As a relatively young caregiver (43), I think much of my resentment and irritation often comes from the fact that I've done the marriage thing, the divorce thing, the raising the kids thing...but I've never had the opportunity to do the alone thing. I've never once lived on my own without a spouse, kids, other relatives (spouse's or mine) living with me - not once. So sometimes I feel my relatively young age and my situation as caregiver for my mom makes me resentful of the fact that I really have no life of my own. (Of course, I don't let that resentment show to mom or anyone else, but it's there, and I'm sure it's there for others as well.)
I was just wondering how old other caregivers here are, and if the more mature caregivers feel as stuck and resentful as some of the younger ones.
Don't get me wrong - as I've said in another post, I know that like many caregivers, I put myself in this situation, and no one forced me into it. I volunteered to drop everything in my life and move in with Mom because she needed someone, and I was the only one that could do it without too much difficulty (boy, is "difficulty" a relative term!). But I thought it would be nice to see thoughts from others to get an idea of the range of ages.
You are right that there is a huge range of ages and situations represented here. We all have things in common, and things that set us apart.
I really appreciate it when posters fill out their profiles enough so we get a clearer picture of them. Advice for a twenty-year-old might not be appropriate for an eighty-year-old.
I am 69. I cared for my husband (dementia) in our home, for 10 years. He died about a year ago. My mother is now in a nursing home, with dementia.
take care of yourself.
ive made love and ive made babies,
lol. told ya the david coe music makes me belligerant for a week or so.
im 55 , my b**tard sons are raised and i agree with boni. i have time in my life for an elder or two now. i think the term " dementia " has come to me to mean just another worn out , diseased organ . ( the brain ). i find this type of care to be extremely fascinating. i think most elders suffer dementia at various levels.
my aunt edna is getting late stage and her nouns have became too much trouble. im just the guy with the beard now. mental illness has always fascinated me..
When I had both parents, it was pretty stressful. With just mom it's been easier and my stress levels have come down. I've also made it a priority to get exercise (Tai Chi which I highly recommend and now pickleball, which I love!) and to spend time out with friends. The only person I know who understands is my cousin, another long-term caregiver. Most caregivers I know did it for a couple of years and then their parents passed away. And they really don't get what caregiving for years and years is like.
Please don't get me wrong - when I say "resentment", it's not a full-time, all-consuming resentment. It's a passing thing - it comes and goes. I guess all caregivers go through it. When it gets really bad, I try to block things out for a while. I am living with my mother in her very small house, where she sleeps where I work (in the living room, she hasn't used a bedroom in years), she eats where I work, she is where I work pretty much all of my waking hours. So, when I get to the point that the resentment and frustration is too much to bear, I put on headphones, turn on my music and block things out for a while. It works - usually!
I do know, and remind myself constantly, that when Mom is gone, I will have a huge hole in my life, and a terrible emptiness. On the days when things are really rough, I remind myself of that several times, and try to counteract it by making plans to take mom out for a ride, or think about our annual trip north to visit the place where we said goodbye to Dad when he passed away. I know our time together is dwindling and in the big scheme of things, I only have a short time with her (even if it's 20+ years - what's that in the span of a lifetime?). I try to remember that as frustrating as it can be sometimes, at the very least, I still have my mom here, she's in relatively good health and not bedridden or in a nursing home - she just needs me here for companionship and support, to keep her from sinking into depression and to make sure she takes care of herself - because otherwise, she'd go back to not showering (for months), not eating, and not leaving the house. (We still struggle with those things on a daily basis, but I do my best!)
I appreciate the responses - please keep them coming! It's encouraging to read everyone's experiences and thoughts.
I too am looking forward to doing the alone thing. I went from living with roommates in college to one grandparent with alzheimers and one with mobility issues.
A lot of my friends are married and are starting their families. I am single and I do not see myself wanting kids, since I feel like I already have 2.
My ML died 5 yrs ago from cancer, I was her appointment driver, shopper etc. He lived at her own home up until 3 mths.before her death, she was in NH with hospice when she passed..
My Mom moved in the apartment 12 yrs ago when my Dad passed.. She is 91 and still with me..
In retrospect, if I HAD been given a choice, I still would have done it. It's been a long road, I've felt like I was at the end of my rope any number of times...exhausted, mentally drained, emotionally spent...but I treasure the few magical moments when I'm able to make MIL smile or laugh, and when all is said and done I will rest easy knowing I did the best I could for her. It's a labor of love.
If I had know 5 years ago what I know today, I would have done things differently, like saying *no* more often to my parents demands.
My mum was her carer, but I could see that she wasn't coping well (signs of depression), so I quit my job at 25, my husband and I moved from our awesome apartment in the city to my mum's house in the suburbs and I now care for my grandmother full time so mum doesn't have to. I hate it, I miss living in the city and I miss socialising with my friends a lot, but I just think of how much it helps my mum and give my dogs a cuddle and it makes it easier.
You don't want to end up ruining YOUR own personal life, which believe me no one and I mean no one really cares about but you and your husband. I know your mother cares, but she didn't care enough to stop you from taking on what she could not handle. Do you see what I am saying. LadeeC you are so good at wording things. Help me out here? God Bless you and" Life is a journey, not a race"
I wanted to say to you, that I am very sorry that you have experienced the years with your mother the way you have. We all in our own families, have some sort of dysfunction in one way or another. I talked to my husband about this one particular topic that all of us are on, and I feel it is a very good one. People are expressing feelings that they dare not express at other times, or in their "small city, or block that they live on". I really felt the pain in you when you were typing, and I have to say for you, yes, it is time that you start healing. Anytime, at all regardless of it being a family member or not, calling the police, is a huge boundary drawn, and it was her way or else. I now see another side of this oh so compassionate job, and really it is about putting up with some of you have to put up with "the unthinkable". Now, writing this, I am asking myself with honesty what did I have to "put up" with, and it is a fading memory, because as many of you know, I had 6 years live in care, three different parents (two in laws, two separate occasions two years in a row, and my mother first, Alzheimer's Disease), and when I think about it, at times, it was hard hard hard, but I did not have the controlling negative pessimistic. They all had Alzheimer's Dementia. The father in law had the wandering kind of Dementia? Perhaps maybe we all get really rough shells around our hearts in order to survive. Regardless or not, I want to tell you to hang in there and do please take care of yourself. Be good to yourself and please remember that you are special, you are important, and you are appreciated by many. I did not hear the person write about the PTSD, but in your case, yes, I can see where living with that day in, day out, without any respite would be something almost too difficult for anyone to handle. You did an excellent job, and I commend you as hard as it is for the boundaries that you have in place now. Blessings to you and blowing luck and fortune your way!
Have a beautiful day!!!