I've been living with my mother for almost 7 years now. She turns 90 in November. She is still able to do many things, but spends her days in her pajamas in front of the TV. She will get up to get herself something to eat, then throw her trash on the tables and floor for the slave daughter to pick up. If I say something to her, she'll say I can pick it up, because what else do I have to do, anyway. She leaves cabinets and drawers open. She throws clothes and towels on the floor. She will help clean the house some if my brothers come to visit.
Okay... I know there are people who are saying that she is 90 and out of energy. But truth is she has always been lazy. I mean lazy lazy. Her laziness has been the biggest problem in caring for her, because it makes me feel angry and contemptuous. If she couldn't do more, it would be one thing. I try the "Use it or lose it" idea, but the words have no impact. She just wants to sit and watch TV and eat. Drives me absolutely crazy. Sometimes I want to kick her butt and tell her to get up and start living. She is nowhere near death, so this could go on for years.
I stopped nagging to him to close the drawers, cabinets, refrigerator, etc. because it would only work for a week. And here he was a man who was highly regarded at work, winning rewards, etc. Maybe if I pay him he would clean up after himself :P
Once my primary doctor prescribed meds for me to take the edge off, mainly because of my parents, I found it worked for dealing with my sig other. I would come home from work and be able to follow a trail through the house where he had been. Therefore, no more closing drawers/cabinets/refrigerator/closet doors. When he emptied the shredder and tiny pieces fall to the floor, he can pick them up... right now those pieces are all over the house as they will stick to the bottom of one's socks.... [sigh]
I've been planting some seeds in my mother's mind. She talked about her friend's son and how he doesn't seem to pay much attention to his father. The father is 93, living in a nice ALF, and in poor health. I told her things weren't like they used to be when people lived to 60-70, then died of a heart attack or something. I told her people can live 20 years now in poor health, so no child can donate that much of their life to take care of them. Then I talked to her about my aunt and cousin. My cousin spent 15 years of her life taking 24/7 care of her mother. When my aunt died, my cousin was in her 70s and totally broke. I told her that it was a bad thing my aunt did to her own daughter, even though the daughter loved her enough to do it.
I somehow think I did not impress on her that what she was doing was not okay. And I know I will not be able to donate much more of my own life, because it is just not a good way to live. I do deserve to be happy as much as she deserves to be comfortable.
I have been a loving, caring, patient, compassionate caregiver for many years. Really, I was a great caregiver. But I couldn't have lived with your mother for seven weeks let alone seven years. So know that you are exceptional and give yourself a lot of credit for the outstanding service you are providing, above and beyond what duty calls for.
Your mother was lazy lazy all her life. She certainly cannot be expected to change with dementia. You are doing an amazing job putting up with her.
I think people of the boomer and later generations will not be so reluctant to leave their homes. Retirement communities, IL, and ALF are so much better. I've lived in the first and it was fun.
I used to dream about having a little house by a stream out in the country. Now I just dream about going to sleep in my own bed inside my reasonably tidy place, knowing I can wake up and have coffee with my friends if I want.
The worst is the television remote though. I've sat down with her many times and explained how it's the same remote she's had for five or six years, we go through the buttons, she does just fine. Then after five minutes she'll turn the volume up all the way, somehow end up on a channel that's just snow and start yelling for help or even worse, drop the remote where she can't reach it. Now I have to keep it out of reach and just leave the TV on the "oldies" channel with Matlock, Andy Griffith and Gunsmoke reruns unless I find a movie she likes or something.
I confess: I, like your mother, am an idle little piglet in many ways; and yet I fall between Daughter 1 who is a non-stop neat freak and Daughter 2 who... well even I used to blanch at the state of her bedroom sometimes.
Quentin Crisp said of housekeeping "after three years, the dust doesn't get any worse." This, to me, is going too far. But I'm perfectly capable of leaving a cupboard door open and going 'tut' at it at least three times before I get round to shutting it.
So I sort of feel her resistance; and so, then, where *could* your mother live where her less than sparkly standards would trouble nobody but herself? Is there any option like that?
This whole relationship strikes me as veering into a toxic zone; toxic for our friend, at least. Caregiving is tough even when the person you're caring for is loving and grateful. When they are dismissive and rude, it becomes, imho, unbearable and unhealthy for all concerned.
Of course, if a change is going to happen, only the OP can initiate it.
Unfortunately, in her younger years, she was also a hoarder. Even though she worked as a cleaning woman, with an excellent reputation, home was the typical boxes and boxes and boxes of junk. Growing up this way, I now am OCD about organization and cleanliness.
Mom thinks as a senior she should not have to do things. Added with forgetfullness, things get disgusting pretty fast. Dirty dishes everywhere. Clothes, newspapers, and whatever else all over the floor, I could go on.
On top of it all, I'm still trying to remove excess crap from over the years which mom does not want to let go of. You cant clean properly atound all the stuff......sigh
My saving grace is that i live in a suite downstairs. My space with my rules. I dont know if i could live with mom in the same space without having to call the men in the white coats. You have exceptional patience and courage to reach 7 years.
The idea that you dont have anything better to do is bothersome. That needs to stop immediately. How? I wish i had the answer for you.
I repeat as need "I am your daughter, not your slave. I am here to help, not to serve. I am here because I want to be, not because i have to be"
I then walk away. Ive learned to pick my battles but hold firm to my guns.
I also choose 1 small area at a time and set rules on how it needs to be kept. Right now its the kitchen table and one cupboard area where no junk may live. So far, so good. My issue has become an older sister who is staying temporarily upstairs and is just as messy as mom so i now have 2 people messing and not cleaning.
Normally i manage 2 households and keep both running firly ok. Right now, my foot is down with sis and i no longer go upstairs letting it fall with her. I work fulltime, she does not. I will not clean up after her and needs to do her part with mom. But thats another post entirely.....
I wish you luck and peace of mind.
Hang in there.
Do you sound like your mom did 65 years ago when she was telling you to pick up your room, close the cabinet door, get dressed and go out and do something? And did you always pick up your room, shut the cabinet door or get dressed and go out with friends? It is sort of like a look back into your lives but with the roles reversed. This is just a headslap that some of these things you can't stress about to much because they are not a matter of safety or a matter of life or death..Wait until there is something real important to focus on
Now to your question....
Can you get someone in once a week or twice a month to do a good cleaning? You can do day to day stuff but knowing that someone will come in and do the real nitty gritty cleaning you put up with a bit more.
Can you get someone in 1 time a week to take your Mom out on a "date". Go to lunch, go to a show, go to a park or conservatory. Take her to church, bingo, the library or to the mall. If your Mom has something to get up and do she will be more likely to get up and go.
Sitting in your PJ's watching TV and not wanting to do anything could be a sign of depression. Has she been evaluated? If not and this is early just getting her out might be of great help. My guess is by the time I reach 90 most of my friends will be gone and unless someone encourages me to get up and out I would be right where you Mom is but without a daughter to pick up after me.
Mojorox, the sister would be the straw that broke this camel's back. Grr! I'm not a clean freak, but I like things reasonable. And I hate being treated like a slave and have disrespect heaped on top of it.
Grandma, I had to chuckle at your message. Normally nothing you said would be too wrong, but I wasn't even born 65 years ago. As soon as I was old enough to clean house, my mother put me to work doing things. Every Monday was cleaning day. I hated the sound on the washing machine on Mondays in summer, because I knew how my mother was going to be in mood most foul. She would give my brothers and me tasks. They were to clean their room. I was to clean my room, dust all the furniture in the house, and run the dust mop over the hardwood floors. I learned quickly that women were built for servitude. My mother did get our cereal ready for breakfast and cooked us dinner, but that was about it. As a child of emotionally neglectful parents, I don't feel like I owe much. But here I am.
The only sane solution would be for her to go to a facility. She can't stay alone and there is no one but me. A girl from the church just called her to see if she wanted her to come by. My mother said no, that she had a cold -- a lie. She pushes everyone away. She said she prefers to watch the TV to having anyone around. I couldn't disconnect her TV. She isn't a child and I'm not the boss of what she does. I only can control what I do.
We get stuck in this place. They can act like a child wanting someone to take care of them, but they aren't children. We can't ground them and take away TV privileges like they were teens. I don't know what we can do, because there is no right answer as long as they are legally competent to say no and family won't get involved in any way.
If you made real plans - somewhere to live and a job for yourself, and contacts with caregiving agencies for your mother *should she choose to avail herself of them* - and said to your mother a kind version of "that's it, I'm gone" how do you think she would react when it came to it?
Can you imagine what your own parent would have done if you told them to clean something, then told them "What else do you have to do?" I imagine that a lot of us would have gotten the belt. Old folks can get by with a lot more than kids. :)