I have been my mother-in-law's full-time caregiver for over 6 months now. She had a massive stroke, has diabetes, severe receptive and expressive aphasia and various other health issues. My husband and I have made the difficult decision to move her into a skilled nursing facility because her health is declining rapidly. (Please no judgment; we are set on this decision)
The problem we're facing is dealing with my husband's cousin (my mother-in-law's niece); let's call her "Debbie."
Well, Debbie used to (before the stroke) hang out with my mother-in-law 3x a week, have my MIL sleepover and has claimed many times that they are best friends. Debbie has only come to see my MIL 3x over 6 months and has not helped us at all with caregiving despite having the time to do so. She has made a few weak offers to stay with my MIL for a few hours so my husband and I can get out of the house but every time we've tried to take her up on that offer, she says she's busy. She really only checks in about my MIL if we all miss Sunday church.
We know she is going to be angry with our decision and I'm not sure when and how to approach this conversation. She has caused issues in the past when my MIL was in rehab with Debbie not respecting our wishes to not have a whole bunch of people visiting my MIL days after her stroke without telling us.
My husband is already struggling with guilt because of all of this and I don't want Debbie to cause him anymore stress/pain. Any advice would be helpful. Thanks!
Thank you!
I totally get your husband is struggling with guilt and doesn’t need any more confrontation, and I think everyone’s posts below are brilliant advice.
my OH gave me “a lot of advice” once, I pointed at my shoes and said walk a mile in them then tell me what to do; Like crazy sue said no one realises how hard it is until they have to do it.
sending love and all the best for the move
If Debbie carries on and tries to get all about the guilt trips on you and your husband tell her to go pound sand and that neither of you owe her any explanation for why MIL is moving to a nursing home. Tell her this. That you're only explaining to her out of respect for the friendship she has with your MIL and that you could easily have had her transported to the NH without telling her at all.
Why is your husband even faintly concerned about Debbie's opinion, anyway?
A stroke is no joke! My aunt had several strokes and her next door neighbor best friend had a duck about it when he son moved her into a skilled facility (she had been helping care for her). BUT, this neighbor let her drive when she wasn't supposed to etc...
Her son moved her into a facility and she was the life of the party until she died. She loved having people around her and because she also had dementia, she never really knew the time had passed, and loved visitors.
Thank you for your advice!
Whenever anyone suggests ways to care for my husband, I have become quick to say that "I" have to face the risks of consequences for every decision I make. When my husband began with mild dementia, if he knew about a future event too soon, he would become obsessed and very anxious. He would have endless questions then on the day of the event, before I was half dressed, he would have his hat on ready to go and a couple of times even sitting in the car. My sons felt he needed something to look forward to, which I agreed but not at the risk of the stress it added for me. It took a while, but they finally saw it for themselves and now support me. This is now my standard answer... I know the potential consequences and am not willing to risk them. The consequences, I am referring to, relate not to just heightened stress and anxiety but also the potential injuries one or both of us may have.
If she brings up an argument there will be consequences of moving her to SNF simply let her know you have already weighed them to be less than potential consequences of caring for her in your home and found this best for all involved.
If she continues, tell her to you can't discuss it anymore because she is adding to the stress and anxiety her SON is already having with the decision and you are concerned for his health.
Like a previous post, I am sure Debbie is experiencing grief as she obviously had a great past relationship with your mother in law. Even if she hasn’t been very present since moving in with you folks, there may be other reasons that she hasn’t been visiting in addition to just having a difficult time facing what has happened to her dear friend/aunt.
I imagine that if she visits your MIL at the nursing home, it would bring joy to her. I see that your MIL is only 72! These days, that is very young.
Don’t assume how Debbie will react;, she just might surprise you now that some time has passed. Given your description of the situation, I would tell the cousin, along with other family members as soon as you can after she moves to the nursing home. People should know if her condition is rapidly declining, particularly those that love her and may visit her. Keeping loved ones away isn’t going to help her. Nothing made m happier than when my dad had visitors when he was in long term care. When his friends visited, he was so pleased. You know how much fun friends can be!
Because you mentioned that you attend a church, you might want to send up a little prayer before you speak to your loved ones. It’s amazing how God can give you the right words.
Good luck with this tough situation!
If you want to talk about visiting, you can let her know when is the best time to go. (Due to Covid restrictions & screenings, I don't think you will need to worry about her bringing crowds there). I wish you all the best during this most difficult transition.
Secondly...and please, don't take this as I'm making excuses for her behavior, nor suggesting "Debbie" get a free pass, I'm just offering this as a thought: I imagine "Debbie" is grieving the loss of her "best friend". That you say she used to see your MIL often, but since MIL's stroke you can count her visits on one hand and still have fingers left over is, to me, very telling. If she's close to your MIL in age, she is likely not only dealing with missing your MIL's company, but perhaps this is also a sort of a reality "smack in the face"; now she is seeing - live and in person - the concept of her own health decline and mortality.
That said, it in no way gives her the right to stick her nose in business that doesn't concern her. I'm sure, in her own twisted way, she thinks she's "helping" by offering "suggestions". That maybe no one has ever told her that her suggestions suck means she feels free to continue to offer them - although there are people out there who continue to offer, even after they've been told in no uncertain terms their suggestions suck. I believe the clinical term for THEM is "a**hole".
You know, you don't really have to tell her anything. I'm going to assume that MIL is elderly; it's not out of the realm of possibility that she's going to stop doing things, like attending church regularly. If "Debbie" asks where MIL is, you can say "she's home". Not a lie - the SNF will indeed be her home. When she asks how MIL is doing, you can answer with a vague " she has her good days and her bad days". Also not a lie. I don't know that I would even mention the move unless "Debbie" really makes a push on to visit; and since she doesn't seem able to "handle" seeing her BF in such decline, I don't know that you have to worry about that happening anytime soon.
And if "Debbie" ever DOES find out that MIL was placed in the SNF and accuses you of keeping her in the dark, you can even tell her that you saw no reason to "burden" her with that information, knowing as you do how close she is to MIL; you saw no reason to cause her undue worrying, especially since MIL adjusted so beautifully to her new home, and was getting the very best of care! If you say it with just enough irony in your voice, she might even take the hint!
Good luck and (((hugs)))!
The nursing facility is exactly where she belongs. You can’t provide the extensive care she needs 24/7—caregivers get tired and can make mistakes. My overarching priority for my brother has always been for him to be safe and comfortable, if not happy. Keeping your MIL safe is an act of love. She will be in a safer place. Visit her often. Nursing homes take notice when the family is involved. Contrary to popular opinion, there are good nursing facilities out there.
Consider bringing in hospice as they can provide comfort measures and it doesn’t have to be at the end. My brother has been in hospice for almost nine months and the care has been incredible. Again, they’re another set of eyes. Medicare covers hospice care. Check out Medicare’s website for nursing facility ratings to help you find a good one. Sometimes one that’s a little farther away is much better than a local one. Finding the best place possible can help abate the guilty.
Don't bother HAVING a conversation with this armchair critic, she doesn't deserve your time or the stress you're suffering over it. Do what you feel is necessary and IF she contacts YOU, then you tell her where MIL has moved to, IF you feel like it. We owe these cousins precisely what they've given US over the years: BUPKUS.
Wishing you the best of luck with the upcoming move. I hope your MIL adjusts well to new accommodations.
Thank you for your advice!
This is a cousin. Her opinion does not matter and you don't need to give her excuses. Your DH does not need to hear any negativity on her part. A number of us are not in the position to be judgemental. We have had to make the hard decision to place a parent. For me, I was not a Caregiver. It was a Senior taking care of a Senior. Our LOs care is just beyond our capability. So, place your MIL. Take time to allow her to adjust and allow you both to adjust. I guess cousin will see you in Church and ask where MIL is. Hopefully its after the service or say "will talk to you after the service". Or don't go and then she will call. Then u can explain that MIL had to be placed and that you are both upset and adjusting but it had to be done. If she starts, tell her sorry but you are hanging up.
My Mom adjusted well to both an AL and LTC but she was in the last stages of her Dementia. We just told her she was going to a new apt with new friends. The staff was good to her.
When she says "Why didn't you tell me??" you can smile sweetly and say, "We were going to tell you when we saw you, but we just never see you anymore."
In my case, I was primary caregiver in an impossible situation. I had *very* limited help and my LO's condition rapidly became something that I could not keep up with at home anymore. My lady went from a rehab setting directly into the nursing home wing of the same facility, so I did tell some therapeutic fibs along the way because I simply could not take any more of the wrath and criticism from the lady's family. I still had a lot to do on the lady's behalf, and I had to find a way to keep going. I would refer to the "new room" and worded it that way. I didn't come right out and tell anyone until it was official.
In a way, people were somewhat relieved that I made the decision and told them after the fact. It absolved them of having to do the grandstanding of why a nursing home is terrible or why the nursing home THEY like is better than the one I like. Regardless of what they verbalize, a lot of people know deep down what the right thing is - they really don't want to be involved in the decision or wonder if they are being asked to get involved. But then once you involve them, they don't back off.
Tie up the loose ends. Then inform the onlookers.
Thanks for the advice!
Don’t talk to ANYONE about the details of your MIL’s situation until she has moved to her new residence. Her facility will probably suggest that visitors be limited during her adjustment period, so if Debbie (Downer) throws a fit, shrug your shoulders, state simply that you’re dealing with the facility’s rules and say you’ll let Debbie know as soon as MIL is strong enough to enjoy guests (never).
You and DH are in control, you have done the hard work of the last several months, you owe apologies nor explanations to ANYONE.
Tell Cousin Debbie as nicely as you can. When she has more to say than you want to hear tell her that you are sorry for her grief over this, that you are ALL grieving it. That this isn't open for opinion or discussion. That there is quite enough on your plates now. Do tell her you hope she will visit, and to be a positive presence in your Mom's life; that she is WELCOME TO VISIT as long as she can stay within that boundary. Wish her well. And that is the end. Tell her that you do not wish to argue or even discuss this with her. Wish her well and hang up.
Again, I am thankful you understand your limitations. Not everything can be happy all the time at ANY point in life, and certainly not at this point. Some of it is going to bring tears. Is this loss after loss after loss not worth the grieving? Allow the tears to come; they will wash everything out.
My best to you. My heart goes out to you both. To ALL of you.
I think that I would not tell her until it is a done deal and I would wait several months before I told her where she was.
If she questions you at church, tell her you got a professional to help your MIL. Period! You don't owe her any explanations or justifications for what you both feel is the best care situation for your MIL/his mom. Sometimes just looking at someone with her audacity and not saying a word is most effective.
I guess I am ornery, because I would call her out for never helping her best friend, especially since she offered and you couldn't continue to do it alone, if she pushed the issue.
At the end of the day, her son is her legal next of kin and that gives him the authority. A niece is far down the legal succession, she has no authority and has chosen to not be involved, so she's not involved.
Best of luck with an easy transition.
And you can limit who is allowed to see your MIL.
Allow "Debbie" but not a gaggle of people.