My mom has dementia, early stage but I am learning that her mind will never go where I want it to anymore.
The problem is that she was an impatient and not a very warm person in my growing up years. When I was an adult she seemed to undermine everything I did. I was always trying to be "good enough" in her eyes.
Well now she has dementia, she acts the same way towards me (not really a surprise) but I am getting impatient with this. I am "setting my boundaries" as an adult but am realizing that she no longer is able to understand this.
I ask her not to do something, tease the dog for instance. 15 minutes later, with the dog snarling at her, I once again ask her not to tease the dog and explain the danger. An hour later she is teasing the dog. She does not remember any of the previous conversations.
The issue being that she really does not remember previous conversations.
Anyone have ideas?? I feel like such an awful daughter.
Barb
Try to get as much free time away from her as possible.
This is an evil disease and she isn't doing it on purpose.
That being said I had an argument with my Mom yesterday and I knew the fall out was coming.. Right now she's in bed whining "why am I still alive, why doesn't God take me, I'm of no use to anyone"! I said so you can spend more time with me". Her answer was' "ya right"! I walk away and now she just feeling sorry for herself. I do the best I can, but I'm tired of being dragged don't with her.. Let's hope she bounces back at breakfast time. She will! Pill time has become very important to her!! Lol
room. lol. We can only do so much, I had to smile about the dog deal, my mom feeds my dog everything she eats.......DRIVES ME CRAZY, I cant get mad at the dog, but he will vomit and it is so frustrating. I am a professional butt wiper vomit picker upper. Find you a safe place and you will be fine. I have been called a bitch at 5:00 am. lol, I just tell her the apple did not fall far from the tree. Peace be with you
It's not as if I don't understand the what's going on in my head. I remember well a psychology course that I took in nursing school. The book said that when you do something new (learn to ride a bike, juggle a ball, recite a tongue twister) you are forging new neural pathways in your brain. Like blazing a road through a juggle, it's very hard to do, and very slow going the first time through. Maybe even impossible. But the second time, is quicker, but not by much. By the time you've traveled that trail several thousand times it's paved in concrete and you can drive a NASCAR speedster through at light speed. Every time you are pushed to your limit, till you are nearly in a rage of anger, it happens quicker.
Unfortunately you can't unblaze a trail in a jungle or in your brain, unless you never travel it for a long, long time. Well the chance of a dementia patient's caregiver getting a long long time away from the their aggravation isn't going to happen untill..... well we all know the only thing that's going to end this aggravation. And wishing the misery will end, and what that means, only makes me feel like an even worse person.
My 90 yr old mom has dementia and my 63 yr old brother suffers from a severe head injury. I'm their sole caregiver, with no help from the outside. Mom makes no sense when she speaks and my brother is so aphasic, that he can only put together 3 to 5 words. My days are filled with guessing games of what either of them are talking about. lol
I found one of the best ways to keep myself from completely losing it is to actually ignore their idiosyncrasies. They both have severe OCD. I have learned to accept that neither person will ever be normal. Acceptance is one thing that gets me through the day.
I am with them all day until 9pm, when I shuffle them off to bed. I have an apartment in our basement. That is my getaway. It's my only time to relax. Well, not completely. I have a baby monitor set up in Mom's room; so I'm never completely away from her.
So 39barbs, what you're feeling is absolutely normal. T'would be great if there is somewhere you can go for some personal quiet time. If your mom has a quirky habit she likes to do and it's harmless, leave her to it and find a room for yourself in which to relax a bit.
Clearly, there's no fixing this. It's a matter of truly and fully accepting the condition of our dearly demented and just letting that BE. And when it's a parent, with all that history and emotional baggage, I don't have to tell anyone here that it isn't easy.
But, let's face it, the relationship issues aren't going to get resolved at this point. We have to let go of that sort of futile hope and stop letting these nut cases push our buttons.
I'm not trying to evangelize anyone here, but want to share an approach that helps me a lot. I can't change Mom's behavior (although medications do help make her more manageable). But when it gets to the point I feel overwhelmed, I turn my focus within, offer everything I do as service to God, and sometimes sing a comforting hymn (or chant).
Blessings to us all and may we find peace and solace in these trying times.
So, what's the solution? I've learned to ask for help, occasionally relying on someone like the greeter at church to invite my dad in or the waiter to encourage my dad up from the table. The local fire dept for a lift assist in extreme situations. It's awkward! I play mental games/challenges with myself: what's my lesson in this? What strategy can I try that I haven't yet tried? Sometimes I see Dad as my patient whom I've been entrusted to care for, so that I can help distance myself from the father/daughter relationship. Sometimes I am the daughter needing his help: Dad could you please help me do this? I just have to find something that works. I try to help him be as dignified as possible, yet occasionally I've had to just "push" for his movement because in personal hygiene areas, his standing up/sitting down is crucial. I've basically had to pull him up (against his will) with a gait belt. He has gotten very angry (and I am the little girl upsetting her father) but in some ways the anger snaps him out of that "dementia stupor" in which he's been stuck. My days of serving as his caregiver are limited.
No matter what anyone says, when we feel impatient, frustrated, angry with our loved one in a caregiving situation, we do feel bad about ourselves. Feelings are normal, but it's how we handle them that can do us in. That's why we look for ways to minimize our frustrations. One is talking to others who understand. Another is helping ourselves see varying ways to handle whatever situation we're in. And, finally, knowing when we need a break, a bit more fun, to laugh, see another options in an approach, or simply let someone else handle one evening or one morning so we don't have to be the one in charge at that moment.
We're with you in spirit and online!
I feel I'm doing all I can. I do her grocery shopping, all of her bills and finances and take her out to eat once a week and she comes to our house on weekends for dinner. I limit my time because honestly I can't stand the constant repeating. She asks me the same questions over and over. I just answer her and the minute it's out of my mouth, she's asking me again. And again and again. I can't take it. Carrying on any conversation with her is difficult. She won't remember it 5 minutes later. Yesterday she looked at me with those sad eyes and told me she just wanted me to visit and stay longer. More guilt which I don't need. I keep telling her I'm very busy All she does is sit on her couch and stare out the window, usually with no TV or radio on, total silence. No wonder her mind went, mine would too if that's all I did. She never had any friends, so never socailized, never had any hobbies, so all she wants is me. That's why I hired a caregiver
She also refuses assisted living so that's out. I have a POA and I will enforce it if I have to, but I'm waiting, I figure I'll know when the time is right. Mom won't cook, doesn't drive and all she can do for herself is bathe herself and get dressed but that takes up mist of the morning. She gets Meals on Wheels or she would never eat. Half the time she can't even remember IF she ate. So I do the best I can and try not to let the guilt overtake me but it's hard
Hod bless all of you other caregivers out there. So many of you are doing a lot more than I am and I commend you for what you do. We all have our limits and for me, this is all I can do and still have a life with my husband that I deserve.
I feel I'm doing all I can. I do her grocery shopping, all of her bills and finances and take her out to eat once a week and she comes to our house on weekends for dinner. I limit my time because honestly I can't stand the constant repeating. She asks me the same questions over and over. I just answer her and the minute it's out of my mouth, she's asking me again. And again and again. I can't take it. Carrying on any conversation with her is difficult. She won't remember it 5 minutes later. Yesterday she looked at me with those sad eyes and told me she just wanted me to visit and stay longer. More guilt which I don't need. I keep telling her I'm very busy All she does is sit on her couch and stare out the window, usually with no TV or radio on, total silence. No wonder her mind went, mine would too if that's all I did. She never had any friends, so never socailized, never had any hobbies, so all she wants is me. That's why I hired a caregiver
She also refuses assisted living so that's out. I have a POA and I will enforce it if I have to, but I'm waiting, I figure I'll know when the time is right. Mom won't cook, doesn't drive and all she can do for herself is bathe herself and get dressed but that takes up mist of the morning. She gets Meals on Wheels or she would never eat. Half the time she can't even remember IF she ate. So I do the best I can and try not to let the guilt overtake me but it's hard
Hod bless all of you other caregivers out there. So many of you are doing a lot more than I am and I commend you for what you do. We all have our limits and for me, this is all I can do and still have a life with my husband that I deserve.
I know this is not an easy situation. I guess the best advice would be is to try to have as much patience as you can. This is a terrible disease and it's not anything your mom is trying to do or doing on purpose. I learned this with my mom. It's not easy. Just love her and try to take one day at a time. Nothing lasts forever and we are just passing thru this life. You will see that just loving your mom to the fullest will help and it will also be a comfort when your mom passes away, that you did everything you could and loved her completely. Also forgive her for her past mistakes. I learned from my dad that they are the person they are because of how they were brought up. Maybe your mom didn't have a loving family or her parents weren't warm and loving to her and she thought that was normal. Be the example of love for her. GOD bless you! Let me know how you are doing. Thoughts and prayers for you and your mom. GOD is with you!
You could put what ever your issues are. It was just a felt covered board that we thumb tack things onto. As issues come up... so does another "posting" !! :) For some reason, if it is in writing, it seems to settle them better. I suppose because it isn't US saying it but an actual "written" thing!? Pictures are good. We "typed" everything out on the computer and printed it out so it was neat, and legible as well as having credibility!! ;) We also posted a copy of her mom's obituary as she is forever wanting to call her mom, etc. It really is a HUGE help.
Nothing completely takes away the frustration and anger that sometimes comes with it. I find myself getting mad at my parents for things that happened in the past. I know I am just working through things myself, but I know they don't understand why. It is not an easy position to be in. Keep you head up and know you are doing the best you know how. You are NOT alone. Even when you don't feel appreciated, know that we here understand what you are going through, and how difficult it is.... we appreciate what you are doing !! Hang tough~