However, I haven't figured out how can I get him from point A to point B as I am in a wheelchair. If I helped him into a small manual wheel chair, I could push him around if I am here alone. Has anyone had these challenges? Yes, I know, I could hire someone, I could go to social services etc. but our circumstances and money has not allowed this at this time. I know once he is put on "hospice" ..... care will be available. We live in rural area with no close neighbors, and if this can be safely done I would welcome ideas.
I have already arranged living room to accomodate a bed (when needed) and I have a bedside commode ready as well as how to bathe him. I have been reading this forum for years and I have learned so much.
If you have any ideas I would appreciate hearing them. Example: I have learned to use the handle of a crochet to turn on my stove and my chair goes up and down. I am independent on my own but I never gave any thought that as the disease progresses he might not be ambulatory on his own two legs. Right now is not a problem. Thank you for your kind responses. For those who will want to tell me to put him in a nursing home, I am prepared to do so when appropriate. I've figured out so many things, maybe this is something someone knows what to do.
Kudos to you, a fellow "problem-solver" but please please make sure you take care of yourself more or equally. Caregiving can be extremely draining on every front. Even if you did have neighbors, or even family, close by you could only depend on them for a limited amount on help that is not "on demand". See what the county and other nearby faith-based organizations can do to provide help. You may even want to explore Medicaid for him. I wish you many blessings!
One never know what is in store for the future. It is good to plan ahead for whatever comes your way, and you seem to be doing it correctly. Keep thinking :)
When my parents were in their late 80's, my Mom thought she could handle anything that came her way. Such has picking up my Dad if he fell. She was in for a surprise. She had to call my sig-other to come to the house to help Dad. I know the local fire dept/rescue dept are more than willing to help so that is an option.
So run all sorts of issues through your mind, and have option A, B, and C.
Hope everything works out smoothly for you and hubby :)