I took care of my mother (very ill) and her husband with dementia for years and the last three were horrific. I begged and begged for help from anyone and everyone. I finally got him to his daughter and my mother into a facility. She passed in January. I thought "I can get on with my life soon". Nope. Breast cancer. I couldn't get checked (I tried) when I first found the lump because every appointment day there was another crisis and I would have to cancel. I now am in their home that HAS to be cleaned out and sold and I get nothing. No insurance nothing. And now I have nowhere to go, no one to help me during treatment so I'm not going to. My question is... does anyone know of a place to call for help or a place to go other than a nursing home? I don't need that yet. If I had help while being treated I might consider it but without help, all alone how does that work? I was abandoned by all of my "so-called friends" while caring for my mother because I couldn't ever keep plans or even really make plans. So, NO ONE.
The OP has cancer. It's not likely she will be able to work on an organic farm or any other kind. She needs medical care, support, and housing. It's likely won't be able to physically slum it in a hostel with a bunch of 20 year kids who are back-packing across the country. Especially if she has to go on chemo or radiation for the breast cancer.
Cannabis and CBD oil can be helpful, but the OP is going to need a hell of a lot more care than a bag of weed can offer.
First talk with your doctor again. Take a list of questions with you to your appt so you don't rely on your tired brain to remember what to ask. Find out what your treatment options are: chemo (radiation) first, then surgery (neoadjuvant care) - or - surgery, then chemo and/or radiation. Chemo first means the doctor can see if treatment is working/change drugs/check again - then remove the tumor. Several options for surgery/rebuilding the boob that can be discussed as well. Ask about all options.
C treatment has come a long way. There are the old standard protocols and now there are 'designer' treatments suited to the type of c you have. They determine what drives your c and use drugs that shut those things off to supply growth to the tumor. If you have heard all the old stories about how sick someone got during treatment, set them aside for now. There are plenty of meds to prevent that, to prevent much of the suffering that the cure used to create. It is very possible for you to do this without personal aide type help.
Perhaps you haven't been abandoned by your friends - you have just lost touch with the other huge portions of work you had on your own plate. You were removed from their life. They still worked and played and things just didn't work out for all of you to see each other. Try to reconnect - put your hurt feelings aside to be open to being social again.
You live in 'their' home. If the home is being sold, who is going to get the proceeds if you are not being included? You will be moving somewhere if the house is sold. Find your new place to live: small efficiency to start. Take the things that have meaning to you and your personal belongings: Boxes to go to new place and some things to storage if necessary. Get a local moving company to get everything you want out of current house and sorted/placed to new residence. Then walk away from the house and let the person who gets money from the house deal with all the rest of contents. Don't put one more dime into the upkeep or utilities once you find your own place - your money pays for your living expenses.
If you can't connect with old friends, find new ones. If you believe in God, I highly recommend a church. Reconnect spiritually.
Breast c does not always mean you've been given your expiration date. The doctors can refer you to counseling and other services. If you are income limited, check with your county for available services. Right now you're at the bottom of a hole looking up. You are stronger that you can believe at the moment. Stand up and you're half way out of the hole. Then take a step...and another...and you'll be out of the hole. You can do this!
The infusion center where my sister got chemo and whole brain rads treatment had a few side programs for those in treatment and their families. There was a art group which focused on colored pencil art. Another group was pottery, and there were others which I don't recall now.
I went to several of the colored pencil gatherings, met others, and learned a lot about colored pencil art. Found an online colored pencil forum and learned a lot more. I was amazed at the depth of art that can be created through this medium.
One of the women had periodic get togethers at her condo, on a river, and I was invited. We had a nice lunch, chatted about art, went for a ride on her boat, and relaxed. I learned so much that I looked at pencil art in a different way. All of the women were supportive, even if they didn't have experience with cancer.
These infusion center sponsored groups offered excellent and valuable support. Ask your oncologist if there are similar groups, whether sponsored through a hospital or an affiliated infusion center.
I also explored Gilda's Club and was very impressed, but the first meeting was too emotional and I didn't follow through with joining. It was just too soon after my sister's death.
National Council On Aging. ...
AARP. ...
Programs of All-Inclusive Care for the Elderly (PACE®) ...
Eldercare Locator. ...
Area Agencies on Aging (AAA) ...
National Institute on Aging. ...
Meals on Wheels. ...
Health Finder.
One day she disappeared. Soon after a company came with a dumpster, and literally threw everything into it. Dishes out of the cabinets, into a trash bin. All the furniture, into the dumpster. A couple of neighbors, in disbelief, went over to see what was going on--couldn't believe it. The "emptiers" let them go through the home and take anything they wanted; they saved a few items that had been very special to the grandmother.
It is possible that I am going to need to do this with my mother's home. She has become a hoarder. My kids are scattered around the country, and do not need or want any of her many things. I am 10 hours away, with the earliest signs of dementia showing in me. :( For the woman above, they did not bother with a sale or anything--the family just needed it gone. The home was sold as-is, as a fixer upper and a lovely family lives there now. There was no painting or cleaning before the sale, unless they had a professional company do a once-through after the home was sold.
There are apparently people who specialize in these things today. Horrible so many of our lives have reached this point.
One more thing--if you get in touch with a cancer group of some kind, you may very well find a group of volunteers who will help you through chemo. Your situation is common enough that there may be people in your are who have organized support for it. Blessings and best of luck!!
In 2009, Gilda's Club merged with The Wellness Community to form the Cancer Support Community, although local branches generally opted to retain the name Gilda's Club. Gilda's Clubs generates funds to support its programs through events often hosted by notable figures.
You are not alone in this. And the fact that you are reaching out is a good thing. You know enough to speak up. The help may not come from the people you would hoped would have stepped forward but it may come from another source.
You could try the Gloria Gemma Breast Cancer Resource Foundation
Mandy@gloriagemma.org with any questions. They could put you in contact
with resources in your State. Programs and Services (401) 861-4376 or
info@gloriagemma.org
How about if you contact a social worker. Usually there are support groups for Women with Breast Cancer, workshops etc. I was under the impression that there was a lot of networking and resources at hospitals and Women's care.
Perhaps you could speak with an Elder Attorney for a "free consultation" for an hour to see if somehow you could get paid from the sale of house for your time and work that you put into caregiving. I wouldn't be polite about this.
The sooner you can join an online support group where you can share with other women who have walked in your shoes, the better. The more heads you put together on this one, the better.
The best help are people who have been through it. Survivors of breast cancer who have compassion, know the routine and will give you support and a new group of friends.
I hope this was of some help to you. You are in my prayers!
Call 2-1-1. They have a network of resources and I believe your situation — housing, meals, assistance — is in their wheelhouse.
http://www.211.org/about-us
🙏🙏 🙏
https://www.curetoday.com/
Gilda's Club is also a good support facility.
I encourage you to get treatment.
Go to the MD who diagnosed you; get yourself on medicaid or whatever else you might need through their social worker's help. Access all the help you can in your community for support. Whether you are in a shelter or anywhere else to live, you can get through this with the help of accessing what is out there for you.
That's my advice. I can only advise you. It is up to you to choose to stay, and fight, or to choose not to stay. You have neglected treatment of this. That puts you behind, but mine wasn't found until it showed up in two fused lymph nodes under my arm, and like I said, here I am, only stronger, and having learned a whole lot about how to survive and how to love life more every day I do.
I wish you the very best. You are not alone in trying to access care while being poor.
I am very very sorry. I hope the experiences of others here will help you; many of us are cancer survivors.
Immediately, contact your county to see what aid (GA, food stamps) you might receive immediately if you are not already receiving this in addition to Medicaid. Your doctor may be able to sign disability papers regarding at least temporary disability.
As to their house, you've lived there three years. Assuming they owned, whoever is telling you that the house has to be sold right now to satisfy their inheritance (if any exists), is not telling you the truth. If the problem is that the property still has a note or a lien, the bank or creditor typically takes years to evict someone.
The American Cancer Society 800- 227-2345
www.cancer.org.
Nationwide, community-based voluntary health organization devoted to defeating cancer through research, support and advocacy.
American Institute for Cancer Research 800-843-8114
www.aicr.org
This organization funds research and gives people practical tools and information to help them prevent and survive cancer.
CancerCAre, Inc 800-813-4673
www.cancercare.org
Provides free, professional support services to help all affected to cope with and manage the emotional and practical challenges arising from cancer. offers counseling, support groups, education, publications, workshops and financial assistance.
Check your local Area Agency on Aging and see if you qualify for services.
Check local Senior Center, many have Social Workers that can help you find services that might be of help.
AND....you need support of friends. Begin to reconnect with people that you have not been able to keep in contact with.
I have said that one of the things you need to do when you are a caregiver is to take care of yourself. One of the other things that you need to know how to do , and this is difficult...
ASK for help and
ACCEPT help.
People want to help but quite often they do not know what to do or what needs to be done. Asking for help is not an imposition, it is not "begging".
First if you are not getting anything in regards to inheritance of the house etc I suggest you just stop cleaning and clearing out the house. Take what you want as a remembrance of your mother and say f--k it to the rest. You already gave up emough of your life no need to keep doing it.
Second the American cancer society has resources for help when going through treatments. For example they can give you rides to chemo. I would call them and see if they have other help and resources for you.