Dad died recently, and Mom's demented. She's home alone, and has refused help from the 4 kids, or from professional visiting services. She's not totally gone, and can care for her own hygiene, cooking, housekeeping, but not things like driving, paying bills, or doing taxes. She will have a run-in with Pennsylvania Social Services via a 911 call or a medical event. We live far away, and fear that when Social Services gets involved, Mom forgets that we exist, and we are not notified. This happened when Dad was dying - she forgot to notify us for a week after he entered hospital.
Mom neither accepts nor rejects our role as caregivers - she insists she doesn't need a caregiver. She won't give POA. Our strategy is to let her fail (or succeed) on her own, and call her several times a week to remind her we love her.
Q: Is there a way to notify Social Services that Mom's likely have contact with them soon, and that we are an interested party?
Again, everyone's situation is different.
xo
PG
The other option is legal conservator-ship, which I understand is a long process and requires court visits. But I'm not an expert on that. I care for two parents, one in a NH and one living independently (but not really), down the road. Mom can still pay the bills, forgets somethings, has almost stopped cooking for herself and lies about bathing. It's ugly. If you can manage it from a far, I recommend that as I had no idea what I was getting into when I moved my parents to live near me. It's life changing and killing me.
Good Luck.
First of all we (the general dementia caregiver population on AC) were all in your shoes or a very similar situation that's why we are here. You definitely need to sort out and put out one fire at a time.
The first issue you need to get in order is your Mom's care needs at present and for future. It is not going to miraculously be solved no matter how you deal with it. Unfortunately it is a life changing experience (for all involved) that someone (usually you are left alone if you take on this role, unless you have a trustworthy and selfless family working together) has to deal with. No easy fix for the illness or finances or health issues. Sorry but that's reality at it's best!!!
So to answer your question you need to get a plan in order.... first Mom's care needs, Dr's, diagnosis, medications, health care options, finances, someone to act on her behalf legally, P.O.A. or Guardian (info on site for those things).
Your Mom obviously needs to be guided not forced or asked (I say it that way because neither work with dementia). Just do what you have to to get the job done. My Mother diagnosed 5 years ago with Dementia and lost and confusion started about 10 years ago now. She Still does not let me simply brush her hair without permission from her, and somehow I did it all. I had to act like she was in charge of herself, but did things I had to, anyway. Seems sneaky but hey she's doing very well now.
If you let them learn the hard way, there will be much greater, a mountain more problems to deal with, she will cause the IRS, creditors, reverse mortgage, family members, everyone will descend upon her, take her pensions and put her on the street. I have to stop that.
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The proper way to go about it, is not only to be an interested party, but to protect your Mom from the vultures that may/will come to prey.
Mom needs a POA, she can trust, especially if she does not want to go into a nursing home. If she is anything like our 86 year old, the narcissistic older children had her sign papers that she didn't know what she was signing. They did not explain to her anything, about them, you do not want that to happen, if the state gets involved you could loose any inheritance, that is if there is any, ours 86 year old's money is in a trust.
If her affairs are not directive enough, then somebody should be making so, a last surviving parent deserves, the same care as the first one who left her.
Dementia patients do seem batty,until they are diagnosed, and are not taking medications that could possibly help them. Calling on the telephone, is not a substitute for care giving, especially if you are not being notified, she probably also forgets you called.
If you are not close are there any closer relatives who could take her to either a senior law attorney or a free one? If she has no money and no house, helping her navigate through the system might be something to do, but she will never be able to do it on her own, and you knowing that she needs help is neglect.
While some people clearly are not caregiver types, the family should be weighing her options, if you are the only child, you need to make the situation right.
Families always disagree, when it comes to "the right thing to do" for an aged faltering parent, whether planned or unplanned, they still deserve care.
The overwhelming response, I have heard at this web cite, if you have children think twice about your involvement, being sandwiched from what I can gather is not a good place to be and the care giving role, may really be a stretch for them, think twice, before you assume too much.
As I say, we rescued our 86 year old from a nursing home situation and she is doing much better now, but my children are grown and I am a grandmother.
It is still stressful, she lives with me, her house was sold by the POA, but they never got their hands on the do, re, mi, and we have liquid assets to take care of her, which is all now controlled by court (the state). She has a Guardian (not a family member), after a guardian at litum was chosen by one of the POA's attorney as way to go. The POA was busted for not care taking and when he tried to go from POA(after the house was sold) to Guardian, he was denied because he did not care take or hire anyone else to care take of the mother (she is not my mother, and I am not getting paid to take care of her).
Do not ever think that a government agency will care for your parent more than you do and even if you go that route, of waiting and seeing, when a government agency is called, the family will be exposed for neglect and you might not be able to stop things once in motion. Check in your state for viable options. Good Luck!
After many, many years of dealing with this very same scenario, and now banging MY head against the wall for not having known. Here's what I've learned.
You may want to try getting in touch with an Advocate for the Aging in her area to work with you. In your mother's state there's an agency called The Adult Protectve Services (APS). If Mom is reported, they are likely the ones to respond. They will visit her home and make an assessment. If she is still able to stay home they will contact next of kin or whoever is responsible for her and ask you to arrange home and health care. If Mom refuses to accept services and they feel she is a danger to herself or others, or is unable to care for herself, they may hospital her for an evaluation. This will not be fun as they can take her by force if necessary. If at that time she is found to be incompetent, they will ask the next of kin to make arrangements for her care or to place her in a nursing home. If no one makes the choice for her, they will put her wherever they find a bed available, which may not be a place you would choose for her. You may want to start looking for a home that addresses your mother's needs in case it comes to this. It was my only saving grace. I knew the day would come and I'd already found the home I wanted for Mom and they had room for her. You should look for several places in case there's no room in your first choice and you have to make a fast decision. If she has insurance find out if and what they will cover.
If she can stay home with help, and she's on Social Security, you may want to have the family member responsible for her to be made her Representative Payee. To do this you’ll need her SS number and a letter from her doctor addressed to the family member, explaining that she can no longer take care of her finances, self care, and why. You will need to open a new bank account for her as her representative and then you’ll be able to pay her bills. Call Social Security for more information.
If she is very ill, her signature may no longer be valid on anything she signs, as she may not be cognitive or able to understand legal documents.
I kept my mother home as long as I could, with the use of home attendants and home doctor visits. I took over paying her bills, making appointments, sending groceries, clothing etc. until it became clear she could no longer be alone. I made sure to call her every day and tell her she was cared for. I'm disabled, far away and can't care for her physically. Not having a POW is causing me major headaches. My mother felt I was taking very good care of her and that a POW wasn’t necessary. As much as I tried to explain to her WHY we needed this document, she wouldn’t do it. Now, due to her Dementia and ALZ, it’s simply too late; her signature is no longer valid. Of course NOW she wants to sign.
I hope this helps and please keep in mind, this was my personal experience. You may be able to get some help from an Advocate for the Aging Agency in your area, before APS gets involved..
Finally, this site is very helpful, believe me when I tell you, that we've all dealt with similar issues and you'll find a wealth of insight and information here.
Be well, hold to your faith and take care of yourself.
If there's anyone else involved that she trusts, ask that person to encourage her to do a Power of Attorney for both healthcare and finances. The doctor, another social, someone from the church or a faith community. Sometimes it takes having an outside person suggest this before your mom may be willing to do this (rather than from their own child).
Good luck!
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