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How are they managing their medications?
Does their living environment pose any safety concerns?
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I. How We Work in Washington. Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services. APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid. We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour. APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment. You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints. Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights. APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.I agree that: A.I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information"). B.APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink. C.APFM may send all communications to me electronically via e-mail or by access to an APFM web site. D.If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records. E.This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year. F.You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
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I don't think you "get over it" You get through it. You learn to deal with day to day realizations that there is a decline, they will not get better but will get worse. This is not like other diagnoses that there might be a cure for or treatment that would actually prolong life. You also learn to appreciate the good days You learn how to deal with the bad days You learn that the bad day this month WILL be a good day in two months You make decisions early as to what your plan will be. Stay at home with a caregiver, move in with you or another sibling or find placement in Memory Care. You will learn patience You will learn how to deal with frustration, anger. You will also learn how to enjoy little things that will make you laugh. At times you will think you are alone but there is help all you have to do is ask. You need to learn that to ask for help is not failing, it is human.
Kanguiano. I promise that you are not alone. My mother has the beginning stages of dementia and all we do is enjoy as many things possible with her. We look at old photos together and share past times well spent with her. My mother loves talking about her childhood as well as when I was growing up under her care and love. Basically, long term memory stays far longer, but it is short term memory that fades quickly. Anytime you need a shoulder to lean on, we are all here for you.
Dear Alphabase, Thank you SO much! I can't believe how lucky I feel to have stumbled upon this forum. I amazed at the outpouring of support and empathy on this forum for dealing with, and watching a parent decline through dementia. I have never before felt such human support, caring and empathy from online interactions! Thank you, AGAIN!
You grow in ways you could never imagine. You become a person that is more compassionate, more patient, more loving, more caring..... you learn to appreciate simple times and learn how to best deal with the hard times.
You grow as a person. Some just cannot be a hands on caregiver. And that is ok too. It takes courage to admit to yourself that you cannot do it. The goal is the best possible care no matter who provides it.
Always remember you are not alone. There are many in very similar situations. Reach out for whatever type of support you need.
Like grief, there is honestly no answer but time. You adapt to a new norm. You have essentially lost a relationship; everything is changed and new and different and you adapt and adjust. In the beginning it is pretty horrific, and with my brother's diagnosis last February I went into a real solid depression. I thought that given we are BOTH near the end of our lives, at 77 an 85, that this was IT. That is would be all about this and nothing decent would ever happen again. I began to function, to learn, to adjust. And there are still moments of obsession. Of depression. Of anxiety. Of paralyzing fear of where things will go. But there are also moments coming back of real life, the reading and gardening and cooking and walking and dog rescue stuff. Now even a brief short trip coming up. And there are moments when joy leaks back in. I am wishing you so much luck. Be easy on yourself. Allow yourself to rage and grieve and curl into a fetal ball of depression, once in a while. Then get back up and seek the things you love. Sewing is my perfect zen. I seek it out when things are toughest.
It is very much like any other grief.......usually, once we are done crying over the loss, we slowly heal with time.
sometimes there is guilt with it too. Losing our temper at mom or Dad because we lost the ability to cope for a short while....forgetting that it isn’t their fault.
sometimes there is the feeling of loss that exists long before the parent dies. Knowing that the parent we knew is already gone and we are just tending the body left behind.
time is the great healer.
if you cannot get past the grief, then seek a grief counselor.
we all go through this. There is a peace to be found...with time.
I think a lot of it depends on the dynamic of the former relationship, but yeah no matter what it's traumatic to face that you will have to deal with the awful decline of dementia.
I'm only a year into it, and I am only just now beginning to accept it. By "accept" I mean I think I am, as I am at least not in a state of crippled depression anymore. It's like you just get used to a new "normal".
Things I used to cope (warning not all of these are healthy so YMMV.... )
Drinking more alcohol (that has slowed down a lot tho) Taking an anti-depressant for four months to get me out of a dark head space (Lexapro) Therapy.... lots of it Getting out and getting exercise to just get out of my head when I was consumed with worry. Isolating. Granted this isn't really healthy behavior, I just noticed I've made my inner circle much smaller, and I'm okay with that right now. I need to save my energy. Diversionary activities- I got back into reading and playing chess online. Keeping my relationship with my husband going by making sure he was not ignored or neglected. This got better as I got less depressed. Reading at this forum.
Hoping for the best possible outcome and that it doesn't linger forever.
i felt like in the case of the two elders i accompanied in their final months and days , the dementia was a little frustrating for them but seemed to shield them from the stark reality of their waning existence . they seemed to live in the moment and occasional moments of humor was evident in both . im not convinced that dementia was a cruel condition necessarily . probably caused the carers more distress than the patients .
It is a matter of accepting what is. And then learning, learning, learning. About yourself and about your parent. Mostly you learn you need help and that love wins. It might be a very slow process, so there's time to correct mistakes made at first, such as arguing with them or trying to bring them back to reality - try to not do that. Your expectations change. What you expect of yourself and of your parent. Taking over someone else's life for them feels wrong at first, but eventually it becomes automatic. You find strength you didn't know you had. Ask questions, tell the stories, laugh, dance, and sing to take care of yourself so you can be there for your parent.
kanguiano - dementia patients eventually lose their ability to understand their illness therefore they don't suffer mentally as much as their caregivers do.
We, caregivers, are the ones that have to do everything for them that they used to do for themselves. We are the ones that suffer stress and burn out, they don't. We have it worse than they do. So, please do not feel guilty.
My Alz. mother lived with me for two years, I was so so so stressed out, burn out, my young kids were too, as was my husband. My kids hid in their rooms to escape her insane repetitive questions and comments. My husband and I had no privacy. She woke us up multiple times in the middle of the nights by setting off the alarm. She picked ALL my fruits (in the hundreds) when they hadn't yet ripened so all had to be thrown out. We didn't go on vacation for over 3 years, and still haven't. She was destroying our lives and oblivious to it.
Finally, beginning of this year, I moved her out to her own place. I still spend many hours with her every week but at her place. My kids and husband don't have to be exposed to her except when she stops by for short visits. Peace has been restored at my house.
Polarbear - Thanks for sharing. I'm glad that peace has been restored at your house. I haven't read a lot on alzheimer's and dementia patients, but I know that behavioral problems are a definite part of both diseases. Sounds like you did the right thing - it seems there is a balance between caring for dementia/alzheimer's patients and setting personal boundaries for your own (and your family's) well-being.
Since my parents live in the health care center in their retirement community - my father in memory care and my mother in assisted living, the staff is responsible for their day to day care. I'm sure not all health care facilities are the same, but at this facility, the nursing staff is SO wonderful to the patients, that I consider them angels of care for my parents, which is a huge relief!
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
You get through it.
You learn to deal with day to day realizations that there is a decline, they will not get better but will get worse. This is not like other diagnoses that there might be a cure for or treatment that would actually prolong life.
You also learn to appreciate the good days
You learn how to deal with the bad days
You learn that the bad day this month WILL be a good day in two months
You make decisions early as to what your plan will be. Stay at home with a caregiver, move in with you or another sibling or find placement in Memory Care.
You will learn patience
You will learn how to deal with frustration, anger.
You will also learn how to enjoy little things that will make you laugh.
At times you will think you are alone but there is help all you have to do is ask.
You need to learn that to ask for help is not failing, it is human.
You grow as a person. Some just cannot be a hands on caregiver. And that is ok too. It takes courage to admit to yourself that you cannot do it. The goal is the best possible care no matter who provides it.
Always remember you are not alone. There are many in very similar situations. Reach out for whatever type of support you need.
I am wishing you so much luck. Be easy on yourself. Allow yourself to rage and grieve and curl into a fetal ball of depression, once in a while. Then get back up and seek the things you love. Sewing is my perfect zen. I seek it out when things are toughest.
sometimes there is guilt with it too. Losing our temper at mom or Dad because we lost the ability to cope for a short while....forgetting that it isn’t their fault.
sometimes there is the feeling of loss that exists long before the parent dies. Knowing that the parent we knew is already gone and we are just tending the body left behind.
time is the great healer.
if you cannot get past the grief, then seek a grief counselor.
we all go through this. There is a peace to be found...with time.
I'm only a year into it, and I am only just now beginning to accept it. By "accept" I mean I think I am, as I am at least not in a state of crippled depression anymore. It's like you just get used to a new "normal".
Things I used to cope (warning not all of these are healthy so YMMV.... )
Drinking more alcohol (that has slowed down a lot tho)
Taking an anti-depressant for four months to get me out of a dark head space (Lexapro)
Therapy.... lots of it
Getting out and getting exercise to just get out of my head when I was consumed with worry.
Isolating. Granted this isn't really healthy behavior, I just noticed I've made my inner circle much smaller, and I'm okay with that right now. I need to save my energy.
Diversionary activities- I got back into reading and playing chess online.
Keeping my relationship with my husband going by making sure he was not ignored or neglected. This got better as I got less depressed.
Reading at this forum.
Hoping for the best possible outcome and that it doesn't linger forever.
Good luck.
im not convinced that dementia was a cruel condition necessarily .
probably caused the carers more distress than the patients .
We, caregivers, are the ones that have to do everything for them that they used to do for themselves. We are the ones that suffer stress and burn out, they don't. We have it worse than they do. So, please do not feel guilty.
My Alz. mother lived with me for two years, I was so so so stressed out, burn out, my young kids were too, as was my husband. My kids hid in their rooms to escape her insane repetitive questions and comments. My husband and I had no privacy. She woke us up multiple times in the middle of the nights by setting off the alarm. She picked ALL my fruits (in the hundreds) when they hadn't yet ripened so all had to be thrown out. We didn't go on vacation for over 3 years, and still haven't. She was destroying our lives and oblivious to it.
Finally, beginning of this year, I moved her out to her own place. I still spend many hours with her every week but at her place. My kids and husband don't have to be exposed to her except when she stops by for short visits. Peace has been restored at my house.
Since my parents live in the health care center in their retirement community - my father in memory care and my mother in assisted living, the staff is responsible for their day to day care. I'm sure not all health care facilities are the same, but at this facility, the nursing staff is SO wonderful to the patients, that I consider them angels of care for my parents, which is a huge relief!
Alas no answers on my end for this topic, but..blessings to you all!
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