Both my elderly parents 87 and 85 have caregivers during the day and a few hours in the evening. They also have someone for five hours on the weekends. I committed to one day midweek to be their caregiver. Just before the weekend I start to stress and worry that I get a call that the caregiver will call out and the agency has no one who could fill in which is why I found a group of skilled aids who are used to fill-in privately. I am 56 and have two children in middle school. I worry about missing out on their weekend activities in case there is no one to cover helping out and my parents. My brother has been temporarily staying there since my dad‘s fall also does not want to place them in AL. Unfortunately I feel that this will be my life going forward having to constantly worry plus I live an hour drive away so I’m not totally nearby to fill-in. My dad is very adamant and does not want to go into assisted living, and my mom has vascular dementia. The worrying makes me sick to my stomach and I feel that I will never be able to make plans on the weekend with my husband/kids or go away for weekend since I feel like I need to always be on standby. Appreciate any suggestions.
As long as your patents are dependent on some help, you may have to remain flexible about your own weekends.
For several years I did not take a promotion at work b/c I needed to be available if my father needed me at a moment's notice.
Only after he died could I take the promotion and work full time.
I have never heard of this. I do not know if this is true (statewide or nationally).
Frankly, why would an agency be in business if this legal 'remedy' is hanging over their head. DO READ THE CONTRACT YOU SIGN with an agency. If this is a loophole, they likely cover (themselves) in a contract so no liability.
Possibly, this stance may be an ace in the hole, however doesn't do anything in the moment with a 'no show' in present time. Not to mention that this agency would not be available in the future should they know you reported them.
* It seems to me that the only way to manage this is to have a back up for the back-up. No-shows happen. Traffic happens. Personal emergencies happen as well as "I wanna go out with my friends tonight" happens ... It puts family / the person needing care in an awful situation. I wonder if a live-in is a possibility? Not that they would be 'on 24/7' although you might be able to discuss this potential need on occasion.
First, you must stand up for yourself to get your needs met in order to (1) function; (2) be available to care for your parents; and (3) set an example of self-respect, self-care to your teens.
If this caregiving thing doesn't work for YOU, then it doesn't work.
"I can't commit more than one day aweek to this venture; if that doeant work, you'll have to make other arrangements".
As women, we are trained from birth to give in, please others and lend a helping hand. It's high time you stood up for yourself.
And if the menfolk get mad--so what?
This woman must take measures to stand up for herself - if she cannot do it for herself, she needs to consider her children and realize the lessens they are learning about themselves. Yes DO NOT LET OTHERS DESTROY YOUR LIFE. Do not allow your teens to experience this happening (to you, and them / the family unit).
It works. Another way idea is to call the agency and have a long talk with the Supervisor or whomever handles the schedules. Tell them how badly you need to have the help. This is just an example: we had a husband come in and talk to us about his wife’s needs. He stressed the fact that he goes out of town. We received the dates he leaves. We in turn call the aides that are supposed to work these particular days and reiterated the fact the she is needed and the family won’t be able to back up. It’s working great
( so far).
I would have a long talk with the caregivers immediate Supervisor. Let them know what’s going on ; (your thoughts matter). If you’re current agency can’t help you or doesn’t have back up call in a different one. Your going to have to get the Service Coordinator involved if you need to add an agency.
Please don’t get me wrong we make sure all aides are aware of their schedules however, this industry is extremely short handed. Ppl don’t want to work. They are getting more staying home, or working elsewhere bc the reimbursement rate is terrible.
Talking with the agency helps tremendously. They need to feel you’re concerns. You need to tell them how you feeling. Threaten to remove the hours to a different agency. This should get their Superior to hear you.
The unfortunate part is that we can’t force them to come in ; although we can threaten their position if they don’t. A no call no show is a person (in my opinion) who doesn’t care.We will let them go if it’s not an emergency. Sometimes ppl take advantage if they are given too much slack. Maybe the agency is too lenient. I don’t know.
If talking to your agency and or adding a different agency to help fill the hours doesn’t work. You can take a different way. Turn the agency in for not showing. This is called abandonment on the agency behalf. You will get you somewhere hopefully doing this.
This is a big step though. It’s drastic. Getting the Dept. of aging involved Can get the agency in trouble.
My advice is to talk. Talking about how you feel MATTERS! This is your family and please step up ( if you already haven’t). Your parents have rights and the agency knows that. As do you as an advocate for your family.
You said you work with the agency? You may be able to have a heart to heart with someone at the agency that you feel comfortable with.
I know that I have suggested talking many times. I can’t stress it enough. Also, don’t worry about being an employee through the agency you’re having trouble with. Most agencies love to have family help family. Do you have anyone else that you trust to work these days that are in question? If so, see what you can do about getting them
on board with this agency. This helps out a bunch especially now that Homecare is so short handed.
I hope you can get past this bump in the road. . It’s very difficult time for everyone. The world needs to come back to life soon. Seems like most places need help, not just the health care field. Good luck to you and your family.
Take care!
You are indeed mistaken about people not wanting to work.
No one is going to take on some miserable caregiving position every week-end for minimum wage or just above unless they are indeed desperate. Don't expect reliable quality care from any person so desperate. Also in-home caregivers are essential workers. They're not the ones benefitting from the sweet unemployment compensation as of late.
There's an old saying. "You get what you pay for".
If care agencies made it worth someone's time to take a job week-ends with lousy hours, they'd get good people. They don't though.
The office staff who gets benefits like insurance, paid sick time, holidays, vacation pay, week-ends off - make better money then the aide in the home who gets none of this from their agency, yet are the ones changing the diapers and baby-sitting the dementia.
I always say hire private if you can. Offer people good money and you'll get good service.
Pretty much unless you move your parents into AL or a care facility there's a chance that you will miss one your kid's soccer games once in a while.
Unfortunately, when families hire in-home caregivers far too many truly believe that their elderly "loved one" is supposed to be the top priority in the caregiver's life. That nothing else matters and they come first. It's a job. Is your job the top priority in your life? Do you put it before everything and everyone? My guess is no. In-home caregivers don't either. We have our own lives and families. We get sick and take time off from our job. We like to go to our kid's soccer games. And sometimes we just need a day off. So we call out and we take one.
Just like you and the rest of the world.
If you want to go on a vacation, hire a temporary stay respite care worker to stay at your parents' house. The choice is accept the help or wait for something bad to happen which will mean nursing home placement. This is the only way. No one wants to move out of their home or see their life change. This is especially true with the elderly. I'm sorry to say, but sometimes our "stubborn" elderly have to learn the hard way and something has to happen before they accept that their living situation has to change.
Go ahead and make whatever week-end plans you want. Or plan a vacation. If one of the caregivers cancels and your father calls you to come, you have to tell him you're not. That because he refuses to do what's best for your mother and himself, he's on his own. It's hard to do this, but you'll be doing both of them a favor. Your father will hopefully see reason. Good luck and I hope it works out for you and your parents.
It's so much better than being in a Senior Home where they lose themself and have people telling them what to do all the time.
Senforcement Homes can seem great and let you see and think what you want to see and think and tell you everything you want to hear but it only eases your mind, it's not best for your Loved Ones.
Most are very understaffed and if you can't get to the bathroom by yourself than expect to have accidents or ask to go to the bathroom 30 min or more before you actually have to go.
Also, If your labeled a trouble maker and it may only be because you ask for help too much, they will let you know that medication needs to be given and then your lived ones end up on meds to calm them or whatever reason they come up with to make it easier on the Nurses and Aides and your loved one will be passive and more zombie like just so they just sit in their chair and not bother anyone.
You just need to get over yourself from worrying about them and know they are much better off and happier and feel safer in their own home.
You might get a Camera installed so you can check on them anytime you want 24 7.
I had my son install 3 Nest Cameras in the main rooms my 97 yr old Dad goes in.
I have 24 7 Caregivers for him but I felt so much better after the cameras were installed. because even some Caregivers need to be repremended and my Dad with short term memory wasn't able to tell me what happened because he forgets like 5 or 10 minute's.
You already have Back Up Care arranged in case someone can't come which is great on your part.
What you should do is hire a couple Caregivers to fill in the one day you said you'd be the Caregiver.
You'll feel much better to just be visiting not be a Caregiver.
This way if something happens you'll be able to have additional back up from more than one place.
Beleven me, your parents are way better off in their own home.
Praters
Unfortunately, you are right. More times than not something bad has to happen before a "stubborn" senior will accept that their situation has to change for their own safety and well being.
Alternatively, as for the sporting events, etc., your parents would probably love coming along once in a while. I understand that would make for a long drive, but it would also make for wonderful memories.
If you feel you are neglecting your teens, look at another perspective — you are training them to put family first and how to maintain a relationship with elderly family members (this will be you!).
Remember to savor every minute with your parents. They have already outlived the average life expectancy in this country. Time is fleeting.
What are your father's health issues? Why is he "finally getting stronger to walk again"?
" They cannot be unattended for long as they both need help with bathing and toileting."
"We grew up believing that Italian families do not put their elderly parents in a nursing home they take care of them and both their wishes are to continue living home. My dad’s mom lived with us growing up until she died.
We currently are remodeling the detached garage to make a one level apartment walk-in shower and live in space for them. Because my brother is local I’m sure he will need to continue staying there at night to ensure their safety until he has had enough and decides to do an overnight aid."
Who is paying for the aides now? Your parents? Do you have POA/HCPOA? What is your parents' financial situation? What is your brother's role in all of this? Why isn't he willing to take them in?
There weren't the medical procedures in the Old Country that there are here and now, so consider your parents could live to a very old age although severely compromised. Is there money for eventual 24/7/365 care for them? Or is that going to be the plan for you? Who is paying for the remodeling to your home?
While it all sounds so good now, realize that things could change drastically for your family once your parents move in. And your children's lives could be greatly affected. Please read through this site and see what you are going to be in for as your parents age and they are living in your house.
Inconvenient or a real safety concern?
No help getting dressed, to wash, have a hot meal served, be driven somewhere?
Or unable to get out of bed, get any sort of meal, water, meds, continence care?
My relative has decided staying home is priority one so she is willing to accept no care on occassion, even though this results in staying home, missing appointments, staying unwashed & undressed. Not ideal, but as she can do food & meds, is not so dangerous.
As far as ‘weekend’ help goes, you have made arrangements for others to fill in. Pass those phone numbers along to your parents and your brother. You are fortunate to have a brother who helps with his parents. Not all sons do this and everything falls on the daughter. I took care of my parents. It’s a tough job! I understand that you don’t want to miss out on activities. I missed out on a lot of things.
What would happen if no one would show up? Do you feel that is what it will take for your father to realize that they do need to make alterations in their lives? Would you cave in and resentfully stay with them on the weekends? Would expect your brother to do it? Would either of you tell your parents that you deserve to live your own lives and you will not be available for them?
We currently are remodeling the detached garage to make a one level apartment walk-in shower and live in space for them. Because my brother is local I’m sure he will need to continue staying there at night to ensure their safety until he has had enough and decides to do an overnight aid. My twins who are 13 now are my whole world and took me a long time to Conceive so I do not want to miss Anything about them growing up.
Provide her with the relief staff contacts, and ask that she not 'call out' unless she has someone arriving in her place for her shift, before calling you to let you know?
As a temporary secretary (volunteering) for a nursing staffing company, getting the no-show errant nurse to call back; and also getting the relief person to answer and agree to go was a tense time. When I called the missing nurses, I left messages to call back and answer if they wanted to be taken OFF the scheduling. And that they would need to counsel with the owner to be put back on the schedule.
The nurses started to take the schedule more seriously. But being the in-between person was really hard. So I understand your concerns about your making plans and about being on standby. It is good you have a list of willing aides to stand by. That is really smart!
If you have covered all the bases, there can be less worry. 🤗
Being strict, I would also suggest the nurse to go there and wait for a relief aide to show up to relieve her shift, if possible. That is if no one has been found.
Maybe after some successful weekends you can start to enjoy your family time.
If there was at all enough money to go around, I would schedule 2 caregivers to come on the weekends. 1) 8 a.m. -11:00 a.m., and 2) 10:30 a.m. - 2:30 p.m.
That can be the biggest hurdle. So well done you, Dad & Mom to accept. Oh & Brother for not taking the rediculous stance of you're the girl so you have to be the carer... Or.. is there an undercurrent of that?
I have a relative requiing daily home help. I also offered one day a week, like you. (This was after some time in the trenches at beck & call learning how to set some boundaries 🙃)
The aides would regularly cancel on weekends, or public holidays. I was them called to fill in.
I started to get anxious every weekend, call or not. Would rush by breakfast & shower in case. Wasn't sure if I could make commitments for myself. There's more to the story of how & who was cancelling but one day I decided *enough*. I couldn't live like that. I was back at beck & call, to a care agency! So a 2nd agency was arranged as backup.
That's what I suggest you do. Be signed up with a 2nd agency. It may not be perfect of course, getting a new person who doesn't know their routine etc.
Stick to your one day for your folks. Block out the weekend time for your own kids.
If the care giver does not show up, that does not mean you have to stop everything, cancel your plans and step up.
If Mum and Dad need 24/7 care it is not your responsibility to provide it, nor your brother's.
If they only have care for 5 hours a day on the weekend, that means they are on their own for 19 hours each day.
Have you had a full assessment of their needs and abilities? That is where I would start.
One you have that information you and your brother will be in a better place to assess if they can receive the level of care they need at home.
If your brother does not feel they need assisted living, and they may need a higher level of care, is he prepared to continue to stay with them to meet any gaps in hours?