Devastated! I quit a well paying job 4 1/2 years ago to be the caregiver for my mom. I did not want to put her in a nursing home. She has had 2 strokes. The 2nd stroke which was 4 1/2 years ago effected the area of her brain for thought process and what she says. While in the hospital 12-10-13 my sister asked "Mom how are you feeling"? My mom says not good. She said I threw her out of bed,,,broke her wooden leg (which she does not have) and beat her. The nurse was in the doorway getting her medications ready. I heard the nurse say my license is attached to that. I advised her 4 years ago my Mom said the same thing and it was to be documented on her chart. I thought nothing more of it. 3 days later I was advised Adult Protective Services was called but to not worry everything was ok. The lady came to the house and of course all things were fine regarding my mom and the care I give her. What is not fine is this will stay with Adult Protective Services for six months regardless of being innocent or guilty. My moms primary care physician even said 4 1/2 yrs ago if your mom knew what she was saying she would be mortified. I am devastated beyond belief that the hospital called them when all the drs there and nurses said how lucky my mom is to have me as her caregiver. I gave up everything 4 1/2 years ago and I do not have any income whatsoever. My reward is still having my mom around and knowing the care I give her is better than any nursing home or assisted living facility could. There are visisiting nurses,,,physical therapy, and occupational therapy coming to the house 3 days a week. They said how well I do with my mom. I know its the hospital getting back at me because I am very very proactive in my mothers care and I will not let anything happen to her. Someone please please help me on what I can do about this false accusation. As I say I am devastated and this happened 2 1/2 months ago. My mother was interviewed and told them how well I take care of her and what were they doing. It makes me sick to my stomach now as I type this out thinking about APS being called on me. Thank You for letting me vent!
Joanie
But I think you have to take a realistic look at the situation with mom. The type of things your mom is doing or saying are only going to increase as her dementia goes into advanced stages. Based on what you've said, your mom has fixated that you (in her subconscious) is what is the cause of her problems. She needs to find a reason as to why she can't remember or do things, and it just can't be her fault so it must be the fault of somebody….and that somebody is you. The next phase is going to be a constant litany from her that you have been stealing from her, you deliberately forced her to do things, you are poisoning her food, etc.
If she has an audience on this, then you are going to likely find yourself again being questioned on your actions. You already have a prior APS history. If she tells the PT or OT that you are keeping her from her exercise bands or you made her do things that hurt, they have not choice but to notate that in their file &/or tell their supervisor and then you'll likely get another visit from APS.
it sounds like you have closed out a lot of your own personal life to move in with mom and take care of her. So 4 1/2 years ago after mom's stroke, she could have gone into a NH but you decided you could care better for her, is that right?
Your statement that you have no money or income on your own is very worrisome for 2 reasons:
1. it's a red-flag for APS for a caregiver as you are using mom's funds for yourself. If you really have no $$, just how do you buy yourself a new pair of pants or get a hair cut? It comes from mom and her $ is to be used by her for her & her needs. If APS contacts SS on this, you will have to do the paperwork and reporting to be mom's representative payee. Mom should be paying you for your caregiving - mom has some income, she has SS and maybe other retirement. How you do this is for mom & you to go see an elder law attorney to do a personal services contract between you & her in which she pays you for caregiving. This is totally legit and provides you with legal income and builds your own SS kitty too. If you were to get a zealous APS officer, they could request mom become a temporary ward of the state as on the face of things you with no income are taking financial advantage of an elder and you have previous APS investigations.
2. realistically the elder does not get better, their dementia gets worse and if they have other chronic diseases then the level of care they need cannot be provided for at home. They will need skilled nursing care which means being in a facility. So if & when that day comes, what do you do? Do you have a home on your own? What is your plan for your future needs? When they go into a facility on Medicaid, they have to be impoverished so any of mom's excess funds will have to be spent-down. Unless your mom is wealthy, she will run out of money to pay for her care and she will need to apply for Medicaid. Mom's monthly income will be required to be a co-pay by her to the facility so there will be none of mom's $ to pay for anything anymore. But even if mom stays @ home, eventually she will die and her SS stops. What happens then to you? How are you going to manage your own aging?
NOBODY really imagines you - what was it? Pushed her out of bed and beat her with her own wooden leg that she hasn't got anyway? Of course not. Your record of first class caregiving is intact.
But what has happened is that an allegation has come from a technically valid source and it must be attended to. The six month supervision horseshit is part of that proper attention. It's an automated process, and once it's begun it has to run its course.
Try not to let it get to you. Above all try not to let it affect the way you so lovingly look after your mother. Remember that everyone knows it's hooey.
If you'll find it any consolation, you could pause to reflect on why this blunt instrument weapon needs to exist. What happens to little old ladies with dementia whose 'caregiving' children are actually grasping, nasty little shits who do neglect and torment their vulnerable elders? What happens to these people if nobody listens to a word they say? Or if the process can be brushed aside after a cosy little chat?
I wouldn't be any happier than you are if I had social workers standing over me with a check list and popping by whenever they felt like it. I too would be tearing my hair out with frustration, and feeling there must be some way to nip an OBVIOUSLY baseless allegation in the bud. But… The process is necessary. Not for your mother, not for mine (I hope!), but for too many others. I'd rather the authorities did err on the safe side.
I feel your pain, and can honestly say, count your blessings. There are people out here that are going through what you're going through, or worse, like myself. There are several talking heads in here, but unless you've been through it, you never really can understand the sense of helplessness, and shame this can cause you, and the implications of such accusations. I myself, and adult male of 52 years was a full time caregiver of my Mother for the last 10 years. She suffered a few mini strokes through the last 5 years, and many people believe there were more. Her claim to defame was she was being tied up, as last summer she was upset that I shortened her 50' oxygen line, so she couldn't use that one to move about in the back of the house with, but instead to use the portable one in her walker, as the 50' one was getting tangled around her ankles. Well this was the beginning of the end for me, as a few days later she left the home while I was in the shower, and was in the street telling neighbors that I was tying her up. Last Sept, while i was asleep, the police were called by a man that was walking in front of our home, and I was arrested, and charged with battery, as she told police that I was tying her up. Now, I have a protective order for 2 years, and they want to take my home that she signed over to me last year as well. I haven't seen mom in 6 months, and I'm absolutely a emotional, and physical wreck, and wonder if I'll ever see her again, and be living in a box soon. So there is optimism in your case, and feel good it didn't get to where my situation is. There is a great resolution for you in your case. I fee your pain, and beyond.
You'll find lots of good suggestions for reading on this site which will help you on your journey. Hugs to you and good wishes to your mom.
I agree that the nurse had to report you. That is the law.
After seeing how much my mother's life has improved in the NH, I feel that trying to care for someone 24/7, is the wrong way to go. Giving up my job, certainly would be - then, I would be a burden to my own kids, at some point.
dont beat yourself up for losing patience with your parent a few times. before you learn about dementia ( brain death ) , it appears they are just being selfish and hateful.. i had the most difficulty with the bipolar crying jags and the ocd tendacies.
I am someone who learned to see systems and how they are organized. I’m out of the situation now, and I also learned by necessity of being left alone to either give up or learn to communicate, so I have learned and I and my disabled brother are doing well, and professionals now help, and I found my voice and stand up to them when their interpretations are incomplete.
But for years I was infuriated and humiliated by confusion that despite the genuine wish to care and willingness to commit the time to learn to do it well, I was long set back by frequent, unnecessary and long-enduring damage caused to my brother’s reputation and mine, by professional systems of this day and age. Many processes are being challenged, but again, the system mandates that these challenges are studied privately in contained research studies – so information about family encouragement is learned in some types of caregiving situations, but not spread to others. Meanwhile, reputations are lost in insinuation, assumptions, shutting out information, while blaming families in ways that perpetuate negative stereotypes. The whole system is overdue for challenges across the board, for insisting that the professional knows best. I believe they are usually doing their best, and do have areas of expertise, but I do not believe the system has set them up to know best in as many settings as they are assumed to be the experts.
Professionals are taught to adhere to rules designed in research, often for very different populations of both patients and different types of caregivers, different ages, without the differences being made clear, as most implementers depend on authority and respect the processes. Whistle-blowers are challenged.
The damage done by assigning blame to patients or families, is not clear to implementers, for they look only at their own records, and are judged on compliance. What happens before or outside those recording periods is ignored. So they fill out forms as taught in schools. Only some flexible and wise people listen and observe all parties in specific situations (and you find those by asking over and over), consider your input, rather than deflect and minimize it because you are not a professional - only wise ones will add some discretion to what they write in their notes.
Fact is, mistakes are made by all parties, new and even longer professionals make as many or more than many families, and a giant one is that they don’t include approaching patients in haste among their mistakes. But professionals can prescribe medication to calm an upset patient, so patients angry at professionals are seen as mentally defective, and the recording processes describe all details of an incident, NOT the details of the factors that occurred leading up to the incident, including mismatched communication across different shifts, misplaced equipment, all kinds of issues that upset patients. I think this is the reason for the high number of hospital errors and psychological calamities.
I struggle to contain my fury, need to write, but the systems are so large and multiple, I’m never sure where to write this wide reaching issue. So, I’m sorry to show frustration here, but this story reminded me of the insults I endured after I offered to try to help my youngest brother, born with brain injury, did my best and learned to succeed in my work with him over 35 years. I remember my confusion and pain when I was told at the outset, that I was “too emotionally involved” so I reluctantly left him to professionals, and watched him fall apart, only to sent back to my care after a year of hospitals to recover from injuries. What expert can say what is "too involved" - yes, it is helpful and necessary, to learn how to stand back from escalating situations, take breaks rather than insist on finishing a task when a patient is upset, be calm and deliberate. But family members study and practice and learn such skills too, and information before, around incidents, need to be recorded, not just inflammatory, fear based details of specific incidents. And one time incidents need to be recorded in pencil, with a question mark or red flag, and erased when longer experience shows patterns, more reliable to show efforts and results.
That might be the attitude of protective services. Thus, protect yourself from any misunderstanding by declaring her incompetent and enjoy peace af least
STEP II: CALM DOWN AND GATHER EVIDENCE supporting your story. Protective services always rule to side of caution so she would have the benefit of the doubt before you; and you might have to proof she is wrong.
DON'T GET ANGRY - BE PATIENT. Some old people are more difficult to deal with than teenagers. Once a younger cousin threatened to accuse her mom of child abuse because she does not let her hangout until late with friends.. The mom's response was, go ahead a call them but I just let you know that I would not fight for you if you are sent to a foster home. Reason won. Sadly, with old folks sometimes does not work.
It is normal that we all want to "PROVE" our innocence. It kills us to think that we invest so much time and effort only to be slapped in the face with something like this. I can understand you being so hurt. I swear to you that every single time I take my Mom to see a doctor, I am just waiting for her to say something negative about my care....thank God she hasn't.
I have had APS called on me however. My sister was mad that I was leaving to go on vacation for a week to Las Vegas with my sister, her daughter and my daughter. She began an argument with me which she does every single year, but this time she just really wanted to "get me" so she went to her therapy session and told her therapist that I had "beat her up" and caused bruises and a scratches on her arms. Said sister was 65 therefore her therapist HAD TO REPORT IT TO ADULT PROTECTIVE SERVICES. The social worker wrote up the report, came to our house and spoke with my sister, had her sign the report and it was forwarded to APS. They showed up at our house, while I was cooking dinner and trying to run back and forth to the garden to water the tomatoes. I was told I needed to sit down with this woman from APS as she needed to interview me. I was furious to say the least, but I remained as calm as possible. This woman begins with my sisters accusations....."On.....date your sister says you and she got into an argument and she states that you physically beat her causing bruises and scratches to both of her arms, is this correct?" I said, "No it isn't correct, that is an absolute lie." Anyway going through all of it would take too long, but the ONLY THING THAT SAVED ME WAS MY 16 YEAR OLD NIECE WHO WAS SITTING LESS THAT 10 FEET FROM US AND SAW THE ENTIRE EXCHANGE AND SWORE I NEVER HIT HER, SCRATCHED HER, NOTHING AT ALL!
I felt exactly what you are feeling right now with this ordeal and your mother. I can actually feel myself becoming a bit upset with that gnawing feeling in my stomach and the elephant standing on my chest. My sister does not have dementia, she is just a hateful mean b---h who tries to hurt me in every way she can think of. She never got over me being born and says "I will hate you until the day you die!" What made it worse was I was given and took DPOA for Medical and Financial on my mother which stopped said sister from paying her bills with Mom's money.
Now after saying all of this, I have to tell you that if you are doing a good job caring for your Mom then I don't think you really have anything to worry about. I would speak to any and all of her doctors about the false accusations that she has lodged against you and alert them to what has happened and ask each of them to note this and also ask them for advice on what they think you should do to protect yourself in this instance. I might even call APS and ask them the same question. I would rather ask a million people and possibly someone has the right answer or a thought that would help you. Getting something on tape would be great but how long would you have to tape to get the evidence you need?
Nurses, doctors as well as therapists, social workers, teachers, etc. are all mandated reporters that by law are suppose to report incidents of possible abuse. Many doctors who work with dementia patients do not report because they know how these people with diminished mental capacity will say most anything....and usually do.
I think you are okay and can relax but I completely understand your fears! God Bless You and give you Peace!
Can anyone say Big Brother? Unfortunately, it has come to that.
One day social services came to my parent's house (my dad was in his mid 80s, my mom a bit younger). Apparently, my mother said something to a doctor about having to go downstairs to do the laundry. Well, my mother has always hated 'going downstairs to do the laundry!). Anyway, Social Services showed up and wanted to inspect the stairs. The house is over 100 years old and the stairs are steep.
So, while we were sitting at the dining room table, social services recommended the 'fix' and my father just went ballistic and told her to 'get the h*** out of my house'....
She got up and ran like h***.
Anyone who lives in Massachusetts by now knows the problems Department of children and family services is having, i.e., they've lost a child, now presumed dead, and there is a young girl who has been taken away from her parents by Mass General Hospital because they didn't agree with the Tufts Medical Center's plan for treatment. Yes, a fifteen year old girl taken away from her parents for about 15 months now.
I believe government is intruding into our lives way to much, laws are piled upon laws, people are scared, and it's time to STOP!!!!
My mother was placed in a geriatric psyche ward because she went one too many times to the ER with constipation symptoms. The state took over because she had not signed a health care proxy. It took me three out of the five weeks she was in there to get her out. They had her in diapers, on sliding scale insulin, etc., etc. They appointed a lawyer for her to allow the doctors to do ECT! Finally, I'd had it and just told them if they didn't let her out right now, I'd have a lawyer at the door within two minutes. I didn't believe they would let her out, but they did.
I found out that along with her vascular dementia, her blood sugar was way too high as in dangerously high causing more delusional thinking. Once I got that blood sugar down through diet and insulin, she is doing much better. No longer complaining of 'constipation', and back to her 90 year old 'self' which consists of a person who is 90 years old, experiencing 90 year old vascular dementia symptoms.
Do I lose my temper at times? You bet I do. And I think about the day when social services may come to the door because some jackass neighbor thinks it's their business to report me.
Those working in these governmental agencies (governmental!) agencies are book smart, street stupid. Most are young and idealistic, going to save the world until they figure out the government doesn't pay them nearly as much as they are worth because that money is going for other more important things like bridges to nowhere.
Think about that. Where exactly is your taxpayer monies going? Certainly NOT TO THE ELDERLY nor to the children. Meals on Wheels? A joke. As a hospice care worker, I know those meals are filled with salt. I also know most elderly people throw half of them away because anyone who has seen these things knows you can't figure out what you're eating.
When are we going to get good, comprehensive care for the elderly and those in need? Or are only those of us who do care for our parents and our children the targets of social service abuse?
As a reporter, I have had to report situations that I felt were probably not actually abuse. I also reported situations where the abused individual would have had no one else on their side. I was relieved to be a "mandated" reporter, and felt assured that all individuals might get help.
The out come of your latest investigation may end up with you getting some in home assistance, for example in bathing your mom. This would provided in home eyes to support you as well. See an elder attorney to iron out the legal side of your situation.
I worry as well, that if I had to return to work, would I be so far behind in every new change, could I get a decent job? I think having some fixed idea about what your mother's financial status is in connection to yours would help you plan ahead.
I believe that when we feel under attack, we have a tendency to assume the worst. Seek a financial professional about the house, Power of Financial Attorney and whether you need another third party to do that record keeping.
The process is crazy making, but trust in that process. The investigators have seen it all. Good Luck with all of this. Remind yourself that you have done the right things, and no matter what, you will feel honor when you examine the care you have provided.