I'm going to bullet point my questions, so it's easier on everyone. Both parents in a locked memory unit, with varying degrees of dementia. *How do you explain that they have no $ left *How do you tell them you are having to sell the home? *what do you say when they come to your house for Easter dinner and they see some of their furniture? That you knew your mother would never want out of the family, so you brought it home. *How do you tell them they are in the nursing home forever, and will not return home (they have it in their head that it is only for 2 years, bc they read the initial diagnosis and at the bottom it said, "re-evaluate in 2 years". I am bombarded by constant questions and requests... I had to turn off their cell phones bc of the constant calling of friends and family, who have requested that they quit calling them. *they are free to call me anytime from the nurses station.
As you noted in your first response, no, explaining gets you nowhere (other than frustrated!) I wish my younger brother was as quick as you to figure this out! Despite relating to him how this works, he continues to try to explain and answer mom's questions and asking to go back to her condo. Round and round in circles they go!!! Dude - why do you waste your breath on this? She is never going to accept what you say about why she cannot go back and she won't remember that she asked or what you answered, so you'll be doing it during the entire visit! When I saw the signs of dementia coming on, I started researching and learning what I could so as to be "ready" and share with my brothers - it still is a constant learning process (at least it is for me!)
For your specific questions, several others have made suggestions. Some of your questions are similar to questions we have gotten, so here's how I would handle them:
*How do you explain that they have no $ left
Do NOT discuss finances, at least not at this level. If they ask about how much the place costs or how much is left, simple answers (and fibs) can often suffice, such as "Don't worry about the cost, insurance (or VA or some other entity) pays for it" and "Oh don't worry about your finances, it is still there, I take good care of it for you!" Then change the subject or find an activity.
*How do you tell them you are having to sell the home?
See last answer - they do NOT need to know about it. If they ask about the house, you are taking care of it. Getting it painted or doing little repairs, it'll be ready soon! Ready for what they do not need to know!
*what do you say when they come to your house for Easter dinner and they see some of their furniture?
Others made suggestion of covering it with a tablecloth or moving it to another room they won't go in. I agree with those who say bring them to dinner for special occasions, so long as it does not cause any upset or anxiety. Once it becomes too distressing or difficult, then arrange to have the meals in-house at the facility. We have done Thanksgiving and Christmas with her (my place is off limits due to stairs and ongoing repairs/upgrades, older brother is not local, younger brother - cannot speak for him!) I also brought party plates, napkins, cups and cake, ice cream, flowers, etc, dropped them off for the staff to set up while we took her to lunch and then had a little surprise birthday party with other residents and staff!
"That you knew your mother would never want out of the family, so you brought it home." - I would avoid this, it brings up questions. If you cannot hide the item(s), use explanations like you are having the room painted, so you brought it here to protect it.
*How do you tell them they are in the nursing home forever, and will not return home (they have it in their head that it is only for 2 years, bc they read the initial diagnosis and at the bottom it said, "re-evaluate in 2 years".
Two ways to handle this, and telling them it is forever is NEVER one of them!
1) keep redirecting it to the doctor, as in "we're still waiting for the results", or
"after your next appointment they will discuss this again."
2) "Gee mom/dad, it has only been 6 months, the doctor said to reevaluate in
2 years! It isn't time yet!"
In both cases you are deflecting the reason for the stay to the doc. This can take some of the heat off of you. Some say this gives false hope; I say hope is hope. They can keep that hope alive. It gives them something to look forward to or to work towards (for those who need to work on physical issues anyway.) Every time you try to tell them it is forever, you take that hope away. Since they will forget, you take it away over and over. That means hurting them each time the subject comes up! Time tends to be vague for people with dementia, so they really, at some point, have no idea when two years has passed.
"I am bombarded by constant questions and requests..." - Yes, they all do this, some MUCH more than others. Having a duo probably makes it harder on you, but this is where deflecting and redirecting can sometimes work. Fluff the answer. Try to anticipate what they want and come up with a fib, something that will satisfy the query, not upset anyone and put it to rest...for the moment. Then try to change the subject. Getting the focus onto something else often works, an activity, another topic, whatever works, at least for a while. Once you get good at this, it is like the Leave it to Beaver dad-type at the table reading the paper and mumbling responses to the mother's statements and questions. I, like others, had a hard time adjusting to this because I prefer telling truths, but these "fibs" or "little white lies" are used to shield both them and you, they are not used to be hurtful. You know it is coming, shields up!
"I had to turn off their cell phones bc of the constant calling of friends and family, who have requested that they quit calling them. *they are free to call me anytime from the nurses station."
My younger brother was all for setting up TV and phone. I delayed, mainly thinking that 1) TV might keep her in her own room instead of mingling with others and joining in activities and 2) even if she could remember the phone numbers, I certainly did not want the barrage of calls I knew would come - she called me mostly when she was still in her condo, multiple times for the same issue. Being in the new place, I anticipated more calls to get her out! She can and has had them call me from the staff phone until I suggested they pretend to call me, pretend to leave a message and tell her I did not answer and they left a message. Tell her I will call back later. It has worked! It took a few times to get them to do this consistently, but I have not gotten a call from her in many months. If she was calling to chat or discuss something, fine, but it was always "I'm at the hospital, I'm not sick or anything, I just need a ride home." My response was usually that it is too late tonight, perhaps in the morning. Oh, okay. Same thing when recently she started asking about getting a ride to her mother's (gone 40 years) or asking about her. She's fine. I'm sure she is ready for Christmas. Too late tonight and it's not on my way home, maybe tomorrow... There's that glimmer of hope, rather than upsetting her that mom is long gone and you won't be going there... there's always tomorrow!!! So far (1 year+) it has always been "Oh, okay."
SueC1957 summed it up in one sentence: "Instead of them joining your reality, you now have to join theirs." It can sometimes be a strange reality, but it is what they think it is and we have to fumble our way around in it!
Cost of facility=$20,000, money left in savings account $20,000
Even so, a person with an ill brain will not be able to calculate something even as simple as that. However, at least it shows to them that you've tried.
Thank you!
The hardest thing isn't trying to explain things to them, it's trying to understand their disease. We are treating them (and expecting the same behavior from them) as we always have. It took me many months to realize my mother won't ever be back.
I thought if I said it enough times or explained it differently, she would "snap back". Nope, that part is gone for good. 😢 I had to learn a new way to communicate with her (see suggestions above).
Instead of them joining your reality, you now have to join theirs.
At this point you should be doing a lot of reading on dementia (especially whatever type they have-Alzheimer's, vascular, Parkinson's, etc.) to familiarize yourself with common behaviors and the next stages.
How do you answer them? With whatever works. You will get the hang of therapeutic fibs, stalling, redirection and the like. It feels strange to treat our parents this way but they can no longer cope with reality. The main goal is to keep them calm and happy. Their brains are broken and they can not understand like they used to. Give them what they can work with that won't overload their limited capacity.
I'm sorry for you and your folks. It's a hard transition but one that has to be made.
This stage will give way to another level with other confusing behaviors and actions.
It's best to be informed and supported. That's why we're all here.
In the last few years when my moms dementia had ratcheted up, I spent the holiday meal with my mom at her facility. I worried that once mom sat down at my place it would have taken dynamite- or an ugly scene with the men in the white coats to get her out.
You are being too hard on yourself. Do as much research as you can, especially on this site, regarding the stages and symptoms of dementia and how to deal with them. Most of us here are experts at the Theraputic Fib. You just can’t explain reality to people with dementia, especially those who have progressed to the point of needing to be in a locked unit. You also can not justify their delusions and hallucinations to yourself. Explaining to them about finances, furniture, etc. and having them comprehend what you’re saying is comparable to speaking French to someone who only understands English. Don’t blame yourself for pulling their phones either. I did with my mom. The role reversals between parent and child are a very unfortunate part of this awful disease, but one that must be accepted.
Also, she might not remember the furniture, but, can you put a tablecloth over it, when she visits? Or, you could say you are storing some items while the floors were being cleaned.
I may look into the Easter meal at the facility, thank you for that idea!
As for Easter dinner, when my Dad was in Memory Care, the facility had a fantastic Easter dinner, much better than what I could have done, so I made reservations for myself so I could eat with Dad.