My Father died three months ago. Unfortunately he had nothing in place for my Mom who suffers from Dementia prior to his death. There are three of us siblings. We have managed for about 2.5 months to work well together, rotating staying with Mom and making sure she is eating and keeping the home up. We even got Visiting Angels to come in 3 days a week for a 4 hour shift to give each of us a break during our time staying with Mom. What is going on now is my younger sister has been acting irrational and overprotective with my Mom. She has quit speaking with us and only e-mails us when she want to tell us what she wants. How do I stop this aggressive behavior from her without destroying the fragile relationship we have now?
Another thought: Your dad died three months ago, so your mom is probably in deep grief (even if people don't think she knows - she does). It could be that your mom is declining rapidly in part because of the loss of your dad and your sister is afraid that she will be blamed for this decline since she's currently in charge.
The only way, of course, if to find a way to communicate. Gently assure her that you know that your mom is in a downward spiral and no one can do anything to stop that. Let her know that you feel she's doing a great job. You just want to know how things are going like she does when you are taking care of your mom.
If that doesn't work, perhaps a friend of the family can talk with her. Sometimes someone outside the family can seem more unbiased and people will open up.
Good luck,
Carol
If she can no longer be receptive to you all, then maybe she needs a break from it all. Everyone's feelings are important, however, as I said "Your Mom should be the priority". In my own experience, a long time care giver to both my parents, someone has to step up and set it straight for your Mom!! Once the boundaries are set and all are on board with what is needed, then hopefully things will go smoother, but if not, someone may get their feelings hurt. I have done what was best for my parents, not my siblings. Best to you as you continue, remember who is most important and be sure you take care of yourself along the way, if you are the main caregiver, all the help you can get is important, but sometimes their are to many Chiefs and not enough Indians!!!
Words like overprotective and irrational - I'm glad you were direct and used them. Those are your feelings - so important you are truthful - but do not believe they represent the "truth" or the whole story. Those were the words that were used against me years ago when I started to look after Mum. I'm not saying this is so - but hear me out - it may save you and your siblings a lot of pain and your Mom a great deal of suffering. There is often a sensitive one who is able to see more of your Mom's needs. It may well not be you. It is likely your sister. It does also make them seem crazy to others. Demential / Alzheimers care is a bottomless pit that I've been exploring for 8 years now. There is SO much that can be done - but many are able only to see or know the extent of the needs - especially the psychological ones and as they learn accommodate those needs as their lives are being rewritten by what they see. It makes sense - we protect ourselves from too much change. There are so many layers of denial. But not everyone is like that - some are ready for more sacrifice. Those who are willing to sacrifice more should be supported, the family should rally around them and ensure that they are compensated either through time or money, and through encouragement, so they can keep delivering and exploring the best possible level of family care for your Mum's sake. Your sister may be leading with her heart. This needs real shared leadership for you to care for your Mum as a family. This needs humility - and the highest level of teamwork. This is very personal and it is possible that my experience may not apply to you. Take what feels like a fit - and I wish you courage and love enough.
Our Dad was actually the hub of our family, and now that he is gone, there is nothing but hostility between the majority of the siblings. Our two oldest siblings were made Executors of our parents will and my oldest brother has POA over Mom's finances. From the get go, they hit the ground running and sold our parents house and it's furnishings. According to three of our siblings, they were never informed about the estate auction and found out about it through word of mouth. My parents had said in their will that everything was to be sold and proceeds were to be used to care for our mother. I won't go into a long lengthy story, but unfortunately our family is totally torn apart now. The middle children resent the older ones claiming that they have taken advantage of our mother in her old age. They are angry with mom because she removed them totally from her will after she was told that they had said as far as they were concern she was dead and they wanted nothing to do with her. These three siblings have not come to see her in the four years since our father died, nor have they offered any assistance for her care. Yes, they came forward and slammed our oldest siblings when our Mom decided to gift four of us with money from her estate. They literally were enraged about it. They didn't want anything to do with the care of our Mother, yet they wanted to be financially compensated when it came to her money.
I'm the youngest daughter, and honesty, I would gladly give my portion of inheritance to these siblings if I thought it would relieve the resentment of our siblings towards our Mother. This resentment goes deep, as our Mother was undiagnosed manic depressive while we were growing up and left open wounds. Mom had her favorites and played us against each other. When it comes to family Dynamics, it's like tossing dice when parents age and depend on the care of their children when the time comes. Each child has their own way of dealing with the emotional aspect of losing their parents. I had to learn to let my siblings grieve their own way and not try to control the situation how I wanted it to play out. Unfortunately, our Mother is reaping what she sowed out over the years with her disregarding and hurtful additive towards her children. Is it fair? Is it going to resolve all the issues NOW between the siblings once our Mother is gone? My guess is the hurt and pain is just to damaging. I've even suggested we all go into family therapy to work through it and regain some semblance of family unity; but have been shut down with all the anger and resentment. Good luck on resolving your issues with your sister. The waters run deep in these areas where parental care is concern.
It has been over a year that me, my mom and my two older brothers have been fighting in the courts over the "family money". 11 years ago, it WAS agreed upon by all family members that wanted my older brother in charge of the trust. That was 11 years ago! The way things have happened, the things that have been done, the lies that have been told, have all combined into me and mom NOT wanting his as the trustee. (but for some reason one of my brilliant brothers thinks what was agreeed to back then is how everyone should feel now after 11 years of having experinces with him in charge.) Btw, my mom's favorite thing to say about him now is...."that boy of mine is a liar, a thief, and a drug addict."
Anyway....
You have to hire a lawyer NOW! Get things put down on paper. Hopefully your mom has enough of her marbles to say to a lawyer or a doctor what HER wishes are. So far me and my mom and trust money has been spent upwards of $75,000! The darn trust was only worth $300,000 when this all started!
(personally I have stopped feeding my lawyer and my final total from MY OWN money is $24,277.50) Mom is still spending her own money to get older bro to step down as trustee in the tune of $35,000. Both my older brothers get to keep this going on and on and on since they get to use the trust to pay THEIR lawyer bills.... so far about $18,000. Lucky them to not have to use their OWN money!
Who is your mom's Power of Attorney?
Is there a Will?
How about health care issues?
If you feel it is bad 3 months in, I can't even begin to tell you how much worse it is going to be at 6 months, one year, and five years down the road. Get mediation and/or lawyers, and/or social workers INVOLVED YESTERDAY!!
Sorry, that was too harsh, wasn't it?
My one sibling lives about 200 miles away and doesn't want to know how mom is doing. Doesn't call, write or come for 20 years. I am SOO thankful that I don't have to deal with him.
Perhaps you could suggest how blessed you all are to have each other to help care for your mom. If someone disagrees with something they need to discuss with everyone to work it out together.
caregiving can put a lot of strain on sibbling relationships. So be it. The focus should be on Mom and nobody but Mom.
One of my sibs & spouse who live just 5 minutes from my parents just wouldn't make my parents' needs a priority. Other sibs and I are hours away. I couldn't stand to see mom suffer because nearby sib couldn't make the time so I got more involved and got care sorted out. My guiding principal for all recommendations and decisions was "What is best for Mom and Dad" (not what's easier for us kids and our families). Fortunately Mom and Dad have resources to pay for adequate help and don't actually require much day to day help from us kids. What they do need is an advocate to help them get quality care, help them make decisions and ensure that there is follow through amongst the many members of their medical teams. Against Mom's wishes and my concerns with the facility, my sibling convinced dad to move mom into Assisted Living. Mom has had numerous preventable medical issues since moving to AL and Dad is uncomfortable advocating for her on his own. The one sibling has always been a my way or the highway type and will not consider anyone's else's input. Didn't want the responsibility of stopping by or calling several times a week to see what they needed and just wanted them in facilities where someone else is responsible. Ultimately this sib declared Dad and me to be narcissists and refuses to have any contact with us because we did the things sib/spouse couldn't find time for instead of waiting for them to get around to it. What a cop out. They proudly wave their "no contact" flag as an excuse for not doing a thing to help with our parents.
With this God awful experience under my belt, I'm now watching my spouse's step mom becoming very selfish as my father in law's health is rapidly deteriorating. She is refusing the help that HE clearly needs because she doesn't want people underfoot and won't give up driving despite everyone's pleading. I have recommended the family hire a certified Geriatric Care Manager to try to get MIL to focus on both of their needs, not just her own desires. Otherwise, I'm trying to stay out of it because I'm jaded by how things went with my own family. It seems the older we all get, the more life experiences there are to shape our perspectives, good and bad. It's easy to get married to our own ideas as a result. I'm hopeful that someone that is not a family member but an objective third party knowledgeable in all the options can get everyone on the same page before these family relationships are strained to the point of breaking.
Has anyone had a positive experience with a GCM in a prickly situation? How did you choose a GCM?
Parents are precious. Caring for them is a priviledge. It's a gift we have been given, so that we might be close to them once more, before God takes them. It's as they say, "the present is God's gift to us."
If you could get Mom to Assisted Living, it would take 80% of the burden off your shoulders. You can still see her as often as you want, without getting worn down to a stump.
Keep in mind, a lot of childhood issues come out during this time. Each person must find an individual way to manage and keep those personal issues out of the care of mom.
Good luck to you all.
You must all be feeling so thin-skinned you might as well have been flayed. Look, I'm the youngest, and my mother's caregiver, and I get called over-protective, secretive, controlling etc etc etc too. We are slowly slowly sorting it out, and by endless patience and a good deal of lip biting we're getting there.
You all three need to link arms and remember that you are in the same boat and aiming for the same place - your mother's safety and wellbeing. There are *bound* to be differences of opinion about how to get there. So draw up some ground rules about communication - no interrupting, no contradicting, no personal remarks, everyone to be cc'd in every email, that kind of thing - and see if you can't start again. For God's sake be nice to each other - you've got enough troubles without falling out.
The end result of this story, is that I started seeing an excellent counselor a few months ago to deal with the horrible treatment of me by my siblings, and now I have chosen to "divorce" my family of origin. I'm moving on and I am already seeing that my life if becoming much better without them.
It is amazing to me now that so many families try to have relationships with each other, no matter how dysfunctional, just because they are blood.
I hope you find your answer to this to be much less a problem than mine was. Just be aware that the strange and aggressive behavior of your sister, can be a huge red flag of something not right.
For 2.5 month you said that all went as well as could be expected. So be sensitive to one another and be glad that there are several sets of eyes and ears near to Mom to see how she is doing. Share the troubles, joys and small successes of caring for a parent!! You will all be bonded and have a better time of it when mom is gone!! Blessings to you!!
I doubt if the current arrangement of splitting up the week of coverage will be workable for an extended period of time. However, perhaps the siblings can supervise the mother's care with a live in caregiver or mother attending adult day care for the work week. Perhaps an assisted living situation will work. But regardless of which way the siblings turn from now on, the supervision and payment of the care will be decided by the 3 of you.
This is the legacy your father has left. You will be able to figure it out but you will be formulating the Plan B for Mom. If everyone can keep Mom's needs first it will be solvable.
I would see an elder lawyer to get paper work in place so someone has responsibility for the financial costs and someone has the ability to act in her behave for health matters. She is unable to handle this herself and the spouse is gone so you need to have a replacement. The good news is you have siblings to share the work. Being an only child I had it all on my plate. So you do have an easier route if everyone continues to work together.
Now, he seems to have settled down a bit. He's appreciative of what I do and that I go to great lengths to keep him informed on a weekly basis. In our last phone call, he thanked me and I thanked him for having a pleasant discussion.
Although he is my brother, he is not my friend. We have to keep ourselves civil for everyone's benefit. If he starts yelling at me again, I will go back to email-only form of communication.
I guess my point is there are blessings in emails. Hope your situation will improve!