Since I'm a newby here, I don't know if this has been covered already but I thought this might be a place that we can learn those little hints from each other and possibly make life a bit easier in the caretaking realm.
The most recent item that I have found helpful to have with me all the time is a doorstop. After one very frustrating visit to a dr when no one, either staff or patients and their companions, did not offer to open or hold open the doors I struggled with while trying to get my mom's wheelchair thru the door, I happened to think of the doorstop; now I don't make any trips with my mom without a one.
We use a transfer shower/tub bench and I find it cuts down on water getting onto the floor to use two shower curtains which I pull together thru the slit in the bench and fasten with a clothespin. I also put a towel on the side of the tub to absorb any water that leaks thru the bench along with the ones on the floor beside the tub.
I play whatever part needed to fit in with wherever his mind goes. Lots of times we both end up laughing. It's so good to see him actually enjoy himself on occasion.
I know it's hard and heartbreaking most times, so I really cherish the good times we can have together.
This thread was a great idea... thanks for starting it... love and hugs....
First, give care to your disabled loved one because you love them. If you do it for the money or other benefit, you will find yourself woefully underpaid. Do your best and forgive yourself for being imperfect, and forgive your loved one when they poop in your hand and say they're paying you by doing so. You are in a crazy situation lacking the tools and resources you need, and no one cares who can help you much. That, as they say in the caregiving business, is the job. You will find people like us at websites like this one who understand what you're going through, feel your pain, wish they could help and have problems that put yours to shame. Sadly, we cannot help you. Except to applaud the work you do and respect and support you for doing it. Give yourself the support and encouragement you need. Good Luck. God Bless You.
Just my two cents :)
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