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Dear Brenda, I just read your profile about how you think that you might be symptomatic of Dementia and I wish I could help. My mom had it and I know how hard it was for her.
If you want to not be involved with the site just ignore it and it will go away. You don't have to do anything and when you get an email notification about this question you just asked, click 'unsubscibe from this discussion' in your email and that will take care of that.
You are certainly right when you say that this getting old is a bitch! I hope you get some support with your health issues so you can have less stress.
And, maybe we should have a thread for folks like yourself who are fearful of the possibility of dementia and what kind of options they have and what they could do.
Dementia runs in my family too so at least you know that you're not alone even though I know that is no comfort.
My mom had dementia in her early 50's. I'm soooooo forgetful. I don't know if it's stress from caregiving 2 bedridden parents (mom passed away this past March). All I know is that I am frequently forgetting what I was going to do. I forget what I was going to say - mid sentence. And worse of all - I'm struggling with balancing my checkbook! I've been off by $1000.00. After a week working at it, I finally got it down to $500.33. Sigh...I fear that I was suppose to pay a bill or bills and I can't remember which ones. I worry that it's early onset of dementia.
I've been brainstorming what I can do if it's dementia. I work as bookkeeper and sales in my work. So far, my work's books have not been affected yet. When it starts, I will need to quit my job. I sooo understand your view.
If you really want to stop receiving anything from here, go to your profile. Edit. And click on subscriptions. And click (or was it unclick) all the notifications. That should stop ALL emails going to you.
But if you really want to completely get out of here, then email the AC's "contact us" and they will make you become "Anonymous xxxx" I'm sorry that this was not the site you were trying to find. {{HUGS}} and wish you well in your journey.
Thank you so much! My mother died at 97 after many years of dementia. It was a really hard time. I have told my daughter that when my mind is gone I don't want to be here anymore. She said, 'and what would you like me to do about that'. lol
I thought I was having onset of dementia because I was sooooo forgetful. The neurologist said that just having conversation with me - he can tell that I don't have dementia. Just the regular forgetfulness. I still don't believe him. I'm getting close to age 50, when mom started showing the signs.
Have you taken the Alzheimer/dementia test? When mom was showing signs, the neurologist came to our home and gave her a series of memory tests. If you gave me 5 things and asked me to repeat it in chronological and then reverse, I guarantee you that I won't remember it! I bought Vit.B supplements but never got around to opening it. Also, important to get Vit.D. And Exercise (which I'm not doing) so that oxygen can go efficiently into our brain cells. And on and on.
I laughed at your daughter's response. When someone on this site makes me laugh loud, I put their comments into my file of "FUNNIES". I hope you don't mind that I copy and paste it. Thanks for the laughter!
Maybe this IS the time to start a thread for those of us who think we might be 'catching' this insane disease!
I think one of the terrible things about it is that we wouldn't want to inflict ourselves on someone else for care like what happened to us and on the other hand where would we go?
I preach 'placement' after what I experienced with my mom and I always thought that I would be able to find a place somewhere when the time came but I have no idea wtf to do so I am trying to cram a lot of living into the time I have while I can still find my car keys.
It does open a lot of questions and maybe there are lots of folks out there who are experiencing this and are afraid to talk to their families because people who don't know any better hear 'forgetful' and want to take over everything without understanding or finesse.
Thank you so much for your comments! They are a lot of help. Makes me feel a little better. I really wish there was a site like this to help those of us who may be dealing with the same dementia our loved ones had or has.
As I told Melissa when she emailed me, I think I will stick around for awhile and see how it goes. Definitely let me know if anyone comes up with any ideas, please. Glad I could make you laugh, Book.
Brenda, I'm at work. There was one poster who came on this site who had dementia. Very very smart man. He gave us an insight of their point of view. When I get home tonight, I will dig it up. I think you will find it a very, very interesting read. (some was a bit over my head.)
This is the thread in which Menohardy would post. You need to read his words carefully because sometimes he posts. If he's having problem, then his daughter would type his words for him. And sometimes, it's the daughter posting to us. So, if you read it carefully, you will be able to tell them apart. This is a unique thread from the patient's point of view.
Brenda, I had to read his post over and over to understand it. Most times, it flew right over my head. But when I read other people's response to his comments, I then re-read his words and - tada! - I understood a Little bit. =)
But as you read his/her comments, you will learn some of the things daughter has done for him. She was one very firm but caring daughter. I copied and pasted that website so that I can go back once in a while to read it.
Tell me what you think, okay? I think I will re-read it again!
There's also another story that I would love for you to read. It's by one of the "owners" of this site. I will dig it up and have you read it too. Fascinating!
Brenda, let me give you a little background. When I first found this site in June of 2012, I was suicidal. I was googling for how to care for 2 bedridden parents (father just had a stroke at May 2011) and my siblings didn't help me. So, a year later, I was overwhelmed from caregiving both parents, fulltime job, and get up through out the nights to suction mom's trache or she would choke on the thick phlegm.
I happened to read this article about chores and mother-in-law. At first MOST of us did NOT know that Menohardy (who is now Social1) was NOT a caregiver but a person inflicted with dementia! Only later, we understood this. So, when his story ended at his death, I backtracked and copied the BEGINNING of his posting. So the site you click on, is the beginning of his story.
1kemple, are you asking about stopping the emails? If so, go to the box on the right side of this screen that says "My Account".... now click on "Edit Account"... now click on "Emails and Newsletters" and that is where you erase whatever was checked.
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
I just read your profile about how you think that you might be symptomatic of Dementia and I wish I could help. My mom had it and I know how hard it was for her.
If you want to not be involved with the site just ignore it and it will go away. You don't have to do anything and when you get an email notification about this question you just asked, click 'unsubscibe from this discussion' in your email and that will take care of that.
You are certainly right when you say that this getting old is a bitch!
I hope you get some support with your health issues so you can have less stress.
And, maybe we should have a thread for folks like yourself who are fearful of the possibility of dementia and what kind of options they have and what they could do.
Dementia runs in my family too so at least you know that you're not alone even though I know that is no comfort.
Good luck,
lovbob
I've been brainstorming what I can do if it's dementia. I work as bookkeeper and sales in my work. So far, my work's books have not been affected yet. When it starts, I will need to quit my job. I sooo understand your view.
If you really want to stop receiving anything from here, go to your profile. Edit. And click on subscriptions. And click (or was it unclick) all the notifications. That should stop ALL emails going to you.
But if you really want to completely get out of here, then email the AC's "contact us" and they will make you become "Anonymous xxxx"
I'm sorry that this was not the site you were trying to find. {{HUGS}} and wish you well in your journey.
Have you taken the Alzheimer/dementia test? When mom was showing signs, the neurologist came to our home and gave her a series of memory tests. If you gave me 5 things and asked me to repeat it in chronological and then reverse, I guarantee you that I won't remember it! I bought Vit.B supplements but never got around to opening it. Also, important to get Vit.D. And Exercise (which I'm not doing) so that oxygen can go efficiently into our brain cells. And on and on.
I laughed at your daughter's response. When someone on this site makes me laugh loud, I put their comments into my file of "FUNNIES". I hope you don't mind that I copy and paste it. Thanks for the laughter!
Maybe this IS the time to start a thread for those of us who think we might be 'catching' this insane disease!
I think one of the terrible things about it is that we wouldn't want to inflict ourselves on someone else for care like what happened to us and on the other hand where would we go?
I preach 'placement' after what I experienced with my mom and I always thought that I would be able to find a place somewhere when the time came but I have no idea wtf to do so I am trying to cram a lot of living into the time I have while I can still find my car keys.
It does open a lot of questions and maybe there are lots of folks out there who are experiencing this and are afraid to talk to their families because people who don't know any better hear 'forgetful' and want to take over everything without understanding or finesse.
Any ideas you guys?
lovbob
Thank you so much for your comments! They are a lot of help. Makes me feel a little better. I really wish there was a site like this to help those of us who may be dealing with the same dementia our loved ones had or has.
As I told Melissa when she emailed me, I think I will stick around for awhile and see how it goes. Definitely let me know if anyone comes up with any ideas, please. Glad I could make you laugh, Book.
Hugs to you both,
Brenda
https://www.agingcare.com/questions/Expect-elder-to-help-with-chores-147757.htm?cpage=14
But as you read his/her comments, you will learn some of the things daughter has done for him. She was one very firm but caring daughter. I copied and pasted that website so that I can go back once in a while to read it.
Tell me what you think, okay? I think I will re-read it again!
There's also another story that I would love for you to read. It's by one of the "owners" of this site. I will dig it up and have you read it too. Fascinating!
I happened to read this article about chores and mother-in-law. At first MOST of us did NOT know that Menohardy (who is now Social1) was NOT a caregiver but a person inflicted with dementia! Only later, we understood this. So, when his story ended at his death, I backtracked and copied the BEGINNING of his posting. So the site you click on, is the beginning of his story.
Here it is:
https://www.agingcare.com/questions/living-with-negativity-and-emotional-abuse-from-parents-151695.htm?cpage=2
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