Caring for my mom for past 20 years. She lives alone in her home. Her desire. I have taken care of everything from groceries to medical appointments to her bills… everything. Now that her health is being more challenging, I look to my siblings for help. But because Mom is not confident in anyone but me to help her, she prefers my siblings not to help. This is fine. My mom trusts me. I get it. But I am now resenting my brother and sister for not even trying to get involved for the past 20 years. They figured if I didn’t ask for help, then I must not have needed it.
I will continue to care for my mom with all my heart. But how do I cope with the pain and disappointment I have with my siblings? In my eyes, it is NOT ok to be so self absorbed and take it for granted that I will take care of our mom by myself. I hate to say it, but today I actually started wishing I were an only child. That way I would not be resenting anyone for not helping. I feel bad I am thinking this way. But I am being honest, any advise?
Your mother isn’t living independently in her own house. It’s clear she is entirely dependent on you to stay in her house.
She is living dependently in her own house. The word choice is important.
If it were me, I would consider:
1) reaching out in writing, phone call, and/or in person outlining the degree of the needs and specify what you are doing, need to do and the help / support / assistance you NOW need.
1a) Be very specific in the support you need/want from them and the form it takes (money, time, taking on certain responsibilities) - and 'nail it down' to when it will start - and how. Don't accept: "Okay, I'll help you" -
1b) Listen to them - as hard as this may be - once you outline (as above) what you want/need. Expressing (more?) frustration and anger may continue to push them away.
2) They / siblings may not be 'totally aware' of the need as you've been taking this on yourself for so long.
I see some confusion here as you say "I am now resenting my brother and sister for not even trying to get involved for the past 20 years ... they figured if I didn't ask for help, then I must not have needed it."
Why would they try if you told them years ago that you are / will handle everything (as you continue to say you will continue to do now) ?
It this actually true? Did they say this to you?
If you didn't ask for 20 years, tell them you are asking NOW.
Part of the issue here as I see it is that you aren't taking responsibility for how you've set this up - taking it upon yourself to do EVERYTHING for your mom.
And now 'all of a sudden ... after 20 years, you are resentful (tired, exhausted, and 'finally' wondering "where are they?") - while making the excuse "mom trusts me ... so I do it.' No, you are doing it because you want to and haven't asked or set boundaries of what you will / will not do for 20 years.
3) Realize that what is 'not okay' to you (re being self-absorbed) is okay for others - as seems evident here. You cannot change others - you can enlighten them, ask for support, and then deal with the outcome. What doesn't feel okay to you is what is driving your feelings now - and who is suffering? YOU.
4) How do you let it go? Processing through feelings with the awareness and acceptance of 'this is how it is' - after accepting how it is, then figure out how you will continue on (with or without their support / assistance). Get caregivers in, place mom as needed.
Part of letting it go is feeling / recognizing "I feel angry and disappointed" - it may - these feelings may not go away any time soon or they may stay / stick with you for a very long time. You need to accept 'what is' and figure out how to cope.
You need to start with "I feel bad I am thinking this way" - if you fully allow yourself to FEEL MISERABLE, FEEL DISAPPOINTED, FRUSTRATED - all of your feelings, then you will start to process through them - and face reality. As another said here - your siblings made their decisions and you made yours.
As far as I see it, you make your best 'argument' asking for help (outlined at the beginning here) - write it all down ... I need from you XXX Mom needs from you xxx. I cannot do xxx or continue to do xxx by myself. I need your support as follows xxx.
While there may not be any resolution as you would like (them stepping up and helping mom / you), you can get your energy out by exercise, meditation, taking care of yourself - even getting into counseling if you feel that is needed (I feel it would help you to process your feelings).
I wonder who has legal authority to manage mom's needs / financial / house (if she owns one). Is this you? Are your siblings involved, legally / have authority.
Gena / Touch Matters
With that, I have concluded that my siblings have and will disappoint, and I can’t change them. But I will no longer have any expectations of them. I am feeling blessed that I am having this time with my Mom. Yes, it is challenging at times, but Mom is worth it. The relationship with my siblings has changed, and I am working on it being ok inside me. As you mentioned, this will take a while, but I am reminding myself that this situation wasn’t created overnight. I don’t expect to be close with them in our future.
20 years ago I never announced to my siblings that I would be taking care of our Mom. I just jumped in and did it. My bad for not doing any forward thinking that maybe I would eventually need help. And my bad for being caught off guard with them dismissing my specific requests for help. From past experience with them, I suppose I should have expected it.
But I chose to care for my Mom, and although this decision comes with some things I did not expect, I am owning it whole heartedly. I will do what I can, and look for help from other resources that will be better fitting and less frustrating.
Again, thank you for sharing your thoughts with me.
Be ready to HEAR their answer. They may say No.
They may disagree.
Disagree with your Mom.
Disagree with you.
Disagree with 'The Plan'.
Mom wants to 'age in place'. OK.
Has Mom made changes?
From the smaller issues eg heavy groceries delivered? To the larger eg downsized to a suitable low-maintenance home/yard/no yard?
Or does Mom expect her life to 'sail' on the same? That her 'kid/kids' will all do the 'rowing'?
Do all the chores, yard work etc. Be chauffeur, maid, personal shopper. Either with their own 2 hands or act as a geriatric care manager running a fleet of home help services.
I have seen this many times.
I have also personally been on both sides of this now.
I had to learn other people have no obligation to make MY choices work out, for me. Works both ways.
Resentment can mean you are giving too much. It is anger which is also a kind of energy.
If you can, try to redirect this energy into CHANGING the situation.
You agreed to help Mom.
Now Mom’s health is more challenging.
Mom is now more work .
Mom only trusts you.
Mom only wants you to care for her.
Mom’s increasing needs is the problem.
You could ask for help but after 20 years Mom only wants you anyway.
Mom’s needs will continue to increase and she will expect you to keep propping up her “ desire “ .
Resentment for others builds when the work is becoming too much for one . These others do not have to agree to help with Mom’s desire to stay in her home.
Your Mom is the one “ relying on you to do all the caregiving “ , not your siblings .
Mom needs to make compromises , although I doubt she would allow or pay for hired caregivers to give you a break.
Now you find yourself painted into a corner .
What is your exit plan??
Bottom line for you is that you cannot make your siblings step up to the caregiving role. It's going to fall on deaf ears. Your mom will have to opt for residence in a managed care facility. You simply can't soldier on after two DECADES.
You'd be surprised how far the power of caregiver martyrdom can keep a person going.
Take your time, stay wise and patient and maybe seek an elder care attorney for advice. Also, get advice and help from a social worker which could be referenced from your mother's primary doctor. If you feel resentment, that's okay. I felt it for a long time, when I did not get any help or even phone calls to my mother from family whom she took care of for eons. But you will get past the resentment or it will eat you up. Resentment comes from expectations. Focus on what you can/ will do for Mom (not what you think you should) and how YOU ARE going to retrieve some of your life back. It's OKAY to feel any way you want; just don't let the negative stick or it will hold you back. Move on, pat yourself on the back and find other ways to get yourself some relief. You cannot change self-absorbed, self-centered people.
Hard not to feel disappointed when I need help. But I was felt with them as siblings, and I can choose to exclude them now since they have had no regards to my life. Sad, but it’s reality
They deserve nothing but scorn. Get them out of your life!
My siblings did not speak to me, did not offer help in spite of my repeated requests and accused me of stealing my mom’s money. I wanted to make sure that I was handling her affairs properly and was concerned about the Medicaid look back period. Mom kept cashing in her bonds and was giving my siblings several thousand dollars each. I was worried if she ran out of money, how could she pay for her much needed care. Nursing homes are not free which my siblings did not seem to understand! In my area, they cost around $13,000 a month. I promised I would not put her in a nursing home so the live-in home health aide was the only option not to mention it was several thousand dollars a month cheaper
I went to an elder care attorney when I witnessed mom going downhill. The best thing I did was keep meticulous documents, prepared spreadsheets of all expenses for all medical costs, home maintenance, food, clothing, invoices as that is documented proof of all monies spent. The attorney told me that mom could not longer gift monies to my siblings because once she only had $2000 left, then Medicaid would do a 5 year look back period and there was a “penalty”. I told mom she needed the money for her care and if there was any monies remaining, that was the time my siblings could get whatever was left.
So, that started a war…how dare I tell my mom how to spend her money. I was cursed out, threatened, abandoned, disparaged, labeled etc. So, it is now two years after mom’s death and I am now dealing with legal issues. Mom’s house was in a trust and so far, the trust (which will be split 5 ways has incurred $19,000 in attorney fees so far). After the trust settles, then more legal issues with settling the estate. I am confident it will all work out because of my extensive documentation.
This whole ordeal is so painful, stressful, and incomprehensible to me. Someday, this will all be over and I will get to the other side.
Do take the time to take care of yourself, HIRE help as needed for your self preservation and to assist in mom’s needs, if you have requests help and they do not respond, accept that and do what you need to do!
Money can be the root of so much evil. I told my Mom to please spend her money on whatever she wants. Her sweet desire is to leave it to her children. ( The children who are not around!) So sorry for that snappy comment. I am still trying to deal with my disappointment in them.
Your mother does not live alone in her home. She has a full staff of domestic servants round-the-clock all wrapped up in one person. YOU.
She only wants and trusts you helping her and won't have anyone else. With all respect to you and your mother that's about the most selfish thing one person can do to another. When a parent behaves this way and refuses to be flexible and open-minded about their care, even if they love their child very much, they have no respect for them or their lives.
They don't care what that adult child has to give up or sacrifice so long as their needs, wants, and demands are are met by that person exactly how they want them met.
I think this may be where your feelings of resentment originate. Your siblings need to step up and do more. So talk to them. My friend, I did homecare for 25 years and saw every family dynamic play out. I was the family scapegoat since I was a little kid and pretty much had to be the parent to my mentally ill, histrionic, hypochondriac mother then in turn became her care slave for a while in later years. My siblings did and do ZERO. So, I get it.
You have to come right out and tell your siblings you need help. No one is going to offer to help with caregiving for an elderly person (even with pay) because no one really wants to do it. People have lives, jobs, families... So don't expect them to offer. You have to tell them plainly.
Next, your mother will have to get over herself and her refusal to have anyone but you doing for her nonsense. Bring in outside hired help to take over some of her caregiving needs if your family won't help.
You've unintentionally created a dynamic where your mother has been turned into a senior-brat who is permitted to demand that only you will provide for her needs. That has to stop today.
She will learn to adapt to hired or family caregivers with some of her needs if the alternative is she does without or goes into a care facility.
You'd be amazed at how fast a needy and demanding elder gets compliant with hired caregiver help when their family stops catering to them and the threat of placement becomes real.
Even if you were an only child as you wish, nothing would be any different. Caregiving usually falls upon one person, even if they have a dozen siblings.
Be honest, how many people do you know where everyone does their equal share of anything? By the way, that’s impossible to do, even if they want to. People work all different hours, someone gets sick, they travel with their job, etc.
Life will never be perfect. You either make the best of a tough situation or you change the situation.
In many cases there are valid reasons why some people feel resentment.
The trick is not to allow resentment to destroy our own lives, to the point where it becomes counterproductive.
We can’t fix anyone else’s behavior or problems. In all honesty, if we have tried to help someone and they refuse help, then it’s not in our best interest to keep trying. It’s not our job to solve all of their issues.
It’s their responsibility to make changes in their lives, just like it’s our responsibility to make changes for ourselves to make life better for ourselves.
I do feel that it’s healthy to honor our feelings, but not dwell on it for too long. Then, move forward and focus on our own progression.
That’s what you did by starting your own business, instead of continuing to be your mom’s caregiver.
Unfortunately, I learned many lessons the hard way, especially with my oldest brother, who struggled with addiction. The more I helped him, the less incentive he had to do anything for himself. I went through a period of feeling resentment.
It is sad that some of us were temporarily blinded by our emotions due to our sincere desire to help others. We fall, we get hurt, we get back up. That’s life.
Finally, I realized that it was everyone’s best interests to step aside and allow them to figure it out or not.
Sadly, some people never figure things out.
I truly celebrate when I see anyone who is able to turn their circumstances around and live their lives to the fullest. Congrats on starting your own business!
We shouldn’t ever lose sight of hope for a better tomorrow. So many caregivers feel trapped. Usually, there is a way out for them.
I'm sorry about your brother. There is such a thing as helping a person too much because it can cause learned helplessness and what I call practiced invalid behavior. When a person has had some kind of illness or injury or sometimes are just elderly, they get used to others doing for them. Then they refuse to do for themselves when and where they are able.
My mother is like this. She has some age-related hearing loss. So I was making all of her phone calls and taking care of all of her business. She now has some very high-end hearing aides that work well for her. However, she doesn't like to make phone calls that aren't social calls because it means dealing with automation and being on hold. So she'll work herself up into hystrionics and call me hyperventilating because she can't do it. I blow her off and she makes her necessary calls.
I find that most caregivers who are resentful to a degree have valid reasons why they are. A resentful life is a miserable one though.
If you didn’t ask for help, then you didn’t tell people you needed help.
I think it was John Bradshaw who suggested:
Guilt is when expectations of oneself conflict with our behavior. To stop the guilt, we can change our expectations or our behavior. * I'm not suggesting this is easy.
Resentment is when our expectations of another conflicts with their behavior. To change our resentment, we must change our expectations. * I'm not suggesting this is easy.
2.
Years ago I learned to think of "forgiving" as "for giving" up to the Universe, God, Cosmic Consciousness, or the higher power called by some other name.
3.
In the end, we live with ourselves - our actions. Resentment doesn't affect anyone in a positive way. For our own well-being it is better to find healthy alternatives. Perhaps that involves an open honest discussion with our family. Perhaps it involves meditation, long walks, conscious breathing, a support group, etc.