We are now on our 6th caregiver in the past year. First 2 went home (Belize and El Salvador) and never came back. Next one only came in once out of 3 days and had excuses for not coming in the other 2 days so I told her it was not working. Then we hired an agency. Agency provided an aide that had English difficulty and a cat allergy (although we told the agency she had a cat). Next, the agency provided someone who was out frequently and we were not told until the last minute that we would have a replacement even though the aide told them she would be out a month in advance. We never had the same replacement. For the fee we paid to the agency, to have a replacement 4 times in a 2 month period of time was too much. We have hired another private pay who was recommended by her home care nurse. Mom seems to think her aides are here to do housework and complains that they don't clean well. I am left to deal with the fallout. If this one does not work out, I am going to move to another country and not take my husband, my mom , my kids or grandkids.
I got an eldercare attorney and transferred most of her money to me but left some in case we needed to go to a nursing home and would need medicaid after she ran out of money. There is a five year look back period. I used her pension and medicare and SS benefits but I had to plan for her to live to 100.
THis really worked out. I spent $120,000 in agency care over 6years but had funds for spend down for nursing home. She had home cooked meals, shower three times a week at a reasonable time and care with ADL tasks and her own room. Her dignity was intact.
My goal was to keep her comfortable but with the knowledge that it would cost $15,000 a month if she needed a nursing home. I did burnout due to 24 hour care and should have had respite care. I am an only child and it did come at a cost to my health.
My point of view was that she could stay home if this care matched her level
of care. Eldercare Atty left some money in her name in the event she needed long term care to get admitted to nursing home and protected funds from medicaid so that her funds could go to her heirs. It was a balance. When she passed away in a nursing home she was covered by medicare due to three nights in a hospital for a broken hip and wrist and transferred to rehab and was there for 7 days and passed away with help from Hospice. I did not want her to die at home because it was more than I could deal with alone.
With careful planning, and some luck, you can make it through the system. I had to fight and educate myself. If she had needed long term care because at the end she was a two person transfer, she had funds to gain entrance to nursing home and 6 months of money for long term care.
She was 95 years old and died on her birthday with comfort from hospice and nursing home. She had paid taxes since she was 17 years old and I believe that she deserved care. I was willing to pay for home health care and I was unpaid caregiver. I feel strongly that the system is broken and based on the idea that there is someone in the family who will provide care. Many are in a different situation. Why is it the people who paid into this system do not get the care they need? I am at peace with the decisions I made. I could have placed her in a nursing home and all of her money would be gone and she would have been on Medicaid. I chose to spend money on her care but not willing to have her go bankrupt and leave her grandchildren with nothing.
I wish all families with this situation to meet the level of care but get an eldercare atty and protect the funds.
My thoughts are with you all.
Father in law was very ill with congestive heart failure, and had trouble making it to the toilet, was not mentally sharp any more, very weak overall. He had fallen at home a number of times and finally decided to move to an AL unit where he had friends. He was there for a little less than a year when he passed away.
After a number of falls and medical emergencies, he was deemed too ill to rely on AL services only. Choice: nursing home or we hire caregivers into his unit 24/7. He opted for the hired caregivers. Hired them through an agency that was recommended by the AL management (no financial ties between them.)
We were sent young males from Easter Europe. They had to help him to the toilet, change diapers, sheets, help with some meals. They had a private bedroom. Eventually, they started leaving town for weekends without notice, using his credit card fraudulently, not showing up...which required that my spouse, only in his 30's and trying to build a career, to have to leave work often to attend to the situation.
Caregiving for the elderly can be difficult, boring, physically and psychologically demanding. I think these people just could not take it anymore. So there was a constant churn of caregivers. Your situation will continue for these reasons.
It sounds like your mother needs at least an Assisted Living arrangement, and if she has dementia or cognitive issues, may already need Memory Care. If physically frail and in need of continual nursing care, she may need a nursing home. Some places arrange for a continuum of care through those phases.
I'd give her the straight talk about her needs and the fact that Assisted Living, good ones, have the same staff present for extended periods of time. The care will be more constant and the staff will know your mother's likes and dislikes. To try to arrange caregiving at home and ensure quality and consistency, you'd have to make yourself her geriatric case manager. That's really a full time job in many cases
Care.com
Sitter city.com
Or what ever site is in your state.
They work for themselves and are more reliable. Seniors hate the revolving door of faces
However, sometimes finding private caretakers is difficult. It's like a secret underground network you have to infiltrate, but once you do, I think you can get better help. Plus they end up making more than the private agency pays their caretakers but it costs you less. In the long run, it's expensive to keep someone at home. We eventually placed my mother in a facility and saved a lot of money.
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