My uncle's room is a hoarding nightmare. Old rotting food, newspapers, magazines, soda cans and tons of garbage he takes from the kitchen rubbish bins. He is impossible to talk to and always plays the "victim". His excuse is he doesn't have the energy to clean. But he sure has enough energy to go to the supermarket and buy junk food. He is diabetic and two weeks after I had to call 911 2 nights in a row for them to pick him up off of his filthy room floor, he sat down and ate 29 cookies in one sitting.
I am at the end of my rope and this situation is having several adverse effects on my physical and emotional health. Please advise me on what to do.
You have to care for YOURSELF here, and since his actions are taking such a big toll on your physical and emotional health, I don't think you have much choice but to send him packing.
Good luck!
Please understand that hoarding is a mental illness, so trying to reason with him on any level will be unproductive and a waste of energy. I would talk to the landlord and try to separate yourself from him so that at least you don't have to get punished as well, unless you are counting on Uncle to pay part of the rent.
You have 2 options: be preemptive and just move and leave him to experience the consequences of his choices and never move in with him anywhere again. Or, see if your lease allows you to separate yourself from him and try to get to stay where you are. You can make 1 final attempt to explain to your uncle that he WILL get an eviction notice and after it is posted for 30 days they can forcibly remove him and he better have a back-up plan. Whatever you do, DO NOT help him clean his room. He must do it himself. Which he won't do because he's a hoarder. He will just fill it up again and then rely on you to rescue him.
Another option: if there is a "next time" he has a medical episode and goes to the hospital, contact their on-staff social worker to explain it would be an "unsafe discharge" to allow him to be released back to the apartment. Do not go to get him. Request that they do a cognitive exam on him and show them pictures of his hoarded room. If they decide to act upon your information they will most likely move to pursue guardianship for him so he can be placed in a facility. How old is your uncle? If you do not have PoA or guardianship for him there will be very little you can do for him legally to help him anyway. I wish you success in protecting yourself in this situation but please don't get sucked into the dilemma he created for himself.
Who's on the lease? Both of you or just you?
Uncle I'm moving in 60 days. Here is a phone number for a social worker. I suggest you call & get services to help you;
1. Clean up
2. Find new accomodation
3. Move
Unless you are your Uncle's legal Guardian? In which case, you can call a social worker to assist both of you.
There is no fixing a hoarder other than to get them to a place where they can no longer hoard, no access to items to hoard, a more controlled environment. And during that transition, they will probably need to have some sort of medication to cope with the change, it is very emotionally taxing for a hoarder to lose his hoard. For your uncle's sake, he needs a level of care you cannot provide.
I hope you can the necessary steps for your uncle's wellbeing and to be able to continue to live where you want to live.
There is a good book worth reading: Randy O, Frost & Gail Steketee's "Stuff: Compulsive Hoarding and the Meaning of Things" (published by Houghton Mifflin/Mariner Books, 2011). The reviews indicate "The authors are refreshingly uncertain about what the causes of hoarding might be and rely upon a series of in-depth profiles of women and men, each of whom they treat with remarkable compassion and respect... An utterly engrossing book... 'Stuff' invites readers to re-evaluate their desire for things."
All the best
Love and Prayer
If it was me Hire someone to clean out the room AND then have someone clean it weekly; If your uncle doesn't like it have him move into an assisted living.
cleaning service(s) back to him.
Has your uncle always been a hoarder? If so why did you let him reside with you or why did you move in with him? (nothing in your profile for more info)
My Husband was a collector of things, not quite hoarder status as he used the things he found but the increase of finding things increased with his advancing dementia, even if he was not officially diagnosed at that time.
So is is possible that your uncle is in early stages of dementia?
I suggest that the next time you have to call 911 you ask them to transport your uncle to the hospital. At the hospital you talk to the hospital Social Worker and say...."He is not safe to be discharged to my home" If he is not on the lease Say "I can not care for him safely"
If the landlord is starting eviction and you are moving out you can also say to the Social Worker "At this point he is homeless, has no home to return to"
Mom is also prone to hoarding, depending on what you consider hoarding but was always able to keep things clean or at least cleaning up when company came once she was living by herself. It wasn’t until after her stroke that we realized just how bad things had gotten in her room that she kept everyone out of. All our lives that was where stuff had been put to get them out of the way for the “clean up” so cluttered but when we went in there to retrieve some clothes and stuff while she was in rehab we found test strips all over the floor amongst food and papers, syringes collected in the oddest places...and came to the realization that her heart condition had been far worse for far longer than she had lead on and the truth was she really didn’t have the energy or ability to clean up both emotionally and physically. We did it while she was in the hospital and rehab and while granted it was some time before she went back to even visit her house, it was like ripping off a bandaid and while embarrassed i think it was a relief to have it done when she did see the house again. We threw out trash but we’re very careful. It to throw outa lot of stuff we thought should be so she could make that decision. Now her cognitive decline might have helped a bit too because we were able to bend her memory a bit that it wasn’t as bad, we hadn’t done as much as she was thinking. Anyway my point being, if your uncles hoarding is a life long thing and he is both physically and mentally all there otherwise so he is able to live on his own that may be different from a relatively new development that might have some root in hidden health issues contributing. Either way continuing to suffer on the sidelines isn’t helpful for either of you and I agree it’s time for some action on your part which could be as simple as starting with insisting he have a complete physical and allowing you to be an active part of discussions with his PCP and any specialists. Remember health stuff can be so frightening for us that we just try to bury it rather than face it head on, you may need to be the brave one here to break that cycle and your uncle may need all the love and reassurance you can muster for him to get it done.
I would submit that not only is forcing this issue one way or another important to take care of yourself but also to take care of him. It won’t be an easy road but the future is better on the other side or at least clearer for both of you. Sending you strength!
And I've lived the damage that can occur physically from trying to be the best caregiver. It's been said here before...every area of our country is covered by a local Area Agency On Aging. Google it, or call your city hall and get connected. You may have a local office on aging. Get others involved. If your uncle is functional enough to shop on his own, then I am going to assume he is mentally competent. So there needs to be a chat about the dangers of the situation--that you both are at risk of eviction by the landlord. Rotting food can attract bugs. God forbid there is a fire it creates a dangerous challenge for the fire dept to rescue people. Take good care and sending you good wishes for a good outcome. Small comfort but know you are not alone, and that you can't control or fix this especially on your own. Do you have access on the computer for a group called "next door"? You may be able to ask there if anyone has any experience with getting help. This is a dumb question, looking up again at your story...but he's taking stuff out of the kitchen bins....can they be emptied or not used? I'm sure this will be a massive inconvenience...but that might help. Where's your car? Can you keep a sealed bag in your car and lock the trash up in there regularly until you can take it elsewhere? One more idea: my mother has dementia. Our city provides 2 huge trash bins with flip tops, one for trash, one for recycling. My mother was not only mixing both, but she was constantly throwing out things of value: mail, including bills, container lids (including from nice container sets) things that were not HERS. we ultimately found a refrigerator lock on amazon that adheres in two parts with a super strong adhesive. I wouldn't be surprised if your brother might find a way to defeat that...but in our case these adhesive bases have an opening where a piece of super strong cable goes through, and has a small loop on the end. The loops from both bases meet, and you can run a small lock through it. I used a small luggage combination lock so there was no key to hide and look after. For us it did the trick. Locks seem to alleviate a lot of issues:-) at least at our house. You might be able to put something even stronger on closet or cupboard door so the trash is locked up and he has no access...but sadly, you must realize, none of these "tricks" will resolve his underlying emotional illness. Sending hugs and hope...
This isn’t easy. I had to do this with my parents. As a clinical social worker, it helps to have a group of professionals and family/friends to address the situation and do an intervention if possible. If he can’t change with therapy, I see that you have little choice.
Explain that paramedics coming because he creates his own diabetic issues is going to get adult protective called about you because of condition of room that they see when they come and overall health issues that seem to happen over and over. You don't want to get in trouble with adult protective or the landlord, so he must change his ways.
New rules - no more food in the bedroom. Must be cleaned each day before it gets out of hand and he doesn't have energy to clean a big mess. Sweets must be controlled to control blood sugar. If he can't or won't do these things, he will need to go to nursing home (if medically eligible) or find another place to live on his own. Living on his own will create the same problems he has now and if his next landlord puts him out, and he has no where to go, what will be the plan?
If there is any family, whatsoever, see if they can help you with intervention family meeting.
Who's name is on the lease? If yours, tell him it needs to be cleaned up (you help or get helpers, as his expense; do not rely on saying 'it needs to be cleaned up and leave it at that). Give him a date when you or others will be there to 'help' him. If he says NO, can you give him an eviction notice?
Why are you putting up with this?
Hoarding is a disease.
He obviously does not take care of his health, nor care. He is taking needed emergency resources away from those who need them (in your community).
What is stopping you from 'putting your foot down,' and making decisions? Setting boundaries with him?
Of course this situation will have several adverse effects on your physical and emotional health, as you say. Why are you allowing this? Love yourself enough to do what you need to do.
Why is he living with you? Is this what you want?
It sounds like there are other sides of this scenario that we haven't heard.
I believe you know already what many of us are saying here. For your well being, I hope you make some decisions and set boundaries.
I think the shrink will advise placement where the staff knows how to control his invironment while he gets therapy for his mind. If you have a caregiver mentality and have a need to continue care...."help" will be by professionals who will advise every thing you need for support. Get started with Karen the care advisor.
Set house rules.
1. Room must be cleaned up by him or who he hires within 5 days.
2. Stuff in the trash cans stays in the trash.
3. No Food, none in his bedroom at any time.
4. For every 1 collected item that goes into his room 2 items come out and discarded.
5. You are allowed to inspect room as needed and take any remedial actions.
He either lives by these rules or moves out.
I agree hoarding is an illness. Seek out help with social services; elder agency, protective services whoever you can contact who can assist you. When he cries victim, you can always tell him what my mother told me growing up - "Whoever said life is fair." This doesn't mean you can have compassion for him, but you have to stand your ground or look for new living situation for yourself.
My mother owned her own house and nobody lived with her and she was competent, so I was told there was NOTHING i could do about it. Competent people can live any way they want.
YOU take care of you and YOU move out. Let your uncle suffer the consequences if he is a competent man with mental illness. He will get kicked out and have to find another place to live.
You can't change someone who doesn't think there is a problem.
KICK HIM OUT...or you will get kicked out too. I know it is difficult to evict someone but that ends up as part of your permanent record which future landlords can access if it requires a court order to evict you. Court orders are public records anybody can access it and landlords will look.
Review your lease in the evictions section. Find out if the landlord has a choice to evict 1 of you OR if he/she must evict both you. I recall when gong to school many years ago, our leases said everyone within the apartment would be evicted. Even if you can stay, depending upon how stressed you are with the landlord, it may be more peaceful to move to a place not associated with so much stress. PLUS your uncle would not know where you lived and less likely to disturb you.
If you signed the lease, (lessee) you accepted responsibility for the actions of you, any co-tenants, and ALL your personal visitors. Remember - in his mental state he may not even understand this!
How does he get to the market to buy groceries? I hope your uncle does not use your car - remember you are still responsible for his actions because you are the owner/insured. He gets into an accident in your car - you are suddenly party of claims, lawsuits and added stress. If you live at different addresses it will be harder for him to get the keys to use your car.
Landlords have safety and insurance concerns in addition to the cost of evictions. At minimum, adjoining neighbors are also at risk due to your uncles behaviors. Lack of cleanliness eventually leads to pest control issues likely to creep into adjoining units. Trash is a fire hazard for neighbors as well. I think if your situation gets bad enough, the landlord really has no choice but to evict you.
In addition to the mental toll this takes on you, your physical health can get quite compromised in this environment. You will be exposed to allergens like dust and mold, and insect or rodent feces. You are just as endangered when it comes to fire and trip hazards. Do you deserve to take the fall with him?
In the mean time seek information from county services, and local mental health organizations so you can be better prepared to deal with a hospital's care team to get him placed into the appropriate living arrangement.
As soon as 911 ambulance take him to the hospital ER, don't take him home upon discharge. Between the moment of admission and release do not come pick him up. If he can not be released independently, they will have to find a place for him. Even if they say COVID or something else makes placements hard. It's now on them to manage his physical/mental status and his place of residence.
Tell the hospital he needs to live in a special home and that you can not do it anymore. You're done. Move on without him. Save your health and sanity.
Minimize your financial loss - not covering the costs of a bad co-tenant will also destroy your credit and ability to rent in the future.