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@cttn55 The only facility close by only accepts medicaid patients in a semi private room. She has some income but it is not enough to pay the extremely high cost in a private home that has a memory care unit. I just don't have a thousand or more dollars to contribute to her care every month even if siblings were willing to split the cost. The nursing home here has no medicaid beds available (she is not on medicaid but could file for it and qualify after a few months per a medicaid service worker) but the waiting list is very long. The only facilities that accept patients with dementia even within 30 miles do not have any medicaid beds, only private, which would be great if it was affordable. It all comes down to money. Which is kind of ironic as I have the least income of all my siblings and it costs a lot for her food and supplies each month. I only use her money when absolutely needed as I don't know what kind of expenses I will be looking at in the future with her. Another thing siblings never think about, if I have to retire early to continue to care for her, my social security will be effected for the rest of my life (if I have any life left after this) because the monthly amount is smaller the earlier you start drawing it. I have no retirement where I work and I am divorced so it will be all on me. I am sure there are a lot of caregivers in my situation, so this is not a "pity party" just the realistic facts non caregivers do not want to think about.
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Really sorry for you. It's terribly hard and simply unacceptable. For this to be happening in 2017.
I agree with you on the money side. I have slowly started to be out of pocket too. Money is already tight . Have no answers I'm afraid but always here to talk and share experiences . Take care of yourself too.
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