My mom will be 82 this month. She is very weak from severe fibromyalgia, COPD and arthritis. She used to be very clean and concious of her appearance, but the pain has made showers a huge undertaking. We did get a walkin shower installed to make it easier for her. But, it has gotten to the point that I can't get her to shower more than once every 3 weeks. I feel so very guilty about this. I don't know how insistent I should be. Because of her pain, it doesn't seem right to be stern with her. But, as a result, she has developed sores on her bottom. She wears Depends and is good about changing them frequently. But, since she rarely gets out of bed, except to go to the bathroom and to eat dinner with me, the blood circulation on her bottom isn't good so it's not healing. I have taken her to her doctor-who referred her to a wound specialist. That doctor prescribed ointment and movement to get the blood circulating....so much easier said than done! If anyone has dealt with this issue, PLEASE give me some tips. Now, they are scheduling a home visit and I am so worried they think I am neglecting my mom. I'm not, I promise! I keep a clean house, I insure she eats her meals and we are close. So, ultimately, I need to get her up and around more frequently AND help her to shower/wash her hair weekly, at least. I am beginning to wonder if I should literally get in the shower with her to help her out. She injured both of her rotator cuffs 20 years ago and it is very difficult for her to wash her hair...she can't raise her arms up very high. Ok, so to be very frank: I am VERY stressed about getting in the shower with her....it will definately affect her self esteem and it just seems wrong to invade her privacy like that. Please, does anyone have insight that might help me? I love my mom so much...and the LAST thing we want is for her to be placed somewhere. I know she would just give up if that happened. It is breaking my heart to see my mom age and become so weak..she was such a vibrate, independant lady! Ultimately, how do I improve her quality of life?? For those of you who have read through my ramblings, thanks so much for your time :)
The aide uses a very dilute solution of Johnson's Baby Wash for bathing, and a no-rinse shampoo for her hair which she manages to lather and rinse just using well-soaked washcloths and a basin of water. She's remarkably fast and efficient and gets through the entire process in less than twenty minutes, minimizing the time my very modest and often reluctant-to-bathe mother spends undressed.
Prior to having the aide, my mother was in a real fix since she wouldn't allow me to do anything for her of such a personal nature. If they're scheduling a home visit for your mother, maybe they can recommend something similar. I hope you can get the help you need — it sounds like you're giving her exceptional care and you certainly deserve some assistance!
All of us would like to be SuperCaregiver, but, come on, we really do not have the powers we wish for. Some things are just plain out of our control.
If you can keep your mom safely at home, you are doing wonders for her quality of life. Don't beat yourself up that you can't perform miracles.
Work on each challenge, one at a time -- which is exactly what you are doing here. Be proud! Get help! Celebrate the good moments you have left with Mom.
During the week, she will not sleep unless her teeth has been brushed so I push her to the bathroom first after supper to brush her teeth and then take her to her room. I have a big bowl with warm water next to her bedside and I will hand her the face cloth and tell her what to wash. This works for us.
We recently had an assessment which resulted in getting a Personal Care Attendant for my husband. I warned my husband ahead of time that I would be telling about his bad days, not what he can do on his best days. (I hate to describe his impairments in front of him, but sometimes it has to be done.) At the end of the interview the nurse thanked me for being so candid. She said she often deals with seniors who keep claiming nothing is wrong and they have no problems, and then can't figure out why they don't get help. I think many fear that if they admit they have problems they'll be placed in a nursing home. But the truth of the matter is, providing in-home care is cheaper than NH placement and the county isn't about to force NH placement if they can figure out a way to make in-home care work.
Please do not hesitate to be be candid with the person who visits. Don't worry about them judging you neglectful. They just need to figure out how they can make Mother comfortable and safe living at home.
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