I am trying to seek placement for my mom who has dementia and is also a fall risk after falling multiple times over the past few weeks.
Last night she had another fall
and her hand was so swollen that we called the paramedics.
She got checked out in the ER with X-rays, lab/urine tests, EKG, MRI etc.
The test results turned out "ok" and she has a swollen hand. She was sent home and offered home health with physical therapy along with a phone number for a senior resource contact to assist with expediting an "Assisted Living Waiver Program" application (we are in CA). Not sure that physical therapy will be able to help with her muscle weakness at this point - she is hunched over and can hardly walk without assistance and has difficulty transferring from a wheelchair into the car.
The hospital's "case management" said they could not assist with placing her since she does not meet the requirements for "short term rehab SNF placement" and is "baseline assist with ADLs" and "baseline ambulatory status" despite the safety concerns we expressed with her falling at home, not being able to lift her etc- they considered her to be ambulatory since she "could stand on her feet."
Does this sound right with the hospital not being able to place her or were we misinformed?!
If you think she needs to be in a nursing home, call one up and see what they require for admission.
They can not place her without that criteria being met per Medicare rules.
I would request a needs assessment before you file for Medicaid because she may not qualify for assisted living facility and you want the right public assistance in place, LTC and waiver are two different assistance programs, and you want her in the right level of care.
I think you're getting confused with someone being placed in rehab and then being moved on to a facility.
You can also do what is called a ER dump. That is where someone is brought into the ER, and then family says that this person is not safe to return home, as there is no one there to care for them, and that you WILL NOT be responsible for them.
The hospital social worker will then have to look into having the person placed.
So you have the option of now looking at different facilities in moms area to place her in, or next time she goes to the ER, you refuse to take her home and let them find a place for her.
I wish you well.
https://www.cms.gov/Center/Special-Topic/Jimmo-Settlement/FAQs
I have found many hospitals and large clinics often cut off therapy after so many visits according to the old rules possibly due to heavy case loads or it may require more documentation on their part. Smaller facilities are often more willing to document as needed to continue serving their patients. When a provider gives you a prescription for PT/OT you do not have to take it to the one they are connected to or whose form the prescription is written on. More and more it is being proven that exercise (even very limited exercise) is one of the best medicines for many issues.
I missed my opportunity to do this a year ago when he was newly diagnosed and was acting so aggressive that a friend thought he was going to have a stroke (he was screaming and yelling and advancing on her) so she called 911. He was so worked up they had him in a straight jacket on a 50/51 hold. His dx was so new and he was still mostly cogent that we were all at a loss as to what to do and felt it was too early to have him placed, so after they calmed him down he went home. He says he has no memory of that incident. If something like that happened again, this time I would use it get him placed.
So in short, yes, it’s possible to use a trip to the hospital to get your mother placed, but you are going to have to say some things that are hard and will make you feel guilty, like you can’t take care of her and she she has nobody who can. But it’s for her own good.
You might want to talk to her doctor to see if a few PT sessions might build strength, but it could also mean it is the progression of the disease.
is in home care where it’s more one to one
Months later, after a few more ER visits, they trasferred her to a TCU/SNF for rehab, without me having to ask.
If she has Medicare, was admitted inpatient (not just at the ER) for 24 hr or more AND at discharge she needed other "medically required" services such as IV antibiotics for a period of several weeks, perhaps wound care or other post op medical services only a RN could provide -- there is a long list of factors that may qualify them for skilled nursing/Rehab care -- Medicare may pay for a limited number of days as long as they "continue to improve." The benefit in theory is about 100 days minus the number of days they were inpatient at the hospital; but Medicare rarely pays/covers the full 100 days (more like a few weeks, a month or until the IV antibiotics and pic line have been removed).
If your LO meets the medical requirements for a discharge to SNF/rehab post inpatient stay, then hospital social workers will help with that placement. Best to do your homework to ID high quality (not necessarily the closest) facility; ones both Medicare/Medicaid qualified AND which also has SNF or long term care/memory care beds if thinking about a permanent placement post Medicare coverage.
But the shift to a permanent placement is NOT automatic. Having the legal paperwork executed (by an attorney) before all of this including a durable financial and medical POA AND an Advanced Directive (Will or Trusts too) is key. Upon discharge from inpatient stay (if your LO needs SNF/Rehab), the next facility will have paperwork for you to sign if you have that POA (it needs to be one that gives you immediate rights to step in for your LO; NOT a POA triggered by their incapacity). That paperwork should be reviewed by the attorney. There are trip wires written into most of them (many, more than 100 pages) with questions such as will YOU be personally/financially responsible for your LO (answer NO). Will you agree to take them back if Medicare no longer pays, they cannot pay and Medicaid does NOT cover (answer NO). All to say, in a crisis and dealing with this at the time, it is easy to check all the YES boxes and agree to things you may not fully understanding, like YOU personally will pay your LO's bill. Make sure to get the paperwork before the discharge to said facility and have a lawyer advise you as to what to sign, agree to or what boxes to check OR not.
The lawyer can also help you work through what other steps are necessary if Medicaid long term coverage is likely needed to pay for the costs of the permanent placement in the nursing home (Medicare does NOT cover long term nursing care), but this is not a quick or easy pathway. First, your LO must qualify in two ways: 1) their level of care requires nursing home care (this is based on their medical needs and perhaps cognitive decline and ALDs/IADLs they can perform safely and independently -- they will be assessed, this is not just something you report as fact), and 2) they must meet your State's Medicaid income/asset limits (many are around $2K in total assets). So if assets are greater, your LO has to privately pay the nursing home until they are spent down; all assets are gone. This later part again requires you as the POA to do things like sell the house, any valuables, spend down any IRA/401K funds, sell all stocks, etc ALL ASSETS! If your LO has a spouse there are things that can be done to save resources for him; the lawyer can help w/.
If there are lots of assets, perhaps high level assistive living or a continuum of care facility (which has SNF if needed) is an option? OR perhaps home health aides can be hired to help your LO remain at home for a longer while? Finally, Adult Protective Services, can help if they are NOT safe living alone. APS/the State may need to take over as their guardian to make decisions such as a permanent nursing home placement.Good luck!
Hospice is about living and quality of life for both the patient and family and, can be potentially very helpful in the home and/ or further placement considerations both now and down the road.
More than likely the case manager could have assisted in moving her to in patient rehab or discussed with dr going to NH from the hospital, but you might have got one that didn't want to mess with it and easier to discharged, Ambulatory might be subjective to the person deciding her abilities, but ambulate means ability to walk, not just standing in one place.
In the mean time, while waiting on help from doctor for her placement, the therapy at home may help to get her stronger and have some professional eyes on her who will report back to her doctor. If she's not already using one, it's probably time for a walker. The rollator type have 4 wheels w/breaks and a seat if she needs to sit down. They can go a little too fast and get away from you on smooth tile or wood floors. Carpet slows them down and it does better. The therapy folks can get her moving with one of those - ask about it when they do the evaluation for her therapy needs.
In my experience, if you were hoping that they would send her to a facility for physical rehab, then yes - anytime my FIL has been admitted but discharged in fewer than 3 days (or 3 midnights) OR not even admitted (with one exception which I will talk about in a second) he has not qualified for rehab placement. He has qualified for home PT and OT however. We have been told that MEDICARE will not qualify a patient unless they have been admitted and in the hospital for at least three days/three midnights for a physical REHAB placement for OT/PT. The only time that my FIL has EVER been moved a rehab facility without a three day hospital stay first, was when he had been discharged FROM a rehab facility and within less than 24 hours he was back in the hospital for a fall, the home health nurse sent him back to the hospital via ambulance and the hospital sent him directly back to the same rehab facility.
Then you have social admits - which are for things like delirium or repeated falls - in these cases - the hospital generally feels that there are other contributing factors besides just medical issues. It might be that the home set up is no longer conducive to the patient safely ambulating or the patient has lost more mobility, lives at home alone and needs assistance or that their caregivers are outpaced by their needs. Mental problems could also be another contributing factor. And all of these things are taken into account when deciding next steps for the patient. Social admits can be anything from an unsafe mobility situation at home to a need for a psychiatric hold in order to address medication or mental health issues. And can also address the loss of a caregiver with no back up plan. In some cases a social admit can warrant placement - but not always.
When they start throwing around words like "baseline ambulatory status" and "baseline assist with ADLs" after just a few hours in the hospital I always find that interesting. I get how they can say it after weeks in rehab. And I can understand how they could look at someone like my FIL and make assumptions. But for someone like your mother who is struggling as much as she is, it doesn't sound like she is currently at her baseline and that a bit of time in rehab would have done her some good to rebuild her strength potentially if they would have given her the option.
When is she able to start PT and OT? Will she cooperate with them and do the required exercises?
For future reference - if she is genuinely unable to return home in your opinion - you need to use the words "Unsafe Discharge". That is usually enough to make them stop long enough to reassess the situation and take a longer look at things - because you have indicated that it is not safe for her to return home - at least in her current condition. It doesn't necessarily mean that she can never go home - although it can. But it does mean that they need to help find a way to improve her condition and assist you with finding solutions to help her return home.