So, may be taking this in an a WAY different direction than what this website is about. Been reading it for the longest, responded a time or two. Anyway, I just lost a long term relationship after my mother got Alzheimer's. Thought I was doing the right thing by putting her first. But now I'm not sure I did the right thing. Her twin sister had it before her, and her daughter took care of her, and the things she said about that. I know she would have never wanted this to happen for me. But when it happened to her I got so caught up in her and her care and taking care of her. Trying to maintain two careers and her too. By the time I realized I was losing almost everything, (I actually took her to work with me at times, which risked my career), I took the necessary steps to have her safe and healthy by other caregivers. I just so regret not doing this earlier, before it got to this point and I lost so much. She's the sweetest person ever and loved (loves) her family so much. My significant other left me, via text, after 13 years, my mother fell the next morning, naked, but I got her up, and her twin died three days later. I had turned into a mess. Health problems, etc. I could go on and on. But I'll spare you that. Just looking for advice.
I feel you are very lucky to be rid of someone who is so insensitive and such a coward that they would end a 13 year relationship by a text message!! This certainly isn't someone who would ever stand by you through all of the hard times that life continues to throw at us, unless of course it was happening to your SO, at which time they would probably expect for you to provide EXACTLY the dedication you are showing your mom! Good luck, and I hope you find a relationship with someone who is as caring as you!!
Just a side note about assumptions. As you noted, some readers assumed you were male based on your name (and perhaps on having two careers). With the exact same name, a lot of people have assumed that I'm female. Assumption shortcuts are often erroneous.
My wife is also disabled and we have little to no "us time". It's rough on us and for a while I suspected that her mom was trying split us up. But we manage somehow and while my wife has said on several occasions that she wouldn't blame me if I just packed up and left, I'm not going anywhere. I love her too much to leave her in a mess like this. We've came to find that it works better if she deals with her mom and I do what she can't. Her mom and I used to get along pretty well, but since the dementia set in, she gets downright hateful to me.
But I'm not going anywhere. I love my wife and she needs my support more than ever to get through this. I don't understand how anyone could leave someone they say they love just because things got a little tough. That's when you really need each other.
I pretty much have very little social life and my family doesn't come down very often. So it's just me. The agencies are horrible and most aides can't do the job. But you were the right person to take care of her. You were chosen for that reason. If you need someone to talk to, you can contact me.
And btw if someone left you after that much time because you were taking care of your mother, you're better off without them. God gives you the people that you need. Don't worry I'm not a preacher. Every religion or evolved thinking says the same things if you look at it.
You're mother is proud of you. Start slow and get your life back. Jmo
I live with and take care of my 93yo mom who is just now exhibiting signs of “not so clear” mental functions and imho there is no room for a partner even if I sometimes feel quite isolated. My job is relatively easy compared to so many other caregivers on this forum.
My question is this: what would you have done differently? And how would you feel if your mom passed tomorrow in both scenarios??
My whole purpose in life for the last ten years is to “have no regrets” when my mom passes because I know I can never make up to her all the great and wonderful things she’s done for me once she’s gone.
Personally, I’m glad and prefer to be the one doing her day to day care, over family or hired help. Even though she sometimes resists me, I think that I have more compassion toward her, yet I can be more firm with her than anyone else.
How could I live with myself if I did not step up to the plate in her hour of need? And how much would my ex husband be hassling me about not putting him first? A lot, I’m certain of that.
(I wish I could keep these good thoughts at the front of my brain when I get frustrated with her and I’m going to attempt to do so AGAIN!)
You absolutely have been doing the right thing though you need to heed all the other advice to get some help in before it costs you your own health even more so her care won’t be interrupted if you have serious problems.
If you think your heart is broken now, you’re going to have a much bigger heartache when mom passes and caring for her is going to become much more intense before that happens.
It is better that what you thought was your so is not around to distract you from your main focus when it becomes really tough work.
Good luck to you or I should say “peace out” because you have got it all together and don’t need any luck.
Charlotte
You may not have lost a relationship by ANYthing you did. Showing love and compassion for others is actually attractive to genuine people.
It's possible your relationship was meant to end as someone more wonderful is meant to come into your life.
Google youtube Ralph Smart and watch the one you resonate to. Trust me. You will be SO uplifted. Do this for yourself! :)
In a difficult caring arrangement, the SO’s final text message is the equivalent of the dismissal, and unfortunately it follows the same pattern of being ‘not really out of the blue’. As the carer, how can we open our eyes to the warning signs? And how can an SO have the courage to make it crystal clear that the relationship is on the line? We need this to happen before our hearts have hardened and the end is inevitable. It would save a lot of pain.
needed more time with you - and then you didn't give it. It's a pretty tough call knowing you need to help your mother and the fact you need to live your life, but as caregivers what we all tend to forget is that there is help out there - there is respite care and overnight care and all sorts of other helpful ways of coping with an ill parent - you should not let it consume you.
PS - I hope you do make room in your heart and mind to talk to Jesus. He is your Creator, the very source of Love and Peace - the best resource anyone, anywhere can offer you. He has been there for me "in the mountains and valleys" of life, for sure.
Let me start by sharing how impressed I am with how involved you are with the care and safety needs of your mother. Caregiving is an extremely stressful and exhausting job, not because caring for your mom is so traumatic. It is the heightened sense of urgency 24 hours per day with very little support from others. You rose to the challenge and have my respect!
There are so many things I want to discuss with you.
Laura
Years ago during a time when my brother and his wife were having significant problems, my nephews spent the weekends at my home - out of the line of fire. A couple of boyfriends told me they didn't like not seeing me alone on the weekend or being restricted to family friendly venues. I told them we were "friends" and those kids were "family". If somewhere down the line BF started moving toward being "family" then things could change but "family" will always come first. A couple of BFs moved on, but one told me he hadn't thought about it that way before and I was right.
SOs are not family even if they hang around for 13 years. In my old fashion view maybe especially if they hang around for 13 years without the commitment of marriage.
Sounds like he probably added to the stress rather than supported you. When you're in a place to devote to your relationship you'll find the right person.
I'm dealing with both of my 87/84 yo parents, my mother with dementia is 'beyond' being able to think of what it's like for us kids or Dad... but Dad lamented that I would stay with them for a week or more at a time helping at various stages, getting HH care working smoothly, prepping for a move to AL, etc. I just assured him that I was honored to repay the favor of all the sacrifice they made for us kids, and that yes... there were hardships associated with it but he had to trust me and my husband to work that out. There would be (are) times where I would chose my husband or kids over my parents and vice versa. To MINIMIZE those times I have to make the difficult choice, I sought out and used all the help I could find!! And again, what if we run ourselves into the ground, then what??
You have to put your own needs high enough on the list to stay functional.
"Tend to your own oxygen mask before assisting others".
Keep giving this advice, we ALL need to hear it.
Look I'm about to be married and he's been HELPING me take care of my mom. That's what you want. someone who actually cares about you. My mum always comes first. she's totally dependent on my care so she can't help the way she is and never asked for Alzheimer's disease. He knows that..
when she got feisty and needy always bullying the SO left town to return to
his family, I think he was advised by his Doctor as he was old...and the needy
aunt would give him a heart attack....unfortunately then Aunts kids started Guiltripping me next door after two deaths, in my family in six mos. Dad and Brother Caretaker...………………..people are very strange...I refused to get involved as I was a new arrival on the scene...and this aunt had bullied,acted out,guilttripped as a matter of day to day with many people..
I said I did not want to be responsible if Aunt wanted to drink,act out..etc.
subsequently her daughter almost killed her by giving wrong medication
as she worked and was and is nervous or resentful...also she wanted her own life...……...you will be happy some day for caring for your Mom and
peaceful....someone will appear...people show their true colors in a crisis
did he take you out for dinner...did he pay?...what was the real depth of the relationship?
It sounds like your caregiving is all consuming and perhaps even made you disrespect or not be careful of your boundaries. Or perhaps you don’t have what are called healthy boundaries. Risking your career like that would be one of them. You can’t properly take care of others if you also don’t respect care for yourself and your other important relationships. You read about it on here all the time of caregiver's family and spouse relationships suffering. To get past this and to see how you can have good boundaries I would suggest a few counseling sessions with a good therapist. Is that possible? And getting good help for your mom to ease some of your duties so you can also take care of yourself. You don’t want to lose your health...both mental and physical.
Your boyfriend did you a favor by bowing out although I’m not sure it feels this way now. I once lost a man over a health issue I have and I was so devastated I cried for weeks and needed counseling. But now I see it as a blessing. I met and married my husband who was wonderful when I told him. So my best and let us now how things go in the future as a check in.