I had an important birthday this weekend and my sister sent me a lovely gift that surprised me and I called her, and we were able to just chat — about our lives, our kids, etc— for the first time in over a year.
It made me realize how much caring for our Dad has transformed what was once a fun, close relationship. Dad is great at pitting us against each other — I'm the primary caregiver, my sister is in denial about his needs, he doesn't like my choices and complains to her and then she thinks I'm being horrible, etc etc. Most of my calls from her are "Dad called me and said you were being mean to him/restricting him/he's unhappy," but since she lives in another state, she can't (and won't) do more than parrot his complaints.
It's affected not just our relationship but our family's as well — she used to be very close to my teenage daughter (she only has sons) but that has been lost in all of this.
But Dad won't live forever, and at some point, we have to navigate having a sibling relationship that isn't about him. I admit I'm bitter about all I do (and the complaints with no help! As I'm sure you guys know about). But I'd still like to have a relationship with my sister, now, and in the future. How do you manage that when you are the caregiver who is doing everything (but the parent is convinced you are awful and wants to convince everyone else)?
My mom used to try to pit my sister and me against each other. When we had a conversation about it, we agreed that we'd discount anything negative she says (usually about me, the caregiver/chaperone) and talk only to each other when information was needed. It worked like a charm, and we've been incredibly close for many years…simply because we cut out the middle man.
Good luck!
You may want to consider putting Dad in Memory care if he can afford it. Or a nice Long-term care facility on Medicaid if he can't. His care is going to be more and more as his Dementia progresses. The sooner you place him, the sooner he adjusts.
My mom is late stages dementia. Her youngest son my younger brother just wiped his hands of anything to do with her, my mom his mom lives with me, I am the primary health caregiver to her. I do everything. He don't even call me or her or visit me or her, he lives one mile down the road. So he wiped his hands of me as well. He and I were very close now we don't exist.
So how will that relationship be pieced back together?
When I placed mom in an ALF, I called and told him he needed to fund what Medicaid would not pay. He agreed but never had to help since she died before it was needed,
I will not go into his excuses. They were weak at best. The last visit he made I was able to speak openly about my resentment. Not surprising, he actually believed he was helping (sending chocolates every couple of months).
However, once my mom died, we did come to some type of equilibrium. He acknowledged my sacrifice. He admitted he did nothing. That has helped me get past the resentment. We actually have a fragile new relationship that I hope will heal over time.
I still feel cheated but, now that mom is gone, he is the last connection to my family. I want to make it work. It will take time and will mostly likely be different than it could have been.
When you are a caregiver your entire life is surrounded by that duty. Once that caregiving time has ended, at least for me, I wanted “normal” and normal meant creating that sibling connection again.
Perhaps you are stronger than I, but it was difficult for me to forgive and forget when I was in the middle of the caregiving duties.
Although I didn't live with my mother, she demanded more and more of my time (even though I set strict limits). She tried to get me to do Internet research for her obsessions. I refused. She got one of my brothers to do it. When I suggested that another brother do something she was demanding of me, she flew off the handle, telling me that MY time wasn't valuable like my brother's was.
After she was hospitalized for a gallbladder infection, then went to rehab, then to LTC, I requested compensation for all the hours. The main POA brother was the one who came down most often, and he understood what I was going through. He agreed, and also offered to compensate me for the past caregiving. The other two brothers didn't put up a fuss (although the one who was least involved wanted me to wait until the trust settlement after my mother died -- I said no. I knew the trust stated that any beneficiary who tried to get more than their 1/4 split would get nothing). When I brought up compensation to my mother earlier, she hissed at me, "You don't pay FAMILY!"
So I got paid $20/hour. The pay went a long way towards easing my resentment, as I could consider the hours spent as a job. It was all gifted to me, and because my mother would never become Medicaid-eligible, I had to pay no taxes on it.
This obviously wouldn't work for everyone. I was one daughter who refused to put up with the unequal distribution of caregiving that so many daughters allow to happen.
BTW, I set up from the beginning of the more intense caregiving (basically when my mother gave up driving at age 90 and I had to become her driver and thus had to spend a lot more time with her) that I might want compensation at some point. I emailed my brothers once a week, letting them know what I did for our mother, how much time it took, what she was like, etc. So none of them could claim to be surprised at what was going on (particularly the two who rarely came down to see her).
Dealing with my parents/estate has actually brought my sister and I closer together--though there's that occasional day when we each want to strangle each other. Our brother...Who? He's been MIA for years--then tried to swoop in when our mom was dying and told Hospice he was "nursing her." Umm...who are you again?
Best part was when funeral home guy tried to deal with our brother (I'm executor, was POA) while my sister and I were in the same room. Better believe I shut that down damn fast. (Actually, my sister is now a family legend for throwing him out of the house because of that Hospice incident.) My brother and I had a chance to chat non-parents while waiting to sign papers at the funeral home later. It's fine or fine enough. But as my sister and I have been cleaning out house, listing it, paying bills...we haven't heard from him once. When our dad first died, we got tired of complaining about our brother so we gave him some things we needed him to do when he could. He never did any of them.
The ways to get a handle on reality aren’t easy:
- Swap places for a fortnight. That’s long enough for the ‘gloss’ to wear off, and for sister to check in person on what is going on – Dad’s expectations and behavior, carers load and behavior. However changing lives for a fortnight wipes out annual leave and isn’t attractive.
- Send Dad over to stay with sister for the fortnight. Let sister experience the problems of his routine, and at least some of the complaints.
- Let sister pay for a live-in carer for the fortnight. Give you a break, and the carer reports back to sister with an outsider’s view of the situation.
- At a minimum, ask sister to change the approach. “Dad’s complaining yet again, is there anything at all in this?” is easier to deal with than sister reporting the complaints as if they are all true and she is ‘on his side’. Being ‘on his side’ might seem to her to be her own useful contribution to Dad. It’s not.
Just telling sister how hard this is being for you, how common it is, and that you have received these suggestions, might shift the dynamic a bit. Good luck.
I've been living with my parents to help caretake my mother for 8 months now, it's been unrelenting and brutal.
My brother is 'off the hook' as he's married with 1 kid at home, lives 2 hours away. Calls weekly and visits every 2-3 months for 3 hours.
I'm resentful & bitter that I have no one to lean on.
I also have come to the realization that if someone loves you, they would try to help you, that caring is a verb. I realize how little, if at all, anyone cares, with their hollow inquiries.
Sending love.
Growing up my father was the golden child. When my grandmother got old my parents did try and visit once a week even with the long distance. But they could never do right by her. All she talked about was how wonderful her younger son was. He lived 3 miles away and barely visited. Sent his wife over to take the abuse. But he bought her a new TV after she proclaimed this was 'her last Christmas". That made him golden. She had 15 "last Christmases". It became the running joke in the family. Yearly later when her golden son was diagnosed with cancer his wiseass son asked if he expected someone to buy him a new tv.
I like the suggestion that your sister cover for you for 2 weeks. However I doubt she will be willing. She would rather stay oblivious to the situation. Just have a talk with her. Tell her dad is trying to pit you against each other. Ask that she either not repeat what he said or tell him outright that if he has a problem with you he needs to speak to you not go through her. Or even better, have her tell him he is lucky to have you helping and he needs to start appreciating you more. And that she is done hearing about this.
You're in good, wise company here. This forum kept me sane for my five-year stint as live-in caretaker for my mom, while my two sibs stayed mostly absent yet critical. I support you.
These are delicate situations, fraught with different emotions -- sadness, fear, anxiety and, for the caregivers, exhaustion. Our clients sit down and have a facilitated conversation about the issues they are dealing with and work out a plan for moving forward. The siblings may never be best friends, but they can discuss the problems, find solutions, and begin to be able to talk to one another again. Unfortunately, many of the people who contact us are already in the midst of a crisis (a parent is about to be released from rehab and nobody has ever discussed a plan for a disabled, elderly parent). We encourage people to consider mediation before a crisis, with the possible participation of an elderly parent who could get a say in what he/she wants.
In any case, mediation is an option. It has a successful track record of resolving conflicts.
Make your sister aware of the behaviors of folk with dementia ( how they can literally turn on you and yes lie as well, their truth is distorted because of the disease 😔). I hope she will be able to comprehend it all because it can be overwhelming. And possibly let her read some of the answers here in this forum.
Like you’ve said your father won’t always be around and then all you’ll have is each other and prayerfully in a healthy, loving and non toxic relationship 💕
Wishing you the best outcome 😊
It's exactly what I expected and I am sorry for it, but I knew mom was the only thing keeping us 'together'.
No one is mad, we are all just went our own ways.
We get along, we just don't see each other or hang out anymore.
It isn't uncommon for families to fracture after the last parent passes away. I wouldn't be surprised if I never see my YS again in my life.
We do love each other, but it is what it is. Maybe in time we'll find a way back to being a 'family' but right now, not so much.
Your Dad likely has depression. Who wouldn't, under their circumstances? They are vulnerable, have lost their independence, and are facing their last years. So hard to even imagibe that dark cloud. I have found in most caregiving situations that many of these vulnerable adults end up needing someone to blame. With my Mom, I was the main caregiver but had several siblings helping. If I was alone, I'd be the target. If another person came on board, the new one was the target. It strained our relationships, even when we all understood the situation. And we were bitter against those who didn't help, too.
What worked:
Get some additional, non-family help. You are burnt out (tge bitterness), and need some relief, even if for a couple hours a week! That little bit of freedom is amazing. They will soon be the depression target (unfortunately), and your Dad will value you more. You may get an earful at first, but just be understanding hiw everything is hard for him right now and be positive. Slowly add hours as your Dad gets used to them, whatever the budget will allow. If he is against that, I would start with "a friend is coming over". Sometimes my Mom enjoyed having someone new there! Keep in mind that who you like may not be who your Dad likes. We had a couple people, one for us to get things done, one my Mom liked more, for less hours. Maybe your sister would help pay for that, if needed. I originally paid for our help myself, just to show my sibling who said no on the budget, how helpful & needed it was.
Your bitterness. Totally understandable, but it is working against both you and your Dad. When I gave up the bitterness, my Mom was so much happier and me too!!! When my Mom later needed 24/7 bedridden care and was extreme dementia'd, and I was the main care even more, I felt ready! I felt like I was invinceable and it shocked hospice at my stamina and patience. How did I do that?
I let go. I just quit my bitterness. I decided to be grateful for who I was, my makeup, my location, my work situation, and be glad I could be there for my Mom. Keep in mind, I originally the worst relationship with my Mom of all my 6 siblings. Anyways, I pretended I only had the siblings I had, and decided that those who weren't there simply couldn't be. For one reason or another. I also soon became the example for the bitter siblings that did help.
Balance. I had a day off each week that was a real getaway. For me that was out to my horse with my husband. For me, 15 minutes with an animal is a reset. And with my Mom, because you need some sanity moments there too, doing a little gardening for her, watching a movie with her, or cooking could be a reset. Sometimes just walking away, getting a few minutes of quiet and deep breathing in another room helps in a emotion charged pinch.
BIG: I focused on my Mom. Total focus on her. What were her needs? What would make her happier, healthier? How could I make her last days the best days yet? What did I need to work on in me??? I was no longer satisfied with a day that went by where she wasn't enriched in some way. This meant arranging visits, therapy, whatever I could bring in to brighten her day ( and mine!). Flowers, my singing, sunshine, good TV shows, live music, good food, brushing her hair, doing her nails, giving her purpose by having her do things.
And a loving, gentle me.
When in her dementia she was so scared that she would bite us, we thought the answer was to restrain her. I soon learned that scared her more, and what she needed was love. I would simply & sweetly tell her she didn't need to bite, that we were helping her, and it worked! Gentle bred gentle, even when logic was gone. :)
And lastly, for me, Prayer. Which was first for me. That helped me greatly to be gentle, and to let go, and to see how I needed to change.
With that I say best of luck, an
(1) they don’t want to do anything that disrupts their life,
(2) they don’t care enough,
(3) they need an excuse for abandoning their parents to relieve their guilt, and
(3) they have drank my mother’s “koolaid” and believe her lies, and perceptions.
So I’ve concluded that nothing I do is going to work because of these things. A harsh reality. I focus on what I believe is right, I have gone no contact with 2 of them, and I am hanging by a thread with the other two trying to decide if I want to completely lose any possibility of seeing my nieces and nephews if I tell them what I really think about what they’ve done to my husband and I.
I suggest a book. This is someone I’ve gotten to know over the past few years. Her work is very well researched and vetted in clinical practice. I think you will find it both validating and helpful as you walk this difficult path (see below. It’s on Amazon). The author has recently started a You tube channel that you might find helpful.
I’m anxious for it to be over. I don’t know if my relationships with my siblings will ever recover. They would have to be willing to look at THEIR role in why we are having problems, in order for these to healthy relationships for me.
Goid luck and god bless you for what you are doing.
“Rejected, Shamed, and Blamed: Help and Hope for Adults in the Family Scapegoat Role Paperback – September 28, 2020 - Rebecca Mandeville - on Amazon
You Tube - Search: Rebecca Mandeville, LMFT
I have had to accept that my mother will lie to me and about me. She will “need” me to wait on her hand and foot, then the moment one of the siblings shows up, all of sudden she can do everything herself. What they don’t see after they leave is how exhausted she is.
I don’t live with my mother or near her. But I am her go-to the moment she needs care and help.
It is in her best interest now to keep us at odds. I am the last hold out for putting her in an Alf and taking her car keys. Both siblings have told her she “doesn’t need” to put anything in a trust they want all of her money to be used to “take care of her”. They don’t understand what is going to happen to EVERYTHING if she goes into an ALF. I have my doubts she can live on $50 a month, since her cell phone bill is more than that. I’m not sure who my siblings think is going to pay for other things. Lowball guess is roughly $200 a month unless she is almost fully incapacitated.
Has she shared her financial status with you and your siblings? Has she done any estate planning? Do you actually know the cost of independent living or assisted living? Have you had a family talk about what her needs are and how to deal with future healthcare needs as well as safety. Why do you think she is safe driving and why do your siblings have a different opinion?
Have you told her that you would like to have more conversations like the one on your birthday? Tell her that you are glad to update her on your dad but you want to keep up on her and her family and share information about your daughter and others.
Sometimes, parents influence siblings as well. I dealt with this too. It seemed like whenever I tried to tell my side of the story, my siblings couldn’t understand because they hadn’t experienced what I had as a caregiver.
Truth be told, I had no idea what caregiving would be like before I became a caregiver myself.
I finally let go of trying to convince my siblings of anything because holding on seemed to make matters worse, especially for me.
I was the primary caregiver for my mom for many years. I was at my wit’s end. My brother criticized me and felt that he could do a better job, so I told him to go ahead and try. I told mom that she should stay with him because I was worn out!
Oh boy, did he change his tune after mom was under his roof. I am glad that I let him take over so he could see firsthand what it was like to be a full time caregiver.
He apologized to me and realized how difficult it was for me. Our relationship healed before my mom died and now I have a great relationship with all of my siblings.
No one can predict the future. We can hope for the best. Sometimes it works out and sometimes due to certain circumstances it doesn’t ever work out.
We have to find peace in our hearts no matter which way it goes. It will only hurt us if we become bitter or resentful due to the pain that we have experienced.
One more thing, having a wonderful therapist was a Godsend! I learned a lot about myself and others in therapy.
Wishing you and your family all the best.
It's never easy, deep breathe accept as things comes. Don't think too much about past, we can't change but it will definitely ruin future. If your sis has extended olive branch, be a bigger person🙏
maybe a nice follow up note to sister in how her gift touched you and that you treasure her and your relationship with her.
when she calls you try to redirect topic. Even though you know his complaints are incorrect, try to focus only on “ I understand it concerns you to hear dad tell you that . If I were in your shoes I would find those words distressing also , I can assure you that dad is cared for and not spoken to harshly.”
also out some decision making into her like “ dad told you he didn’t like my schedule for him, what do you think- bath before lunch or after dinner?” ( whatever topic you think can be flexible for you to have her offer her decision on).
are there any pamphlets from library or aging Dept on elderly parents and strains in siblings? Maybe sending that with a note that your role is hard when Dad seems unappreciative about y on the calls to her and you found info that shows this isn’t a problem unique to you and her.
once he passes try to reconnect with her with childhood stories and positive relationship stories of things you two have shared .
seems like her gift was a reach out to you.
Dad playing "the victim" gives them more attention and they don't know they're hurting us. They can't help it but the family should be more understanding of everything that they won't do!
I've just got the townhouse sold, took over a year due to family. The brother wants a copy of POA while I'm sorting through 6 garbage bags of papers to do her taxes? He'll help after I get it done,no! Then, he wants to hire a lawyer to get POA? No, doesn't want to do that,it could come back on him and hurt his family of two parents and three adult children. It's okay to blame me, actually said he'd burn the townhouse down before he would let me move in with her. Oh, I'm so mean?!?!?
You know you're doing what you can, heartbreaking and the mental infliction is totally unbearable. Stay calm and do something for yourself. I don't know what makes me happy anymore, really just numb. Eighteen inches of snow isn't helping either. I'm into a cup of hot chocolate recently.
Only time will tell,say thanks for remembering my birthday and you appreciated it. You and everyone here have been strong caregivers and you fight for your life trying to be something else. We can't fight things we can't control. It's not giving up but realizing we can't do it all. Yes, no support, but you can do this! Somehow you've gone this far, you can make it. With or without them. Oh, I want it to work for everyone! We're not the victim, we're the victors. Stand out and feel good about everything you do!
I'm sorry you got trashed for showing your love!
Julia