My father has Dementia and lives alone. My sister, her husband and myself all have POA. His doctor says he needs to be placed in a memory care facility. We have kept him at home as long as possible. We don't live in the same city as dad. And have tried hard to take care of him. But at this point he's way beyond us taking care of him.
Once we have everything in place, how do we actually get dad to the facility? He will not get in the car and go with us, he will refuse, he will physically fight us. Do we have to go to the sheriff 's office and have them pick him up and take him?. He has already threaten if we try to remove him from his home he will disappear. He is home bound and can't drive. (I have his car keys). But he may just take off walking somewhere. He has gotten lost twice already.
We are at wits end on how to proceed with physically getting him there. And him not hurting anyone.
What are our options?
It seems like we have posts like this everyday. People don't understand what a POA is. I think it's the word "power". People think it gives them power of the person who executed it. It doesn't. It gives someone the power to represent that person to others. It gives them no power over that person.
For the Sheriff to help you out, you would need guardianship. That gives you the authority to make decisions for your dad whether he likes it or not. It's a high hurdle though. The fact that he understands what a memory care facility is, knows he doesn't want to be there and has threaten a way to avoid it seems to speak to competency of that issue at least.
I think the best way is to convince him to go willingly. It might not be easy but in the end it might be the faster way compared to going to court to get guardianship. Having him go willingly might also prevent any escape attempts from the facility.
Now with him wandering the streets at night we have no choice put to place him somewhere.
Here is a great article on what you will need to override your dad’s rights.
https://www.agingcare.com/articles/legally-force-move-to-assisted-living-155888.htm
Have you had a second opinion? I would find a good geriatric doctor and get dad assessed by someone that does elderly care. You may find that lower level facility is actually needed or meds adjusted and in home health will be sufficient.
Unless he has been legally declared incompetent, you nor any one else can force him to do anything.
Sometimes we have to step back and let them fail in home before they are willing to do something different.
The facilities we've talked to have said all they need is POA. We have no time left. He now wanders the street at night. Saturday he left me a hesterical message saying he had gotten lost while out walking. He refuses outside help.
It won't be like calling the cops on him. They will be able to use their authority to give him calm instructions that he will follow as a matter of course, without drama or excitement. Discuss the possibility with them and see if they're prepared to provide an escort.
What type of wandering deterrents have you tried? Those suffering with Alzheimer's, other forms of dementia and memory loss have a tendency to wander whether they are at home or in unfamiliar surroundings. They are trying to make sense of the world they find themselves in at that moment.
A couple of articles about wandering:
https://www.agingcare.com/articles/products-and-strategies-for-managing-dementia-wandering-142801.htm
(Please note that I do not think the suggestion of locks on the outside doors is appropriate for your Dad since he lives alone.)
https://www.agingcare.com/articles/wandering-alzheimers-patients-142875.htm
Visual deterrents such as STOP SIGNS that hang ACROSS DOORWAYS and Black or DARK MATS on the floor that are interpreted as "BLACK HOLES" are a couple of ways to minimize wandering of people with Alzheimer's and Dementia.
Here are some websites (Copy & Paste URL to your browser.) of Stop Signs made especially as visual deterrent for wandering. Many of the signs are attached with Velcro-like fasteners so that you can take them off anytime you want to. The sign will need to be removed prior to your loved one going out the door.
https://www.webmd.com/brain/10-ways-to-prevent-wandering#
https://www.alzstore.com/stop-sign-banner-p/0134.htm
https://www.caregiverproducts.com/posey-stop-sign-door-banner.html
https://www.mindcarestore.com/stop-sign-banner-p/mc-0134.htm
https://www.alzstore.com/alzheimers-dementia-wandering-s/1828.htm
“Locator Services for Wandering Alzheimer's and Dementia Patients” Several companies offer (for a small monthly or annual fee) “medical alert systems” for dementia patients with or without GPS. The https://www.alzheimers.net/8-8-14-location-devices-dementia/ website offers a list of 10 Lifesaving Location Devices for Dementia Patients.
https://www.medicalert.org/safereturn “MedicAlert® + Alzheimer’s Association Safe Return®” offers “24/7 Wandering and Emergency Response Services for Individuals with Dementia” offers: A personalized medical ID with the MedicAlert + Safe Return 24/7 toll-free number; 24/7 emergency response and family notification service (with ability to contact the people you designate to step in and help until you are able to care for your loved one again); Personal Emergency Health Record; Six Steps to a Safe Return magnet; Advance Directive Storage.
Until you are able to convince your Dad to move into Assisted living facility or a Memory Care facility, deterrents and/or locator devices might be helpful and decrease some of the stress and worry that you are feeling. Talk to your local sheriff and police regarding which company they prefer and maybe set up a locator system for your Dad. [FYI: One problem is that some people with dementia or Alzheimer's refuse to wear the locator device and you have to hide the device in their clothing or on their shoes.]
Good Luck with finding an option that works for your family. I know how scary it is when a loved one gets lost. My Grandmother would go walking in the corn fields around her farmstead and my Mom tried to wheel out the facility doors looking for my brother and myself.
{{{HUGS}}}
What we did with our mom was tell her she was going to dentist. We took her to a geriatric behavioral health Center for a week plus. 70k but between Medicare and supp insurance, they paid for. She was on skilled for a month post hospital discharge. Then we went to,private pay.
Do I feel guilty? Yes. Was there another choice? Well the sheriff to remove her from home. This has been an unpleasant journey, but we had no choice. But we had guardianship which allowed us to do. And we had to.
Few old folks ever agree to go into care especially stubborn old guys with dementia.
i went through this with my dad not long ago. Took him to lunch with mom at the assisted living place. I left him in the dining room and the staff took over. They immediately got him on some calming meds but he soentbweeks looking for his car. Took a swing at a caregiver once so they sent him for a phyc eval.
POA or not, when it’s obvious that folks can’t go it alone these facilities will do their job.
sometimes even this may not work. He may have to be dealt with by the local authorities after his next adventure wandering around lost.
this is the toughest time. Good luck to you.
We went through this with mom but she went straight from home to AL.
So much of what may or may not work revolves around how your fathers mind is working now of course. Some patients are eased into it by setting up their room with furniture from home so it looks familiar and know how much they forget that they accept being told "this is where you live" but it sounds like that might not work with your dad given his activity level and isolation. Would he see the logic and be willing to move closer to you and or your sister and BIL? Maybe that would be an avenue for getting him to go along with a move and you could transition that to MC? Does he have people coming in to help or be with him at home? I ask because that might help him adjust to having people caring for him before being moved to someplace where that is the point. Would it be possible for him to be in AL first or something that warms him up to group living situation before feeling "locked in"? Does he have any friends or family living in some sort of elderly housing/AL/MC that he could start visiting regularly first to get familiar to that type of surrounding? A hospital stay of course would probably help with a transition like this but a medical event that would cause this isn't something you really want. I do mention it though because should something happen that lands him in the hospital you should be ready to jump on the opportunity. Needed or not you could tell him he's going to rehab from hospital and then work him into permanence from there, you can also in either case make the doctor the "heavy", he or she is putting their foot down he can no longer live alone for safety reasons so here are the options (have "them" ready). But moving from somewhere other than home is going to be easier. You could perhaps come up with a reason for him to need to go for respite care maybe and then once he's there that keeps extending until he stops asking, if he is a patient that will forget and adapt. Perhaps a reason he needs to leave the house for a time (fumigating) or permanently (we can't afford it anymore) would be easier for him to accept? Does he get in the car to go out to lunch or to doctors appointments? Will he get in the car if he isn't thinking he is being moved to a facility? Does he know MC means he will be locked in? I can see how this might be difficult if he doesn't understand the danger's of his wandering, maybe he would respond better if he believed it posed a danger to others or caused you and sis a lot of stress and anxiety? I know my mom often gives in when she thinks she is causing us harm. This is a tough one, I'm sorry you are going through this but it's nice you have your sister & BIL to work with though. Good luck
He will not get in the car and go to a memory care facility. We have tried to discuss this with him and he is adamant that he would , "disappear" and we would never see him again.
So we all getting everything in order to go ahead and place him. He can't go to AL because he would leave and the places I've talked to said they would never place him him AL, he would have to be placed in their memory care.
I appreciate everything you've said.
Flying solo on my own with my mother and grandmother as I’m the only living family member to try and help my own. Best wishes and good luck.
It sounds like you have your hands full too. I have 3 other siblings who have nothing to do with dad. So it's up to me, my sister and her husband to help dad.
I wish you well and best wishes to you as well.
I had a document drafted for my LO that explicitly detailed her symptoms and diagnosis.
It is a powerful tool for managing her affairs, and I have a copy with me EVERY TIME I do banking or ANY SORT of medical management decision for her.
Your current medical personnel may be able to recommend a geriatric specialist dealing in psychiatry, psychology, or social work who can visit your dad, observe his symptoms and question him cautiously about his surroundings, memory, and other cognitive concerns, perhaps prescribe a small dose of a calming/anti anxiety/anti depressive medication, and provide documentation for you based on their professional observations.
If you’ve already had this done, USE IT. If you haven’t, investigate getting this, out of love for your dad, and peace of mind for yourselves.
Medication ...We don't have anyone that can give it to him. We had a neighbor helping out, going over everyday to give him his meds. But he started coming on to her, started calling her 25 times a day. Going up to her house all the time. So she told us she just couldn't deal with him any longer. Which we understand.
These decisions are so hard and take their toll.
My health is failing now. Take care of yourself because in the end that’s what your left with.
I know the guilt that comes with it. I hated spending his money that he worked so hard for, knowing he wanted to be home. But people have different dispositions. My dad isn’t compliant to where he would tolerate someone caring for him at home. He ran care people out when mom was sick. I lived an hour away so I couldn’t be there in a moment notice. Again I felt I dishonored him but not everyone can stay in their home. I wished it could have worked that way but it didn’t. Someday I hope I can find peace in these decisions.
God bless.
Perhaps it might be best to sedate him and transfer him when he is asleep.
Just a thought/suggestion. You may wish to discuss that option with your physician and how to go about it.
So, either way, no matter what how hard you do with your father, he would keep fighting. Be prepared for this situation.
Good luck, and hugs!
She was in hospice care by that time and died comfortably next to her husband in the hospital bed we got set up next to his recliner once hospice began. That was in 2015. He is still there and spends most of his day in his favorite recliner watching his favorite old TV shows like Gunsmoke and Mash.
He joins the others on the memory care floor for meals and there are activities he can join in, but prefers not to do so. He is well cared for and happy and not alone. He remembers his wife, of course, and misses her, but understands it's only a matter of time before he can join her again. I am thankful to have found a place that does this care well and doesn't miss a beat. The memory care floor is a locked facility, so getting out is not possible. I have to use a special fob that is programmed to open the doors to enter or leave the floor. I think most memory care facilities are like that, so you don't have to worry about their wandering. I am grateful for how smooth the move went and that our strategy of making it look like home worked well.
He refuses outside help. Even if he did he would forget who they are and wouldn't let them in his house.
Dad is very difficult to deal with.
I don't want to place dad in a facility but do I want him to get lost again? No!! And I'm not willing to take that chance any longer. He doesn't deserve to live the rest of his life alone, depressed, not getting the needed meds and not getting 3 meals a day. He deserves life!
We call and check on him every day but that's just not enough. We go out there once a week to take food, wash clothes and take him out to eat. That's the.only time he sees anyone. He has taken electrical things apart and left live wires hanging out. He's gone through 5 phones because he takes them apart. Which means we couldn't reach him and had to ride out there to make sure he's ok. I have arthritis in my spine and a 2 hr drive kills me. That's one way.
I'm glad you are able to keep your mom at home but I'm dad's case it's just no longer possible.
You must realize parents have children and it is their obligation to care for them. That is life. They grow up and leave home. They now have a right to a life and if they want to and are able to care for parents who are "off" and gone, that is their choice and their right but not everyone has the mental or physical capacity to take on these extreme cases, nor can they provide suitable care for their parents or ailing spouses. Eventually the caretakers' lives will be destroyed and it will be hell for all concerned. That is why modern society has places to put patients who are too far gone to be cared to and tended at home. Sad but that is the way it is.