My mother-in -law is 77 years and a stroke patient with type 2 diabetes , pace maker, copd, to bed. She needs help in and out of bed, on and off potty, confined to wheel chair. she needs continuous around the clock care due to her stages of dementia.
If you live in the States, see If your parent qualifies for Medicaid, the State might allow a trained Caregiver come in to help for a couple hours. Also check to see if your State is one of those States that has a “Cash and Counseling” program to help you out, it‘s worth looking into. Note that each State has their own rules, regulations, and programs.
Also contact your county agency on aging for programs such as Case Management, Meals on Wheels, Adult Day Care, housing, care referrals, etc,... go to the website link below.... click on your State.... now click on the city/county. https://www.agingcare.com/local/Area-Agency-on-Aging
And please come back to the forums if you have any Caregiving questions, we would be more than happy to share our experiences with you, and give you ideas on what to do.
If her level of skilled care needs exceed whatever your state places as the maximum allowed (32-40 hrs) , medicaid will not pay beyond a certain point as that level of care needs skilled nursing care in a facility (a NH). Medicaid pays for NH in all states at participating facilities.
Now mediCARE's hospice benefit could be available to her if it's is determined that she is likely terminal within the next 6 mos. Being bedfast alone is one criteria for hospice approval (my mom was on hospice 18 ms after a hip shatter @ her NH and was bedfast that entire time). At home hospice is a wonderful benefit but limited to maybe 3 - 4 visits of 2 - 3 hrs per week by hospice. Family is fully expected to have someone there the rest of time for caregiving.
Often family use the elders SS & retirement income to pay for a caregiver during the day while they work & family does evening & overnight duty. Your mil has income of some sort which can be used to pay for caregivers whether paying family (you should have a legal personal services contract done so no issues with Medicaid on gifting) or paying a service for caregiving. If this isn't bring done, why not?
If your hope is that there is going to be a program to provide 40++ hrs a week caregiving for mil in your home that the government pays for, well not to sound harsh but, that is just not going to happen. The cost efficiency of doing this at someone's home is not there, much less the ability to have skilled care as needed. 24/7 care = NH.