I've read many comments here regarding getting a loved one transported to a facility. I cannot even picture what that will look like for my 93 year old mom - strong personality, confined to wheelchair, mid-stage dementia.
I am the only relative/influencer who will oversee this process.
Taking her to lunch as a distractor while getting her moved in is not an option.
She has good days and bad days. Not sure what to do if moving day turns out to be a "bad" day.
Honestly, I picture a scenario where she will be tied to the roof of the car and transported to the front door of the facility. (Just joking!!!) But you get the idea. I really cannot envision how I am supposed to pull this off.
Help!
My mom grabbed the steering wheel....once.
From then on, she was transported by professionals.
With my LO, the only way I was able to get her to agree to get into the car, go inside, and stay at AL, was that at that time she was able to process what her doctor said. Her doctor told her that she HAD to enter AL. (Reality was that she was not able to live alone due to significant dementia. If LO refused to go, she would have reported it to APS. Doctor told me she would not let this go. So, I worked on the plan, while I cared for her. ) The spin that I put on it with LO was that she was entering for rehab. That she would stay there while she got her medication adjusted, physical therapy for mobility and balance, nutrition on track, (she had lost a lot of weight), etc. And, I would take care of her cat. She didn't like it but, she went. I sense that she secretly was scared and knew she needed AL. She did get all of those things at the regular AL, but, of course, her dementia progressed very quickly and I had to soon move her to a Memory Care unit by doctor's prescription. By this time, she had no issue with going as she had little orientation to time and space.
The regular AL , that she entered first, did tell me that they would not be able to keep her there against her will. They were not a secure facility and while they may be able to delay her leaving, by begging her to let them call me before she left. They could not prevent her from leaving if she called a cab and just left on her own accord.
So, I might get a consult with an Elder Law attorney about where you stand. Even with a Durable POA, you may see some difficulty. I'd get my options. No one wants the sheriff's department to have to transport, but, I'm sure it's sometimes necessary, if someone is completely resistant. I'd be hesitant to physically engage with her, because, either of you could get hurt.
Best of luck!
1. If the doctor has told you to do this or he/she will be required due to State Law, you NEED to do this as Mom will be placed in a Medicare nursing home!
2. Get a specialized caseworker to help you. They know these facilities, contact them in advance to make appointments and will be the person who talks with you before the facility manager becomes involved.
3. ASK IN-DEPTH QUESTIONS OF THE CASEWORKER AND FACILITY MGR.
4. The caseworkers will help you with the transition as they understand and it is not their 1st rodeo.
5. Many group homes will help by allowing a pre-move in by having you secretly bring items from Mom's house so there will be a recognition for her to relate.
Many allow you to have Mom's bed moved in so Mom will be more comfortable in her own bed.
I knew the transition would be just as hard for me as it would be for Mom and my Stepfather. Mom was in the hospital due to a constant reoccurring UTI. We moved my Stepfather (dementia with Alzheimer's)first. We told him that due to Mom being in the hospital, their doctor required Mom to be moved to this very special hospital. He was there to help them care for Mom, so until their Dr said it was ok to move back to the house, they would be living there.
I had to then go to the hospital to sign the release papers. I asked that this be done in a private room so Mom did not see me.
The mgr of the group home made arrangements for a specialty service to take Mom to her new residence. It was strongly suggested that I not be present when Mom arrived which I had already decided.
The mgr was so gracious, comforting and let me cry my heart out. I cried our entire trip back to TX.
Our assigned caseworker stayed for Mom's arrival to make sure both were comfortable, any questions and visited every week for 2 months. Of course, they wanted to go home or they would call the police.
Mom/Stepfather have been living there for 1.5 yrs. Mom calls their suite her home. Their dog lives with them too.
You will most likely be asked not to visit for at least a month. The reason is to acclimate Mom to her new surroundings. This takes on average 6 months. Depending on the extent of your Mom's dementia, you can check her out so you're able to take her for lunch. My Stepfather's nephew takes him for breakfast every Tuesday.
The more routine things become, the more Mom will accept the help and her new residence.
I travel back home every month, different times each month so I can check on everything including the staff. Mom's youngest brother visits every week too so I can be assured nothing is wrong. He will call me if he has a concern so I can call the mgr to discuss.
I have not had any issues with this assisted living group home. I have more issues with my siblings.
Buy stock in Kleenex. I have yet not cried when I have to leave Mom behind.
She and I walked her dog by it all the time. I had been worried that she
would recognize things and try to go home, but once there she did not know where she was and how to get back home. She forgot her home very soon after the move. To actually get your mom into the car and off to the facility I strongly suggest you have help. Hire someone if you have to, someone who seems to be in a position of power - in a nurse uniform maybe.
Im really agianst mediactions most of the time and i would try other options first and use meds as a last resort i was just useing this as an example of the dementia chess game.
I wish you all the best, know you are not alone in this struggle!
I am hoping that there can be more conversations about moving to a nice place that can meet his/her needs better than at home. It may take a lot of conversations and maybe some antianxiety medication for the "move" day.
You would advise to stay home? Do you have ANY medical facts here?
The Pound? Please refrain from being insulting.
So, I softly explained to my father that the situation at home can NOT continue like this anymore, and I got a case worker involved, had a calming medicine prescribed by his doctor AND booked a private Ambulance to do the transport 92 km to the wonderful "Heartfelt Alzheimer's & Frail Care Home", in the Eastern Cape, South Africa, BUT he still refused to go ...... (kept the Ambulance waiting for 2 hours, untill the paramedics abandoned the mission as they were not allowed to take him agsinst his will). That was the most traumatic day of my life ...... I cried the whole day.
Then a month later, we attempted it again, with the same private Ambulance again, but this time with the Head of the Alzheimer's Association in our region, a Doctor, who brought her nurse and assisted us. Same story, he refused again ...... until the nurse softly and tenderly spoke to my father, and advised him that my mother HAS to go to a facility (he díd recognize the logic for thát), and he needs to accompany her to support her ....... and then he said "OK" , and even got onto the Ambulance's stretcher himself ! We couldn't believe our eyes ! Once they were at the Home, where they received so much loving care, they never looked back. My Mom & Dad thought they are at a luxury rehab style hospital (must be, the carers all wear uniform !), and we never corrected them. We were also advised to stay away for at least 2 weeks, and we dreaded the first visit, but they were just so glad that we came to visit (I always brought them nice snacks & stawberries to enjoy with us on the verandah).
They are so much better cared for, by professionals, than what they ever ALLOWED us to do for them ...... It is so worth-it !
You just have to do it, but with professional help. Good luck, you are not alone 🙏🏻🙏🏻
My mom was in NH 'temporarily' until her hand worked better - she convinced herself that she was in a rehab place [again] - I even had 'props' in her room so I bought a dog toy that could be squeezed for exercise so that when she said something I would ask how her physio was going [she was actually doing some] & hand her an 'exercise' ball to help her but she would stop squeezing after 5 times as her mind drifted
Contact the facility directly as they may even have a means of transporting patients.
The head nurse gave me the best advice on the wife's care as her mind was just shutting down. She arrived in June, needed a wheel chair by August, to be fed by September and hospice care in October when she could no longer swallow, passing on October 23.
Her husband is still there, misses his wife, but is well cared for and happy otherwise. I just pay the bills, visit once a week, check with the head nurse occasionally. He walks down the hall for his meals 3 times a day and sits with one or two other people there who can still talk. Most of the tables are completely silent at meal time. A medical professional visits him once a month to check on his health and care. Occasionally one of the staff members will alert me to a need--like he no longer wanted to wear white underwear, so I purchased black underwear and came to his apartment when he was eating and stuck it in his dresser. We have been friends for about 47 years, there are no children or nearby relatives involved, just me and a few other friends who stop to see him now and then. He is 93, in good physical health. He doesn't even need glasses. He just tells me to stay healthy. My job is to live as long as he does. I am working on that. His being in good health makes my job easier.
We see his eye doctor twice a year to check his eye pressure and his dentist 4 times a year for teeth cleaning. Afterwards, we stop at Barnes and Noble, since he loves books--though he doesn't read any more--to have a cookie and decaf coffee.
Behind the scenes, I had to clear out their condo and get it ready to sell. That took about 2 1/2 years. I never told him all that I was doing, just did it. Their good furniture went to the area Native American community for free, via another friend who is Native American and could help me with this. The family photos and personal items like that I brought to my house to sort through and send to distant relatives for them to have and decide what to do with. Goodwill took the unneeded clothing and garage items.
When he runs out of money, his Veteran Benefits will have kicked in to help pay for his care, so he never has to leave. One last big thing to do, is to pay for his funeral costs ahead of time while there is still money to do this and before the medicare "look back" kicks in. I am still learning all that is involved with this end of life care, but it has gone very smoothly so far.
My best wishes to you for your journey on this path. I hope it goes well, too!
- Telling Mom that everyone needs to get out because the house is being fumigated.
- Taking her to lunch (or church, shopping, or on a visit) and instead of bringing her home, bring her to the facility.
- Waiting until she gets sick and taking her to the hospital for treatment. Upon discharge, transport her from the hospital to the facility instead of home.
- Just telling her that it is time to move and packing her bags. Note: To make this one work, attitude is all important. YOU MUST BE UNWAVERING! Don't yell or try to reason, just pack her bags while she raves. I was a little shocked when my mom went with me, but she did.