Follow
Share
This question has been closed for answers. Ask a New Question.
Find Care & Housing
PK:

You don't say much about yourself nor whom you're caring for. That being said, the only thing I can recommend is take care of yourself first. Develop a network or support system (this forum is a good place to start) and manage your time effectively. There's no way you're going to keep your marbles and go at it 24/7 all by your lonesome. There's a plethora of tips for caregivers on the Internet; I suggest you make a habit of going online and don't be afraid to ask questions. Also, words like "saint" and "martyr" shouldn't be part of your vocabulary. Neither should the phrase "a little pain is good for the soul." Keep us posted, and welcome to the family.
Helpful Answer (12)
Report

Hi there - I am a 24/7 sole caregiver - - done it for 7 years now. Ask away. The best advice I can give you is keep yourself upbeat and don't get pulled into pity parties - especially online. It is not that hard to remain sane if you remember to laugh, and move on. Whatever mood you reinforce will be the one that sticks. That means if you feel down, thats ok - but if you constantly 'vent' about how hard everything is, then at one point it will become too hard. You didn't share anything personal - so please feel free & no one will judge you. Edvierjar is very wise & his advice is good. I can tell you though that being the only caregiver happens to alot of us. You can also take this time to learn alot about yourself - there is a level of emotional honesty and insights that you will reach when you are caring for someone else. Take that as a blessing and use the time to really understand yourself and where you want to grow.

If you remember the reasons why you have made the choice to do this, and participate in disease specific forums in addition to this site you will feel better. (ie. - Alzheimers Association has a live help-line, as do other groups). Oh, and although it is easier said than done, try to keep good consistent sleep and meal schedules for yourself - that messes up mood and stresses your body. Tulsi (holy basil) tea is also a good beverage - try to balance what you eat & stay away from all those lovely comfort foods containing Fat Sugar & Salt and stick with a moderate diet - there are many online sources for healthy menus & recipes.too.
Helpful Answer (10)
Report

Family dymanics are strange enough, but when you put a dependent senior in the mix you will find that everyone "scatters." Even your long-time friends do not want to hear about your journey because it is a "downer."
I say do what feels right on a daily basis. If you have to "recede" and become reflective for a day...do it. If you have to come here and vent...welcome, we have all been in that boat. Until someone walks in your shoes they have no right to criticize or ask you to do more that you already are.
This site is one safe haven for me to express my frustrations but also share the knowledge I have gained.
I discovered that my sanity is something that I have to fight for and protect.
good luck,
Lilli
Helpful Answer (10)
Report

I have been doing this for 4 years now, the last 2 for 24/7. I have 6 siblings that pretty much leave everything to me. There are many reasons why I became the chosen one. At the time i agreed to quit my job and take care of Mom, I thought I was going to get help from the others. NOT!!! I've since learned to move on and deal with the situation as best I can.
Find your local senior center and contact them first. They know all the options for finding help in your area, and will even help you fill out necessary paperwork, etc. Your next best bet is to go online for information on what diseases, mental and physical, you are dealing with. The doctor's office is also a good source of information and connections to people who may be willing to help you out.
Definitely find out all your options for monetary aid. You are going to need it. But most of all, give yourself a break whenever you can. If you don't take care of yourself, you can't take care of anyone else!
Ginger, Since I don't know where you live, you might check with your state for aid. Is the person you are caring for on state health insurance? If so, in Mass. there is a program called Caring Homes, that pays the caregiver for taking care of the person they are living with.
Good luck to all of you, and keep coming back to us with your concerns. All of us will do what we can to help you.
Helpful Answer (4)
Report

I'm not sure what Cat was talking about when they mentioned pity parties but I have found that having an outlet to vent frustrations and such can be very helpful. Care giving life is definitely not a bed of roses and try as you might you sometimes just can't laugh something or other off. Venting has saved my sanity and it was venting to people who know what I went through. People who would listen. That kept me sane. And yes, there is some really great information on this site and some REALLY great input and information from those that are actually doing the care giving themselves.
Helpful Answer (4)
Report

I am from a large family and have ended up being the primary caregiver. I think some of us fill that role in a unique way that truly helps the elderly person for which we provide care. That being said, please do not forget who you are. Discover what truly matters to you and continue to pursue it in whatever way you can. Being my mother and father's caregivers has taught me a great deal about strength, courage, and what I consider valuable. Talk to us online, make friends with the doctors, people at the drugstore, and everyone else you see frequently. Make your parent your ally, and he or she will help you with the tough decisions you have to make for them because they will trust you. Best wishes and stay in touch.
Helpful Answer (4)
Report

While I'm not a 24/7 caregiver, my mom is, taking care of dad. I visit them almost every day after work. Mom's health is declining, as a result, and I get the duty of listening to dad's issues as well as mom's, as they don't really have anyone to talk to. So I kind of understand where you're coming from.
Aside from my issues with my folks, I have two daughters, who although they're in their 20's, they still need me, as well as my husband. My parents are so consumed with their issues, however, they don't even know what else I'm going through. Sometimes, I feel so alone.
This sight has been so helpful in letting me know that there are people out there going through the same things, and feeling the way I'm feeling. No one prepares you for this, and since our parents most likely didn't have family members living as long as they are, they have no idea what we're going through either.
I've read, and heard it all: don't feel guilty, take care of yourself, etc, etc. And while it sound so great on paper and makes so much sense, it isn't always as easy as it sounds.
Use this site to vent, as a sounding board, to get advice. It's nice to know that there are people out there, who understand what you're going through.
Hang in there. I know I am! Good Luck!
Helpful Answer (4)
Report

I do not know where to began. I have grown adult children ,five of them I am 72 and my wife is turning 70 next month. For the last three years she has gotten bad with her memory and. I just wish but of course that doesn’t work. How can I get some free time for myself? Today I got frustrated and it hurts to see her crying and mad. These memory pill do not seem to work at all. It is to me a wast of money.Thanks for letting me vent.John
Helpful Answer (4)
Report

dear ginger , u got rip off ! whats going to happen when that non family passes away and u go out on the street with no money ! room and board should be for watching that person , but as far as takin care of the yard and all others u should get paid for it !
if i was to hire someone to come and sit with pa , its 19 bucks an hr ! but as for room and board i would say part ofthat should go toward that .
sounds like to me ure doing it for free and ure begin takin advanatge of .
u need cash paid too , save that money for when u gotta leave .
Helpful Answer (3)
Report

johnny.....has your wife been diagnosed with Alzheimer's or the general term of dementia? What medication is she on? One thing to remember is that these medications are not a cure...they only work to help the patient retain what memory they still have for a while. There is no reversal of this disease; it is progressive and will only get worse over time. Do your children live close to you and are they willing to lend a hand? I haven't looked at your profile to see what part of the country you are located in, but I am sure there are sources in your community that you can go to for assistance. Family Services, Division of Family Services, a local Alzheimer's group, Visiting Nurses Association.....talk with your wife's doctor about sources available for help. Also on this site, on the right side of the page, you can enter some info and it will find places in your local area, such as day care. This is not an easy job you are doing....but caring for your wife is very commendable and it's wonderful that the love you have for her is allowing her to stay in her own home. It does get frustrating at times and please understand that is normal and there are times when you just need to let off some steam and not be judged or made to feel that you are doing something wrong. Look at the "Grossed Out, Need to Vent" thread on this site. There is a wonderful group of care givers there who will welcome you and give you the support you are looking for. Take care of yourself and hope to read you on the Grossed Out thread.

Jam
Helpful Answer (3)
Report

See All Answers
This question has been closed for answers. Ask a New Question.
Ask a Question
Subscribe to
Our Newsletter