There are three states in the US where this is technically legal WA, OR, and MT. How do you guys feel about this? Do you think the one you care for would wish to have this option if they were terminal? Would you wish you had it when the time comes? I am working through my own feelings on this matter as I think about future moving plans and thought it might be good to bring for discussion here. The question I'm asking myself is "how important is it?" and is it important enough to determine a move choice if I had the option to go to one of those states?
How about you, whirlpool?
I am just plain too scared to weigh in! Good to know you are not thinking of offing yourself-- or anyone eles for that matter.
I would not choose medically assisted suicide for myself. Personally, I believe that all journeys in life are for a reason even those most painful. I do think that extraordinary measures taken to extend life is not always a good thing either. I prefer to leave a lot of things in God's Hands.
I would not move to a state based on that , obviously, then -also-who knows when that could change. Right now I would rather move to a state where marajuana is legal. Seriously.
I think this is one of those topics people might be afraid to touch. But interesting!
I don't think I would ever do any of the three things, but I would feel better to know that if my husband started hitting me, I could get him legally out of my life, and to know that if I was afraid of the pain or indignity of my position, that I could keep a stash of pills in my dresser as an emergency exit.
I'm pretty sure my husband would never choose suicide. For him, I would want to make sure he got enough drugs to keep him comfortable. As a depressed person with intermittent suicidal ideation (never any attempts) I can barely relate to that, but I know what he thinks and would respect it.
One thing to know about medically assisted suicide is that a lot more people get pills and then never use them. Just having the pills helps them to relax and let nature take its course.
Another thing to remember is that our demented care receivers will never qualify for medically assisted suicide because they are not competent to make the decision for themselves. So as much as we might wish, that's not a way out for us. Just Kidding!!! (sorta.)
And Jinx, yep you are right most of the time the dementia has set in anyway so it's all moot.
But my mother will have bad days where she thinks she's dying and just wishes it will all end. But she's not dying and I worry she would talk someone into doing it.
I just worry it will be abused.
Well, all that being said and getting back to the original question (finally), I don't think I would be ok with this for myself or for others in my immediate family. I certainly wouldn't want to be the one to make the decision that "now is the time". I hate doing that for my pets...I can't imagine doing it for my loved ones or having someone do that for me. But that's JMHO.
For reasons as complicated and sometimes irrelevant as we are individual, we too often seek to delay the inevitable.
I can see how simply declining medical care can be construed as "assisted suicide."
I think that it is important for people still in their right minds to have choices. And I can see that various kinds of "assisted suicide" might be sane, even humane, choices. I would not like to be denied any of my options.
I say these things as a person of deep faith.
Nowadays, unless you are lucky enough to die in your sleep, every last ounce of your billable ailments are wrung out you before you're allowed to go.
I'd just like a choice of assistance if I find I can't or don't want to handle this horrible fate. When my father learned he had Alz, mom had to take the guns out of the house. I often wonder if she hadn't what my dad would have done. He clearly knew what was ahead of him, he was from a family plagued by Alz who he watched die from it. Witnessing your parent slowly die with this disease affects you mentally in addition to breaking your heart.
Some people say that assisted suicide is playing god. But really prolonging life through artificial means (pills, procedures) could also be called playing god. If a person is ready to die and wants to die, I think they should have the right to let go. Someone asked recently about when should they stop giving medications. I think the answer is that when a person is dying, the only things they should receive are medications for comfort. We never stop to think that the other medications or forced food supplements we are giving are just trying to squeeze a little more life out of the person. They would not choose them for themselves, so we are guilty of assisting them to live against their will. What egos we can have!
I am strongly in favor of “end-of-life” choice. I respect anyone’s decision not to choose to end his or her own life, but I believe that doing so is a choice that everyone should be able to make for him or herself.
My mother took her own life five years ago under Oregon’s “Death with Dignity” act when her metastasized breast cancer caused her lungs to fill up with fluid so that she was literally gasping for every breath and drowning in her own body.
Here are important things my family learned while going through the process:
1) If you live in a state that gives you this option, do not make the mistake of thinking that going through the process of “qualifying” and obtaining the prescription means you have to use it. Even if you think you are unlikely to do so in the end, or are just not sure whether you will want to or not, it is better to make sure you will have the choice while you can.
We were told that 9 out of 10 people who go through the process of ensuring that they will be able to make the choice if/when the time comes – that is, who go through the process of qualifying for and then obtaining the prescription – do not actually use it in the end. My mother fully expected to be one of these people. We were very sad to realize that she would not be, but very glad that she had done what she needed to do to limit the worst of her suffering.
2) Just because you live in a state that offers you the right to end your life under these circumstances, do not assume that you might not experience difficulty fulfilling your choice. My parents lived in southern Oregon, which is a very conservative region. If you or your loved one is facing a terminal illness, you need to have a very frank conversation with your doctor NOW to find out if he or she will support your choice if you decide to end your life when you are within your “six months of death” prognosis. If not, NOW is the time to find another doctor ... not when you are really sick and frail and having trouble just getting in and out of the car.
My mother was terrified and desperate to find out how to exercise her legal right to end her life if she decided she would need to. Her doctor -- who, it turned out, was religiously opposed to the idea of self-delivery -- basically mocked and bullied her for even daring to ask about it, and told her that hospice would be “enough” and that the process of death was ennobling both to the person who experienced it and those who witnessed it. After that “conversation,” my mother came home and just shook, for days. I moved heaven and earth to find her a different oncologist, and she never went back to that woman’s office. And then I scoured the Web until I found the organization that helped us.
3) Once you have your six-month prognosis, it is also vital that you not wait to go through the hoops you will need to clear to actually fill the prescription. In Oregon, you have to be seen by two doctors over a period of (if I’m remembering correctly?) a couple of weeks. Both have to agree with the six-month prognosis and that you are in a sound state of mind. Then you have to find a pharmacy that will fill the prescription. Just as doctors who are philosophically or religiously opposed to the law are not required to prescribe the prescription, pharmacies are not required to fill it. If you live in a conservative/religious area, you may need to drive some distance to fill the prescription. None of these requirements would be difficult for a healthy adult, but all of this activity is exhausting for a person who is seriously ill. It is far better to jump through these hoops while you are still feeling fairly strong -- that is, to get the prescription, fill it, and then put it in a desk drawer at home where you’ll have it if you ever decide to use it -- than to wait until you are feeling REALLY bad, but are now too weak to do what you are legally required to do to get the drugs.
In my mother’s case, we were unable to find a local doctor or pharmacy that would help. A national organization that advocates for patients’ end-of-life choices helped to put us in touch with a choice-respecting doctor about an hour away from my parents’ home, and one of their volunteers also helped to get the prescription filled in a city four hours away and drive it to my parents’ home. They charged us nothing for their help, time, or gas (for the 8-hour round trip). I have never loved complete strangers the way I loved those kind people for helping my mother the way they did. She regarded them as her saviors. So do I, to this day.
4) Whether you live in a state with end-of-life choice or not, if this is an issue that is important to you, you should check out the wealth of information online at Compassion and Choices (dot) org. This nonprofit organization advocates strongly for choice on both the national and state levels. They have volunteers and counselors who can help patients get the information and the help they need. In states without end-of-life choice, they work to get these measures on that ballot, and they also advocate strongly for palliative care and other patient rights. They are a truly amazing organization that does incredibly important work, and I cannot recommend highly enough that you find out more about them if you want to know more about this topic for yourself or for a loved one in need.
My Mom never expected to use her “final” prescription. She told me she wouldn’t do so unless things got “really bad.” Well ... things got really bad. Everyone’s cancer takes a different path. Hers caused respiratory problems, with regular build-ups of fluid in her chest so that she could barely breathe. She couldn’t lie down. She couldn’t stand up. All she could do was perch on the very edge of a chair, gasping miserably for air through her oxygen mask. They couldn’t give her morphine or other pain-killing meds because these had a further suppressive effect on her ability to breathe. By the time she elected to end her life, she was desperate to go. She hung on an extra day so that my husband and I could come up and be with her and Dad as she died.
She lay back in her favorite recliner at home. My Dad sat on one side of her and I sat on the other, holding her hand. The volunteers who had brought the prescription mixed it up, gave it to her, and took themselves discreetly away (but stayed close by in case we needed them). The law requires that the patient be able to administer the drug him or herself. My mother tipped back that glass without a single second of hesitation, and then she leaned back in the chair, gripping our hands. Over the next few minutes, she relaxed. Then her breathing just ... stopped. A few minutes later, my Dad checked her pulse and said that she was gone.
It was an incredibly gentle and peaceful death, after what had been a year and a half of painful, nauseating treatments, and at least four months of increasing agony and decreasing quality of life.
It was what I have been legally allowed to provide for every beloved animal in my life who has reached a point where suffering crowds out all else ... but which I am legally prohibited from choosing for myself, or from helping a loved one to provide for him or herself, in the state where I live.
It is what I want for myself, if and when I find myself in similar circumstances.
It is why I am terrified of developing a dementia, since that will likely prevent me from being able to exercise the right even if I live in a state that recognizes my “right to die."
It is what I grieve for my Dad not being able to choose, now that he has developed a progressive dementia (and is therefore, unlikely to be in a legally “sound state of mind” by the time he gets a prognosis of being within six months of death).
It is why I contribute to the work of Compassion and Choices ... why I support the fight to give every human being in every state the right to end his or her life when suffering becomes overwhelming ... and why I will move to a state that supports this choice if my husband or I become terminally ill.
On a final note, I strongly recommend the documentary film, “How to Die in Oregon.” It is an amazing account of the illness and self-delivery of one incredibly courageous Oregon woman who permitted her journey through this process to be documented. Aside from the fact that she lived in a progressive area and did not have difficulty finding a helpful doctor or pharmacist, her story rings very true to my family’s own experience -- and if you want an inside view of the overall decision-making process against the backdrop of family relationships and disease progress, I cannot think of a better film.
I hope this helps.
To answer Momhouseme particularly, the NH staff acted resentful toward the hospice people and definitely there was not the level of involvement and cooperation there should have been. I was on the sidelines as a granddaughter, but was involved enough to be concerned and feel things didn't go as they should have. There wasn't much my family could do beyond what they already were though. As I stand on the edge of this space again now with my mother though I don't know how far in the future, I worry.
Thanks and HUGS everybody.
I was thinking that discussing a doctor's philosophy, and the nursing home's philosophy, on adequate pain relief, before the time comes when you need it, is something we should do as patients and caregivers. If they have a belief that suffering is noble or that dying people can become drug addicts, then make changes while you can.
I absolutely support "end-of-life" choice. Currently, my mother is in hospice and is at the point that she cannot process nutrition, even through her feeding tube. She aspirates on anything given through the feeding tube. It is now day 20 since she was last able to be fed. That is no way for anyone to have to linger, slowly starving away. She is the kind of person who would have wanted a choice to go painlessly and peacefully, but that choice isn't available where we live. So she is instead drugged heavily and is still agitated and afraid. It's cruel, and modern medicine's good intentions have brought us to this point. We need to sit down and think about ethics that can make it possible to escape from modern medicine's good intentions, when that's appropriate.
The folks above who worry it will be abused may be right in some cases, and that may prevent it becoming available for those who are of sound mind and wish not to have to suffer the prolonged, painful twilights that our medical profession has brought to pass.