instead Senior Care call Greg he is owner: Ann Arbor 2160 S. Huron Parkway Ann Arbor, MI 48104
I had my mother and father live with us. She was diagnosed with alzheimer's disease 8 years ago. Now she is in Aegis full time. Thriving doing well. I thought we would Never put her anywhere, but this has been the best situation by far.
Regardless of what she calls it. We in the caregiving world need to realize that we will get "burned out" if once in a blue moon our needs do not get met.
She will not understand, so my advice is to just tell her the morning of. If she truly has and I believe you dementia. The reason I say that, is because she will and I am not saying this with any meanness, just the reality of the word, get mean, nasty, make you feel guilty. Go have fun, and remember, the loving person you can be on the time you are back home with her. I am sorry, alzheimer's and dementia do not understand the needs of others, they end up as some say very self centered. Just remember, it is the disease.
all the best.
d